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NORD-POIS International OptionThe research fund online donation site can now accept international donations. NORD received two today (not POIS) -- one from London, the other from Australia.Go to: http://rarediseases.org/about/support/research-donationsWrite street address, city, and country in "Address 1"Click the drop down for State, and the word International comes up -- click that.The rest is self-explanatory.THANK YOU, STEFANIE!
This probably seems a little bit too obvious and I'm sure it's been tried by a member at some point. But a good friend of mine takes an ANTIHISTAMINE daily for relief from a whole load of symptoms and allergies including : wheat, dairy, chocolate, yeast, hay-fever etc. If POIS (arguably) is a reaction to semen, am I naive enough to hope that an antihistamine or something similar will have a positive effect on the level of symptoms felt? []
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Quote from: dan-ireland on 11/06/2011 08:43:48This probably seems a little bit too obvious and I'm sure it's been tried by a member at some point. But a good friend of mine takes an ANTIHISTAMINE daily for relief from a whole load of symptoms and allergies including : wheat, dairy, chocolate, yeast, hay-fever etc. If POIS (arguably) is a reaction to semen, am I naive enough to hope that an antihistamine or something similar will have a positive effect on the level of symptoms felt? []A lot of members tried it, but no result.
It's great to see everyone contributing what they can to research. Before contributing I would like to know more about where the money goes, and who decides what to do with it. I searched around on the NORD site but I didn't see this information. Could someone like Waldinger have access to it? Is that determined by NORD?
Many of your NORD-POIS questions can be answered here:http://poiscenter.com/forums/index.php?PHPSESSID=bdb9f2cf9372f713b754b1a70c9e59fb&topic=125.0Whatever has not been already answered, I'm sure Stefanie will address here.You can also write to her at:rn@rarediseases.org
it's unclear whether "post-orgasmic illness syndrome" is the best name for this syndrome, since apparently an ejaculation is not always necessary to go under the spell of POIS. "autologous semen illness," or "autoimmune seminal fluid syndrome," may be a more succint term. Just a thought that I wanted to share.
The main consideration in the future: what is the BEST name to attract maximum $$$$ for researching our condition?
I created a topic called "Blood tests results" on the new forum = General Alternatives Causes and Treatment.I suggest this part to be the one where we can post all our blood tests results since we have POIS. We could check the fail common standards, compare and investigate more clearly.As it is expensive, we can see which standards are the most important.Thank you! []Mod Edit: Edited in the URL