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Hello again,Can anybody say they are 100% POIS cured. The answear at this stage is still a big NO. Every so often somebody comes up saying do this and that and you cured. CURED is a big word when it comes to pois. If you come on this website or any other POIS forum and you say you cured we only just might start believing you if you have managed to explain what exactly you been going through all these years with POIS. In my opinion even every vitamin, mineral, extract, med, whatever you try always has its pros and cons but it never quiet comes down to a permanent solution. More than likely only the scientists will solve this mistery.As soon as I can I'd like to elaborate a bit further on my testosterone experience but just 1st want to try get pen and paper so I can also explain this to my doc in the best possible way. Deciding on using TRT sure is a bit of a daunting task when you dont understand it all, besides never mind convincing your doc. [|)]
Hello everybodyI'm just about 2 turn 42 and been living with POIS all my life. It's been absolute hell. But I'l save you my life story, as most of you on forum know what we dealing with. In short I personally feel like I've been living a life somewhere between life and death. Living to the full is not possible and every so many years or months feeling like I'm going to fall off the edge. Been watching this site on a regular basis since mid last year when I finally discoverd the term POIS. I've noticed that on the poiscenter website things seem to get more and more technical. I hope it's a good sign.4 just over 2mo now been on a custom testosterone gel. As well as a whole range of supplements. Within 2 days it made me feel like I was on top of the world. Never felt so good day after day. Intensity of POIS symptoms were reduced big time. Symptoms after O seemd like a joke compared to what I'm used to. Mild symptoms for a day instead of min 4 max 8 in my case. But now I think I'm starting to get dissapointed. Obviously your urge goes up with this stuff but suddenly I realise that even not having O is giving me brain fog. I'm starting to think that my POIS defect is catching up to my intake of vitamin supplements & testosterone.In my opinion if you'v had a rough past with POIS at least we know what it must have been like in the middle ages when you have an illness. No doctors to help, not being understood, not getting any real recognition, feeling like you left in the dark with your problems.Just so gratefull for the few Professors that are trying to help us, but I'm sure these guys need more support with their admin etc. I just dont get it that in this "stone age" we living, that we still dont get recogntion for such a disabling illness though.TK
Hi guys, I have an idea that could possibly help us learn more about POIS and how it related to each of us. So far, what I have been doing is reading forums and trying to see what other peoples solutions are to their symptoms they are experiencing. Then trying different supplements. Although, I think it would actually serve us some good if we actually try to meet each other to talk and see if we have any similarities in terms of what we do day to day, habits, environment, etc to see if we possibly have things in common that could possibly be a source or contributing factor to our POIS. From what I understand, none of us started off having POIS initially when we started becoming sexually active. It all started after some point far after that. In my case, it started when I was 18-19 and I have read of some people not experiencing it until even their 30's or 40's. I live in SF Bay Area. If you live in this area and would like to meet, please let me know. I think we could potentially learn something important about our disease and how to better troubleshoot it. Thanks!
I also think that staying together on NSF and Poiscenter is better (already 2 Forum sites is enough). UNITY MAKES STRENGTH. Every so often a message on other websites can be good. But the place to be sure seems better to stay here. This is where the experience and a good foundation is after all. [].I'm still pretty new here but the fact that the views here are pretty high already raises the fact on how important it is that we get helped.I guess every so often a skype group can be supportive for some.