Post Orgasmic Illness Syndrome (POIS)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6050 on: 15/11/2009 01:31:12 »

exponent, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus more than 400,000 page visits. Not bad for a rare malady!
« Last Edit: 15/11/2009 01:32:57 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6051 on: 15/11/2009 01:39:11 »



exponent, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6052 on: 15/11/2009 13:01:40 »
Has there been any contact from Dr. Waldinger or Dr Schweitzer lately?

I wonder if they would think differently if they knew we were willing to sponsor POIS research personally.
« Last Edit: 15/11/2009 13:24:44 by Limejuice »

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Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6053 on: 15/11/2009 14:18:08 »
Remember Curly of the Three Stooges? He used to say: I AM TRYING TO THINK, BUT NOTHING HAPPENS!!!

Now I believe he was suffering from POIS.

Have a nice Sunday!

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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6054 on: 15/11/2009 18:36:18 »
Dear all,

I kindly urge all POIS sufferers that are active on this forum...and particularly those of you that are living in the US, to seriously bring up this matter to the MEDIA. We have all been speculating going & back forth and turning in circles and back to spirals into vicious circles. Some of us claim to be cured others not....some believe some don't...all that while unfortunately most of us are not even specialists!!....Well yes brain storming, sharing ideas & experiences, and speaking out are all healthy at times....but I think it's time to call it game over,,,,before our lives are over!!

I was thinking someone who has a decent amount of charisma ( i do not ) might throw up a  respectable POIS Facebook account, and start friend requesting every damn person in Facebook, especially doctors, med students, psychiatrists, media personnel, etc.

But yes, media personnel email addresses can be found everywhere, maybe we could start a post here for the collection of all those email addresses, then once we have a few hundred each and everyone one of us email them a good form letter detailing POIS (short and to the point, demografx came up with a good one), then for the personal touch at the end each of us add a few lines of how POIS has affected our own life personally.
« Last Edit: 15/11/2009 18:43:04 by Defsync »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6055 on: 15/11/2009 20:44:24 »
Has there been any contact from Dr. Waldinger or Dr Schweitzer lately?

I wonder if they would think differently if they knew we were willing to sponsor POIS research personally.

Limejuice, thank you! I was thinking about this, but honestly wonder if they are the best bet for us. They have not been responsive to date. This is not necessarily disparaging because they have other priorities. But we have also come a long way since their 2002 study of two (2) POIS patients. We now have over 300 POIS sufferer's cases reported and summarized by B_Jim.

Perhaps we should all think first what qualifications do we really want? I think we should all decide that quickly so we can agree who to approach.

I am all for approaching Waldinger and Schweitzer if we give that a little thought. Limejuice, if you still think I should send out preliminary feelers right now, let me know, it can't hurt. I'll be glad to tell them we're considering a few candidates. Let me know and again, many thanks for bringing them up!
« Last Edit: 16/11/2009 21:40:53 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6056 on: 15/11/2009 21:12:46 »

...email them a good form letter detailing POIS (short and to the point, demografx came up with a good one)


It was mostly Counterpoints' words. Martin also contributed.

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Offline Coreman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6057 on: 15/11/2009 21:39:39 »
I'd like to greet all the fellows, and sum up my last 6 months (me, myself, and my POIS  [;D]):

My present regime (based on an evening O, 2 times a week):

Right after:
-Relora, 750 mg (Cortisol)
-Valerian (GABA)
-Klonopin (0,25 mg, GABA again) - Benzo...
-Calcium-Magnesium caps (600/300 mg)

In the morning:
-1500 mg Tribulus
-Klonopin (0,25 mg, GABA) - Benzo...
-St John's Wort tea per 2 hrs, during the day
-Chocolate (craving for sugar/choc...)

This is my best practice. It may sound weird, but i don't care, it makes me feel much better.

Which is for what:
-No Tribulus - little motivation
-No Klonopin (or considering the past without that) - strong    anxiety blocks my thinking
-No St'John's or Chocholate: having bad mood, feeling small, being irritable, having strong brain fog..

As you can see, this pile o' drugs are for the GABA, Serotonine and Dopamine systems. My method is experimenting, testing - which helps, what sucks.

Interestingly, in contrast to others, refined sugar helps me (it makes my mind clear) (aware of its "health benefits")
 
More interestingly, if i miss Tribulus, sexually I feel like I was 10 years' old, without any sexual orientation..., feeling completely empty.. (? -Testo imbalance... surely)

Thanks for listening. Nice, isn't it?!

Good night

Coreman
 

P.S: Demografx: happy to hear you feel much better, you really deserve it!

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Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6058 on: 16/11/2009 13:56:13 »
I just read the POIS research study from 2002 by Waldinger and Schweitzer.

Thank you Demografx for sending it. I appreciate all the great work you do for us.

This "study" really is just a very basic starting point. At least they offer a clear statement: "POIS typically is a postsexual disorder, suggesting that a factor associated with ejaculation or orgasm serves as a trigger for the induction of a cascade of biological reactions." But that's about it! The complaints are just reframed in medical words.

I think the sentence that caught my attention the most just because it resonates so clearly with me is "He remarked that one ejaculation made him more tired and ill than walking that many kilometers." How sadly true! When I am "out-of-POIS" I swim, bicycle, cross-country ski, hike, etc. and it feels just great. But then one single ejaculation makes me drag my body for a week or more as if I had run 2 marathons during the same day. But not even quite like that - it is more like a mental, emotional, life energy emptiness. It is way beyond just tired. Or even beyond exhaustion. It feels more like dying inside. Very creepy in fact. Fortunately, like a mythical phoenix, I come back to life after 7 to 9 days. That is the only positive thing about this disorder.

A quick question: I have noticed that the surface my tongue becomes whitish (not candida like) on POIS day 2-3-4-5 and then it clears up. Do you have the same observation? Although a seemingly small symptom it could actually mean a lot if it is a common observation.

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6059 on: 16/11/2009 16:17:44 »
Thanks Demo.  I trust your intuition.

Defsync, I agree.  I agree with everyone about media publicity.  I also think Craigslist is another avenue.

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Offline Dean93

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6060 on: 16/11/2009 20:21:31 »
Even though most everyone here has either memorized the tinyurl, or has gotten used to searching "post orgasmic illness syndrome" in google when they want to get to the forum, I made another, just because it's easier.

tinyurl . com / poisforum

An one for the website as well:

tinyurl . com / poiswebsite

(take out spaces)
« Last Edit: 16/11/2009 20:24:07 by Dean93 »

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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6061 on: 16/11/2009 20:30:33 »
I don't know about you guys....but I am today 30 and POIS has already eaten up 6 years of my life.....the saddest thing however is that with all modesty, I believe that I am a guy with great potential and great natural gifts from God,,,,only out of 100 I am only able to use 20% of my potentials thx to POIS! And Iam sure that many of you guys are like me,,,,
 So I think u got the message my professional life is getting wasted (Currently unemployed, I actually fear employment now), my marital life is getting wasted (No wife, not even a possible prospect), my social life is getting wasted (No friends, don't ask), and even my Dog has been starting to stare at me in weird manners lately (No pets?)...I feel he's trying to tell me sometimes....: WHAT THE HECK IS WRONG WITH YOU MASTER?  I wish I could tell him....but Iam too tired, exhausted and depleted too try translating to him.....well that's the bad news....

The good news is that hope is the oxygen of life.....assuming an individual has a life of 70 years on average,,,,I still have 40 years in front of me if God is willing to make me live that long,,,,,,,,and guess what? There is even more! I have just declared WAR on POIS!!! And I shall not rest and as long as Iam alive till POIS is defeated....and shall do everything within my God giving powers and abilities to defeat it,,,,and I give you my word!

....and never mind the irony...i just thought that posting this message on this forum will perhaps make me feel better by speaking out and mostly making you guys witnesses to my commitment to not give up!,,, Thx again for listening...Peace.

.... & Good night.
« Last Edit: 16/11/2009 20:41:56 by Z_one »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6062 on: 16/11/2009 20:51:38 »
Coreman, thanks for the happy reporting! And for the good wishes!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6063 on: 16/11/2009 20:54:48 »
Pablo, thanks for a teriffic POIS description! "Dying inside" rings so true!!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6064 on: 16/11/2009 20:56:15 »
Thanks for the confidence, Limejuice!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6065 on: 16/11/2009 20:58:02 »
Dean, that's teriffic! Thank you for creating the easy links!
« Last Edit: 16/11/2009 21:38:34 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6066 on: 16/11/2009 21:10:41 »
Z_one, Happy Birthday! And congratulations on declaring War on POIS!!! That alone helped me enormously. I did give up a number of times (30+ years of POIS!), but I always renewed the fight. This is an exciting time. The POIS Beast is now out in the open, we have the forum, and neurochemical advances are here to stay. Keep fighting!

                       
« Last Edit: 16/11/2009 21:37:07 by demografx »

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6067 on: 17/11/2009 01:47:51 »
i have just started to apply for nurse practitioners programs, if i get into grad school i will have many more tools and connections to fight pois with.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6068 on: 17/11/2009 04:00:20 »
Laurac, that's teriffic! Don't forget your struggling friends here : - )

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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6069 on: 17/11/2009 05:31:17 »
Thx Demo...Even though it's not my birthday today,,,,I was simply was pointing out at my age as I wrote...but has been noted..... :-)

Anyhow.....we don't know what we would have done without you and this forum ,,,,so thx again for all your efforts..

Kind regards,
« Last Edit: 17/11/2009 05:43:54 by Z_one »

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Offline pauliebaby61

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6070 on: 17/11/2009 05:33:16 »
Just read a very interesting piece that describes what happens to our bodies when we O. This may be a hugh break in solving POIS:
When you ejac with O, the serotonin level in your brain (hypothalamus) temporarily shoots up, so you feel relaxed for a few seconds or minutes, followed by fatigue and exhaustion if the precursors (neurochemicals) of serotonin, acetylcholine and dopamine in the brain are insufficient for the continuous production of acetylcholine, dopamine and serotonin. If you have enough neurochemicals for a continuous boost of acetylcholine, dopamine and serotonin production after ejac, you can re-erect your P for the 2nd round of lovemaking. And therefore, you will last much longer in your 2nd round due to a high-level of serotonin in the brain's hypothalamus. However, if your neurochemicals are insufficient, you will feel exhausted, tired and sleepy minutes after ejaculating due to the rapid post-O/ejac drop of the neurotransmitters. If you repeat ejac before the neurochemicals are synthesized for your brain and nerves, your brain/nerves will lose their abilities to peak the acetylcholine, dopamine and serotonin levels up after each ejac or O. Eventually, you will experience sexual exhaustion in less than a month. The adrenal function goes dim due to a weak acetylcholine and parasympathetic nervous functions. The thyroid and testicular functions are slowed down by a weak dopamine nervous function. You will become depressed and cannot stand stress.
website is: http://www.herballove.com/article.asp?art=171
This would seem to explain why we feel fatigued, depressed, cannot handle stress and have low testosterone levels.And, why POIS slowly goes away over a period of days or weeks[as these levels slowly reurn to a 'normal range', only to be depleted at the next O.
 The good news, if this is accurate, is that all theses neurotransmitters can be increased by pills or suppliments
I am calling my doctor about this. I would urge all of you to do the same. Maybe, together, we can finally crack this case and end all this misery!

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6071 on: 17/11/2009 05:39:37 »
I have an appointment with a neurologist this wed. for a possible mri, I'm thinking about pre-"O"-ing but I really don't feel like going through that whole cycle again.  Every time Im in POIS my work production is down, so in college I am baasically useless during that time.
A quick question: I have noticed that the surface my tongue becomes whitish (not candida like) on POIS day 2-3-4-5 and then it clears up. Do you have the same observation? Although a seemingly small symptom it could actually mean a lot if it is a common observation.

Especially in the mornings I wake up with this all the time now, It never used to be this bad... Yet again I don't know if it is candida but many people do have it.  I showed my mom and she showed me that she also had it.
I don't know about you guys....but I am today 30 and POIS has already eaten up 6 years of my life.....the saddest thing however is that with all modesty, I believe that I am a guy with great potential and great natural gifts from God,,,,only out of 100 I am only able to use 20% of my potentials thx to POIS! And Iam sure that many of you guys are like me,,,,
 So I think u got the message my professional life is getting wasted (Currently unemployed, I actually fear employment now), my marital life is getting wasted (No wife, not even a possible prospect), my social life is getting wasted (No friends, don't ask), and even my Dog has been starting to stare at me in weird manners lately (No pets?)...I feel he's trying to tell me sometimes....: WHAT THE HECK IS WRONG WITH YOU MASTER?  I wish I could tell him....but Iam too tired, exhausted and depleted too try translating to him.....well that's the bad news....



I feel the same way, like people are looking at me like I have done something wrong, like the world doesn't orgasm and if you do people hate you...( like the world doesnt masturbate [:o]...) haha sounds crazy but I usually say to myself that once I "O", I will be hated that day and the day after, (maybe something psychological that I am trying to place restrictions on my O, but idk),  this whole POIS thing is turning into a mental battle and sometimes I do feel like I am losing my mind.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6072 on: 17/11/2009 05:43:58 »
Just read a very interesting piece that describes what happens to our bodies when we O. This may be a hugh break in solving POIS:
When you ejac with O, the serotonin level in your brain (hypothalamus) temporarily shoots up, so you feel relaxed for a few seconds or minutes, followed by fatigue and exhaustion if the precursors (neurochemicals) of serotonin, acetylcholine and dopamine in the brain are insufficient for the continuous production of acetylcholine, dopamine and serotonin. If you have enough neurochemicals for a continuous boost of acetylcholine, dopamine and serotonin production after ejac, you can re-erect your P for the 2nd round of lovemaking. And therefore, you will last much longer in your 2nd round due to a high-level of serotonin in the brain's hypothalamus. However, if your neurochemicals are insufficient, you will feel exhausted, tired and sleepy minutes after ejaculating due to the rapid post-O/ejac drop of the neurotransmitters. If you repeat ejac before the neurochemicals are synthesized for your brain and nerves, your brain/nerves will lose their abilities to peak the acetylcholine, dopamine and serotonin levels up after each ejac or O. Eventually, you will experience sexual exhaustion in less than a month. The adrenal function goes dim due to a weak acetylcholine and parasympathetic nervous functions. The thyroid and testicular functions are slowed down by a weak dopamine nervous function. You will become depressed and cannot stand stress.
website is: http://www.herballove.com/article.asp?art=171
This would seem to explain why we feel fatigued, depressed, cannot handle stress and have low testosterone levels.And, why POIS slowly goes away over a period of days or weeks[as these levels slowly reurn to a 'normal range', only to be depleted at the next O.
 The good news, if this is accurate, is that all theses neurotransmitters can be increased by pills or suppliments
I am calling my doctor about this. I would urge all of you to do the same. Maybe, together, we can finally crack this case and end all this misery!
I definitely think POIS has something to do with neurotransmitters...My parents ordered LUCIDAL for me, and it is yet to get here.  I will post back once it does get here and I test it out.

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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6073 on: 17/11/2009 06:38:39 »
Just read a very interesting piece that describes what happens to our bodies when we O. This may be a hugh break in solving POIS:
When you ejac with O, the serotonin level in your brain (hypothalamus) temporarily shoots up, so you feel relaxed for a few seconds or minutes, followed by fatigue and exhaustion if the precursors (neurochemicals) of serotonin, acetylcholine and dopamine in the brain are insufficient for the continuous production of acetylcholine, dopamine and serotonin. If you have enough neurochemicals for a continuous boost of acetylcholine, dopamine and serotonin production after ejac, you can re-erect your P for the 2nd round of lovemaking. And therefore, you will last much longer in your 2nd round due to a high-level of serotonin in the brain's hypothalamus. However, if your neurochemicals are insufficient, you will feel exhausted, tired and sleepy minutes after ejaculating due to the rapid post-O/ejac drop of the neurotransmitters. If you repeat ejac before the neurochemicals are synthesized for your brain and nerves, your brain/nerves will lose their abilities to peak the acetylcholine, dopamine and serotonin levels up after each ejac or O. Eventually, you will experience sexual exhaustion in less than a month. The adrenal function goes dim due to a weak acetylcholine and parasympathetic nervous functions. The thyroid and testicular functions are slowed down by a weak dopamine nervous function. You will become depressed and cannot stand stress.
website is: http://www.herballove.com/article.asp?art=171
This would seem to explain why we feel fatigued, depressed, cannot handle stress and have low testosterone levels.And, why POIS slowly goes away over a period of days or weeks[as these levels slowly reurn to a 'normal range', only to be depleted at the next O.
 The good news, if this is accurate, is that all theses neurotransmitters can be increased by pills or suppliments
I am calling my doctor about this. I would urge all of you to do the same. Maybe, together, we can finally crack this case and end all this misery!

Interesting article....by the way...has anyone tried any of the Herbalove products ?
I haven't to date, even though the brand has become very popular around the world.,,,though I am still skeptical in what regards their safety.....I'll re-check their website as to check the kind of ingredients and blends they use....also most of their products are designed for sexual exhaustion....and one thing is sure...POIS definitely encompasses sexual exhaustion ! As such I believe it would be worth it to carefully examine their theories....

I definitely think POIS has something to do with neurotransmitters...My parents ordered LUCIDAL for me, and it is yet to get here.  I will post back once it does get here and I test it out.

I agree.
« Last Edit: 17/11/2009 06:41:04 by Z_one »

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Offline pauliebaby61

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6074 on: 17/11/2009 16:17:56 »
I am seeing my doctor on thursday, hopefully to talk him into giving me whatever is needed to raise the neurotransmitter levels. I will keep you guys posted as to his opinion/remedy.
I cant speak for all pois sufferers, but the article i posted previously describes exactly what i deal with, everytime I O. This has to be the problem, for me anyway.It makes so much sense now. I finally understand what is happening and why. Now lets see if my doc can reverse it. Keep me in your prayers guys!

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6075 on: 17/11/2009 16:28:22 »

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Offline tazzy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6076 on: 17/11/2009 21:21:24 »
Hi guys, I've been on "Relora" or "Restoria calm" for us down here in the southern hemisphere, for about one week now and I have to say the results are quite mind blowing. In my use of this anxiety drug I have found that with no orgasm and one tab a day I am very different! I'm different in a very positive way such as:
. reduced paranoia
. reduction of anxiety and there for greater calmness to relax and make jokes, hold conversation, think clearly, increased feelings and empathy toward others, better interpersonal skills.
. I feel like I'm a completely different person!
. My relationship with my wife has hit a high

Last night I made love to my wife for the first time in 4 weeks and it felt almost as special as our wedding night!

But unfortunately I am experiencing some bad POIS now as this is my first trial with the new drug and having sex.
Although while I'm feeling sick from the orgasms I think the brain fog and anxiety are significantly lower than normal! I believe that Relora or Restoria clam are very effective in helping us!   

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Offline tazzy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6077 on: 17/11/2009 21:34:36 »
Thanks Paulie for that break down of chemical reactions when we "O"
I will definitly be looking into that further! It makes a lot of sense as the anti anxiety drug relora/restora calm is making a world of difference for me.
 

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6078 on: 17/11/2009 22:52:04 »
Pauliebaby,

Quote
I am seeing my doctor on thursday, hopefully to talk him into giving me whatever is needed to raise the neurotransmitter levels. I will keep you guys posted as to his opinion/remedy.
I cant speak for all pois sufferers, but the article i posted previously describes exactly what i deal with, everytime I O. This has to be the problem, for me anyway.It makes so much sense now. I finally understand what is happening and why. Now lets see if my doc can reverse it. Keep me in your prayers guys!

I bet he will advise SSRIs, and to that I say beware!

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Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6079 on: 17/11/2009 22:54:47 »
A question to all...

It may have been covered already but I did not see it through the hundreds of messages I read on the forum.

After orgasm, normally one feels like sleeping or relaxing. In my case almost all the time it is the opposite: my mind is racing at high speed as if I had been drinking strong coffee. That happens whether I have intercourse or with masturbation and also with NE.

Is it the same for you? Would that be part of the syndrome?  That kind of "wrong" adrenal response to orgasm could explain partly the exhaustion later.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6080 on: 17/11/2009 23:00:17 »

Pauliebaby,

Quote
I am seeing my doctor on thursday, hopefully to talk him into giving me whatever is needed to raise the neurotransmitter levels. I will keep you guys posted as to his opinion/remedy.
I cant speak for all pois sufferers, but the article i posted previously describes exactly what i deal with, everytime I O. This has to be the problem, for me anyway.It makes so much sense now. I finally understand what is happening and why. Now lets see if my doc can reverse it. Keep me in your prayers guys!

I bet he will advise SSRIs, and to that I say beware!


I agree with John.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6081 on: 17/11/2009 23:20:24 »

Just read a very interesting piece that describes what happens to our bodies when we O. This may be a huge break in solving POIS:

"When you ejac with O, the serotonin level in your brain (hypothalamus) temporarily shoots up.......You will become depressed and cannot stand stress."

website is: http://www.herballove.com/article.asp?art=171

This would seem to explain...this misery!


I would be extremely skeptical about an "objective" article from any company that sells products to "remedy" what their articles write about.

Check their reputation, such as with Complaints Board, and other reviews. I think I have also seen concerns posted here.

Please be VERY careful. With the "information" and with the products.
« Last Edit: 18/11/2009 01:45:33 by demografx »

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Offline demografx

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6083 on: 17/11/2009 23:33:26 »

My parents ordered LUCIDAL for me, and it is yet to get here.  I will post back once it does get here and I test it out.


There are some alarming posts on the internet. Search "Lucidal scam" or "Lucidal fraud".

I am not knowledgeable about the product, but when I see a lot of smoke, I get concerned about fire.

I just don't want to see anyone getting hurt by not having all the information, good and bad.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6084 on: 17/11/2009 23:35:47 »

A question to all...

It may have been covered already but I did not see it through the hundreds of messages I read on the forum.

After orgasm, normally one feels like sleeping or relaxing. In my case almost all the time it is the opposite: my mind is racing at high speed as if I had been drinking strong coffee. That happens whether I have intercourse or with masturbation and also with NE.

Is it the same for you? Would that be part of the syndrome?  That kind of "wrong" adrenal response to orgasm could explain partly the exhaustion later.


Pablo, you're right. Search through some of the recent discussions and you'll find similarities.

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Offline ophicus1213

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6085 on: 18/11/2009 00:28:56 »
Do not waste your money on any of the herbal love products.  They were the first I found, that said anything about POIS.  Dr. Lin's writing was so informative, and I assumed his products would cure me.  I spent months on them with little or no change.  There is probably no one out there that writes as much as he does about the subject.  It is terrible that Herballove steals money from people who are just looking for relief.  They could at least help the subject gain populartiy, and conduct significant research.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6086 on: 18/11/2009 00:41:13 »
Quote
Do not waste your money on any of the herbal love products.
Ditto

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6087 on: 18/11/2009 01:19:24 »

Do not waste your money on any of the herbal love products.  They were the first I found, that said anything about POIS.  Dr. Lin's writing was so informative, and I assumed his products would cure me.  I spent months on them with little or no change.  There is probably no one out there that writes as much as he does about the subject.  It is terrible that Herballove steals money from people who are just looking for relief.  They could at least help the subject gain popularity, and conduct significant research.



Quote
Do not waste your money on any of the herbal love products.

Ditto


Thank you, ophicus and John!

I have never heard good things about them. Unfortunately, the following is more typical of what I've heard.

From a Taoist Discussion Board:
"Dr. Lin is an online quack whose doctorate is in engineering, and I don't believe has been trained in TCM. He's taking a few techniques from TCM and Mantak Chia, thrown them up on a confusing series of websites, managed to get high up on search engine ratings, and he makes a killing ripping people off with overpriced herbal concoctions to treat various ailments, particularly sex-related ones.. His "medical advice" is sometimes harmful."
« Last Edit: 18/11/2009 01:26:55 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6088 on: 18/11/2009 01:39:18 »
tazzy, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus nearly 500,000 page visits. Not bad for a rare malady!
« Last Edit: 18/11/2009 01:51:52 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6089 on: 18/11/2009 01:40:30 »



tazzy, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6090 on: 18/11/2009 02:51:57 »
John, Demo, Ophicus thanks for mentioning all this. According to members who posted here, SSRIs were not effective to cure POIS, but they were helpful to lower sexual frequency for some people, not all.

SSRIs,SNRIs,NDRI were not helpful to cure POIS. But I was wondering if NRIs had been tested, just in case POIS sufferers have problem with noradrenaline only, and if playing with dopamine or serotonin is bad for us.
Did someone try a NRI to cure POIS ?
Not easy to find myself in only one NT of this list:
http://wiki.answers.com/Q/List_all_the_essential_neurotransmitters


Pablo, for me definitely a racing mind after NEs. Less with orgasm. But in POIS if I'm stressed, or if I'm too active before going to sleep, or if I drink coffee I'll have an awful time with this problem.
« Last Edit: 18/11/2009 14:12:18 by martin88 »

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6091 on: 18/11/2009 05:24:38 »
On dr.lin, stay away from does product if you dont want to loose your precesious testicles.  I used his product first and got little result contaminated with side effects.  The pills didnt do squat and if it supposedly contained dhea, i think there was to much in it and has affected my testicle size, or something else did. The gingseng stuff helped for like two days, but that was about it.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6092 on: 18/11/2009 05:32:07 »
"I have an appointment with a neurologist this wed. for a possible mri, I'm thinking about pre-"O"-ing but I really don't feel like going through that whole cycle again.  Every time 'Im in POIS my work production is down, so in college I am baasically useless during that time."

Z one, i will go "drained" just to make sure.


I am going to psychiatrist to get cognition/concentration and i am going "drained"m hopefully without delibrate actions to fail, i do bad on that test and may be we can have one more proof to fight with.

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Offline pauliebaby61

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6093 on: 18/11/2009 05:47:46 »
Thank you all for the replies to my post about Dr lins theories. I am taking Dr lins theories and running them by my Dr, who is very well versed in this subject, and the workings of hormones and brain. I want to find out if this is actually the dominoes that fall after O, and if so, what can be done about it in his opinion, since this mimics my symptoms exactly. I do not expect SSRI's, because my Dr isnt big on meds unless medically a necessity.He is a rare find and not your typical pill pusher.
I also am skeptical of a company that describes a problem and sells products. I never planned on buying any product from this website, and would discourage anyone from doing so. I read the ingredients of one product and it amounted to just a multi vitamin.
My whole purpose in making the original post re Dr Lin was to understand what actually happens to our bodies at the time of O.
I dont believe, to date,that anyone has ever described what happens to our bodies at the moment of O on this website, and I thought the info, if accurate, could help everyone understand what is going on in their bodies, and could possibly give a clue as to how to correct this issue. I am taking this info to my Dr on Thursday to see if he feels this is the actual chain of events that leads to POIS. If he verifies this,and testing is ordered, and I am found lacking in any neurotransmitter type, i will make the correction, in the hope that pois can be relieved.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6094 on: 18/11/2009 20:08:26 »

I want to find out if this is actually the dominoes that fall after O



For a reliable look at the neural-physiological correlates of orgasm, I would recommend the text,

The Science of Orgasm: Barry R. Komisaruk, Carlos Beyer-Flores, Beverly Whipple.

Also recommended: the Los Angeles Times article, "Science Of The Orgasm":
http://www.latimes.com/features/health/la-he-orgasm11feb11,0,7227478.story

"Doctor" Lin may have "borrowed" some of his ideas from the above sources, but why not get it "straight from the horse's mouth"?

From medical writers.
« Last Edit: 19/11/2009 01:46:18 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6095 on: 18/11/2009 20:30:06 »

With all due respect to anyone's physician or doctor, the science of orgasm is in it's infancy. You can count the truly knowledgeable on one hand.

One more is Dr Gert Holstege:
http://www.jneurosci.org/cgi/content/full/23/27/9185


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6096 on: 18/11/2009 20:34:07 »

Worth quoting the first sentence from Dr Holstege's abstract cited above:

"Brain mechanisms that control human sexual behavior in general, and ejaculation in particular, are poorly understood."

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6097 on: 18/11/2009 20:42:02 »

Mainstream neurotransmitter testing, according to my endocrinologist, who is a major university research professor with a world-class reputation, is not yet accurate at all. Please be careful.
« Last Edit: 19/11/2009 02:17:16 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6098 on: 19/11/2009 01:58:33 »

Ironically, he ["Dr" Lin]'s the only person very active about post-orgasmic symptoms because he makes money with our problem.I'm fairly pessimistic about chance to find someone to help us.


You're right, money does drive a lot of research, including shoddy research such as his. But if we all fight together, we will have a much better chance.

B_Jim, you were here at the beginning of this forum. Look at how much we have accomplished with no help! We have a social network, a compendium, a website, research interest expressed by Watson, and much more, including your fantastic compilation of theories and treatments!

And you and I have both made very significant progress in our own POIS healing.

And forum members have pledged $4,500! We can hire a researcher today if we want to. It might only be a graduate student in endocrinology, but compare that to 3 years ago!

All that we have accomplished makes finding someone easier. And anyone who wants to make a career in sexual dysfunction should be interested. But it's up to us to proactively seek these people out. With more than just "demo" sending out a letter here and there. We need to mount an aggressive campaign.

Please understand that I agree with you: it's difficult to find someone to help us. I'm simply trying to inject a small dose of positive thinking.  [:)]

« Last Edit: 19/11/2009 02:12:47 by demografx »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6099 on: 19/11/2009 05:17:11 »

Ironically, he ["Dr" Lin]'s the only person very active about post-orgasmic symptoms because he makes money with our problem.I'm fairly pessimistic about chance to find someone to help us.


You're right, money does drive a lot of research, including shoddy research such as his. But if we all fight together, we will have a much better chance.

B_Jim, you were here at the beginning of this forum. Look at how much we have accomplished with no help! We have a social network, a compendium, a website, research interest expressed by Watson, and much more, including your fantastic compilation of theories and treatments!

And you and I have both made very significant progress in our own POIS healing.

And forum members have pledged $4,500! We can hire a researcher today if we want to. It might only be a graduate student in endocrinology, but compare that to 3 years ago!

All that we have accomplished makes finding someone easier. And anyone who wants to make a career in sexual dysfunction should be interested. But it's up to us to proactively seek these people out. With more than just "demo" sending out a letter here and there. We need to mount an aggressive campaign.

Please understand that I agree with you: it's difficult to find someone to help us. I'm simply trying to inject a small dose of positive thinking.  [:)]


I'm glad you're giving your opinion B_Jim. I think you're right it will be very difficult to find someone to help us but little by little I'm confident something will happen. Dr Waldinger made some tests, tried some medications to help POIS sufferers, and wrote a paper saying that it's not psychological. It's not nothing a psychiatrist who say this. If other MDs can make exactly like Dr Waldinger did, the theory will have more credibility and from there maybe some money will be invested in research.

There are many research on anxiety. Perhaps we can tell them that all POIS have a problem with anxiety in POIS only..

Demo, it's difficult to be agressive with POIS. Let's take a break!
:)
« Last Edit: 19/11/2009 14:03:03 by martin88 »