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If the majority of us POIS sufferers were to fit into this category of prepubescent sexual activity I think this would be valuable data. It might give ourselves or researchers a cue to what mechanism might be causing our suffering, perhaps leading to a remedy. For most of us this problem has been very destructive in our lives and it is understandable that we would hate the thought of personally having a hand in it (pun intended). Believe me, I have agonized about this as well. Hopefully it is not true, but I don't think we should cover our eyes to keep from seeing something unpleasant.
Thanks for the encouragement demografx, fenugreek really does seem to have nailed POIS for me!
One way of getting more publicity might be to try to get a wikipedia entry set up for POIS, with a link to this forum as a source. Millions of people read and trust wikipedia, and it always gets very high on googles ranking for any given word. Unfortunately, wikipedia can be a bit elitist with their entries, so any new entry would probably need to be written and formatted by an exprienced wikipedian to stand a chance of surviving.
Demo, I understand your concern in upping your dosage. The listed side effects of medications can make one quite apprehensive, been there done that. Sure, early feelings about masturbation are definitely worth a look. Could shame influence our systems to morph into this problem we have? I don't know, but I find it more plausible that our sexual nervous/endocrine system was exercised to go big while it was still developing. I personally did not experience feelings of shame specific to masturbation that I can remember. No 60 Minutes? How about Oprah?
I just had a thought, maybe our efforts should be aimed at attracting researchers tied to universities rather than more of the public. This forum might eventually get flooded with people posting about their experiences. That might leed to difficulties in our communication and campaign planning.For example the youtube video could link to a wikipedia page providing a discription of the illness. The wikipedia page should end with advising people to see endocrinologists and start their own campaigns in the aim of attracting researchers. The wikipedia page should also make a direct appeal to medical researchers.
There are alot of people that believe their POIS symptoms are due to guilt and religious in nature. I thought this for a long time. But I realized after reading this forum that I was suffering from a physical problem, not spiritual.
No 60 minutes or Oprah. But what about DR Drew?
What about about talk sex with that old lady on oxygen, she seems like the kind that will believe us.
Quote from: tarkington on 25/11/2008 02:59:12There are alot of people that believe their POIS symptoms are due to guilt and religious in nature. I thought this for a long time. But I realized after reading this forum that I was suffering from a physical problem, not spiritual.Any illness for which they have not figured out a clear cause is in danger of being categorized as a "psychologicalor spiritual problem." This is especially true with conditions that affect the brain and cause "mental" symptoms, asdoes POIS. And when it comes to ailments pertaining to sex, the chances of being pigeonholed into that psycho-spiritual waste basket of a category are multiplied exponentially. It's a predictable scenario. As one with both CFS and POIS, I was subjected to it for decades, but I'm not willing to besubjected to it any more.
Anyhow, she had no idea what was causing POIS ; however, she did recommend that I see a urologyst (sp?). She said that urologysts deal with sexual problems. Sigh...I tried to tell her that the symptoms all led to endrocine problems. She also said she doesn't think it's endocrine because I don't have physical problems like troubles getting erection or ejaculating. But that the problems are cognative (and boy do I hate cognative problems). So thats that. I just wanted to share it with you and add to our 'library'.Dazed and confused (literally),Limejuice