[Vandemolen3]

Vandemolen3, Are you also taking niacin as a preventive measure or any other remedies during this desensitization process.   

I don't have to take the Niacin before the injection. But because sometimes I have to go back to work I take Niacin just for the 10 or 20% extra relief. And once I had already a cold, but I wanted to do the injections. So I began taking Niacin. I had 2 injections with taking Niacin before the O. Maybe next time before the injection I will not take Niacin to see the effect. Now I take Niacin so I can have 4 O.'s a week and without major symptoms.

[Vandemolen3]

Vandemolen3 -- welcome back! It's really good to see you once again on the forum.

And it's great to hear about your progress. 

Who's your doctor (who is the physician giving you the injections)?  What's his name?
Stef

I am a patient of dr. Waldinger. They asked me not to mention the name of the doctor who does the injections. Because this doctor is very busy. He has 1 POIS-patient every day. But as I said before: I hope that within a few months there will be several hospitals in The Netherlands where they do the desensitization. And then all the Dutch POIS-patients and maybe also a few from abroad can have the injections.

[Vandemolen3]

Hi all,

I've watched the youtube documentary about the guy who had Pois and undergone a surgery. That indicates the problem is coming from the testicles and/or prostate at the moment (or following) the orgasm.

Anyway, one of my main symptoms, besides the scalp tenderness and mental confusion, is the stomach issue. I think there is some issue with the stomach, which also causes dehydration.

It is impressive that just some seconds/minutes following an orgasm, i can feel my hands getting extremely dry. Is this normal? Could you ask to some non-Pois sufferer if their hands get very dry after having sex?

I also can see my facial skin flushing after having an orgasm (i think this is normal), but afterwards, it gets very dry (this may not be so normal). Maybe is the blood leaving the skin?

But it also could be that Pois does harm to the stomach, and the stomach is the organ which hydrates the body.

Yes my fingers also get dry because of POIS. Especcialy my especially my pointer finger. Sometimes I make my finger wet with my mouth. I have noticed this since I have a smartphone. When I go with my finger over the screen my movements are not so quick.

[demografx]

Vandemolen3 -- welcome back! It's really good to see you once again on the forum.

And it's great to hear about your progress. 

Who's your doctor (who is the physician giving you the injections)?  What's his name?
Stef

They asked me not to mention the name of the doctor who does the injections.

Because this doctor is very busy.

That doesn't make sense.

One reason we want to know is so that we can evaluate his credentials.

To  make our own determination.

Why the secrecy?

[martin88]

Merry Christmas!

All I can say is that I feel much better since I started taking the niacin and the ZMA.
There are 2 other factors I can think of. 1) I never have more than 1 O a week anymore. Too much hassle and I rarely get NE's so that's not a problem for me.

If I have one orgasm a week POIS is becoming unbearable in my case. I can have one orgasm a week but I'll sometimes NEED at least 3 weeks of abstinence to reset "I don't know what".
Other thing I noticed, if I have only one orgasm at a time, the physical fatigue is reduced a lot, while having several consecutive orgasms helps me in a way to forget problems, so I alternate depending of what I need more.

Regarding Niacin and ZMA it can be a complementary effect. An other property of high doses of niacin is to significantly reduce phosphate absorption. I think too much phosphate is causing mineral deficiencies. I don't know if it's related to the niacin success but worth mentioning. There's even a website http://www.phosadd.com saying ADHD is caused by phosphate intoxication but I couldn't find a lot of evidences.

[kurtosis]

Merry Christmas!

Regarding Niacin and ZMA it can be a complementary effect. An other property of high doses of niacin is to significantly reduce phosphate absorption. I think too much phosphate is causing mineral deficiencies. I don't know if it's related to the niacin success but worth mentioning. There's even a website http://www.phosadd.com saying ADHD is caused by phosphate intoxication but I couldn't find a lot of evidences.

That's an interesting theory. Hope to get some tests done to see vit+mineral content of my hair and urine over the next few weeks. Problem is that for the tests to be accurate I'll have to stop taking the supplements. Even then, I often wonder if these things are capable of resetting themselves. For example, did I have a susceptibility to POIS symptoms that was kick started by the chronic gastric poisoning I got when I was younger... this undoubtedly led to mineral deficiencies.
Has anyone else had serious digestive problems that began around the same time as POIS? Anything clinically diagnosed would be even better.
For example, a colonoscopy revealed I had flattened villi which wasn't explained to by my allergic reaction to gluten which was present but not particularly severe. Normally doctors attribute this finding to something like coeliac disease but the gastroenterologist said it wasn't conclusive.  Has anybody else had similar problems?

and by the way
Merry Christmas guys & a pre-emptive Happy New Year. Hopefully 2012 will bring lots of progress for everybody here.

[questforlife]

I have had some success with Niacin although having a rash or a red face can be awkward to explain before sex.

I have some observations of my own.
I have had gastro issues as far as I can remember.  Stomach cramping, strange stomach noises, anxiety where the physical symptoms stem from the stomach.

I have always believed this is where the issue lyes.  Stomach problems get worse after ejaculation.  I also notice my breath feels stale after as well. In fact if I have sex without ejaculation i can still feel a rush to my stomach that seems to to travel down from my throat.

I have been to some the best hospitals in the UK and the one I am seeing at the moment has discovered I have an unusual level of parasites in my stomach.  These are blasto hominis and helicobacter pylori.

A theory is that these parasites can prevent the proper absorption of vitamins and minerals the body. I can confirm I am very low on zinc and vitamins B6, B1 and B2.  Being low on these can cause such complicated array of symptoms that it can quite easily send someone down the wrong path trying to chase a symptom rather than the cause.

When we ejaculate, does the body not have to use vital vitamins, minerals, amino acids to replace what is lost?  What if we are already low on these things?  does this drive us further into deficit?   The time taking for POIS symptoms to disappear, is this not the time taken to replenish and rebalance?

There is also the question of the effect it has on our hormones and what what must be an already compromised immune system.  Surely ejaculation is putting the body under stress where the system is already failing and then needs to replenish, restore and rebalance.

[daveman]

Questforlife,

Interesting find. Could be good to know if any more of us have those parasites in excess.

I'll TRY to post your post on the other site so that the details might be more readily accessible in the future.

[Stef]

The secrecy that your physician is enforcing is unfortunate, Vandemolen.

But it's good to hear that you're having some success.

Vandemolen3 -- welcome back! It's really good to see you once again on the forum.

And it's great to hear about your progress. 

Who's your doctor (who is the physician giving you the injections)?  What's his name?
Stef

I am a patient of dr. Waldinger. They asked me not to mention the name of the doctor who does the injections. Because this doctor is very busy. He has 1 POIS-patient every day. But as I said before: I hope that within a few months there will be several hospitals in The Netherlands where they do the desensitization. And then all the Dutch POIS-patients and maybe also a few from abroad can have the injections.

[demografx]

                                         

[demografx]

Merry Christmas!

Thank you, Martin! Best wishes, and a HEARTY THANK YOU for all the great work you have done for this forum since 2007!

[kurtosis]

I have had some success with Niacin although having a rash or a red face can be awkward to explain before sex.

I have some observations of my own.
I have had gastro issues as far as I can remember.  Stomach cramping, strange stomach noises, anxiety where the physical symptoms stem from the stomach.

I have always believed this is where the issue lyes.  Stomach problems get worse after ejaculation.  I also notice my breath feels stale after as well. In fact if I have sex without ejaculation i can still feel a rush to my stomach that seems to to travel down from my throat.

I have been to some the best hospitals in the UK and the one I am seeing at the moment has discovered I have an unusual level of parasites in my stomach.  These are blasto hominis and helicobacter pylori.

A theory is that these parasites can prevent the proper absorption of vitamins and minerals the body. I can confirm I am very low on zinc and vitamins B6, B1 and B2.  Being low on these can cause such complicated array of symptoms that it can quite easily send someone down the wrong path trying to chase a symptom rather than the cause.

When we ejaculate, does the body not have to use vital vitamins, minerals, amino acids to replace what is lost?  What if we are already low on these things?  does this drive us further into deficit?   The time taking for POIS symptoms to disappear, is this not the time taken to replenish and rebalance?

There is also the question of the effect it has on our hormones and what what must be an already compromised immune system.  Surely ejaculation is putting the body under stress where the system is already failing and then needs to replenish, restore and rebalance.

Merry Christmas guys.
Yes, this all sounds very plausible Questforlife. A high amount of helicobacter pylori isn't something you'd want for all kinds of reasons. Have you had ulcers?

Can you let me know which hospital you're going to in the UK and the name of the test you got? I'd be interested in getting the same thing done. There's little doubt in my mind that much of this is down to mineral and vitamin deficiencies and that aggressively replenishing them post O seems to have an effect. Symptoms are reduced by having a surplus of various minerals in the body to avoid the deficit state. That's my experience anyway.

Unfortunately when I went to the gastroenterologist he didn't really give me much clue as to how to rectify the flattened villi problem. He wasn't convinced it was gluten but recommended I try a gluten free diet, this had no effect except to cost more money and not taste very nice What have you been recommended to control the bacteria in your gut?

[questforlife]

Hi Kurtosis & Merry Christmas

I go to a hospital called Breakspear Medical.  They are fantastic and extremely advanced.  In fact people travel from all over the world to come and see them for various illnesses.

Most illnesses they deal with are allergy and environmental ones which actually covers alot of ground, from autism, adhd, aspergers, chronic fatigue to glandular fever.

I have had extensive testing.  My stomach showed up as the area that potentially housed the driver to my illness.  This particular test was called Microbial Profile by Metametrix.  The doctor has prescribed me with a drug called Nitazoxanide, I have yet to take it.  However I am also taking MSM and biokult to stabilise my stomach friendly bacteria.

As strange as this seems, I have always thought POIS brought on similar many of the symptoms often read about in alot of the allergy and  environmental illnesses Breakspear deal with.  I do not wish to send this forum off track in anyway, but for me i think the solution might be simpler than I once thought even though the symptoms have made it feel so complicated.    I hope for us all, this will be the case for all of us.  Something tells me we are all getting very close to getting to the bottom of this.

[badgerstripe]

I have had some success with Niacin although having a rash or a red face can be awkward to explain before sex.

I have some observations of my own.
I have had gastro issues as far as I can remember.  Stomach cramping, strange stomach noises, anxiety where the physical symptoms stem from the stomach.

I have always believed this is where the issue lyes.  Stomach problems get worse after ejaculation.  I also notice my breath feels stale after as well. In fact if I have sex without ejaculation i can still feel a rush to my stomach that seems to to travel down from my throat.

I have been to some the best hospitals in the UK and the one I am seeing at the moment has discovered I have an unusual level of parasites in my stomach.  These are blasto hominis and helicobacter pylori.

A theory is that these parasites can prevent the proper absorption of vitamins and minerals the body. I can confirm I am very low on zinc and vitamins B6, B1 and B2.  Being low on these can cause such complicated array of symptoms that it can quite easily send someone down the wrong path trying to chase a symptom rather than the cause.

When we ejaculate, does the body not have to use vital vitamins, minerals, amino acids to replace what is lost?  What if we are already low on these things?  does this drive us further into deficit?   The time taking for POIS symptoms to disappear, is this not the time taken to replenish and rebalance?

There is also the question of the effect it has on our hormones and what what must be an already compromised immune system.  Surely ejaculation is putting the body under stress where the system is already failing and then needs to replenish, restore and rebalance.

Merry Christmas guys.
Yes, this all sounds very plausible Questforlife. A high amount of helicobacter pylori isn't something you'd want for all kinds of reasons. Have you had ulcers?

Can you let me know which hospital you're going to in the UK and the name of the test you got? I'd be interested in getting the same thing done. There's little doubt in my mind that much of this is down to mineral and vitamin deficiencies and that aggressively replenishing them post O seems to have an effect. Symptoms are reduced by having a surplus of various minerals in the body to avoid the deficit state. That's my experience anyway.

Unfortunately when I went to the gastroenterologist he didn't really give me much clue as to how to rectify the flattened villi problem. He wasn't convinced it was gluten but recommended I try a gluten free diet, this had no effect except to cost more money and not taste very nice What have you been recommended to control the bacteria in your gut?

I have an allergy to gluten which is not severe enough to be coeliacs. This causes a less severe brief pois-like lethargy and stomach cramps and diarrhoea. I feel much better on a gluten free diet. I have never had a flattened villi test but the gain in weight from being a less than healthy bmi before the gluten-free diet suggests an absorption problem. I can't trace the start pois to stomach problems, I have had giardia but that was only ten years ago, long after pois started.


There is no doubt that zinc supplements have hastened the recovery period from pois but hasn't prevented it. The best results have come from recent use of niacin. Hope everyone had happy holidays.

[Vincent M]

Last night I took 4 benadryl, 1 Claritin, two 100mg pills of niacin( one of which i cut open and took as powder), and 4 keystone light beers. I didn't notice a flush and had an orgasm an hour after the dose then went to bed. Felt great today. Basically no sign of POIS at all except some remaining cognitive slowness, but I feel that I'm closing in on the ideal med combination to start myself on a healing path.

As a side note I also did sublingual self treatment immediately following the orgasm. I ejaculated into a small cup filled with just a bit of water, mixed it with a spoon then held the mixture under my tongue for about 5 min then swallowed it. Had no reaction to the sublingual treatment, but I hope over time if I do it every night that the  treatment may help.

[kurtosis]

There is no doubt that zinc supplements have hastened the recovery period from pois but hasn't prevented it. The best results have come from recent use of niacin. Hope everyone had happy holidays.

They're relatively cheap so I take both. 2 ZMA supps at night and the niacin first thing in the morning to get a good flush. Throw in a high strength multi-vitamin & mineral (I use the Quest one if that isn't breaking forum rules) for all my other vit needs and 4g of Vit C during the day and I feel almost bouncy. Actually, I'm still remembering quite vivid dreams and waking up much happier. And that's in a 7 day period where for various reasons, all of them good , I ended up having 3 O's. So I broke my own rules & still feel good.

[questforlife]

Another thing that might help with retaining a good supply of zinc is keep your copper levels down.  Zinc is obviously very important for men, and semen has high levels of it. Zinc is needed in so many chemical reactions in the body.  We get less off it through our foods these days (may account for why statistically  hormone, infertility, impotence to name a few, are on the rapid increase)

Copper imbalance will cause havoc to us men (and women to some degree), limiting the amount of chocolate, coffee  nuts etc (all high in copper)  will keep copper levels in check and zinc levels balanced.  It like a seesaw effect apparently.

Anyway, I am no doctor, just someone who has a read a lot form different reliable sources.  Check it out for yourselves. 

On the subject of zinc, if you have found one that works well for you then great, however if you have not.  I take ionic zinc which claims high bioavailability through better absorption.

[Defsync]

so my grandfather had Alzheimers stage 2 almost to stage 3.

anyone else here with POIS have a parent or grandparent with Alzheimers as well?

im considering corresponding with some Alzheimers researchers in hopes that they find some interest in the similarity of the effects of my POIS and Alzheimers.

[questforlife]

Another interesting post I found in relation to POIS, or perhaps what some might be calling the sex 'hangover'

It in relation to high Prolactin which can cause alot of the symptoms described on this forum.  Also there is a still a link here what I was writing about earlier with mineral, vitamin deficiencies or imablances.  Certain vitamins B6 (P5P) zinc, vitamin C have been reported to decrease levels of Prolactin according to other sites

Read about it yourself   http://www.reuniting.info/science/prolactin_sex_libido [nofollow]

I dont wish to go off track, but im wondering if there is a link between all of these symptoms and other named disorders.  Its so important we look for the root of the problem and only use symptoms to find patterns. 

[daveman]

Another interesting post I found in relation to POIS, or perhaps what some might be calling the sex 'hangover'

It in relation to high Prolactin which can cause alot of the symptoms described on this forum.  Also there is a still a link here what I was writing about earlier with mineral, vitamin deficiencies or imablances.  Certain vitamins B6 (P5P) zinc, vitamin C have been reported to decrease levels of Prolactin according to other sites

Read about it yourself   http://www.reuniting.info/science/prolactin_sex_libido

I dont wish to go off track, but im wondering if there is a link between all of these symptoms and other named disorders.  Its so important we look for the root of the problem and only use symptoms to find patterns. 

It's very difficult to only use symptoms, because there are a lot of other disorders which share many of the same symptoms.

The biggest difference is that our symptoms are generated by the orgasm. Even then, there are complex interactions with parallel disorders that may (or may not) be borderline. The POIS imbalance can set of an otherwise dormant disorder.

Certain disorders, several of which are even found at reuniting.info are a result of neurotransmitter and or hormonal deficits. POIS however can create similar deficits, but we do not have the same disorder. We have to be careful not to be tempted to resolve POIS by treating other disorders that are similar and that are actually caused by POIS. In our case the apparent "other disorder" will only be resolved by resolving POIS.