Post Orgasmic Illness Syndrome (POIS)

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15500 on: 29/01/2012 20:19:33 »
I don't know who's in charge of the pledge list (B_Daniel?)- Would you please add my name for 400$?
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« Last Edit: 29/01/2012 20:27:36 by martin88 »

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15501 on: 29/01/2012 20:33:55 »
I don't know who's in charge of the pledge list (B_Daniel?)- Would you please add my name for 400$?
Thanks.

Everybody let give a magnitude 10 standing ovation to martin88

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15502 on: 29/01/2012 20:34:59 »
Quote from: Porke
Same issue here! I also cannot tolerate very hot showers. They normally make me feel very foggy / lethargic the entire day.

Quote from: demografx

Same here!!


We may be on to something.I thought about mentioning my intolerance for hot showers when I first went on this site over a year ago,but I thought it may be just me on here that had this problem and it may not be related to POIS for most people here since I couldn't find anyone else mentioning the same problem. Glad to know I'm not alone! Whats odd is that being out on a very hot day for hours doesn't seem to be much a problem for me,but taking a 10 minute hot shower can make me miserable for days after. I'd be curious to know how many people on this forum have Pois and sensitivity to Hot showers/bath.If the majority do, this information might be of great value once we get the funds for Nord to do research.
You know your problem could be related to chlorine. I have the same problem as you & the a few others here. I have a number of chemical sensitivities and chlorine was one that I had a high reaction to when tested at a environmental clinic. I can tell the difference between tap water and purified & filtered water. I don't drink water out of the tap anymore. I feel really sick if I swim in a chlorinated swimming pool and especially so if I use a spa. The hotter you have your shower the more chlorine you inhale and absorb through your skin.
If you still want to have your hot showers in winter and you want to reduce feeling not so good for the rest of the day, you might want to buy a shower filter that takes care of chlorine. Read up on chlorine and its effects on health, on some reputatable web sites and see what you think.

I also feel wrecked on hot humid days and my pois symptoms are not as bad for me in winter, in this case though I thought my heat intolerance was related to my low hgh levels.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15503 on: 29/01/2012 21:33:50 »
Quote from: Porke
Same issue here! I also cannot tolerate very hot showers. They normally make me feel very foggy / lethargic the entire day.

Quote from: demografx

Same here!!


We may be on to something.I thought about mentioning my intolerance for hot showers when I first went on this site over a year ago,but I thought it may be just me on here that had this problem and it may not be related to POIS for most people here since I couldn't find anyone else mentioning the same problem. Glad to know I'm not alone! Whats odd is that being out on a very hot day for hours doesn't seem to be much a problem for me,but taking a 10 minute hot shower can make me miserable for days after. I'd be curious to know how many people on this forum have Pois and sensitivity to Hot showers/bath.If the majority do, this information might be of great value once we get the funds for Nord to do research.
You know your problem could be related to chlorine. I have the same problem as you & the a few others here. I have a number of chemical sensitivities and chlorine was one that I had a high reaction to when tested at a environmental clinic. I can tell the difference between tap water and purified & filtered water. I don't drink water out of the tap anymore. I feel really sick if I swim in a chlorinated swimming pool and especially so if I use a spa. The hotter you have your shower the more chlorine you inhale and absorb through your skin.
If you still want to have your hot showers in winter and you want to reduce feeling not so good for the rest of the day, you might want to buy a shower filter that takes care of chlorine. Read up on chlorine and its effects on health, on some reputatable web sites and see what you think.

I also feel wrecked on hot humid days and my pois symptoms are not as bad for me in winter, in this case though I thought my heat intolerance was related to my low hgh levels.

Acronym, thank you! Maybe there _is_ a future for hot showers for some of us!! : - )

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15504 on: 30/01/2012 01:37:16 »
POISon,

That's exactly what the surveys are going to be all about!
ted.


Awesome! I just completed mine. I echo demografx's thanks on your part for helping surveys get started!

It looks like not everyone has problems with hot showers, it seems like some even enjoy them. I read about chlorine being a possible problem as well as manganese which can cause brain damage if inhaled  from the steam that hot showers/baths produce. I still think my body is just overreacting to the heat. Hot showers feel so addictingly good(especially in the winter) while I'm taking them only to feel like hell when I'm out of the shower for up to a week. I thought about trying  the filters,but the chance they don't work,and I feel miserable again is enough for me to just stick with tepid or even cold.



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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15505 on: 30/01/2012 06:55:03 »
I don't know who's in charge of the pledge list (B_Daniel?)- Would you please add my name for 400$?
Thanks.

I haven't been perfect in getting all these pledges so shoot me a PM if I miss one - but I got yours Martin!
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15506 on: 30/01/2012 17:12:55 »
Acronym has an interesting point about chlorine and hot showers. Perhaps the heat causes the chlorine to be better absorbed by the skin or something. I don't have a problem with hot showers and my family uses well water so I doubt we have much chlorine in our water.

Also I completed my survey at the poiscenter cover page.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Oneeyedguy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15507 on: 30/01/2012 18:48:13 »
I just posted this on the Thunderclap Headache After Orgasm thread on NSF. I think it'll interest people who suffer from POIS; my own problems began 5 years ago with 'pure' orgasm headaches but I'm now noticing ongoing after-effects, i.e. not just lingering headaches but brain fog and abdominal pain.

You may not like this: I'm beginning to think orgasm headaches might have something to do with a heart defect. A very common heart defect; ever heard of patent foramen ovale, or PFO? I'm guessing not; I hadn't come across it until I started looking for possible causes of my sex headaches. Well, it's a 'hole in the heart', but not the most serious type. Apparently, 1 in 4 people have a PFO! But they don't all have orgasm headaches... Please bear with me on this, bit of medical stuff first.

You can look this up in detail - newbielink:http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002102/ [nonactive] or newbielink:http://en.wikipedia.org/wiki/Atrial_septal_defect [nonactive] - but basically the foramen ovale is a channel in the heart between the two upper chambers - the right atrium and the left atrium. Why is this hole needed? Well, before birth, oxygenated blood from the mother via the umbilical cord flows towards the baby's heart along veins, which enter the right atrium of the heart. It doesn't then take the normal route via the right ventricle and the lungs, because before birth your lungs are full of fluid, so the pressure in that whole 'loop' to the lungs and back to the left side of the heart (and then out to the body), is too high. So there's a hole with a sort of cat-flap of tissue - the foramen ovale - that lets it flow straight through.

When you're born, you cry and your lungs start working. The pressure in the loop drops and blood now flows via the lungs, picking up oxygen, back to the left side of your heart. The cat-flap closes and, over the next few weeks, seals up. Well, it does for 3 out of 4 of us. In the others, the flap remains open - or at least openable. This is what's meant by 'patent', so: patent foramen ovale.

It sounds serious but, for most people, it isn't. In healthy people, the blood pressure in the left atrium is generally higher then the right, so the flap stays closed. People who have dangerous, life-threatening 'holes in the heart', 'blue babies' etc, are usually suffering from much more serious defects. So what makes a PFO ever open up? Well, anything that changes the pressures. Serious lung disease can cause pulmonary hypertension, i.e. high blood pressure in the 'loop' via the lungs. this will raise pressure in the right atrium. Alternatively, anything that raises pressure in the left atrium - e.g. plain old high blood pressure - can cause blood to flow from left to right. If this keeps on happening, the right side of the heart gets overloaded with extra blood and this can cause pulmonary hypertension. When this gets high enough for the pressure on the right side to be higher than the left, the flow of blood (known as a 'shunt') reverses and you're back to a R-to-L shunt situation.

OK, enough anatomy. What problems are caused by this, and what does it have to do with orgasm headaches or illness? Well, you've got de-oxygenated blood crossing over and getting pumped round the body. In chronic cases, this causes cyanosis (blueness), fainting, kidney problems, heart failure. But what if the high pressure is temporary? It's well known that increasing the internal pressure of the chest cavity (known as a Valsalva manoeuvre) can cause this, and in fact it's part of the diagnostic procedure for detecting a PFO. The patient is asked to exhale against a closed glottis, i.e. holding their breath. Then tiny bubbles are injected into their bloodstream and an echocardiogram looks for the bubbles passing through from one side of the heart to the other.

Temporary Valsalva manoeuvres include straining during defecation, coughing, sneezing, clearing your ears during a flight, even laughing or just bending over. And - sometimes - having an orgasm. There are lots of references in this forum to tensing, straining, involuntary breath-holding during sex and masturbation. What if some of us are 'opening up the cat-flap' during sexual activity? Heart-rate is already increased, blood pressure is already up. If this sounds far-fetched, read this - newbielink:http://en.wikipedia.org/wiki/Migraine_surgery [nonactive] - on the possible link between PFO and migraine headaches. Many people have had their PFOs closed by insertion of an 'occluder' via a catheter, and reported reduced or banished migraines - but the picture isn't that clear; others have had the procedure without success, some have even reported worse migraines. Anyway, here's a quote:

In certain scenarios, such as when a person sneezes, the pressure in the left atrium decreases and the flap over the still-present foramen ovale opens temporarily. When this happens, blood is able to bypass the lungs and therefore the filtration process in the pulmonary system. There are at least 4 theories as to how this defect leads to migraines.

Toxic circulation:
Early speculation regarding this link centered on the idea that, because blood bypasses the detoxification process in the lungs and reenters the circulatory system uncleaned, this "toxic blood" may contain various substances that then trigger migraines. There is speculation that one of these substances is 5-HT, more commonly known as serotonin.

Micro-emboli:
There is speculation that microemboli that develop in the venous system pass through the PFO and are able to reach the central nervous system. The paradoxical embolism then reaches the cortex, triggering cortical spreading depression, a phenomenon that leads to migraines.

Genetic linkage:
One study has found a genetic linkage between migraines and PFOs. It was found that PFOs have an autosomal dominant pattern of inheritance, and that migraine with aura appears to be coinherited in some families.

Atrial natriuretic peptides:
It has been shown that the changes in interarterial pressure that occur with a PFO cause an increase in atrial natriuretic peptide (ANP), and that the ANP concentration in migraineurs with aura is lower than the concentration in control subjects. A study has shown that when the cortical spreading depression phenomenon was induced in mice, ANP was expressed in the brain. As well, ANP levels are elevated in patients with a PFO. All together, this suggests a possible correlation between ANP concentration and migraine with aura.

One further thought: during the build-up to orgasm and immediately afterwards, the body produces a lot of hormones and neurotransmitters. They must be secreted into veins; how else can a blood-borne chemical from a particular gland reach the bodily circulation except via veins to the right side of the heart, then via the lungs, then out to the whole body via the left side of the heart? Is it possible that some of these substances bypass the lungs via a PFO in the period leading up to and immediately following orgasm, especially when a Valsalva-type event is taking place? And is it possible that their concentration is thereby increased? - after all, the lungs are recognised as one of the sites where breakdown of such chemicals occurs. My prime suspect is still norepinephrine; it's known to spike around orgasm and it's known to cause severe headaches and abdominal cramps - my symptoms exactly. And heart palpitations; while it's normal for one's heart to beat more strongly during sexual activity, I've noticed mine thudding away really heavily during very headachey orgasms.

And maybe that's why propanolol sometimes works for orgasm headaches - it's a beta-blocker, it blocks the action of norepinephrine and epinephrine. I'm sure the picture isn't quite that simple. Maybe we just have increased levels of some of these hormones, and the PFO thing is a red herring. But one of the things that's baffled me on this forum is that some of us are healthy young men and women. I can understand older, less fit people getting symptoms during an exertional activity like sex, but there are people on here who work out in gyms - maybe there's a clue there? And why is the occurrence of headaches so frustratingly random? - just when you think you've found something that works, it stops working. Maybe the opening of a PFO is a bit unpredictable; maybe it's related to exertion, breath-holding. But there's a lot to chew over, and I'm sorry none of it is particularly inspiring; who wants to suspect a heart defect on top of an embuggerance like sexual headaches? But we're naked scientists, right? Unwilling, maybe, but we've got to go where our research, experiences, or hunches, take us.

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Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15508 on: 30/01/2012 19:56:14 »
Re hot baths, fatigue and headaches. As I previously mentioned, this condition runs in my family and have wondered at times if there is a POIS link so i thought i would post this for people to take a look at symptoms, hopefully not to alarm anyone.

http://en.wikipedia.org/wiki/Polycythemia_vera#Symptoms [nofollow]

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15509 on: 30/01/2012 21:19:19 »



Thanks, badgerstripe!!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15510 on: 30/01/2012 21:20:26 »





•Shine the light on our experience!

•Show them what we know!

•We are the biggest union of POIS sufferers IN THE WORLD

•Let’s get what we know about medicine effectiveness

•And symptoms and nutrition into an organized database.
 
Surveys are HERE!

 
www.poiscenter.com/surveys.htm
 
Click on “POIS Profiles by Username”
 
Get your password via PM to Demografx or Daveman.

 
 

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15511 on: 31/01/2012 00:46:04 »
I came across the following waterproof jacket. Look at the 5th colour option down on the right hand side. If its POISproof, I'm buying it!  8D
http://www.cotswoldoutdoor.com/index.cfm/product/latok-trek-jacket/fuseaction/products.detail/code/11111044?cm_mmc=Google-_-GoogleBase-_-GoogleBase-_-11111044

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15512 on: 31/01/2012 01:14:57 »
I don't know who's in charge of the pledge list (B_Daniel?)- Would you please add my name for 400$?
Thanks.

I haven't been perfect in getting all these pledges so shoot me a PM if I miss one - but I got yours Martin!

Many Thanks for the great help, B_Daniel!

Demo

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Offline HeyMonkey

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15513 on: 31/01/2012 01:49:59 »
I dont know if everyone's read this because its a little old, but will post anything to help
Its from Marcel Waldinger, Anyways here's the link have a look

newbielink:http://www.reuters.com/article/2011/01/17/us-semen-allergy-idUSTRE70G00D20110117 [nonactive]

I have the same symptoms but to be honest very shy and quiet about it, such a relief to find out im not the only one and thinking im going crazy beecause all my doctors I've approuched have no idea what im talking about! It is such a good feeling to know that there are other people on the same level as me and can understand the feelings I feel!

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Offline HeyMonkey

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15514 on: 31/01/2012 01:59:15 »
@ Porke,
I usually get a horrible sore throat,severe fatigue,chest pains,brainfog, dizziness,heat flashes, extreme calm followed by anxiety, and muscle spasms,especially in the upper arm area after a hot shower. I think in our cases they are related. My theory is that heat and POIs trigger an immune response which triggers an over/under reaction of the HPA axis.People on this site may have different reasons,however for the way they act after having an O,since every bodies system is different. I'll have to take a look at that Myhill site,looks pretty interesting.

@ Habibou and people wishing to try Acetyl-L-Carnitine(Alcar)

I bought Swanson's premium brand 500 milligram Acetyl-l-carnitine and their Alpha Lipoic acid in the 600 mg.I would probably have gone with the 300 though since the 600 seems to strong. I'm not a rep nor do I own stock in Swansons,though I probably should since I buy so much from them,but they are usually the cheapest and also the best quality. Believe it or not,buying the right brand can mean  the difference between not noticing any effect, having side effects,or actually producing the positive effects you're looking for.

Once you start feeling a difference with the Alpa Lipoc and Acety-l-Carnitine combo you may find yourself wanting to drastically lower the dose of the Alpha  Lipoic acid or drop it completely and stick with just the Alcar. Thats what I'm doing right now and its working better for me since the Alpha Lipoic acid over time was adding agitation.I think once the body has accumulated enough Alcar in the bloodstream increasing its effect too much by continuing with the Alpha Lipoic acid will start to cause side effects such as moderate agitation.Again, that's my experience and everyone's body is different.

I Respect the doctor you are to yourself!

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15515 on: 31/01/2012 15:58:42 »
Oneeyedguy, it looks like you could be right. I think someone posted an article here that discussed that heart abnormality causing orgasm headaches, but I didn't look much into it because I don't get headaches. I have however looked into taking propanolol for my social anxiety. I think you should take some time to do a careful search of this forum for discussions related to that heart abnormality and if you can't find any further discussion then you could go ahead and try propanolol.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15516 on: 31/01/2012 16:15:14 »
I don't know who's in charge of the pledge list (B_Daniel?)- Would you please add my name for 400$?
Thanks.

I haven't been perfect in getting all these pledges so shoot me a PM if I miss one - but I got yours Martin!

I think I've been keeping up the list in the meantime. The data is being entered into a formal database, although I still don't have the program ready that gives access and edit capabilities to it yet. Meantime I'm keeping up the list on the forum.

Thanks for adding Martin, and THANK Martin!

How does Murphey do it??

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15517 on: 31/01/2012 17:57:31 »
@Oneeyedguy

I agree with you. Maybe not all of us, but i think some of us might have a PFO. I've got "migraine" and brain fog after O. I myself have some weird feeling after straining, or lifting too much weight, climbing stairs...So yes, the PFO test is one of those i want to get done in the near future. 


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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15518 on: 31/01/2012 22:57:27 »
Hey guys, It seems as if Imitrex has give our fellow member, Pharaoh, A great deal of relief. I'm wondering if anyone else has tried it?

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Offline onelongwar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15519 on: 31/01/2012 23:46:48 »
Hello,

I've had wet dreams and POIS-type symptoms for two decades now, with each orgasm reducing my libido to the point where I've had to avoid relationships for the last 6 years.  I also suffer from CFS/ME symptoms worsening along the same timeline i.e. they are not separate in my case.

Two years ago I started seeing an orthodontist to get my jaw fixed.  When I was 12 years old I had a couple of teeth taken out and a fixed brace put on which reduced the size of my upper jaw.  Following this the symptoms began to grow, but I didn't stop to think that only surgery I'd ever had could have been the source of all my problems until I came across his facebook page.

Last year we started working on pulling part of my upper jaw forward, and for the first time ever I experienced a temporary release of the tension that I'd felt in my sacrum since my teens.  On the days that I had this release there would be no wet dreams!  I felt fluid draining through my sinuses and immediately knew I'd found the source of my sexual problems.  Unfortunately I've not been able to keep pulling my jaw in this way all the time as there are other complications with my jaw and health, but whenever I do return to it, the effect is there.

An aside:  when I'm not able to "pull" the fluid/tension away myself, I take Seriphos which reduces cortisol, and thus reduces wet dreams.  Wish I'd discovered it ten years ago: I wouldn't be a eunuch now if I had.

At the moment, it looks like I have another couple of years work in store to get my jaw sorted....hopefully I'll then have a shot at some sort of life: relationships, career etc.

An article about my dentist:
newbielink:http://www.thisislondon.co.uk/health/article-23753592-how-a-dental-brace-could-cure-ms-migraines-and-paralysis.do [nonactive]

His site:
newbielink:http://mecfs.com/ [nonactive]

Someone else doing the jaw pulling found exactly the same sexual connection I did:

newbielink:http://www.jawpain-tmjtreatment.com/ [nonactive]

"You will also have a different sexual experience! One of the reasons those who do Reichian breath therapy never attain what Reich calls "full orgastic potency" is because the pelvis can never fully release unless the eyes and jaw and throat release and this area is the hardest area to release. Traditional and Neo-Reichian breath therapy has always done a poor job at dissolving this area.

Not any more! Just like areas on your hand correlate reflexively to other parts of your body (hence, reflexology), so it is the same with your face/skull! Consequently, the maxilla/palate is reflexively correlated to your pelvis."


Anyway, that's a very short version of my story...I have a bunch more info, insights and theories about how my POIS works if anyone is interested. I'm curious to know how many people on this forum have had teeth removed or wore braces?

Cheers,

O.L.W.

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Offline Vandemolen3

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15520 on: 01/02/2012 01:31:26 »
I'm curious to know how many people on this forum have had teeth removed or wore braces?
I had one tooth removed. There was a complication with a filling. My nerve at that place hurt. They removed the nerve and placed a temporary filling. But in the meanwhile my tooth broke in two. So they moved the tooth and placed a fake tooth. This was 15 years ago.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15521 on: 01/02/2012 01:34:43 »

onelongwar, and HeyMonkeywelcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year! We hope to launch serious POIS Medical Research! A great time to be here, onelongwar, and HeyMonkey!




**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain!)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum -- "daveman".  He'll reply to you.


Here are some POIS resources which may be helpful to you:

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click HERE first, and then look for "CHAT" button towards top of page, 6th button to your right!


Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the YouTube file for the POIS  TV documentary, "Desperate Measures":
http://www.youtube.com/watch?v=6sdaR18vw1s

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


Available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

It can be very  helpful to you when dealing with medical professionals to point out the POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:
http://rarediseases.info.nih.gov/RareDiseaseList.aspx?StartsWith=P, then scroll down until you reach Postorgasmic illness syndrome. 

POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus nearly 1,500,000 page visits. Not bad for a rare malady!



SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.



« Last Edit: 01/02/2012 01:38:59 by demografx »

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Offline Pharaoh

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15522 on: 01/02/2012 03:28:48 »
I came across this condition while researching the various classifications of headaches. 

Occipital neuralgia (Wikipedia):

"The symptom of this condition is chronic headache. The pain is commonly localized in the back of head and around or over the top of the head, sometimes up to the eyebrow or behind the eye. Because chronic headaches are a common symptom for numerous conditions, occipital neuralgia is often misdiagnosed at first, most commonly as tension headache or a migraine leading to treatment failure or addiction. Another symptom is the eyes being sensitive to light, especially when headaches occur.
Occipital neuralgia can cause very intense pain that feels like a sharp, jabbing, electric shock in the back of the head and neck. Other symptoms of occipital neuralgia may include:
•Aching, burning, and throbbing pain that typically starts at the base of the head and radiates to the scalp
•Pain on one or both sides of the head
•Pain behind the eye
•Sensitivity to light
•Tender scalp
•Pain when moving the neck

Causes

Occipital neuralgia is caused by damage to these nerves. Ways in which they can be damaged include trauma (usually concussive), physical stress on the nerve, repetitious neck contraction, flexion or extension, and as a result of medical complications (such as osteochondroma, a benign tumour of the bone).
One cause is vascular compression."

An exact description of my POIS headaches.  Just thought it was interesting, especially the part about vascular compression.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15523 on: 01/02/2012 05:36:12 »

Interesting, Pharaoh!

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15524 on: 01/02/2012 08:11:13 »
I'm curious to know how many people on this forum have had teeth removed or wore braces?
I had one tooth removed. There was a complication with a filling. My nerve at that place hurt. They removed the nerve and placed a temporary filling. But in the meanwhile my tooth broke in two. So they moved the tooth and placed a fake tooth. This was 15 years ago.
I had crowding on both top and bottom rows. I got 4 teeth removed and wore braces.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15525 on: 01/02/2012 16:05:20 »
Hey guys, It seems as if Imitrex has give our fellow member, Pharaoh, A great deal of relief. I'm wondering if anyone else has tried it?

Quote
Sumatriptan is structurally similar to serotonin (5HT), and is a 5-HT (types 5-HT1D and 5-HT1B[7]) agonist. The specific receptor subtypes it activates are present on the cranial arteries and veins. Acting as an agonist at these receptors, Sumatriptan reduces the vascular inflammation associated with migraine.

Is inflammation causing a run out of serotonin and then tryptophan and then vitamin B3 ?


B3 is also involved as a precursor in the histamine chain. And could well be like Victor says, if you have the pre-cursor and can't use it, the solution is one, but if you are low in production of the pre-cursor the solution is the other.

Diabetes is that way. There are two types of insulin, one in which the body lacks insulin, and another where the body has enough but doesn't know how to use it. Two completely different solutions, same final result.

So in POIS, I think that's what we are looking at.

It's incredible what we can do as lay-people, isn't it!!??



What they think happens in a migraine is that the vessels at the base of the head constrict, this causes the vessels higher up in the head to dilate as a compensatory mechanism to counteract for the decrease blood flow, this dilation causes the headache.  The triptians selectively bind to 5ht receptors and cause the dilated vessels in the upper head to constrict, which relieves the headache.  I get post-coital headaches and used to use sumatriptian, which worked great for the headaches and pois in general.  The only problem was that the more I used sumatriptian the less effective it became, I also started to get more and worse headaches from over use(rebound headaches).  Even if I did not get a postcoital headache, I would still take the sumatriptian and it would kick my pois in the ass pretty good.   I would recommend using the Imitrex sparingly to treat only your worst postcoital headaches.

from lauracostis about imitrex.  jefr
« Last Edit: 01/02/2012 16:06:51 by CCconfucius »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15526 on: 01/02/2012 17:46:46 »
We have eight members who have filled out the first survey, which is a mandatory precursor to the other surveys, they will all depend on the data generated by this first survey, establishing basic POIS profiles.

We need a minimum of 40 or so to really be able to start distinguishing trends. 100 would be excellent.

I think the amount of work required to fill in the surveys will be well worth the effort. Until we get the surveys up and running , there is so much data that we are losing here in general conversation.

Let's get the real facts recorded.

A thread has been created here to discuss ideas and corrections for the surveys.
http://poiscenter.com/forums/index.php?topic=313.0
« Last Edit: 01/02/2012 18:02:26 by daveman »
How does Murphey do it??

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Offline Green

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15527 on: 01/02/2012 20:54:41 »
Hey guys long time.

I've been lurking always, but never really had anything of great interest to post.

Just had the worst POIS episode in recent years, all the motivation to get better, work and donate so we can aim to treat this absolute misery.

Hope all is well :)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15528 on: 01/02/2012 22:29:41 »

Green, welcome back!

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Offline questforlife

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15529 on: 02/02/2012 01:55:29 »
Just wondering, does anyone experience any symptoms when the masturbate but not actually have an O? 

I know I do.  Im experimenting with amino acids at the moment, in particular L-tyrosine as I have been thinking if this has something to do with Dopamine, Serotonin  levels and if for some reason I have an excess or shortage of these neurotransmitters.  O's will only make this worse if there are any imbalances.  After all, isnt having an O one of the greatest pleasure the body can experience.   Just my own theory im exploring for what its worth...   Im thinking about getting these levels tested to see how balanced I am

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15530 on: 02/02/2012 12:41:58 »
I got an urina test and sent it to the lab 2 weeks ago, with the following tests :
serotonin
dopamine
noradrenaline
melatonin
Still no answer but I will update when it arrives...

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15531 on: 02/02/2012 15:11:50 »
Just wondering, does anyone experience any symptoms when the masturbate but not actually have an O? 

I know I do.  Im experimenting with amino acids at the moment, in particular L-tyrosine as I have been thinking if this has something to do with Dopamine, Serotonin  levels and if for some reason I have an excess or shortage of these neurotransmitters.  O's will only make this worse if there are any imbalances.  After all, isnt having an O one of the greatest pleasure the body can experience.   Just my own theory im exploring for what its worth...   Im thinking about getting these levels tested to see how balanced I am

Generally speaking, no. But sometimes if i masturbate with anxiety i can get some symptoms, but having the O. clearly is the key factor for me: is the factor that causes all the nasty symptoms to me.

But i agree that having the neurotransmitters levels checked is a great idea.

I got an urina test and sent it to the lab 2 weeks ago, with the following tests :
serotonin
dopamine
noradrenaline
melatonin
Still no answer but I will update when it arrives...

Thanks Habibou, i'm very intested in knowing the results. Are the urine tests more recommended than the blood ones?

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15532 on: 02/02/2012 16:28:25 »
I've never had any teeth removed or worn braces.

I used to think I didn't get any POIS from masturbating without an "o", but I've now realized that if I masturbate for 10 to 20min on the verge of an "o" but without actually having an "o" I will get this intense feeling of sadness, but if I cease masturbating that sadness will go away in 10 to 20 min. That's the only possible POIS symptom I get without having an "o"
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15533 on: 02/02/2012 17:41:30 »
I got an urina test and sent it to the lab 2 weeks ago, with the following tests :
serotonin
dopamine
noradrenaline
melatonin
Still no answer but I will update when it arrives...

Thanks Habibou, i'm very intested in knowing the results. Are the urine tests more recommended than the blood ones?
[/quote]
Urine tests are realized to get the neurotransmitters levels during 24h so it is much more reliable !
« Last Edit: 02/02/2012 17:48:33 by Habibou »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15534 on: 02/02/2012 22:53:19 »
Hello,

I've had wet dreams and POIS-type symptoms for two decades now, with each orgasm reducing my libido to the point where I've had to avoid relationships for the last 6 years.  I also suffer from CFS/ME symptoms worsening along the same timeline i.e. they are not separate in my case.

Two years ago I started seeing an orthodontist to get my jaw fixed.  When I was 12 years old I had a couple of teeth taken out and a fixed brace put on which reduced the size of my upper jaw.  Following this the symptoms began to grow, but I didn't stop to think that only surgery I'd ever had could have been the source of all my problems until I came across his facebook page.

Last year we started working on pulling part of my upper jaw forward, and for the first time ever I experienced a temporary release of the tension that I'd felt in my sacrum since my teens.  On the days that I had this release there would be no wet dreams!  I felt fluid draining through my sinuses and immediately knew I'd found the source of my sexual problems.  Unfortunately I've not been able to keep pulling my jaw in this way all the time as there are other complications with my jaw and health, but whenever I do return to it, the effect is there.

An aside:  when I'm not able to "pull" the fluid/tension away myself, I take Seriphos which reduces cortisol, and thus reduces wet dreams.  Wish I'd discovered it ten years ago: I wouldn't be a eunuch now if I had.

At the moment, it looks like I have another couple of years work in store to get my jaw sorted....hopefully I'll then have a shot at some sort of life: relationships, career etc.

An article about my dentist:
http://www.thisislondon.co.uk/health/article-23753592-how-a-dental-brace-could-cure-ms-migraines-and-paralysis.do

His site:
http://mecfs.com/

Someone else doing the jaw pulling found exactly the same sexual connection I did:

http://www.jawpain-tmjtreatment.com/

"You will also have a different sexual experience! One of the reasons those who do Reichian breath therapy never attain what Reich calls "full orgastic potency" is because the pelvis can never fully release unless the eyes and jaw and throat release and this area is the hardest area to release. Traditional and Neo-Reichian breath therapy has always done a poor job at dissolving this area.

Not any more! Just like areas on your hand correlate reflexively to other parts of your body (hence, reflexology), so it is the same with your face/skull! Consequently, the maxilla/palate is reflexively correlated to your pelvis."


Anyway, that's a very short version of my story...I have a bunch more info, insights and theories about how my POIS works if anyone is interested. I'm curious to know how many people on this forum have had teeth removed or wore braces?

Cheers,

O.L.W.


OLW, interesting stuff, I wish I didn't live across the pond from this guy or I might get checked out. When I was young I had incidents with my front teeth: my 1st set were nocked completely out by a smash to the face tobogganing, and the 2nd set were both broke in half by a fall on ice. I can eaily see how this trauma could have done damage to the jaw/ TMJ. Aside from POIS I have insomnia and also pulsatile tinniuts in one ear. The tinnitus is clearly indicitave of a physical problem involving blood vessles in the jaw regiion (the sound is a clicking in time with my pulse). It is interesting to consider that jaw problems can cause systemic problems. Maybe such a problem is also responsible for my double vision. It seems strange that it could be connected to POIS but who knows. I recently have had improved cognitive abilities by consuming herbal diuretics. Maybe they are relieving pressure somewhere in the jaw area, a pinched nerve or something. Thanks for sharing your story, I'll be interested to hear if you have improvement in your POIS and CFS.

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15535 on: 03/02/2012 00:06:00 »


I Respect the doctor you are to yourself!

Thanks,I've went the whole Primary doctor route and realized that I was wasting my money and time without getting anywhere. I realized I'm far more effective doctor to myself then someone who has such time constraints that they can't even listen to you for more than 5 minutes. Most Doctors at least Primary ones have little training in nutrition or supplementation,in fact they often think supplements are more harmful than prescription drugs. Its really, in most cases, only the  poor manufacturing process(quality control) by an unreliable supplement company that causes harmful side effects  approaching anywhere near prescription drug side effects.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15536 on: 03/02/2012 00:14:49 »

We have eight members who have filled out the first survey, which is a mandatory precursor to the other surveys, they will all depend on the data generated by this first survey, establishing basic POIS profiles.

We need a minimum of 40 or so to really be able to start distinguishing trends. 100 would be excellent.

I think the amount of work required to fill in the surveys will be well worth the effort. Until we get the surveys up and running , there is so much data that we are losing here in general conversation.

Let's get the real facts recorded.

A thread has been created here to discuss ideas and corrections for the surveys.

http://poiscenter.com/forums/index.php?topic=313.0


I filled mine out!

Demo


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15537 on: 03/02/2012 00:21:27 »






•Shine the light on our experience!

•Show them what we know!

•We are the biggest union of POIS sufferers IN THE WORLD

•Let’s get what we know about medicine effectiveness

•And symptoms and nutrition into an organized database.
 
Surveys are HERE!

 
www.poiscenter.com/surveys.htm
 
Click on “POIS Profiles by Username”
 
Get your password via PM to Demografx or Daveman.

 
 

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Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15538 on: 03/02/2012 14:56:01 »
Same here POISon. I am hoping Dr Goldmeier will be helpful. As recommended by other forum users.

I Respect the doctor you are to yourself!

Thanks,I've went the whole Primary doctor route and realized that I was wasting my money and time without getting anywhere. I realized I'm far more effective doctor to myself then someone who has such time constraints that they can't even listen to you for more than 5 minutes. Most Doctors at least Primary ones have little training in nutrition or supplementation,in fact they often think supplements are more harmful than prescription drugs. Its really, in most cases, only the  poor manufacturing process(quality control) by an unreliable supplement company that causes harmful side effects  approaching anywhere near prescription drug side effects.

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Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15539 on: 03/02/2012 14:58:35 »
Somethin funny happened to the quote function there!

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15540 on: 03/02/2012 15:44:26 »
I got an urina test and sent it to the lab 2 weeks ago, with the following tests :
serotonin
dopamine
noradrenaline
melatonin
Still no answer but I will update when it arrives...

Were these in or out of POIS?
Ideally the best test for these would need to be taken at intervals through the whole POIS cycle, but at least we can start by finding base levels and even see if there is any change or not.

Awaiting results. I imagine ot shouldn't be long now.
How does Murphey do it??

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15541 on: 04/02/2012 12:02:05 »
It was 10 hours after an O ! the next morning ! unfortunatly, I have a kind of constant POIS so it is hard to value...

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15542 on: 04/02/2012 17:14:41 »
Guys,

I think my Pois is getting worse...Some time ago i needed 3-4 days to be at 100%. Now i need 1 full week, and even then, i still have symptoms. I don't know if it's because of the cold winter, but the throat pain, headache and skin dryness last a lot more...

Niacin is helping me, but the problem is that you need to plan your "o", 30 min - 1 h., and sometimes is not possible.

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Offline Vandemolen3

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15543 on: 04/02/2012 20:55:10 »
Guys,

I think my Pois is getting worse...Some time ago i needed 3-4 days to be at 100%. Now i need 1 full week, and even then, i still have symptoms. I don't know if it's because of the cold winter, but the throat pain, headache and skin dryness last a lot more...

Niacin is helping me, but the problem is that you need to plan your "o", 30 min - 1 h., and sometimes is not possible.
In my case POIS is much worse in winter. That's because there are more virusses in winter. And because of the dry air at home. And because of the cold. I get sick too for 2 weeks. So now I decided to have an O. only for my injections and wait until spring.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15544 on: 05/02/2012 02:30:25 »
Guys.

Daveman has taken a lot of time to create a survey for us.  Yes, the survey will be modified / added to / and improved in the upcoming weeks, so you will need to take more surveys.

But this isn't a bullshit AT&T asking you to answer questions on your customer service experience.  This is UNBELIEVABLY IMPORTANT.

When this is done, you will have the ability to sort through and find users with similar problems to yourself, and see what treatments work and don't work for them.  Also, this survey will be used by researchers later to help find a cure.

This is the next big step forward for our forums, and so far only a disappointing 8 people have filled it out.  This community can't help you if you don't contribute.  It takes 10 minutes to do, so PM daveman or Demo for the PW and please do it.

www.poiscenter.com/surveys.htm
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline Finally

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15545 on: 05/02/2012 03:28:03 »
I was looking through tv listings and Oprah winfrey network is showing the Strange Sex episode now (10:30PM EST Saturday)  And repeating at (1:30 AM EST Sunday) In US

Sorry for short notice.  I don't get that channel in  my cable  package 
« Last Edit: 05/02/2012 03:31:14 by Finally »

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15546 on: 05/02/2012 10:42:46 »
Guys.

Daveman has taken a lot of time to create a survey for us.  Yes, the survey will be modified / added to / and improved in the upcoming weeks, so you will need to take more surveys.

But this isn't a bullshit AT&T asking you to answer questions on your customer service experience.  This is UNBELIEVABLY IMPORTANT.

When this is done, you will have the ability to sort through and find users with similar problems to yourself, and see what treatments work and don't work for them.  Also, this survey will be used by researchers later to help find a cure.

This is the next big step forward for our forums, and so far only a disappointing 8 people have filled it out.  This community can't help you if you don't contribute.  It takes 10 minutes to do, so PM daveman or Demo for the PW and please do it.

www.poiscenter.com/surveys.htm

Perhaps I'm not the only one but I'm having a problem logging into it with the login that enables me to get into the poiscenter forum. Is there another login I should use and, if so, it's not at all obvious.

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Offline questforlife

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15547 on: 05/02/2012 14:25:44 »

[/quote]

Perhaps I'm not the only one but I'm having a problem logging into it with the login that enables me to get into the poiscenter forum. Is there another login I should use and, if so, it's not at all obvious.

[/quote]

i too have tried logging in without success.  I think also it is not obvious...osrry guys, maybe its just me.  I requested a password but I have not been sent one, this was over 1 week ago.  Im keen to do the survey.  Please help

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15548 on: 05/02/2012 17:40:21 »

Quote

Perhaps I'm not the only one but I'm having a problem logging into it with the login that enables me to get into the poiscenter forum. Is there another login I should use and, if so, it's not at all obvious.


i too have tried logging in without success.  I think also it is not obvious...osrry guys, maybe its just me.  I requested a password but I have not been sent one, this was over 1 week ago.  Im keen to do the survey.  Please help
My apologies, read it again and noticed that I need Daveman to give me a password. I presume the username is the same as for the poiscenter forum?
Can you oblige Daveman? :)

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15549 on: 05/02/2012 18:09:17 »
OK, sorry folks. Yes, it's true, the password for surveys is unique, not the same as NSF or SMF.

However, I think I have simplified the process. To the same surveys page www.poiscenter.com/surveys.htm, I have added code which sends  the correct password to  your EMail.

If you have been using the surveys page, (url above) and don't see the place to click to receive your passwords, you may need to press "F5" to refresh your cache. You should see an extra paragraph:

"If you don't have your password yet, click here
and it will be sent to the EMail we have registered for
you in our survey system
."

Clicking the word "here" will lead you to a page where you enter your NSF username. Submitting this will send your password to the EMail we have on register. Some of you may have changed your EMails since we created our database, or if you are new, the information may not be in our database. If you don't receive a password, it will still be necessarily to PM Demo or I to be registered or have your EMail changed in our database.
How does Murphey do it??