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imre1: I would use cyproterone only as a very last resort. PLEASE try pretty much every SSRI and dopamine reuptake inhibitor (for a period of at least 3 months) before moving onto cyproterone.
MEDICAL ADVICEEveryone: Unless you are a doctor and the person here is your patient, I really feel it could be dangerous giving any medical advice, especially with POIS. It's a condition that can get desperate and lead to an attitude of "what the heck, I'll try anything". Anyway, there is absolutely no way to safely make an accurate individual diagnosis here just from a person's posting! Even by a physician.
It is good sense to consult the doctor; I also worry that people could try potentially harmful medications out of desperation. But it is useful to suggest medications as possible relief, and to share with others what has or hasn't worked. It's just also worth adding a disclaimer.
I was symptom free at the beginning of this current episode, but 3-5 days later I have experienced symptoms: mentally wiped, dull pain in lower back, a barely perceivable ache in groin area. My current thoughts: my problem (and possibly ours) is due to chronic prostatis. I have been tested for this years ago when I was relentlessly going to doctors looking for a cure. I had my PSA checked, secretion analyzed, semen ananlyzed, had more than one physical and had a camera jammed up my urethra for a look-see. Everything was "normal". But what I'm feeling now is telling me the tests were imperfect. Perhaps it is easier on a swollen prostate when you eat soluble fiber, less pressure against it. This of course would not explain girlwind's situation, but at the moment I am convinced.
Holy M-F Jesus! I had no idea I had Skene's glands and was possibly ejaculating! There's definitely A LOT of information that went missing in my Catholic sex education classes with Sister Marguerite. Thank you, martin88, for enlightening me about this. Who would have thunk it!
Demografx, Were you diagnosed by complaining about POIS symptoms? What test determined it to be prostaitis? What type of antibiotics are you taking? Is it possible that the 75% cure is somewhat due to this vs Levitra?
Yes, demografx, I figured you were the geek with books piled in front of you... Please explain WHY you couldn't stand up?
All this POIS info has become more complex than I could have ever imagined. I've been having a thought... that maybe Icould make a little film about it to post on YouTube. It could be predominantly a written description of the many symptoms associated with POIS, and could include some of more notable ideas, theories, and questions we've come up with on this forum. (Oddly enough I'm hearing it set to the music from an old western...) The clip could finish with a WANTED poster reading: If you know the whereabouts of the answer to the riddle of this condition known as POIS, please let us have it. I see some dramatic piece of old western footage to finish it off with. What do you think? If we appeal to the mainstream, we might get more attention about POIS, more people who have it couldcome forward, and maybe some health professionals who have a clue about how to diagnose it would get involved.... [?]It's a thought.
I think youtube might be dangerous. The community is generally very immature; you're more likely to get ridicule than help. It could also be a big turn off to many stuffed-shirt physicians who could help. I like the spirit of your idea, but I think it would do more harm than good.Edit: To elaborate, I think it might work on some levels, but it would need to be extremely carefully put together. Many would laugh or think it was a joke if there were a youtube video connecting orgasm to these symptoms (with western music) and then asking for feedback. Others would be even less kind.
Demografx: not TMI at all, thanks for sharing. Theory: POIS is caused by lower pelvic inflammation.
Girlwind, I think that just a straightforward talk about it might spread the word a little. For me public speaking is nerveracking enough, I can't imagine broadcasting such a personal story, heck even my name here is a pseudonym. But if you are up to it, it would be a wonderful caring thing to do. I think that anyone with the condition is already using a search engine, and such a video could only increase their chances of finding us. Thats better for us as we have more brainpower working, and better for those out there who are searching and finding nothing as we all probably did for years and years. I say go for it!
To lower copper, they say one has to avoid copper rich foods like chocolate, yeast, mushrooms, soy products, wheat germ and bran, shellfish and organ meats, and to eat more foods rich in zinc such as chicken, turkey, red meats, game meats, and pumpkin seeds.
Just thinking about a dedicated website for POIS. Continue this thread here on TNS of course, but set up some other facilites (blogs, FAQ, RSS, newsletter, research, researchers, doctors, wiki, etc) in a more structured way. Might be easier to keep people informed and attract attention to POIS on the 'social networking' front.Counterpoints : not sure if you've had luck finding somewhere to host your survey; would you consider publishing it on a dedicated site?Any suggestions for a domain name? ( pois.org is already taken )I know a web developer who might be willing to set up a basic site. It might also be possible to cover hosting costs with google adsense.Might need people to volunteer as admins / moderators etc (very light duties I'm guessing).Might need a very small amount of graphic design too (anyone like playing with photoshop)?Everyone, please feel free to say what you think of this.
In the study pregnenolone and DHEA (DHA) levels are increased after masturbation!I think supplementing DHEA is not always the key to the success.I am 40 years old and had in 2004 a hormone test,hours after I masturbated 1-2x/day for 2 weeks.The value DHEA was 305 ug/dl (150-400)!Estradiol was very low, progesterone and STH also!DHT was very very increased! cortisol increased.
the symptoms of CP/CPPS appear to result from an interplay between psychological factors and dysfunction in the immune, neurological and endocrine systems.Theories behind the disease include stress-driven hypothalamic-pituitary-adrenal axis dysfunction and adrenocortical hormone (endocrine) abnormalities, neurogenic inflammation, and myofascial pain syndrome. In the latter two categories, dysregulation of the local nervous system due to past trauma, infection or an anxious disposition and chronic albeit unconscious pelvic tensing lead to inflammation that is mediated by substances released by nerve cells
I have a question about where the name POIS came from--who coined that name? Was it this forum that came up with it?