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Hi All,There are more than a few ways to raise funds for your grant, that will also allow for anonymity.The first one that comes to mind is selling on Ebay -- people will buy almost anything! There would be no need to mention POIS -- you can just sell -- then donate it to your fund.Perhaps a thread on SMF (Daveman??) for fund raising ideas might be helpful. The anonymity makes it all more challenging -- but not impossible. There are several other rare disorders with a major personal element to them. I know that those afflicted would rather not go public with this disorder. Yet the groups have successfully raised the funds. Trimethylaminuria is a perfect example (you'll need to google it). This relatively small group of individuals has done what they set out to do in one year's time. NORD is in the middle of our current research cycle and there they are in there, full force ahead. They will soon be one step closer to finding a treatment (or a cure)! This group does not even have a website or a forum site. You men have TWO forums, with ultra-dedicated moderators!FYI, trimethylaminuria is an intensely personal disorder. I'll send one of my contacts there an email to ask how they raised their funds. If there is something to relay back to you, I definitely will.Think positive -- raising these funds is a 100% realistic goal. :-)
Hasnt doctor waldinger found out medication for it?
interesting Defsync. I found another interesting link off of the one you gave. It's about a condition where a person gets amnesia after sex:http://io9.com/5848936/the-strange-case-of-the-woman-who-lost-her-memory-after-sex
the cure you seek may lay with this research:http://io9.com/5848745/scientists-figure-out-how-to-switch-off-peanut-allergy
(After writing this post and registering I noticed that the forum rules specify no sexual content. I was going to stop, but I did a search and found another post about it. I hope this type of discussion won't be deemed inappropriate.)Hi. I would like to relate my very personal story of an unusual condition that I have been plagued with. Ever since puberty I have had serious problems in the days immediately following ejaculation. My first symptom was acute back pain in the days following, at whatever age it was, perhaps around 14. After a few years it changed to an impaired cognitive condition, which I would describe as definite mental illness, in which thinking becomes very difficult, and it feels horrible in a way that can not be described. I'm sure specific neurotransmitters are depleted or something, but the cause of such a reaction is what I have never been able to understand. This has occurred following both nocturnal emissions and sexual activity. To minimize the problem I am not sexually active and try to avoid nocturnal emissions.John
You're welcome, Habibou!