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New Theories / Re: Post Orgasmic Illness Syndrome (POIS)
« on: 08/04/2015 20:23:16 »
Hello friends. I was diagnosed with the disease acidosis. If people on the forum with the disease?
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Hello,
I am a 32-year old girl from Ukraine, living in Germany. I have the symptoms described throughout this thread for about 10 years, although I understand you are focusing on men here. Until very recently I was not aware that other people also suffer from this and there is actually a name for it.
Years ago I underwent some tests and analysis related to my symptoms in Ukraine, but nothing helpful was found.
I was wondering if anybody knows about research or doctors focusing on women suffering from POIS?
Specifically I also wanted to ask if there is any information available on whether POIS is likely to be inherited? My husband and I are planning to have children and this causes great concern to me.
Many thanks to everybody who has contributed to this thread so far and provided valuable information. I would appreciate any advice concerning my situation.
Tatyana
Dear friends,
It has been ~4 years since I found this forum... I have POIS since I was 13 years old;
Now I am almost 36.
That syndrome hit me very hard over the years, the usual symptoms, brain fog, muscles pain, headaches, exhaustion, memory issues and many others... till it became chronically.
Over the years, I tried so many treatments, unfortunately - with very slight success.
Fortunately, I have found a doctor that treated me for the last 2 months and the results were unbelievable, my POIS is almost 100% gone.
Personally, I would like to connect any of you that is interested with that doctor that changed my life. I see it as a mission, as something that I must pay it forward since I know how much suffer and frustration are involved
If any of you is interested in details you are welcome to contact me in private,
Take the best care, Janiv
Guys, on dopamine:
It's not the answer. I've tried everything you can do to modulate/upregulate/downregulate dopamine. Stimulants. Parkinsons drugs. Antipsychotics. And on and on. I've been through serious medical care for a period of 5 years because of mental illness, and I've had the opportunity to work with the best physicians out there. I've been seen at the National Institutes of Health here in the USA, and I had the ex-director of the entire inpatient center of the NIH (a psychiatrist) literally pull everything out of his hat to see what it would do dopaminergically.
The dopamine theories of mental illness and mental health are old news. They are losing relevance in light of research that points to the brain working on neural circuits and specific pathways that primarily create good health or poor health.
I personally found out just how important pathways are when deciding to undergo electroconvulsive therapy. It changed my life and SAVED ME from major depression. The repeated shocks and seizures formed new pathways that to this day are the main reasons I am thinking more about life and less about death!
That's why I'm so excited about our research, it focuses on a nervous system dysfunction. Nerve tone is essential for your brain's communication with our body, and if our nerves are not toned, or "out of tune", you can get over or under stimulated. And with as complicated a nerve as the vagus nerve is (the one being studied), this means a LOT of things would go wrong, and that's what I believe we see with POIS.
How can you help yourself with this approach/theory? Stimulate your body in a healthy way! It seems to me that ejaculation seriously disrupts the state of the nervous system. I have found for myself that if I engage in 1-2 hours of vigorous cardiovascular exercise (like biking or running), then I feel MUCH more peaceful. This would be explained by exercise's modulation of the autonomic nervous system. What else works? Meditation. Mindfulness meditation allows the brain and body to enter into a protective state, where you can handle anxieties more easily and identify sources of pain, physical and psychological. The more active I am, the better I do, and the more I sit in quiet contemplation on a regular basis, the more I can handle.
I truly believe this has to do with engaging my body's natural mechanisms to regulate nerve tone.
I think that vagal nerve stimulation has a lot of promise for us, and I look forward to some great work done in our study!
IF YOU FIND THAT THOUGHTS OF DEATH AND KILLING YOURSELF ENTER YOUR MIND, PLEASE MAKE SURE YOU UNDERSTAND YOU ARE CONSIDERED MAJORLY DEPRESSED AND WOULD BE A CANDIDATE FOR ELECTROCONVULSIVE THERAPY. It IS safe. It IS powerful. Take my results as evidence. I was very scared going into it, but it HAS BEEN THE CHOICE THAT HAS SAVED MY LIFE. DON'T HESITATE TO ASK YOUR DOCTOR.
But on a last note, I do find that anti-inflammatories help me deal with POIS. If I take NSAIDs before I ejaculate, I have reduced symptoms. BUT. NSAIDs are dangerous in the long term, and I have found a GREAT replacement in the form of curcumin, the active ingredient in tumeric root. Find a product that CONCENTRATES it, like Terry Naturally's Curamed or Curamin. I have been feeling less aches and pains, and my recovery times are faster.
Best,
Nightingale