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Quote from: demografx on 26/03/2010 00:49:49For a very long time, I had a huge, 10X higher than average prolactin count caused by Reglan. Since I'm off Reglan, the prolactin count is now normal. The only symptom I had was reduced libido.It's like trying to find a needle in a haystack!! After all this time we're still just moving dust around on the surface.
For a very long time, I had a huge, 10X higher than average prolactin count caused by Reglan. Since I'm off Reglan, the prolactin count is now normal. The only symptom I had was reduced libido.
what the hell il give it a try
Absolutely not a fair assessment! ("moving dust around"). Besides, your comment, directed critically at this forum's inability to find a cure yet, is completely unrelated to the prolactin discussion above.I've had POIS for over 30 years. Nothing remotely close to this "dust" was available. Sure, we don't yet have a universal cure, but take a look at the majority of posts from the 150+ sufferers who have posted here and you'll see a common theme of gratitude for this little community + resources to fight with that we've kept alive for the last 3 years.
Other than a support group, as laymen we can only go so far.
So maybe as a support group, we can still do a lot. Finding outside help has not been a picnic! (Which seems to be common, unfortunately, for rare disorders).Someone here once said that "if we can find a physician who also has POIS, our road to full recovery will be rapid!".
About the ExcelsOK, thanks, it'll probably be a week or so before I've got something presentable anyways. The idea is to show something to stimulate ideas among us. For instance even though it's in a early stage, I'm already seeing things that I hadn't thought about. We all maintain a vague idea of what is happening with our bodies ( and mind ), but when you see it graphically and are taking time to enter information while it's somewhat fresh, you see that it's not just that "I felt bad for five days", you see that it was worse when I ate such and such, and when I took such and such the physical improved and when it's longer or shorter you can see more clearly other influences as to why, etc..Hopefully more of us could see a few graphs and perhaps it might spur ideas as to how they could be enhanced to see more stuff. The idea would be that in a bit, we could eventually create a link to a page where everybody could begin making their own graphs. The results of experiments may be more clear.eg. My (suposed) MSG peak today was a lot shorter than I thought, only two hours.