[Vandemolen3]

vandemolen you will love this that woman with one day rush fix was not lieing  there is a paper on it.

J Dermatol. 1991 Apr;18(4):206-10.
A case of seminal fluid allergy successfully treated with immunotherapy in a one-day rush procedure.
Boom BW, van Toorenenbergen AW, Nierop G, van der Schroeff JG.

Department of Dermatology, University Hospital Leiden, The Netherlands.
Abstract
A 28-year-old woman was treated for seminal fluid allergy with immunotherapy using a one-day 'rush' procedure. Apart from minor anaphylactic symptoms, no serious side effects were noted during or after hyposensitization or boostering. Five weeks after the start of the hyposensitization, she was free of symptoms after unprotected coitus.

PMID: 1918594 [PubMed - indexed for MEDLINE]

Publication Types, MeSH Terms, Substances
LinkOut - more resources
http://www.ncbi.nlm.nih.gov/pubmed/1918594

if you guys are wondering how i am finding this articles, i typed in semen allergy in google scholar inorder to look for doctor that has worked with semen allergy in us.

Great! I will print this and I will bring it with me when I have my next injection. Thanks.
This was in another hospital where the Dutch woman talked about. But when 2 hospitals did immunotherapy in a one-day. Then there is hope that this can be done also for men. And maybe for POIS. I will ask this about 2,5 weeks.

[cab771]

Hello all,
You can add one more guy the the POIS sufferer list.
2 Things triggers POIS episode in my case: intense physical activity and sex. Episodes are very nasty and can last from 4 to 15 days.
I've managed to ejaculate without orgasm very quickly, resulting in no POIS. I have to empty the tank once a week or so, otherwise I feel like my prostate is going to burst. I was wondering is someone had considered something as extreme as prostatectomy?

[daveman]

Hello all,
You can add one more guy the the POIS sufferer list.
2 Things triggers POIS episode in my case: intense physical activity and sex. Episodes are very nasty and can last from 4 to 15 days.
I've managed to ejaculate without orgasm very quickly, resulting in no POIS. I have to empty the tank once a week or so, otherwise I feel like my prostate is going to burst. I was wondering is someone had considered something as extreme as prostatectomy?

Does the "POIS" from intense physical activity last as long as regular POIS? (3 to 7 days?) And with the same symptoms?

It's interesting that ejaculation without orgasm doesn't cause POIS. It's normally the expulsion of semen that causes POIS.

What are your principal symptoms: physical, mental or both and a little about each.

It's valuable to see all the variations, perhaps more can be learned.

Something like removing the prostate doesn't necesarilly guarantee relief, and especially after such a drastic move, it would be a shame if it didn't help. We're on the verge of some very interesting discoveries which I think could be much less invasive, so pull up a seat and welcome!!

[Vandemolen3]

I have POIS with or without an O. And also minor POIS-symptoms even without an ejaculation. The cause of POIS is the semen.

[demografx]

"Why Do I Sneeze After Every Orgasm?"
http://www.straightdope.com/columns/read/460/why-do-i-sneeze-after-every-orgasm

[KCsignman]

Post Organic Illness Syndrom POIS

Thank you Dr. Waldinger for all of the research and development you have
done to help us.  I know this is a huge investment from your part but
you will be helping many sick people.  I would imagine that there are
many men that have these symptoms and are either afraid to discuss it
or just do not know what is happening to them.

I have had this problem for many years and I am now in my Fifties.   I have
been to many doctors over the years explaining my symptoms to them and being
told that I am nuts.  I am sick at this moment and my symptoms have gotten
worse.  I not only get flu like symptoms, headache, achy eyes, Gas, Fatigue,
joint aches in the ankles, fingers, toes, knees, lower back and neck areas.
I always develop a cough with bronchitus to go with it.

I believe that Dr. Waldinger could have hit the nail right on the head with
his new discovery.  This makes sense allergic reaction to our own semen.  I
just hope and pray that he can find a medicine that will relieve these
symptoms.  My symptoms can get so bad that the allergic reaction has caused
me to have Bronchitus with excessing coughing and even clear phlem.

I have also noticed that my lymphnodes get sore and slightly swollen as
well.  This is all beginning to make more sense to me now.

I have read through many of the threads on this site and I want to thank
everyone for sharing the information.

[cab771]

Thank you for your welcome, and please forgive my caustic style.

Does the "POIS" from intense physical activity last as long as regular POIS? (3 to 7 days?) And with the same symptoms?

Daveman, in my case, I think there's no difference if the POIS episode is the result of intense exercise or sexual activity. I see the POIS episode as neuroendocrine crash. The symptoms are very intense, both physical and mental. I'm 90% incapacitated during an episode.
In my case, there's a threshold. As long as sexual activity or physical activity remains below the threshold, I'm fine. I found also that there seems to be a cumulative effect. Episodes do not come suddenly, I can feel a very subtly build up and symptoms onset before the crash.
I’m under the impression that POIS and CFS are cousins.

It's interesting that ejaculation without orgasm doesn't cause POIS. It's normally the expulsion of semen that causes POIS.

I don’t think there’s any allergy to semen in my case. I can’t imagine an allergy producing such symptoms.

Something like removing the prostate doesn't necesarilly guarantee relief, and especially after such a drastic move, it would be a shame if it didn't help. We're on the verge of some very interesting discoveries which I think could be much less invasive, so pull up a seat and welcome!!

Removing the prostate is not that drastic, it's just a 1 inch matzah ball, and former president Clemenceau said about it: presidency is as superfluous as a prostate gland. Seriously, I think I would be ready to get rid of whatever it takes to be POIS free, even the balls and a finger, if necessary.
With all due respect, we have been on the verge of some very interesting discoveries about cancer, and many infectious diseases for half a century.

[makrofag]

Cab771 : How do you ejaculate without orgasm? Any particular technique?

Hmm the origin especially of the brain fog that was the worst of all of my symptoms. I always thought it was the result of the sexual and orgasmic state being stuck in my head after the sexual act (masturbation or sex). When you have sex you are pretty much totaly disconnected with reality because it's a function of your brain so you stay totally concentrated only on the act itself. And the disconnection from reality and innability to produce any deeper thought during POIS state always reminded me the disconnection from reality during sex but without the typical arousal.

[daveman]

Thank you for your welcome, and please forgive my caustic style.

Does the "POIS" from intense physical activity last as long as regular POIS? (3 to 7 days?) And with the same symptoms?

Daveman, in my case, I think there's no difference if the POIS episode is the result of intense exercise or sexual activity. I see the POIS episode as neuroendocrine crash. The symptoms are very intense, both physical and mental. I'm 90% incapacitated during an episode.
In my case, there's a threshold. As long as sexual activity or physical activity remains below the threshold, I'm fine. I found also that there seems to be a cumulative effect. Episodes do not come suddenly, I can feel a very subtly build up and symptoms onset before the crash.
I’m under the impression that POIS and CFS are cousins.

It's interesting that ejaculation without orgasm doesn't cause POIS. It's normally the expulsion of semen that causes POIS.

I don’t think there’s any allergy to semen in my case. I can’t imagine an allergy producing such symptoms.

Something like removing the prostate doesn't necesarilly guarantee relief, and especially after such a drastic move, it would be a shame if it didn't help. We're on the verge of some very interesting discoveries which I think could be much less invasive, so pull up a seat and welcome!!

Removing the prostate is not that drastic, it's just a 1 inch matzah ball, and former president Clemenceau said about it: presidency is as superfluous as a prostate gland. Seriously, I think I would be ready to get rid of whatever it takes to be POIS free, even the balls and a finger, if necessary.
With all due respect, we have been on the verge of some very interesting discoveries about cancer, and many infectious diseases for half a century.

Interesting indeed. POIS in your case might be some kind of neuroendocrine crash, but it sounds like there are some significant differences in your case. I´m sure there are several kinds of POIS. Alergy/auto-immune is one, testosterone inbalance seems to be another and then a newer one like yours.

I wonder though if perhaps you have a similar cousin?

[demografx]

I m under the impression that POIS and CFS are cousins.

I'm open to it, but I think that we consensually ruled that out.

Here are 420 CFS-POIS Google results at our forum:
http://www.google.com/search?q=h&sourceid=ie7&rls=com.microsoft:en-us:IE-SearchBox&ie=&oe=#sclient=psy&hl=en&rls=com.microsoft:en-us%3AIE-SearchBox&q=CFS+chronic+fatigue+syndrome+POIS+site:http%3A%2F%2Fthenakedscientists.com&aq=f&aqi=&aql=&oq=&pbx=1&bav=on.2,or.r_gc.r_pw.&fp=a50d8bbb4089c98a

[rock27]

Interesting KCsignman. And quite amazing that for me it takes so many years to accurately describe symptoms. Just a few years ago I realized it gets to my lungs that much. So now I know stomache, brains and lungs are most affected. I am also getting more and more convinced allergy is key and that it is all inflammation. The thirst also fits in the allergy proposition. Apart from the big culprit (semen), starting to eat gluten free, lactose free and taking supplements to control histamines also has made a big difference in day to day life over the last few months. Good luck mate.

[hurray]

I went to an urologist/sexologue yesterday and we "talked" about silodosin and then he decided to give it a trial. I started yesterday evening (8mg) and had already a dry O during the night !
Moreover, I feel like hurray, more tired. BUT It is stated that silodosin can stop semence emission after 3 days so I could say more about it in about 5 days, to see if I have same results as hurray. []

To finish, the doctor I saw yesterday was really narrow-minded (as many member's doctor) and it was the first time for me...
He didn't want to give a look at dr Waldinger's papers saying "it was impossible" and said everybody is allergic to his own semence..."it is ME the doctor here, I only can say what you have, no one else"...    He started to pay attention of what I said when I told him "it is me the patient here, I can decide if I pay.... or no []"
I haven't been so mad at a doctor before but he got a huge ethic lesson from an almost 20 years old guy, epic moment in my life i wanted to share... []

You've taken a brave step into the unknown Habibou, hopefully what you discover can benefit us all! Hopefully Silodosin's side-effect of tiredness is only temporary for you - it was very different to the POIS symptoms I have experienced over the years (I just felt sleepy), but I still found it unwelcome when I needed to work and socialise.

Good for you putting the doctor in his place, a good doctor would be interested in learning about a new study, the 'I KNOW EVERYTHING" act doesn't work so well for rare diseases, as your unlucky doctor found out  []

[Habibou]

Habibou, yes good idea! But I would eliminate any test of a semen-component that is tiny, e.g., < 1%

Yes, I agree that we should the most important amount of component in the first place... and after the lowest amount if we didn't find before!

[Chrissie]

Has anyone experienced that the symptoms of POIS are worse during the turn of the seasons, especially winter/spring and summer/autumn? My symptoms of POIS are always worse during these weeks.

Chris

[Habibou]

You've taken a brave step into the unknown Habibou, hopefully what you discover can benefit us all! Hopefully Silodosin's side-effect of tiredness is only temporary for you - it was very different to the POIS symptoms I have experienced over the years (I just felt sleepy), but I still found it unwelcome when I needed to work and socialise.

Good for you putting the doctor in his place, a good doctor would be interested in learning about a new study, the 'I KNOW EVERYTHING" act doesn't work so well for rare diseases, as your unlucky doctor found out  []

Yes, this doctor was not one according to the definition "a doctor is someone who tries to understand his patient and his symptoms attached, to find a solution quitely". Mine was "I already know everything, it is impossible, the world is made with my wishes []". So I decided to choose the humour and poker  ways and called him 'pseudo doctor' during the whole appointment... []

Let's back to Silodosin trial -> I feel cooool, my narrow throat is way less than before and I feel a  little "on my cloud", I guess it is the sleeping feeling Hurray gets?
As it is an alpha blocker, it works on the adrenergic receptors and lower the stress feeling + attention (on a cloud...).
I unfortunatly had a NE just before I started the treatment, so I have to wait some days to try a new O and see the consequences under silodosin.
But, the night after I took it for the first time , I had a totally dry O, very intense [] so I guess it works on me.
I will update when I have a volontary O !  []

[CertainlyPOIS]

i got silodosin to 8mg but problem is am already in pois, so i am wondering if it will affect recovery process, did it affect yours hurray, i also intend on using at night since that is when NE is going to occur and may be i can sleep out drowsiness, you use it at night. 

[hurray]

i got silodosin to 8mg but problem is am already in pois, so i am wondering if it will affect recovery process, did it affect yours hurray, i also intend on using at night since that is when NE is going to occur and may be i can sleep out drowsiness, you use it at night. 

Unfortunately, the silodosin made me feel sleepy 24/7. The drowsiness could add to the sense of being in POIS, but once you recover from POIS, you will probably find it easy to tell the difference between silodosin side-effects and POIS. I don't think it changed the speed of my recovery. I would be surprised if we all experienced identical effects from silodosin, since POIS symptoms vary so greatly between different individuals on this forum.

I wish you the very best of luck with your treatment CCconfucius!

[hurray]

Let's back to Silodosin trial -> I feel cooool, my narrow throat is way less than before and I feel a  little "on my cloud", I guess it is the sleeping feeling Hurray gets?
As it is an alpha blocker, it works on the adrenergic receptors and lower the stress feeling + attention (on a cloud...).
I unfortunatly had a NE just before I started the treatment, so I have to wait some days to try a new O and see the consequences under silodosin.
But, the night after I took it for the first time , I had a totally dry O, very intense [] so I guess it works on me.
I will update when I have a volontary O !  []

I think your story about the doctor will resonate with many people here who haven't been taken seriously by the medical establishment in the past.

Great to hear that the silodosin worked for you at night - perhaps silodosin or one of its sister drugs will ultimately provide a genuine solution for those who are plagued by NEs. The side-effects sound similar to my own experience, it would be very interesting to know if these fade over time.

Looking forward to further news, thanks for the update Habibou!

[demografx]

[The doctor] started to pay attention to what I said when I told him "it is me the patient here, I can decide if I pay.... or not []"

Excellent advice for ALL of us. Thank you, Habibou!!!

[demografx]

The doctor I saw yesterday was really narrow-minded (as many member's doctor) and it was the first time for me...
He didn't want to give a look at dr Waldinger's papers saying "it was impossible" and said everybody is allergic to his own semence..."it is ME the doctor here, I only can say what you have, no one else"...    He started to pay attention of what I said when I told him "it is me the patient here, I can decide if I pay.... or no []"
I haven't been so mad at a doctor before but he got a huge ethic lesson from an almost 20 years old guy, epic moment in my life i wanted to share... []

Good for you!! And you're DARN WELL RIGHT

We've got to stand up. Ask the M/F how many years of experience in sexual medicine he has. Then tell him how many Dr. Waldinger has who wrote the paper. If they read it and disagree, well, experience still counts, but if they don't even want to read it, that's plain stupid ignorance!



 

More excellent advice on how to confront physicians!! Yes, question their sanity!

The ignorant medical majority has given us almost as much grief as POIS itself!!!

I love daveman's remark, "We've got to stand up ! "

(The large red exclamation mark is my [only] contribution to the whole thing) []

ps - if you've been following this forum even moderately: you know more about POIS than 99.99% of the medical professional world!! (Don't let the white lab coat + matchbook diplomas fool ya! [] )