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Quote from: goingcrazy on 25/01/2010 05:28:45Quote from: POIS-SUFFERER on 21/01/2010 09:04:06Here is something I have not seen discussed.... ORAL health, mine is very bad for many years.... and I always wonder if that might be part of this whole thing?No teeth cleaning for 20+ yrs! I have bad breathe, and my mouth is always pasty....Thoughts?PS.LOL, no teeth cleaning for 20 + years? Yeah I wonder if that has something to do with it too, so I've been never missing a brush because I always wake up with my mouth tasting literally like crap. Just has to do with overall health, and i've noticed that I do have a worse smelling mouth when I do "O". but my oral health has been getting better i suggest you brush twice a day.Yeah its not that I do not brush! :-) I brush at least 2 times a day, just no dentist cleanings.... I always wonder if its the bacteria or something other causing issues...PS.
Quote from: POIS-SUFFERER on 21/01/2010 09:04:06Here is something I have not seen discussed.... ORAL health, mine is very bad for many years.... and I always wonder if that might be part of this whole thing?No teeth cleaning for 20+ yrs! I have bad breathe, and my mouth is always pasty....Thoughts?PS.LOL, no teeth cleaning for 20 + years? Yeah I wonder if that has something to do with it too, so I've been never missing a brush because I always wake up with my mouth tasting literally like crap. Just has to do with overall health, and i've noticed that I do have a worse smelling mouth when I do "O". but my oral health has been getting better i suggest you brush twice a day.
Here is something I have not seen discussed.... ORAL health, mine is very bad for many years.... and I always wonder if that might be part of this whole thing?No teeth cleaning for 20+ yrs! I have bad breathe, and my mouth is always pasty....Thoughts?PS.
Quote from: goingcrazy on 26/01/2010 04:41:44Another awkward statement:I'm actually contemplating, I really want this to get over with, I'm just thinking about going to the hospital, telling them to do brain surgery on me, and just get a swab of the "whatever" it is in the back of my head, and rule out any weird disease. Isn't there some procedure where they can do that?? Otherwise we can generally narrow it down to hormones and neurotransmitters. I remember the day I got POIS and it literally felt that something went into my head suddenly, or some sudden shift or neurotransmitters etc.. anybody else experience a sudden first-time POIS?Telling them to do brain surgery on you? I'm not sure what you're talking about, but I don't see how this would work, or how it would help you.
Another awkward statement:I'm actually contemplating, I really want this to get over with, I'm just thinking about going to the hospital, telling them to do brain surgery on me, and just get a swab of the "whatever" it is in the back of my head, and rule out any weird disease. Isn't there some procedure where they can do that?? Otherwise we can generally narrow it down to hormones and neurotransmitters. I remember the day I got POIS and it literally felt that something went into my head suddenly, or some sudden shift or neurotransmitters etc.. anybody else experience a sudden first-time POIS?
Goingcrazy - have you been tested for Lyme disease?
I can't imagine a brain surgeon doing surgery without definitive recognized illness, e.g., brain cancer, tumor, etc.
goingcrazy,im sure you have been posting all your progress along the way but can you sum up all the responses/views you have had from GPs and list all the therapies you have tried,cheers
I have an appointment with a supposedly very good Dr who specializes in Thyroid/Adrenal, hormones and anti-aging. I want to get the below tests done prior to my consultation.Can anyone think of anything else I should be getting tested and when would be best to have the collection done. Day 1, Day 2 after OThanks.Blood Test===========Total+Free/Bio TestosteroneLH+FSHEstradiol(E2)SHBGProlactinDHEACostisolIGF-1ProgetesteroneDht,TSH, Free T3, Free T4, Reverse T3MagnesiumSaliva Test===========Cortisol (Morning, noon, evening, night)Estriol, Estradiol, Eestrone,ProgesteroneTestosteroneDHEANeurotransmitter Test=====================SerotoninAcetylcholineDopamineGABAHistamine
Quote from: RhythmSpring on 25/01/2010 06:56:57Quote from: Mr_Canadian on 24/01/2010 22:56:25Has this group ever discussed the original incident of their POIS?Like, did anyone's POIS here follow a specific event, like illness or stress, and then take off from there?Actually yes, it started during a very stressful, traumatic period in my life.i managed to figure out the main problem stemmed from the 'fear of pain' left from a childhood operation (undescended testicle lowered). I had to learn over come this.I've attached some amazing old posts by Bizzy which I think are great and talk about the 'sticking receptors' from the testicle to the brain. It is possible to change how these receptors work.Quote from: Bizzy on 18/12/2007 16:16:12Hi fellow POIS sufferersWould you all post on whether you were victims of childhood abuse or trauma. I want to explore the possibility that childhood trauma maybe resposible for an adverse reaction to orgasm in later life.( I will post about my 25 years of POIS sometime later ) Quote from: Bizzy on 20/12/2007 15:06:06I was physically abused (not sexual) as a child all the way into my teens. I thought that this may have been responsible for my depression and POIS. Over the years I have formed the opinion that this prolonged affect is caused by 'sticking receptors' within the hypothalamus. When one has an orgasm there are hormonal and neuro-chemical changes within the hypothalamus. For example prolactin goes up and dopamine goes down. These changes in a specific area of the brain are probably responsibe for the post orgasmic fatigue in normal men. In POIS the brain chemistry of the hypothalamus fails to recover as it should. The person continues to feel fatigued and eventually starts to suffer from severe depression.This is a condition that is not even recognized or known by the medical community. Research needs to be done to acknowledge its existance and cause. A protein that helps maintain receptor function within the hypothalamus maybe responsible for this illness.Quote from: Bizzy on 10/01/2008 16:12:34In my mind theres little doubt that the POIS problem originates at the hypothalamus. A medication that helps better regulate the hypothalamus may provide excellent treatment.What I have written here needs more research.Quote from: Bizzy on 09/05/2008 01:11:16After full ejaculation or orgasm a signal is sent from the testicles to the hypothalamus for the release of GnRH. The GnRH hormone travels from the hypothalamus to the pituitary and stimulates gonadotropin release. Gonadotropins travel to the testicles and stimulate testosterone production. This system is known as the HPG axis ( hypothalmic-pituitary-gonadal axis ).Maybe in POIS, after ejaculation, rather than the HPG axis, the HPA axis gets activated. The HPA axis ( hypothalmic-pituitary-adrenal axis ) is responsible for releasing stress hormones including cortisol. This would mean that the end result after ejaculation would be more stress rather than more testosterone.Research needs to be done as to why this axis crossover occurs.Do you see how the adrenals are downstream from the true source of the problem, which is the hypothalamus ?
Quote from: Mr_Canadian on 24/01/2010 22:56:25Has this group ever discussed the original incident of their POIS?Like, did anyone's POIS here follow a specific event, like illness or stress, and then take off from there?Actually yes, it started during a very stressful, traumatic period in my life.
Has this group ever discussed the original incident of their POIS?Like, did anyone's POIS here follow a specific event, like illness or stress, and then take off from there?
Hi fellow POIS sufferersWould you all post on whether you were victims of childhood abuse or trauma. I want to explore the possibility that childhood trauma maybe resposible for an adverse reaction to orgasm in later life.( I will post about my 25 years of POIS sometime later )
I was physically abused (not sexual) as a child all the way into my teens. I thought that this may have been responsible for my depression and POIS. Over the years I have formed the opinion that this prolonged affect is caused by 'sticking receptors' within the hypothalamus. When one has an orgasm there are hormonal and neuro-chemical changes within the hypothalamus. For example prolactin goes up and dopamine goes down. These changes in a specific area of the brain are probably responsibe for the post orgasmic fatigue in normal men. In POIS the brain chemistry of the hypothalamus fails to recover as it should. The person continues to feel fatigued and eventually starts to suffer from severe depression.This is a condition that is not even recognized or known by the medical community. Research needs to be done to acknowledge its existance and cause. A protein that helps maintain receptor function within the hypothalamus maybe responsible for this illness.
In my mind theres little doubt that the POIS problem originates at the hypothalamus. A medication that helps better regulate the hypothalamus may provide excellent treatment.What I have written here needs more research.
After full ejaculation or orgasm a signal is sent from the testicles to the hypothalamus for the release of GnRH. The GnRH hormone travels from the hypothalamus to the pituitary and stimulates gonadotropin release. Gonadotropins travel to the testicles and stimulate testosterone production. This system is known as the HPG axis ( hypothalmic-pituitary-gonadal axis ).Maybe in POIS, after ejaculation, rather than the HPG axis, the HPA axis gets activated. The HPA axis ( hypothalmic-pituitary-adrenal axis ) is responsible for releasing stress hormones including cortisol. This would mean that the end result after ejaculation would be more stress rather than more testosterone.Research needs to be done as to why this axis crossover occurs.Do you see how the adrenals are downstream from the true source of the problem, which is the hypothalamus ?
I have a few questions:1) I've asked this before but I think I got limited responses so I'm going to re-word it differently: Does anybody here NOT have acne?2) When do you normally sleep and wake up? Do you dream?3) Do you drink any stimulants?4) Where do you feel POIS? I know some people cannot focus the pain, but for me it seems to be localized in the back of my head
Quote from: goingcrazy on 26/01/2010 04:36:41I have a few questions:1) I've asked this before but I think I got limited responses so I'm going to re-word it differently: Does anybody here NOT have acne?2) When do you normally sleep and wake up? Do you dream?3) Do you drink any stimulants?4) Where do you feel POIS? I know some people cannot focus the pain, but for me it seems to be localized in the back of my head1) no acne2) i have spinal compression in my neck, causing 1/4 muscle contraction n numbness throughout my body. as you can imagine, it is difficult to sleep at all, without sleep meds, for which i take seroquel and flexeril. on days before i have to work, i take meds at 8pm est, fall asleep around 9 to 9:30, then wake up once during the night to use the restroom, then back to sleep, wake up at 4-5am, and have to turn from sleepin on back to sideways or face down to relieve compression on my spine at my neck, and fall asleep until 6am when i wake up for work3)with my spinal thing caffeine can cause my muscles to almost lock and sever hypertension, so HELL NO i do not drink any stimulants4)where do i feel POIS? lol. there is no "where". my POIS is severe mental fog, memory recall impairment, and cognitive dysfunction. hope this helps.
Hope it doesn't annoy demo too much!, but I never did explain myself too fully why I think the writings Wilhelm Reich, in my opinon, applies to POIS.