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In all seriousness, as I told Pyropeach privately, I find this very exciting. I think we're on to something. Dave, I'd like to see us continue...but NOT, as you say, to go round in circles!I'm of course biased about these subjects, having firsthand experience and massive confusion over the preceding issues for 35 years! But I now feel there is some meaning to all this, not just because of my experience, but at least with a half-dozen other POIS cases here - just with testosterone alone!Outline and chart next?
Quote from: Animus on 29/05/2011 02:09:55Quote from: daveman on 28/05/2011 22:05:21Quote from: Animus on 28/05/2011 21:18:14Quote from: pyropeach on 28/05/2011 19:50:32Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...I can attest to that feeling too.Well it sure seems like it. But you can't take your sperm count in your head! LOLI was not taking my sperm count in my head. I was sensing a legitimate biological feeling, which I had grown attuned to and aware of. Perhaps the cause of that feeling is unknown, and "illusory" as demo has suggested. However, it is legitimate, and has a legitimate cause. Reflecting on my earlier posts, I hedged a little more than I should have about "subjective" and "feeling". After 35 years of this, it's way more than "illusory".When I "feel" semen is low (early regeneration), the ejaculate is....LOW VOLUME.When I "feel" semen is high (late stage regen), the ejaculate is.....HIGH VOLUME.And no, I didn't use a measuring cup. Just trust me, ok? [] The above data have been independently verified by Bernie L. Madoff, Butner Correctional Facility, NC.
Quote from: daveman on 28/05/2011 22:05:21Quote from: Animus on 28/05/2011 21:18:14Quote from: pyropeach on 28/05/2011 19:50:32Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...I can attest to that feeling too.Well it sure seems like it. But you can't take your sperm count in your head! LOLI was not taking my sperm count in my head. I was sensing a legitimate biological feeling, which I had grown attuned to and aware of. Perhaps the cause of that feeling is unknown, and "illusory" as demo has suggested. However, it is legitimate, and has a legitimate cause.
Quote from: Animus on 28/05/2011 21:18:14Quote from: pyropeach on 28/05/2011 19:50:32Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...I can attest to that feeling too.Well it sure seems like it. But you can't take your sperm count in your head! LOL
Quote from: pyropeach on 28/05/2011 19:50:32Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...I can attest to that feeling too.
Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...
Quote from: Animus on 24/05/2011 03:31:47No, I am completely POIS free.... It requires maintenance. The surgeries removed all but the prostate- so it's still possible to create some seminal fluid. What I'm doing is shrinking the prostate as much as possible with medication. I find if I go off these medications, I will have some mild return of POIS symptoms- but much milder and less threatening than I had originally. While on these prostate meds I am completely symptom free, and have dry ejaculations. Animus (great job on the show btw!), or anybody else - It seems clear that the prostate causes at least some of your POIS issues, albeit maybe only 10-20%. Would you not imagine that Flomax or Avodart be helpful for some others of us to take? If the goal is reducing seminal fluid, these medications do that, correct? EDIT: I'm seeing now that a few of you tried Silodosin back in February and March. I'm going back and reading up on that now, which should answer my question. Ya'll are always 2 steps ahead of me! []
No, I am completely POIS free.... It requires maintenance. The surgeries removed all but the prostate- so it's still possible to create some seminal fluid. What I'm doing is shrinking the prostate as much as possible with medication. I find if I go off these medications, I will have some mild return of POIS symptoms- but much milder and less threatening than I had originally. While on these prostate meds I am completely symptom free, and have dry ejaculations.
Quote from: pyropeach on 29/05/2011 08:34:20[Let's] determine what exactly in semen could potentially cause the allergic reaction because I think that may yield a valuable breakthrough. I'm with you on that 100%, so I hope I didn't go overboard on worrying about competing theories. []
[Let's] determine what exactly in semen could potentially cause the allergic reaction because I think that may yield a valuable breakthrough.
Can anyone answer these questions? does anyone else wonder them too? 1. Are there any other known allergies that last for 7 days after exposure and have similar symptoms?2. Why don't women with semen allergies react in the same way as men with POIS?I'm not saying you could answer them, but maybe speculate... Seeing the wheal size photographs are convincing in support of the allergy theory.
Maybe it's an idea that someone of us starts a POIS-account on Twitter. With news and trying to find more patients and doctors on Twitter.
I am not so into Twitter.
I saw Dr. Guay a few days ago. For those who are unaware, he is among the most respected medical researchers in Sexual Medicine. I began speaking about the letter I sent him, and he didn't recall reading it. So, I began discussing POIS, at that point, he stood up, told me to stay where I was because he had just read a paper on it. He left, and returned with Dr. Waldinger's paper. He said by coincidence he had read it that morning. He went through it with me and suggested that I try Allegra (60mg) 1 hr. before an orgasm. He also stated that I would need to go see Dr. Waldinger himself to receive the therapy because it would require a grant to do it in the US. Finally, he said he would contact Dr. Irwin Goldstein, editor of the Journal of Sexual Medicine (the person responsible for accepting Dr. Waldinger's paper), and ask him his suggestion for treating this illness here in the US. Dr. Guay promised to get back to me and also to cc my endo at JH to keep her in the loop.I look forward to his response and promise to share it with all of you. Also, I'd like to thank you all for your willingness to share your experiences. I am feeling good at the moment after hitting the gym again after 3 weeks. So, I am unwilling to test the Allegra, although the libido is definitely high. I also ordered Mind Body & Spirit (rhodiola rosea) and Energy Reserves based upon recommendations on this forum. I know that I'll eventually have an O, but I wanted your feedback on Allegra. Also, having seen Animus on TLC, I concluded that this illness must be "triggered" by something. Animus seemed to be healthy, and after one night, he began to have POIS. That is, he was NOT allergic to his sperm until that night. Looking forward to your feedback and thanks for your time.
Quote from: Animus on 29/05/2011 19:25:57Can anyone answer these questions? does anyone else wonder them too? 1. Are there any other known allergies that last for 7 days after exposure and have similar symptoms?2. Why don't women with semen allergies react in the same way as men with POIS?I'm not saying you could answer them, but maybe speculate... Seeing the wheal size photographs are convincing in support of the allergy theory.You can't compare the female body with the male body. The male urethra and the vas deferens are not the same as oviduct. And women with semen allergy have a few symptoms that are the same as POIS.
I have the first link up posted below as well as a torrent link for those familiar with how to use it, I'll be posting a few mirrors as well. If anybody has any issues viewing the video feel free to PM me any questions, i would be happy to helpDownload Link 1Download Link 2Stream Link Torrent LinkAs for the video itself i really appreciate "Frank" taking time to do this, i'm sure at the very least it will lead others suffering from POIS to this website and further progression on treatments. Unfortunately i personally found the surgery on the video a little hard to swallow and am not sure i could ever bring myself to do that even if it means living a better life.
Also, having seen Animus on TLC, I concluded that this illness must be "triggered" by something. Animus seemed to be healthy, and after one night, he began to have POIS. That is, he was NOT allergic to his sperm until that night.
Dr. Waldinger's term, "allergy" has never sat right with me.
Is this a new article or is it a review of the publication of dr. Waldinger? It's from Nature. Written by Suzanne J. Farley. http://www.nature.com/nrurol/journal/v8/n3/full/nrurol.2011.17.htmlIf it's new? Does anyone has an account?
Van, It would seem you can compare the male and female body when discussing allergies. In every other allergy, both men and women react with the same symptoms- and the same treatments. The allergy is defined by the blood exposure to the allergen, I think, and not defined by the anatomy.Semen allergy in women is defined by burning, swelling, redness, and inflammation. Are any of these similar to POIS? Which are the symptoms that are the same?Thanks for discussing.
I didn't finish to translate the 2nd study of dr. Waldinger but it seems there is a new very important and new concept here :http://www.nature.com/nrurol/journal/v8/n3/full/nrurol.2011.17.htmlQuoteSexual dysfunction: Postorgasmic illness syndromeSuzanne J. FarleyAbstractNew evidence supports the hypothesis that postorgasmic illness syndrome (POIS) in men involves a hyper-reactive immune response of the mucosal epithelium that lines the urinary tract to seminal fluid.The term 'POIS' was coined 9 years ago by the Netherlands-based duo Marcel Waldinger and Dave Schweitzer.The whole article is not free.mucosal epithelium :http://en.wikipedia.org/wiki/Mucosa-associated_lymphoid_tissueIt's a lymphatic tissue. It's the open door. It explains how semen goes from urinary way into immune system by passing through this tissue.
Sexual dysfunction: Postorgasmic illness syndromeSuzanne J. FarleyAbstractNew evidence supports the hypothesis that postorgasmic illness syndrome (POIS) in men involves a hyper-reactive immune response of the mucosal epithelium that lines the urinary tract to seminal fluid.The term 'POIS' was coined 9 years ago by the Netherlands-based duo Marcel Waldinger and Dave Schweitzer.
I just bought this article, but it is just a summary of the dr Waldinger research. There isn't any news in it.