[daveman]

Niacin survey is ready. On the POIS site you will see a link to the new survey.

Use the same username and password to enter (if necesary, it may remember  you). If you haven't already taken the previous survey your data will not be cross-referencable to POIS usergroups.

Remember if you need a password, a link exists to have it sent to your EMail on record. You will need to use your NSF username to access your password.

Any other questions PM me here.

I have a fairly heavy contract which is using a lot of my time right now, so I will not be able to move as quickly on our advances.

I have begun however the cross-referencing software that will allow a more in depth filtering and viewing of the survey data.

We now have 30 members registered. It would be great to get another 20!!

Thanks for your participation

[Defsync]

first and foremost, i would appreciate it if no one ever edits my posts or deletes them again. You feel you need to do what you must, at the same time censorship of the pain of this condition seems somewhat self-defeating.

With that, I recently almost lost my life in a car wreck. By about a foot. After drinking. I have to look at this as a second chance, tho a chance for what Im not sure.

My plans are to relocate to Hawaii where I am familiar with the cities and the wilderness, and see if I can find some sense of peace away from humanity.

[demografx]

As required by Naked Science Forum, any posts that contain ad hominem attacks (e.g., expletives) directed toward fellow forum members will be edited and/or deleted, and the poster will be warned and/or banned with continued displays of ill will.

Thank you, everyone, for keeping this forum friendly.

[demografx]

demo,

What do you believe is the underlying pathology?  What theory are you leaning towards?  Just interested to know. Thanks.

Pharaoh, I really don't know any more than you do. All I can personally vouch for is my own experience. After 30+ years of POIS agony, I am now 90%+ POIS-free, primarily from testosterone replacement therapy (TRT).

Why? I haven't yet spoken to any medical professional, including Waldinger, who understands why.

This is why NORD research on POIS is so crucial!

[demografx]

We just passed February 18, our

5th Year Anniversary

Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

 that is a long time.
Congratulations everyone, lets keep working.

Thanks for that, CC!

[Pharaoh]

demo,

What do you believe is the underlying pathology?  What theory are you leaning towards?  Just interested to know. Thanks.

Pharaoh, I really don't know any more than you do. All I can personally vouch for is my own experience. After 30+ years of POIS agony, I am now 90%+ POIS-free, primarily from testosterone replacement therapy (TRT).

Why? I haven't yet spoken to any medical professional, including Waldinger, who understands why.

This is why NORD research on POIS is so crucial!

Glad to know you're doing better.  I've been on testosterone therapy for half a year now, and quite frankly, it hasn't done much.  Aren't you also on a dextroamphetamine and amphetamine? 

I'm looking forward to my appointment at the headache center.  I'm worried this may be some type of transient ischemic attack (mini-stroke).  Could explain why Imitrex and Niacin have been effective.  We'll see.  Looking forward to NORD's findings as well.

[Vincent M]

Since phosphatidylserine is found in meat and since taking it in capsule form helps me I now suspect that I may not be digesting meat properly. I'm going try betaine hcl for a bit next to aid digestion. I also get pretty bad bloating after eating most foods, which is another reason for me to try betaine hcl.

[Vincent M]

Daveman,  just letting you know that for question number 10 on the niacin survey there doesn't seem to be a "N/A" option.

[demografx]

demo,
What do you believe is the underlying [POIS] pathology?  What theory are you leaning towards?  Just interested to know. Thanks.

Pharaoh, I really don't know any more than you do. All I can personally vouch for is my own experience. After 30+ years of POIS agony, I am now 90%+ POIS-free, primarily from testosterone replacement therapy (TRT).
Why? I haven't yet spoken to any medical professional, including Waldinger, who understands why.
This is why NORD research on POIS is so crucial!

Glad to know you're doing better.  I've been on testosterone therapy for half a year now, and quite frankly, it hasn't done much.  Aren't you also on a dextroamphetamine and amphetamine? 

Your disappointment with TRT unfortunately proves we're all different. I am very lucky TRT works so well for me.

Yes, I'm also on Ritalin (previously Adderall), and moderate caffeine, which help. Occasional Levitra also helps. And forced napping/sleep helps.

I have experimented with higher-than-average TRT doses. It helps, but my urologist suggested to cut back after 2 years. When I did cut back the TRT, the good anti-POIS effects still held up well. Lucky again!

I'm looking forward to my appointment at the headache center.  I'm worried this may be some type of transient ischemic attack (mini-stroke).  Could explain why Imitrex and Niacin have been effective.  We'll see.  Looking forward to NORD's findings as well.

I assume you saw Dr Selwyn Dexter's paper on headache-featured POIS and his treatment? If not, I can email that to you. (It didn't work for me because I couldn't tolerate progesterone well.)

Best wishes at the headache center, Pharaoh!

[daveman]

Daveman,  just letting you know that for question number 10 on the niacin survey there doesn't seem to be a "N/A" option.

Being a text field you can just enter "N/A" there. No problem.

[makaveli]

One thing I find that helps is that soon afterwards,
lifting weights and caffeine reduces the fatigue and metal confusion significantly.
I would probably say about 60-70%. Otherwise, I am basically non functional.

[demografx]

makaveli, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year! We hope to launch serious POIS Medical Research! A great time to be here!




**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain!)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum -- "daveman".  He'll reply to you.


Here are some POIS resources which may be helpful to you:

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click HERE first, and then look for "CHAT" button towards top of page, 6th button to your right!


Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the YouTube file for the POIS  TV documentary, "Desperate Measures":

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


Available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

It can be very  helpful to you when dealing with medical professionals to point out the
POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research:

And in Europe: Orphanet now lists POIS on their website! - Click here!

POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus nearly 1,500,000 page visits. Not bad for a rare malady!



SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

[badgerstripe]

Niacin survey is ready. On the POIS site you will see a link to the new survey.

Use the same username and password to enter (if necesary, it may remember  you). If you haven't already taken the previous survey your data will not be cross-referencable to POIS usergroups.

Remember if you need a password, a link exists to have it sent to your EMail on record. You will need to use your NSF username to access your password.

Any other questions PM me here.

I have a fairly heavy contract which is using a lot of my time right now, so I will not be able to move as quickly on our advances.

I have begun however the cross-referencing software that will allow a more in depth filtering and viewing of the survey data.

We now have 30 members registered. It would be great to get another 20!!

Thanks for your participation

Thanks Daveman

I've been experimenting with Niacin for a couple of months now. I lost my notbeook with detailed notes but i am able to draw some conclusions from doing this. I will fill in the survey when i'm not in POIS, otherwise it feels too complex to do!

[jivetalk]

Hi All,

I watched a documentary last week which some of you may or may not have seen 'Fat Sick and Nearly Dead'. In it, the presenter Joe Cross has a rare auto immune disease, which he has consultated many different experts(Sound like anyone you know?). Anyway, both he and another guy in the film are both able to beat this disease, quite simply by flooding himself with Micro Nutrients (i.e. Juicing). A process he calls a 'Re-boot'.

Very inspiring film - Gonna go and get me a juicer. Thought I'd share this with you because I might even try this for POIS!!

To find out more check out...
http://www.fatsickandnearlydead.com/
http://www.jointhereboot.com

Cheers.

EDIT: I meant to say, 'he has consultated many different experts but no one could really help him - so he decided to take matters into his own hands (Sound like anyone you know?)'

[badgerstripe]

Hi All,

I watched a documentary last week which some of you may or may not have seen 'Fat Sick and Nearly Dead'. In it, the presenter Joe Cross has a rare auto immune disease, which he has consultated many different experts(Sound like anyone you know?). Anyway, both he and another guy in the film are both able to beat this disease, quite simply by flooding himself with Micro Nutrients (i.e. Juicing). A process he calls a 'Re-boot'.

Very inspiring film - Gonna go and get me a juicer. Thought I'd share this with you because I might even try this for POIS!!

To find out more check out...
http://www.fatsickandnearlydead.com/
http://www.jointhereboot.com

Cheers.

This makes so much sense. It's probable that micronutrients couldnt cure absolutely everything but many Western diets are so lacking in certain nutrients that flooding the body with those really good things would get the body working again.

[kurtosis]

Hi All,

I watched a documentary last week which some of you may or may not have seen 'Fat Sick and Nearly Dead'. In it, the presenter Joe Cross has a rare auto immune disease, which he has consultated many different experts(Sound like anyone you know?). Anyway, both he and another guy in the film are both able to beat this disease, quite simply by flooding himself with Micro Nutrients (i.e. Juicing). A process he calls a 'Re-boot'.

Very inspiring film - Gonna go and get me a juicer. Thought I'd share this with you because I might even try this for POIS!!

To find out more check out...
http://www.fatsickandnearlydead.com/
http://www.jointhereboot.com

Cheers.

This makes so much sense. It's probable that micronutrients couldnt cure absolutely everything but many Western diets are so lacking in certain nutrients that flooding the body with those really good things would get the body working again.

Have a bit of algae with it too. Still working for me.

[GoingCrazy]

Today is the first day I've experienced POIS in quite a while.  I'm just so fed up with it.  The longer you wait without having an orgasm, the more "angrier" you are, and if you do orgasm, the "angrier" you are.  It's like a double-edged sword.

I'm going to try one of the techniques that I tried a couple months ago.  That is doing handstands for long periods of time, say 10 handstands for 1 minute each.  I distinctly remember doing this and I literally felt the POIS pain exit my head.  I was totally clear in the head but the problem was that I think my chest received the pain.  It felt like my chest was going to explode.  Even though with all of that chest pain, I managed to sleep the best night of my life that I shared with POIS.  Totally clear headed.  If I manage to do this again, and the same thing happens, I really wouldn't know what to say.  It's like something leaving your head and going to your chest area?  Is it an air bubble?  Wtfudge? I'm literally thinking about stabbing my chest area where I feel the pain to kill the POIS... Or maybe I am just going crazy.  I will message later.

[demografx]

GoingCrazy, go easy on yourself. We are getting closer to very seriously researching a POIS cure every day! We just need to keep funding NORD.

[GoingCrazy]

I'm sorry demo I'm just temporarily losing it from POIS  O_o

Anyhow, I'm going to start myself on antihistamines, probably claratin 24hr.  I will post if there are any good affects to my pois.

[demografx]

I understand! (Don't be "sorry").