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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17220 on: 29/09/2012 10:33:56 »
Quote from: alphaq on 29/09/2012 07:33:08
Here's some interesting questions/points:

1. Who here's POIS started with masturbation? Was the masturbation excessive? 1+ times a day? The reason for this question is because for one, there is likely to have been one instance of masturbation or sex that triggered or started POIS. After the trigger, something definitely changed within the body and/or brain. If we find what that change was, we can possibly reverse it.

2. There's currently a common theme upon this forum and POISCenter that the cognitive symptoms might be caused by a severe cerebral vasoconstriction for a period of time, and there has been positive results with certain vasodilators it seems.
     - It will be interesting to actually compare a brain blood flow test (TCD) before and after orgasm to confirm if there's actually a significant cerebral vasoconstriction, if so, at least there possibly can be effective ways to treat it
     - What type of bodily response is cerebral vasoconstriction controlled by? (pituitary? auto-immune? inflammatory? etc) It's possible that this particular system that controls this response has a problem, which allows us to see which supplements we can use to try to fix it

I think that the vasoconstriction continues because our body cannot regulate stress hormones. I also believe the same problem occurs with NE/Dopamine balance after an O. POIS is possible some kind of autonomic dysregulation condition whether it's caused by autoimmune disease, hormone synthesis abnormalities or a bunch of other possible causes.
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Offline Jeffrey9

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17221 on: 30/09/2012 01:58:42 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
newbielink:http://feelalike.com/conditions/postorgasmic_illness_syndrome [nonactive]
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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17222 on: 30/09/2012 07:01:05 »

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments. 
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Offline makrofag

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17223 on: 30/09/2012 10:02:18 »
Quote from: nathan123 on 30/09/2012 07:01:05

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments. 

Sorry Nathan but you seem to positively react to too many "supplements" so that points to you enjoying some placebo effect.
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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17224 on: 30/09/2012 10:44:54 »
Quote from: Jeffrey9 on 30/09/2012 01:58:42
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.
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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17225 on: 30/09/2012 10:53:50 »
Quote from: kurtosis on 30/09/2012 10:44:54
Quote from: Jeffrey9 on 30/09/2012 01:58:42
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

I also want to point out that there's a number of comments about "hair loss due to increased testosterone" on this feelalike.com site where there's little or no documented evidence of hair loss by using those supplements. Vitamin C and Ginkgo are not known to promote hair loss. Whoever commented may just be losing hair because of other factors. It's not necessarily POIS nor POIS treatments that are causing that. The same goes for acne.
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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17226 on: 01/10/2012 04:32:43 »
Quote from: kurtosis on 30/09/2012 10:44:54
Quote from: Jeffrey9 on 30/09/2012 01:58:42
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

Feelalike.com is a facebook of sorts for people with different healthcare problems to connect.    The site allows you to share a picture of yourself and information such as city and age, but it doesn't give out email addresses or last names, in order to retain anonymity.  I've been on the site for a while now, and enjoy using it.  Feelalike was actually created by a really smart former POIS forum member (Willem), who cured himself of POIS through sublingual desensitization.  His site is good because it's a)very user-friendly b) more personal c)aggregates data really well, like you saw in that Summary list of treatments page.  Just like with facebook, each person has their own profile page, which includes a list of treatments that work/ don't work for you.  The website then aggregates all that information into the very useful Summary page that ya'll just saw.  So the site is just users chatting to each other and posting their own experiences - which is why nothing about the site is scientific and why you saw incorrect information on testosterone causing hair-loss.  But the goal of the site, besides being a place to connect, is to give everyone a voice, while also aggregating data to provide a view of macro trends across all the members with POIS.  There's only a handful of us on that site, but the more participants that join the more robust that Summary page would be.   
« Last Edit: 01/10/2012 13:58:37 by B_Daniel »
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2-3 days, brain fog, anxiety, dry eyes, lethargy.
 

Offline Jeffrey9

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17227 on: 01/10/2012 04:49:10 »
Quote from: kurtosis on 30/09/2012 10:53:50
Quote from: kurtosis on 30/09/2012 10:44:54
Quote from: Jeffrey9 on 30/09/2012 01:58:42
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
newbielink:http://feelalike.com/conditions/postorgasmic_illness_syndrome [nonactive]

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

I also want to point out that there's a number of comments about "hair loss due to increased testosterone" on this feelalike.com site where there's little or no documented evidence of hair loss by using those supplements. Vitamin C and Ginkgo are not known to promote hair loss. Whoever commented may just be losing hair because of other factors. It's not necessarily POIS nor POIS treatments that are causing that. The same goes for acne.
I hadn't noticed that.  I thought it was interesting to see that brain fog is the most common symptom (seems like a small sample).  Reading through this forum it seems like people spend a lot of time talking about treatments, and that seems to be the focus of this feelalike.com site. 
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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17228 on: 01/10/2012 20:34:09 »
Quote from: Jeffrey9 on 01/10/2012 04:49:10
Quote from: kurtosis on 30/09/2012 10:53:50
Quote from: kurtosis on 30/09/2012 10:44:54
Quote from: Jeffrey9 on 30/09/2012 01:58:42
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

I also want to point out that there's a number of comments about "hair loss due to increased testosterone" on this feelalike.com site where there's little or no documented evidence of hair loss by using those supplements. Vitamin C and Ginkgo are not known to promote hair loss. Whoever commented may just be losing hair because of other factors. It's not necessarily POIS nor POIS treatments that are causing that. The same goes for acne.
I hadn't noticed that.  I thought it was interesting to see that brain fog is the most common symptom (seems like a small sample).  Reading through this forum it seems like people spend a lot of time talking about treatments, and that seems to be the focus of this feelalike.com site. 


I wont say brain fog is the most common, there are other symptoms we all share. Brain fog gets the most emphasis because it makes most damage on our everyday life.
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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17229 on: 02/10/2012 06:49:22 »
Quote from: makrofag on 30/09/2012 10:02:18
Quote from: nathan123 on 30/09/2012 07:01:05

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments. 

Sorry Nathan but you seem to positively react to too many "supplements" so that points to you enjoying some placebo effect.

Hi, initially few of my supplements i have tried its not worked for fewer days.  But this Herbal life diet has changed my life.  I am only not believing that I am out of POIS now. Yesterday I had four O's and there was no symptoms of POIS.  Today morning I had little bit headche, but after sleeping for 2 more hours, it also gone.   

Now I am enjoying happiest moment in my life after 7 years without any problems.  Believe me friends. Its true.  Its true.  I am out of POIS due to herbal life. 

Herbal life products essential designed to reduce carbo hydrates and fibres and it is one of the diet product.   I don't know how it is helping me to cure POIS.  But its true.  Pl try it.  You will get the result in just 7 days. 

Finally thanks god for curing my POIS. 

I also thanks to this forum.  Upto last 6 years, I thought my problem is psychological one and from 8 months by browsing this forum, I came to know that it is related to o.  From last 8 months, by inspiring from treatement innovated in this forum.  I started taking / trying many supplements / medicine.  Finally I got herbal life product and now I am totally free.  Just go to website of herballife.com and see the how it scientifically works. 

Pl try.  Its real, real.  Try it.


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Offline RD

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17230 on: 02/10/2012 08:45:37 »
Quote from: nathan123 on 30/09/2012 07:01:05
...  I am taking following products of Herbal life ...

horrible-life herbal-life has a poor reputation on WOT ... https://www.mywot.com/en/scorecard/herbalife.co.uk
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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17231 on: 02/10/2012 09:33:10 »
Quote from: B_Daniel on 01/10/2012 04:32:43
Quote from: kurtosis on 30/09/2012 10:44:54
Quote from: Jeffrey9 on 30/09/2012 01:58:42
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

Feelalike.com is a facebook of sorts for people with different healthcare problems to connect.    The site allows you to share a picture of yourself and information such as city and age, but it doesn't give out email addresses or last names, in order to retain anonymity.  I've been on the site for a while now, and enjoy using it.  Feelalike was actually created by a really smart former POIS forum member (Willem), who cured himself of POIS through sublingual desensitization.  His site is good because it's a)very user-friendly b) more personal c)aggregates data really well, like you saw in that Summary list of treatments page.  Just like with facebook, each person has their own profile page, which includes a list of treatments that work/ don't work for you.  The website then aggregates all that information into the very useful Summary page that ya'll just saw.  So the site is just users chatting to each other and posting their own experiences - which is why nothing about the site is scientific and why you saw incorrect information on testosterone causing hair-loss.  But the goal of the site, besides being a place to connect, is to give everyone a voice, while also aggregating data to provide a view of macro trends across all the members with POIS.  There's only a handful of us on that site, but the more participants that join the more robust that Summary page would be.   

Hi All it's been a while since I've posted.... so this seems to be a good place to jump in!

We're a POIS community of 400 or so. We can go where we want, share our data, compare ourselves to other illnesses, make lists and even run them through databases. There just so much that can be done!

Some of the sites are more "user friendly" perhaps, others are more technical or "scientific", a little of everything! Unfortunately, where want want to go, where we Like to go, is not always the best thing for us, we see that every time we masturbate. LOL

Anyways. Let's just suppose that we, somewhere here in this ever more diversifying community, compile, and sort, and use science and logic, developing theories and discarding bad ideas, find something that works..... MAYBE even a cure!?? WOW, we're home free!! Eventually the cure MAY trickle down to the straggling few who picked the wrong forum.

At least 400 will be cured. 400. Here they can tell you how hard it is to acquire Google visibility. I can vouch for this. Yet, how hard has it been for each of us to find one of our sites? Most have worked for a couple of years at least to find a POIS home. So how many other POIS sufferers are there out there? A hand full at the site mentioned above or even the 400 in our combined forums are just a percentage. Are there 1000, 2000, in it's varying degrees and intensities, I'd say there could be maybe 100,000 POIS sufferers in the world, perhaps a third of those don't have computers.

So my friends, we are helping ourselves. Is that enough? They tell me, NO, we have to get out there we have to let the world know! I wonder what the BIGGEST network of individuals is that can connect ALL the potential POIS patients in the world?

The clue is the word "patient". Patient goes to doctor. As it stands now, we all know that this is not a functional interface for POIS. If we could improve that interface, we could reach many more patients. If we could improve this interface, we bring the treatment to the patient instead of a blank stare or another SSRI.

Wouldn't you love to go to a doctor and say, "Gee doc., after I have sex I fell like crap for a week and a half", and have him say, "Ahh OK you have POIS, here take one of these two times a day and call me in 2 wks!" Doesn't that sort of ring a bell somewhere?

HOW DO WE GET THERE? Chatting in a comfy user friendly armchair? Holding private science conferences. They probably make us feel better! All 400 of us. Well ,no. For some, it isn't an issue of being comfortable, and chatting. I mean that's nice and all, and maybe, just maybe, somehow the ideal that leads us to a cure will surface.

But HOW DO WE GET IT TO THE DOCTORS? Some of us have gone in banging the door off the hinges armed with papers and internet links. The doctor thinks to himself, "Oh Gawd, here's another internet doctor... who's the doctor here". But we say, NO, we have to be firm. WE tell THEM what to do.... NOT!

Who tells the doctors what to do? Have we ever asked that? THAT's the system we have to link up to.

Doctors learn how to be doctors in the universities! But they don't really learn about all of the diseases. Just liek other professionals, they are connected to networks of study, and discoveries filter through their industry. Medical research produces papers that get to the doctors through their own internal source. These papers don't often come through the door in the hands of a patient, and if they do, they are not usually recognized as "official". They have to be validated, corroborated, need to be trusted by them and their peers. With all the lawsuits these days, the information has to be clean and sure.

So let's not bark up the wrong tree. I know I grate on a lot of your nerves, always pushing and pestering for research. But it's the ONLY channel to the doctors, the doctors who treat ALL of the people in the world.

Unfortunately it not one of the most pleasurable things to do.
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How does Murphey do it??
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17232 on: 02/10/2012 10:01:03 »
Quote from: nathan123 on 02/10/2012 06:49:22
Quote from: makrofag on 30/09/2012 10:02:18
Quote from: nathan123 on 30/09/2012 07:01:05

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments. 

Sorry Nathan but you seem to positively react to too many "supplements" so that points to you enjoying some placebo effect.

Hi, initially few of my supplements i have tried its not worked for fewer days.  But this Herbal life diet has changed my life.  I am only not believing that I am out of POIS now. Yesterday I had four O's and there was no symptoms of POIS.  Today morning I had little bit headche, but after sleeping for 2 more hours, it also gone.   

Now I am enjoying happiest moment in my life after 7 years without any problems.  Believe me friends. Its true.  Its true.  I am out of POIS due to herbal life. 

Herbal life products essential designed to reduce carbo hydrates and fibres and it is one of the diet product.   I don't know how it is helping me to cure POIS.  But its true.  Pl try it.  You will get the result in just 7 days. 

Finally thanks god for curing my POIS. 

I also thanks to this forum.  Upto last 6 years, I thought my problem is psychological one and from 8 months by browsing this forum, I came to know that it is related to o.  From last 8 months, by inspiring from treatement innovated in this forum.  I started taking / trying many supplements / medicine.  Finally I got herbal life product and now I am totally free.  Just go to website of herballife.com and see the how it scientifically works. 

Pl try.  Its real, real.  Try it.

Interesting. I compared it with the product I take from Cytosport and I can see 2 major differences. 1) the Muscle Milk Naturals product has more protein and is really for bulking up rather than meal replacement. 2) the herbal life product is a more balanced meal but also has added selenium. Apart from that there's little difference between them. They both have whey and some soya protein and they both have added vitamins and minerals.

I'm wondering if the selenium is leading to some improvement as it has been suggested as one part of a treatment for hypothyroidism.
Have a look at http://www.stopthethyroidmadness.com/selenium/
However, Nathan, I think you should take it for a while and see if it's still working. It's basically a meal replacement rather than a psychoactive substance so if it's providing nutrients that you need then I don't see how it can be harmful. Tell us how you're getting on in another 2 weeks.
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Offline Starsky

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17233 on: 02/10/2012 11:05:21 »
Nathan do you still take neem?
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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17234 on: 02/10/2012 16:09:21 »
Quote from: Starsky on 02/10/2012 11:05:21
Nathan do you still take neem?
Quote from: Starsky on 02/10/2012 11:05:21
Nathan do you still take neem?

From the 8 to 9 months, after discovering this forum and know that my problem with o, I am trying the treatments one by one.  As you aware, POIS is a such a kind that, the medicines work initially, but afterwords the same medicine fails to fight against POIS.  Once one medicine stopped working, my habit was to stop that and try new one within 2 or 3 days by asking what medicines my friends / relatives are taking for their diseases.  Same away, I found my friend who was taking Neem for his allergy problem with sea foods.  this neem worked me for approximately 20 days.  I can say, 60 to 70% of my POIS has reduced.  At one time I thought my POIS has cured by this.  But again my POIS has started.  Then I look back to those 20 days to find out whether i have taken any other extra medicine / followed any other different lifesttyle.   
At that time when I am taking Neem, I was gone to outstation for office work.  There due to non-availability of good hotels, I had very light foods and 4 times I had Soya milk.   
So, after Neem failure, I decided to weight management products / diet/ Nutritition products and one of my is taking this for weight management.  he told it provide complete nutrients for the body and any abnormal problem in the body will solve.  In this way, I started to have Herbal life diet program.  I skipped my break fast and I am having this Herbal life food from last 20 to 25 days.  For first days experienced very reduction in POIS symptoms.  In the 10 day, I had large amount of sweets, then suddenly my POIS symtoms has increased, but within 3 hours after taking of herbal life diet breakfast, POIS came down. 
After this on 14th day had 2 o.  say 10 to 15% of my earlier POIS which cleared in next day.  On 16th day had 1 o, POIS symtoms started after 2 hours of o and cleaared within 3 hours.  On 18th or 19th day had three o's .  No POIS symptoms.  Today two more no POIS,  Decided to not to have any o for next week.   Next week will update my results. 

Finally to say, wonderful life after 7 years. 
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Offline Jeffrey9

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17235 on: 02/10/2012 21:34:34 »
Quote from: daveman on 02/10/2012 09:33:10
Quote from: B_Daniel on 01/10/2012 04:32:43
Quote from: kurtosis on 30/09/2012 10:44:54
Quote from: Jeffrey9 on 30/09/2012 01:58:42
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
newbielink:http://feelalike.com/conditions/postorgasmic_illness_syndrome [nonactive]

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

Feelalike.com is a facebook of sorts for people with different healthcare problems to connect.    The site allows you to share a picture of yourself and information such as city and age, but it doesn't give out email addresses or last names, in order to retain anonymity.  I've been on the site for a while now, and enjoy using it.  Feelalike was actually created by a really smart former POIS forum member (Willem), who cured himself of POIS through sublingual desensitization.  His site is good because it's a)very user-friendly b) more personal c)aggregates data really well, like you saw in that Summary list of treatments page.  Just like with facebook, each person has their own profile page, which includes a list of treatments that work/ don't work for you.  The website then aggregates all that information into the very useful Summary page that ya'll just saw.  So the site is just users chatting to each other and posting their own experiences - which is why nothing about the site is scientific and why you saw incorrect information on testosterone causing hair-loss.  But the goal of the site, besides being a place to connect, is to give everyone a voice, while also aggregating data to provide a view of macro trends across all the members with POIS.  There's only a handful of us on that site, but the more participants that join the more robust that Summary page would be.   

Hi All it's been a while since I've posted.... so this seems to be a good place to jump in!

We're a POIS community of 400 or so. We can go where we want, share our data, compare ourselves to other illnesses, make lists and even run them through databases. There just so much that can be done!

Some of the sites are more "user friendly" perhaps, others are more technical or "scientific", a little of everything! Unfortunately, where want want to go, where we Like to go, is not always the best thing for us, we see that every time we masturbate. LOL

Anyways. Let's just suppose that we, somewhere here in this ever more diversifying community, compile, and sort, and use science and logic, developing theories and discarding bad ideas, find something that works..... MAYBE even a cure!?? WOW, we're home free!! Eventually the cure MAY trickle down to the straggling few who picked the wrong forum.

At least 400 will be cured. 400. Here they can tell you how hard it is to acquire Google visibility. I can vouch for this. Yet, how hard has it been for each of us to find one of our sites? Most have worked for a couple of years at least to find a POIS home. So how many other POIS sufferers are there out there? A hand full at the site mentioned above or even the 400 in our combined forums are just a percentage. Are there 1000, 2000, in it's varying degrees and intensities, I'd say there could be maybe 100,000 POIS sufferers in the world, perhaps a third of those don't have computers.

So my friends, we are helping ourselves. Is that enough? They tell me, NO, we have to get out there we have to let the world know! I wonder what the BIGGEST network of individuals is that can connect ALL the potential POIS patients in the world?

The clue is the word "patient". Patient goes to doctor. As it stands now, we all know that this is not a functional interface for POIS. If we could improve that interface, we could reach many more patients. If we could improve this interface, we bring the treatment to the patient instead of a blank stare or another SSRI.

Wouldn't you love to go to a doctor and say, "Gee doc., after I have sex I fell like crap for a week and a half", and have him say, "Ahh OK you have POIS, here take one of these two times a day and call me in 2 wks!" Doesn't that sort of ring a bell somewhere?

HOW DO WE GET THERE? Chatting in a comfy user friendly armchair? Holding private science conferences. They probably make us feel better! All 400 of us. Well ,no. For some, it isn't an issue of being comfortable, and chatting. I mean that's nice and all, and maybe, just maybe, somehow the ideal that leads us to a cure will surface.

But HOW DO WE GET IT TO THE DOCTORS? Some of us have gone in banging the door off the hinges armed with papers and internet links. The doctor thinks to himself, "Oh Gawd, here's another internet doctor... who's the doctor here". But we say, NO, we have to be firm. WE tell THEM what to do.... NOT!

Who tells the doctors what to do? Have we ever asked that? THAT's the system we have to link up to.

Doctors learn how to be doctors in the universities! But they don't really learn about all of the diseases. Just liek other professionals, they are connected to networks of study, and discoveries filter through their industry. Medical research produces papers that get to the doctors through their own internal source. These papers don't often come through the door in the hands of a patient, and if they do, they are not usually recognized as "official". They have to be validated, corroborated, need to be trusted by them and their peers. With all the lawsuits these days, the information has to be clean and sure.

So let's not bark up the wrong tree. I know I grate on a lot of your nerves, always pushing and pestering for research. But it's the ONLY channel to the doctors, the doctors who treat ALL of the people in the world.

Unfortunately it not one of the most pleasurable things to do.

Thanks for the explanations guys.  I'm new to all this and still a lot I don't understand.  The FeelAlike.com survey showed up on the first page google results for "Postorgasmic Illness Syndrome" and looked interesting, that's all. 

I haven't joined because they seem to require a picture.  I can understand it would be nice to see other patients face to face, but this is a very personal condition.  I would guess some symptoms that are very embarrassing like premature ejaculation might be under-reported, where brain fog is easier to talk about.  I just thought it was a pretty well organized overview.

Another great resource on a lighter note (was this written by a POIS patient?):
newbielink:http://www.thespoof.com/news/science-technology/80082/who-declares-postorgasmic-illness-syndrome-1-threat-against-humanity-boner-wise [nonactive]
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Offline alphaq

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17236 on: 03/10/2012 02:24:02 »
Anyone tried Vinpocetine? It's supposed to have direct cerebral vasodilatory and incremental blood flow features
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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17237 on: 03/10/2012 13:24:49 »
IMPORTANT ANNOUNCEMENT!!

Some members have been having very encouraging conversations with a Dr. Juan I.Martínez-Salamanca in Madrid since El Mundo article about POIS. See below:

Juan I.Martínez-Salamanca, MD PhD, FEBU
Attending Urologist
Department of Urology
Urology Oncology & Sexual Medicine

He has been following POIS for some time, and quite closely follows the line that we have been approaching. He has been active, both in his work and studies with POIS patients and has been supportive AND influential in some of our activities.

Presently he wishes to embark upon a preliminary survey of the members that participate in some forums, being this actually the only place where he could reach us.

He has a survey at the following URL.

https://docs.google.com/spreadsheet/viewform?fromEmail=true&formkey=dFpnckhXRlpLSFAwWXlfQWNkclgtZWc6MQ

We recommend and encourage as many as possible to do the survey so that we can begin collecting valuable information
with a professional who very much understands our condition. It is similar to questions that have already been asked, but in his hands, they will be of very  much more benefit.

This questionaire would be a prelude to others by him that seek to delve more deeply into remedial effectivity related to POIS type groupings.

Please help us to find a solution to POIS. Your input here will benefit us all. And we could spread the word from here more easily to reach a lot of POIS sufferers around the world who do not even know that they are suffering from.

Thank you.
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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17238 on: 03/10/2012 15:11:02 »
Quote from: alphaq on 03/10/2012 02:24:02
Anyone tried Vinpocetine? It's supposed to have direct cerebral vasodilatory and incremental blood flow features

Yes.  it might help you marginally, but not significantly.  I've tried many different smart drugs, and ginkgo biloba is the most helpful of the batch.
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2-3 days, brain fog, anxiety, dry eyes, lethargy.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17239 on: 03/10/2012 16:33:03 »
Quote from: B_Daniel on 03/10/2012 15:11:02
Quote from: alphaq on 03/10/2012 02:24:02
Anyone tried Vinpocetine? It's supposed to have direct cerebral vasodilatory and incremental blood flow features

Yes.  it might help you marginally, but not significantly.  I've tried many different smart drugs, and ginkgo biloba is the most helpful of the batch.

i did  to and it didnt help.
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