1
New Theories / Re: Post Orgasmic Illness Syndrome (POIS)
« on: 14/05/2014 23:55:34 »hi Scott
This is a reply to your private email to me which I have no way to reply to. The reply is quite general so I hope it might be of interest to other POIS patients.
Thank you for your comments on my posts.
First of all, I am not saying that you guys or girls ALL have a pheochromocytoma (PCC) in your adrenal glands - I am just pointing out a major overlap of adrenaline related symptoms between PCC and POIS.
Maybe all of the small percentage of women with POIS do actually have a PCC and POIS is actually a totally male disorder?
I think that POIS is an adrenal gland disorder - but what type? Male hormones are part of it but
maybe not female hormones, making it a male disorder?
I think that an MRI of the adrenal glands is the best place to start - firstly to rule out/in
PCC and secondly to check for any kind of tissue mass in the adrenal glands which
should not be there.
These non-PCC adrenal masses are usually labelled as incidentalomas by the docs but if you
have POIS then these anomolous tissue masses could be anything but incidental.
I would not be surprised if all POIS patients have some kind of pathological tissue mass in their
adrenal glands - either PCC or something functionally similar.
If any type of mass is found in the adrenal glands then you have a physical focus for your adrenaline
symptoms and hopefully adrenal functioning testing will elucidate what is going on for you and
others.
You really should buy yourself an automatic blood pressure/heart rate monitor for your wrist.
This needs daily recording over extended time - particularly before and after orgasm (see my previous posts).
Keeping this record yourself will provide a lot of information on your pathology and a doctor is not going
to do this for you.
I dont really know the long term outcome of PCC but I think it just gets so bad that everyone
eventually gets diagnosed and treated.
I think seasonal POIS is evidence of adrenal gland hormone issues and chronobiology.
So, have an MRI scan privately - easily and cheaply done in Europe - but I think they can be expensive in the USA? Get a BP monitor - easily and cheaply bought. Collect MRI, BP and heart rate (rhythm) data and set against your symptoms.
regards
gpg