[badgerstripe]

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.

[Habibou]

http://poiscenter.com/forums/index.php?topic=98.0

This is where you can post your blood test results ! Everybody should post it if we want to understand some medical disorders

[badgerstripe]

thanks Habibou, have posted there.

[demografx]

http://poiscenter.com/forums/index.php?topic=98.0

This is where you can post your blood test results ! Everybody should post it if we want to understand some medical disorders

Thank you, Habibou.

[kurtosis]

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.

Hi Badgerstrip. Did you get any allergy tests done?

[kurtosis]

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.

Hi Badgerstrip. Did you get any allergy tests done?

That should have been badgerstripe. Almost as funny as my last mistype

[badgerstripe]

No allergy tests yet but i am seeing allergy specialist in relation to POIS at end of month.
Badgerstrip (!)

[daveman]

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.

I´m sorry, all I can say is HOGWASH!

Doesn't fit at ALL. He needs a good dose of POIS to know what we go through. There's a lot more to it than what he is suggesting.

If there is a consequent drop in certain stimulating and "feel good" hormones after orgasm, this is not normal, even if you do tend to rely on sex to relieve anxiety. A normal person, can be "horny" and relieve himself at least once or twice a day and not suffer these kinds of consequences. MAYBE he might come to feel a little weak or "burnt" out. This is NOT AT ALL like POIS.

This man has no idea of what POIS is in my honest opinion. And Yes, what about the physical symptoms?!!


Sorry!!

[demografx]

That was my reaction, too, when I read badgerstripe's post.

I was dismayed with that plus the video. Originally I was very hopeful of his enlightened work in accepting POIS patients, but now?

Sorry with Daveman!!!

[Stef]

Badgerstripe,

The blood tests that Dr. Goldmeier ordered are very basic tests.  So, it isn't surprising that nothing showed up that could potentially point to an immunological problem, a hormonal imbalance, or an inflammatory condition (these are just some examples).

He may be a wonderful psychiatrist -- I have no idea if he is or isn't -- and may even have some worthwhile techniques to offer that could help lower a bit of the stress that POIS induces. But his work-up from a medical standpoint sounds far from complete, especially in a condition as complicated (and, to date, mysterious) as POIS.

Is Dr. Goldmeier a psychiatrist? Does he have any other specialty?

I ask because I'm trying to understand his involvement with POIS and why is he referenced so frequently on this forum.  I've found him on the databases that we use, but could not determine why he's considered by some of the forum members as a POIS expert.  This is not to cast any aspersions -- I really don't know his background.  Input would be appreciated!

(The fact that his office lost your first set of blood tests is not a good sign, just FYI.)

I wish you the best of luck with the allergist that you'll be seeing.  However, keep in mind that POIS might not be an allergy (it might be, but nobody knows yet!).

It's all very frustrating, and I can only imagine what it's like to try to go through a POIS workup without any basic, scientific research having been undertaken.

Best wishes to you!

Stef   

[demografx]

Thank you, Stef! I'm partly to blame for tagging him as a POIS expert. I was impressed with him because he is very rare as a "POIS physician" in that 1) he wrote a POIS paper (only a handful of POIS papers written anywhere) and 2) he showed enthusiasm for seeing POIS patients in London.

I simply was  not aware of his POIS-is-psychosomatic leanings.

Sad to say, Goldmeier is now on my "Doubtful" list : - (

[makrofag]

!!! Feeling good or feeling bad about having and orgasm or using it for anxiety relief has nothing to do with POIS. If the silly Goldmeier theory was true then there would be hundreds of thousands of POIS already documented throughout the human history because of many obvious reasons. Nothing to really do with the psychological aspect of the whole damn thing.

But still... there could be something wrong with the brain - not physically (as people already had brain scans and no anomalies were seen) but maybe something on the more "autonomous" side of things with an interaction with some kind of an unknown and new factor (let's say 1950 - present) that was not present in the past. God knows

[kurtosis]

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS.

Everybody does this. I talked to my psychologist friend about this and he said it's common that guys have O's to relieve stress or tension. In itself, this doesn't appear to be a problem. If it's chronic anxiety and you're having O's every day to relieve it then that's possibly different.

[kurtosis]

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS.

Everybody does this. I talked to my psychologist friend about this and he said it's common that guys have O's to relieve stress or tension. In itself, this doesn't appear to be a problem. If it's chronic anxiety and you're having O's every day to relieve it then that's possibly different.

What I mean is that I do this also and that's why I ended up talking about it. There's nothing to be worried or ashamed of here. And, in any event, the POIS symptoms would cause anxiety even if there was no other reason to be anxious!

[lauracostis]

!!! Feeling good or feeling bad about having and orgasm or using it for anxiety relief has nothing to do with POIS. If the silly Goldmeier theory was true then there would be hundreds of thousands of POIS already documented throughout the human history because of many obvious reasons. Nothing to really do with the psychological aspect of the whole damn thing.

But still... there could be something wrong with the brain - not physically (as people already had brain scans and no anomalies were seen) but maybe something on the more "autonomous" side of things with an interaction with some kind of an unknown and new factor (let's say 1950 - present) that was not present in the past. God knows

The absence of previously documented cases in our case does not suggest that POIS is a new phenomenon.  You may be correct that new external factors in our environment have precipitated this disease, but I think it has more to do with the rarity of the disease and the stigma surrounding it.  I believe the only reason it was first described by doctor Waldinger had to do with the fact that he "luckily had two patients" with the phenomenon and then decided to search for others.  I think if a physician were to encounter just one patient with pois during their career, but could not find another doctor or documentation of the disease listed anywhere, that they would dismiss it as psychosomatic.  Furthermore, doctors who looked into the symptoms may have come to the conclusion that their patient was suffering from Daht syndrome.  Documenting the case as Daht syndrome would there for never arise suspicions of a new disease.  The lack of "visible signs" and "objective data pieces", such as positive lab value and scans makes it real hard for a physician to believe that he is encountering a "real" and "new" disease.

As we know with organizations like NORD, that there are always new rare diseases being discovered.  Having objective abnormal data is the only thing that can solidify these as new diseases.  Knowing the etiology of the disease is not necessary, however what is necessary is showing scientist something concrete that they can all see and agree upon.  Without Waldingers study showing that a majority of POIS patients had positive allergy tests to their own semen, we would not have any objective data.  Whether, these positive semen allergies are relevant or not I don't know, but I do know that NORD would have not considered us as a new disease without them.

[Habibou]

We need a brain Functional MRI  before, while exciting with an O, and during POIS to understand what is wrong with the brain functions.

The past stuctural brain MRI only could show " the pituitary adenoma" some POIS patients got, but nothing more.

When Dr Goldmeier told me I should practice meditation last august, I thought it was a joke...But he made me done the Own semen allergic tests and it was positive (2 cm).
Since, I started a desensibilization but it is hard to know if it helps because I am in Chronical Fatigue state!

[Vincent M]

Has someone tried immune supression?

Yes, I know of one member who has tried an immunosuppressant with no effect on POIS.

[Hoping]

Has someone tried immune supression?

Yes, I know of one member who has tried an immunosuppressant with no effect on POIS.

Correct. After testing positive for a semen allergy, I experimented with 30-45mg of prednisone (an immune system suppressant). I tried taking the medication several hours before O. I also experimented with taking it directly after an O. It didn't help me. Still, I would encourage others to consult their doctors if they're interested in prednisone or a similar drug. It never hurts to have more 'test subjects'

[badgerstripe]

We need a brain Functional MRI  before, while exciting with an O, and during POIS to understand what is wrong with the brain functions.

The past stuctural brain MRI only could show " the pituitary adenoma" some POIS patients got, but nothing more.

When Dr Goldmeier told me I should practice meditation last august, I thought it was a joke...But he made me done the Own semen allergic tests and it was positive (2 cm).
Since, I started a desensibilization but it is hard to know if it helps because I am in Chronical Fatigue state!

oops, that previous empty post was a mistake.

I agree that brain MRI and blood tests before, during and after O would be necessary to detect what is really going on with the brain in relation to POIS. Since i have had just one appointment with Dr Goldmeier I didnt really expect all that quite yet. He has referred me to an allergist which seems to me to be the next step.

[demografx]

The Rutgers Brain (f)MRI people have not followed up. I will check back with them. I just now sent an email to Dr Barry Komisaruk, who has conducted brain fMRI's on women's orgasms (study posted here earlier).