1
New Theories / Re: Post Orgasmic Illness Syndrome (POIS)
« on: 10/10/2014 18:33:47 »
Hey Kurtosis, Nice to see you here ; How do you feel ? What about your SIBO ?
This section allows you to view all posts made by this member. Note that you can only see posts made in areas you currently have access to.
hi guys,
Although I do not have POIS, I think that I may be able to throw some light on where to focus or investigate to track down the source of the problem.
Actually, I have the symptoms of POIS all the time, and always have had, which is why I found this forum.
But my symptoms are caused by life-long bilateral tumours of my adrenal glands, also known as pheochromocytoma (PCC), usually benign, but which release large quantities of adrenaline (epinephrine) into the bloodstream, either continuously or intermittently.
This is all very new to me too, and not fully-confirmed because I am still working through the full suite of tests and imaging studies for PCC. Initial imaging studies show a tumour within each adrenal gland and I have all the classic symptoms of PCC.
Its a pretty rare condition and one autopsy study found that 75% of patients die without being diagnosed - usually having been labelled "crazy".
It seems quite plausible to me that sexual arousal, activity and orgasm is triggering the release of a large adrenaline hit and causing POIS in susceptible men.
Do any of you guys have secreting adrenal tumours? Probably not, but I would suggest that the adrenal glands are at the pathophysiological centre of POIS whatever the actual pathological mechanism.
I read that some of you guys have had lots of standard blood tests, including hormonal ones too, like testosterone. But, unless you specifically have an endocrinologist, who actually suspects PCC, it is highly unlikely that you have had the blood and urine tests which will link POIS to the adrenal glands. Very often, even in PCC patients, the blood testing does not pick it up for various reasons, so the blood tests are backed up with 24 hour adrenaline in urine testing. Anyone on here done the latter?
Excessive adrenaline release really messes around with your blood pressure and heart rate for quite a long time afterwards so these physical correlates could offer some objective evidence for POIS. It messes with your brain too, as you know from experience, but that is more subjective.
Has anyone with POIS been regularly using a personal blood pressure and heart rate monitor? I would highly advise every POIS patient to buy an automatic one (battery-operated) not a manual one. They are available very cheaply everywhere. I use a wrist-mounted one rather than upper arm which are a lot smaller and less cumbersome to use. Most have a memory for around 60 to 100 readings. Just remember that when you take a reading with a wrist monitor your wrist must be on the same level as your heart. All the information that you need on this post will be found in the monitor instruction manual.
I would start by taking blood pressure readings when you are feeling well ie. after a week or two without sexual activity. Take two readings at rest - one after you have been lying horizontal for 5 minutes or more and then stand up and immediately take another reading and repeat this through the day. If you are well, then both your readings should be in normal range as advised on the monitor. When you stand up, you should get a similar blood pressure or maybe a lower one to the horizontal, but definitely not a higher one (ie. orthostatic hypertension).
Then, after orgasm, start taking regular readings when horizontal and immediately after standing up. Remember to keep your wrist at heart level when reading standing up.
Does your blood pressure remain in normal range after orgasm? Only when horizontal? Only when vertical? Or both? If your blood pressure increases after standing up then that is a red flag for excess adrenaline release.
Keep an eye on your heart rate during the readings too - is the monitor alerting any heart rate increases above normal?
Make a note of any headaches against the readings - rate the severity of the headaches. You might even have a continuous low-level headache during the days after orgasm?
Write down the dates and times of the blood pressure/heart readings from the monitor memory on to a calendar - is there a pattern over the days after orgasm? Anything noteworthy?
Ultimately, is there a similar pattern found in all POIS patients?
Well, I really hope you guys find this post useful. I am as interested in POIS as you are.
I will stay on the forum and reply to any responses - or any private emails.
It would be really fascinating to generate some medical data on POIS with this approach.
regards
gpg
Hi everyone,
I found this thread after realizing I had POIS. It was getting worse for me over time and now that I have a girlfriend my symptoms were really showing up.
I would feel tired/achy/grumpy for a day or two after sleeping with her, and the more we slept together the worse it got. It felt like a hangover from a really bad night of drinking.
I tried taking more vitamins, changing my sleep/exercise routines/, not watching porn anymore, etc., which all helped but never solved the problem.
Finally what worked for me was getting off of gluten. My POIS that I've had for many years vanished!
I just wanted to log in and share my experience in case it helps anybody searching for an answer. I know I got to the point where I was willing to try anything that might have helped, so here's another thing to try.
Good luck to everyone.
Sincerely,
Seth
Over it, please dont be stupid...he did not advertize anything ; it was a video of him talking in a stage about POIS ; He offers non treatment : OK, like anybody else in here...
BrettA,
Is that online interface/database thingy that the video showed you planning on the whiteboard and taliking about on that stage, something that you have developed with your own funds? If so, you are a very benevolent person and God will have a special place in heaven for you.
LAPOISSE2, I hate it when we fight.
Hi Guys. My name is Brett. I had POIS for 8 years and just presented my personal story on the main stage...
<link removed by Mod>
For most people at the conference it was the first time they'd ever heard of it. Look forward to chatting. And a special thanks to buddies daniel_b, rock27, and yaniv, along with a few other whose names I know, but forgot their handles. They're the guys I'm referring to in my talk.
BJim,Jim, I have been battling insomnia for the past 3 mths and have on and off over the years. Just thought I'd mention a few things that have helped me.
Thanks for the tip, I'll try it! I'm still battling insomnia so I'll try most anything. How do the carbs assist the pumpkin seeds? What is the mechanism? I use carbs to put myself back to sleep when I wake up too early, toast is my sleep medication. But why would it help at 4:00PM with the pumpkin seeds?
Melatonin is always great as long as I don't take it too many days.
Valerian is ok but it takes me over a month to get nay impact.
Hops are pretty good.
I have tried Phenibut recently on the recommendations of some of the guys at the gym. Its been a mixed bag for me. I find it good (but not ideal at keeping me asleep till 6am) but it can only be used a few days in a row for me.
Baclofen - which I was prescribed to boost my GH levels I find is good for a more refreshing night's sleep though it does not put you to sleep to begin with. Probably helps by increasing gaba.
A great med is Zolpidem. It puts me to sleep pretty quick and keeps me asleep and I dont wake up groggy at all. The catch is the sleep seems slightly artificial. I am not tired but it maybe feels like I dont hit deep stage 4 sleep. Its still better than insomnia though.
Recently I pestered my doc for a substitute for Zolpidem and he put me on low dose Amitripyline (tricyclic antidepressant - 12mg) and that has been not too bad at both getting me to sleep and keeping me there.
Another med I have recently taken that supplements Amitripyline and gives me a great night sleep with lots of interesting dreams is Sinemet (dopamine booster). It also helps make me sleepy not too long after taking it. I know it sounds weird for levodopa to not be stimulating but it has this effect on some users).
Anyway I just thought I would mention the herbs/meds that I have tried over the past months to get me over insomnia. Another thing that helped me is not training so late in the evening which I started to do overt that period. I take a pre workout supplement just before I go to the gym (ie C4 or Black Powder), and it really boosts my physical & mental stamina, but it also has the potential to carry on into the evening. I don't feel wired in the evening but just not tired so I have been backing off on taking it too much if I go to the gym after 7pm and yeah that has helped also, so it definitely played a party in my insomnia.
Hello. Just checking in after a long time.
I'm now being treated for my condition as depression and I'm doing a lot better. I now mostly refer to my condition as clinical depression triggered by orgasm. Relevant comments are welcome.
If this comic strikes a chord with you, it might be something for you to look into as well.
http://hyperboleandahalf.blogspot.com/2013/05/depression-part-two.html
Talk to your doctor. The best to everyone.
I'm cured thanks to Germany, now no symptoms after ejaculation
Good luck to everyone!
Kima.