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Curious: did anyone here undergo a physical trauma (particularly to the head) around the time (within months) of connecting orgasm to these symptoms?
... final edit of the POIS PSA/youtube posting ...
Yes, as girlwind says, I only provided about 5 minutes worth of youtube advice--she is the one who did the entire video.Girlwind, I just watched the video--I think it is great! Truly a job well done.Now, the question is: how to spread the word and get people to watch the video on youtube? Will people just come across it on their own? Or, can we posts links to it in different places on the web? (For example, CFS forums, or sites for other sexual/endocrine/immune ailments.)
I just had a thought, maybe our efforts should be aimed at attracting researchers tied to universities rather than more of the public. This forum might eventually get flooded with people posting about their experiences. That might leed to difficulties in our communication and campaign planning.For example the youtube video could link to a wikipedia page providing a discription of the illness. The wikipedia page should end with advising people to see endocrinologists and start their own campaigns in the aim of attracting researchers. The wikipedia page should also make a direct appeal to medical researchers.
- Placebo effect/ synergism / missing link? Dunno. We shall see.
We still need an endochrinologist to start research on POIS. Not some professional to just look at the posts and make recommendations, even I can do that. This condition needs to be researched using patients and this forum can provide that resource.