Post Orgasmic Illness Syndrome (POIS)

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17200 on: 09/09/2012 11:43:34 »
Greetings,

Are there any legitimate Scientists on this with a venucular greater than the volume of a reptilian brain?

Please read my previous thread and provide an assessment as opposed to the poor responses equivalent to that of a junior in High School.

All the best.

aden99. I thought your post was interesting. Something to discuss on poiscenter. There are years of theories both here and on poiscenter and the seminal leakage one isn't new.

However, this comment is obnoxious.
Quote
Are there any legitimate Scientists on this with a venucular greater than the volume of a reptilian brain?

It's also misspelt which is ironic considering the tone. The forum contains many non-English speakers who try their best to communicate about POIS in the hope it can be better understood and cured. The forum members are sufferers of POIS, an illness which we believe leads to cognitive impairment. I understand frustration but nobody needs to be insulted or have their intellect questioned.

Is what you suggest possible? Of course but there are also conflicting reports of using ED medication to treat POIS.
We've also seen 2 older POIS sufferers with diagnosis of hypertension. I understand cialis is prescribed as a medication for this. Other sufferers, myself included, have had some success with taking vasodilators.

Regular antibiotic use is obviously not a viable option for treating an illness that occurs with orgasms and nocturnal emissions. If we didn't have an immunological problem before we took antibiotics regularly we surely would afterwards. Some forum members have reported results from gastroenterological examinations showing they have high amounts of stomach bacteria, which may be affecting their ability to process nutrients and/or may be producing toxins in their guts. Others have reported some success with "natural" antibiotics like garlic.

Neem, would fall into the category of a natural antibiotic with anti-fungal properties.

Forum members have tried a variety of anti-allergy treatments with some success from anti-histamines, Non-steroidal Anti-Inflammatories and even steroids themselves. One of us have had great success with hormone replacement treatment.

Many things have been tried. It often appears things are written off too hastily and solutions grasped at but that is not surprising given what people are going through. We don't always agree with each other but we try to conduct ourselves with respect.

We also need further research and donations to the research grant which is described in more detail at poiscenter.com.

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17201 on: 09/09/2012 19:27:37 »
Any news about the functional MRI study??? It seems to be one of the best investigation to do !  :)

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17202 on: 10/09/2012 07:37:26 »
Aden99.
I found your post interesting. What antibiotic did you take, and how did you choose the particular one?
I may have misinterpreted your comments, but are you saying the ABx works by altering blood pressure?
I have found my pois/CFS symptoms have lessened when I have take Azithromycin. I thought it was quite possibly because of anti-inflammatory effect which was why this ABx was noticably better than a number of others I have taken. As Kurtosis points out getting a script from a doctor for poping just 1 ABx whenever we have an O for the rest of our life, is not going to be that viable. Still it would be very interesting if others can replicate it.
Also I don't not see any juvenile posts directed back you in response...have these been deleted?

Kurtosis...
"Neem, would fall into the category of a natural antibiotic with anti-fungal properties. "
I found much more info on these properties pertaining to Neem that I did in its use an anti-allergenic. I wondered if it was working for Nathan that it was more so because of this. A number of people have lessened their symptoms by following something along the lines of an anti candida/gut dysbiosis type diet. I was very disappointed to read Nathan's latest post, that his pois had returned. Two months of zero pois is not likely to be just a fluke though.


« Last Edit: 10/09/2012 07:42:53 by acronym »

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17203 on: 11/09/2012 13:04:00 »
Kurtosis...
"Neem, would fall into the category of a natural antibiotic with anti-fungal properties. "
I found much more info on these properties pertaining to Neem that I did in its use an anti-allergenic. I wondered if it was working for Nathan that it was more so because of this. A number of people have lessened their symptoms by following something along the lines of an anti candida/gut dysbiosis type diet. I was very disappointed to read Nathan's latest post, that his pois had returned. Two months of zero pois is not likely to be just a fluke though.

No, very unlikely to be a fluke. The symptoms are so obvious. There's no way you can be in doubt whether you're experiencing them or not.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17204 on: 13/09/2012 05:03:54 »
Are there any legitimate Scientists on this with a venucular greater than the volume of a reptilian brain?


strange way to ask for help :)
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17205 on: 13/09/2012 18:09:15 »
Hi All!

This is just an FYI for those of you who are making automatic, recurring donations to NORD's POIS research grant fund.

If you're credit card expires, and you want to continue with your automatic donations, please re-register via our online donation page -- https://rarediseases.org/about/support/research-donations/fg_base_view_p3.

We ran into this situation with a recurrent donor whose card expired at the end of August.

It's very easy to fix by simply re-registering with your new card. If you have any questions or concerns, please feel free to send a PM or email me directly at NORD -- rn@rarediseases.org

Best wishes to everyone!

Stef

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17206 on: 14/09/2012 04:13:40 »
Are there any legitimate Scientists on this with a venucular greater than the volume of a reptilian brain?


strange way to ask for help :)

I agree with you, B Daniel. Aden99's comments were strange and very sarcastic.

Aden99 -- perhaps you actually don't understand who your comrades are on this POIS site. Each person here has walked in your shoes.  Some have medical knowledge, but these are not professional scientists who are experts on POIS.

As a matter of fact -- there are no scientists who are experts on POIS -- yet.

The forum members here are your fellow POIS sufferers, struggling constantly with the same basic misery that you're struggling with.

You wrote --

"Are there any legitimate Scientists on this with a vernacular greater than the volume of a reptilian brain? 
Please read my previous thread and provide an assessment as opposed to the poor responses equivalent to that of a junior in High School."


Really -- those comments are uncalled for and just plain obnoxious. 

Perhaps you think that there really are POIS scientists on this site.

Unfortunately, the answer is "NO!"

It might help for you to visit poiscenter.com, where you can start a thread on a topic of interest to you.

But  there are no scientist there either -- just fellow POIS sufferers that know your pain and are doing their best to help themselves, while donating to the POIS research fund at NORD.  THAT is where you'll find the scientist -- through the research grant.

Please hold off (this goes for everyone) on snide, cutting remarks.  You men don't need this!  You need to support each other, while getting your first scientific POIS  grant started.

Aden99 - try going over to poiscenter.com -- at least you'll be able to put your theories into one thread, where others can offer their opinions and perhaps offer some help.

But keep in mind -- there are no POIS scientists over there either.  Expect honest respect and commentary.  The scientists will eventually be found through your research grant.

With all the misery that most of you have gone through, the last thing you need is a kick in the stomach from a fellow POIS sufferer.

Stef


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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17207 on: 14/09/2012 17:55:42 »

Hi,

The following are of my experience and findings after I my POIS is back. 

a) I came to know the reason why POIS is came back:  After spending two months of happiest moment in life after success in Neem.  One night I make summary how I faced difficulties because of POIS in that seven years, its symptoms, treatments taken by me, use of this forum and I was emotionally involved in this.   From next masturbation I got my POIS back. 

Probably, I reminded my mind / immune system about POIS and it started again. 

b) POIS effects will reoccur / increase if I not gone to deep sleep and had dreams for 2 to 3 hours in the sleep.  If this is happened next day, I will experience increase in POIS symptoms.  This is the reason way for some one's POIS effects will be there continuously.   So, I tried sleeping tablets to get sleep deeply..  Unfortunately that is not working.

c) Still I am taking Neems and observing again decrease in POIS effects from day by day. 

d) Because of this, I came to know that our emotions / confidence level will determine severity of POIS.  After consultation of hypnotist, now I am following approach..   
  i) to write in a diary / paper before having orgasm that, ' After this orgasm, my mind is calm, clear, happy, confident and my breathing is normal, cool and calm, and my energy levels are strong'..  this type I will write with full concentration, for half an hour and this is giving me a confidence that I will not get POIS this time.   The result I found is, excellent decrease in POIS symptoms. 

ii) Suppose, if I failed in above approach and got POIS effects, on the next day, I will write as '  my mind is calm, clear, happy, confident and my breathing is normal, cool and calm, and my energy levels are strong' for half an hour twice a day and observed POIS symptoms will go quickly.  Pl some body this approach and post. 


Hence, presently I am in a hope that , our confidence level and mind will determine the changes in hormone level after POIS and if we something imbalance in hormone levels after o , then auto immune reaction will follow and symtoms of POIS.  Also Neem will reduce the auto immune symtoms. 

 

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17208 on: 14/09/2012 20:12:21 »
Hi
jferr

All of us have the same symptoms,but dont forget that masturbation is the reason of pois,i got pois after severe masturbation several times aday per a week,the symptoms have lettle effect when i do it with my wife.but i dont know why!!.

Yes, If Masturbation is done under different styles, POIS effect is different.  Very stragne. 

People without POIS have observed a similar crash after quick masturbatory O's. It's just not as severe as POIS. You probably spend a lot longer having sex with your wife, meaning you're increasing dopamine levels to a higher plateau before the post O crash. You're also probably producing oxytocin which reduces the post O dopamine crash.

If you really want to reduce POIS symptoms following a solo O :) then take it very slowly. Fast & frequent O's are the problem.

Another thing is that you normally will have sex with a wife/gf once, whereas you might masturbate 2-4 times in a day.  That could also account for the difference in how you feel the next day (or at least, i noticed that was the case for me).
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline FireCat

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17209 on: 16/09/2012 01:32:38 »
If anyone knows a supplement that helps back and neck pains after O, PLEASE let me know.
My performance gets affected due to the pains after...
I'm so sad about it and have to see a chiropractor to remove the pain on the following day...

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Offline poishelp

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17210 on: 16/09/2012 18:02:29 »
HI i really need some help, i suffer from this since puberty i am 20 years old now and it is ruining my life. i registered to this forum to see if i can get some help.. OK for some reason any time i ejaculate with sex, masturbation or night emission, i get these symptoms for at least a week, day 2/3 is the worst, it effects me both physical and mental in a major way More mental though.  depression,  intense discomfort,irritability, anxiety and difficult in concentrating also hard to think straight, i also feel weak and it seems almost like it weakens my personality , i really dont know what to do, if i dont ejaculate in any way for a week-2weeks i feel somewhat ok and i get my strength back both mental & physical. its like i must be relising some hormone or SOMETHING that is effecting me. really i dont know. iv been to my doctor about it and he said he has never heard of it. so all ive been able to do is reasearch the internet and iv found out about this condition Post Orgasmic Illness Syndrome... i try not to ejaculate in anyway anymore, and when or if i do i get these symptoms big time...i would say its the depreshion and anxity that bothers me the most but still suffer from the rest of the symptoms mentioned.. Any help or advice i would really appreciate it.. could you inbox me if any.

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Offline Omen 30

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17211 on: 20/09/2012 12:06:01 »
I had a very much needed break from pois for the last 2 and a half month cause I was not ejaculating,one thing I noticed is maybe pois is not related to any allergies but it is definately a deficiency of some hormone in our body.when a normal person ejeculates the level of that particular hormone drops but not so low like in our poisers case in our case it drops to a level from which it takes long enough to bounce back or maybe we are not producing that same hormone enough.one more thing when we are staying away from ejaculation for a longer time the parts of our brain which are normally not used and kind of rusting even those parts come back to life.like in my case now when I had the big O this time the pois cycle has started but I remember many things that I enjoyed for all these days,yes I have taken so many correct decisions in the last 2 months all profitable and I am ready to give up an ejaculation for the next 6 months now.I just wanna stay away from this hell,I have reduced my weight,changed my diet,started exercising but nothing worked,the only thing that works is no sex. Period.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17212 on: 22/09/2012 01:06:23 »
This forum has really died over the last 2 weeks.  We've been stuck on page 711 forever it feels like.  Nobody's experienced any improvement lately that they'd like to discuss?

I have a question over our Thyroid.  POIS symptoms align somewhat with that of hypothyroid.  I've been reading online about hypothyroid being misdiagnosed, and special types of auto-immune thyroid issues such as Hoshimoto's Thyroiditis, that may be present even if your TSH levels come back normal.  Not wanting to leave any stones unturned, I'm a bit curious about this.  Has anyone seen a really good neurologist or endocrinologist who has explored thyroid issues with them, above and beyond the simple lab tests? 
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17213 on: 22/09/2012 01:54:59 »
A lot of people I feel fall through the cracks when it comes to thyroid. I suspected I was hypothyroid for years. I cannot remember what exactly I had tested when I was younger but was told I was fine by an endo. (probably just TSH) I remember him talking about goitre, so I had the impression he had physical manifestation as a primary guide if a person has a problem, which is wrong.
A few years ago I had another test for TSH and I think T3. I thought I read where there can be issues with TSH or T3 or T4, and then there is issues with other proteins binding to the thyroid hormones, just like with Testosterone, and there are Free T3 and Free T4 tests that measure the actual available levels of these hormones, I also think there are thyroid antibodies tests (not sure how or if they differ from free T3/T4) that people rarely have. If anyone suspects they have a thyroid issue they should read the website called 'stopthethyroidmadness', so they are better prepared to deal with their doctor. I thought there was a female with CFS on this site a few years back that said she had some improvement in her pois after dealing with thyroid issue.

I showed up with no detected iodine in a mineral test a few years back (essential for thyroid), and was put on Ammodine drops by doctor. If anything I thought I felt worse on this, but I was taking a few other supplements at the time. There are a number of health focused websites that talk about detox, so it might have been because of this. I was told to rub it on my skin, but just reading a few sites now, I see most talk of iodine drops being added to a drink.

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Offline Danutsy_

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17214 on: 22/09/2012 02:38:46 »
Hey guys, I been following this thread for long time. I think I had POIS for 4 years now and am in same sex relationship. My partner very supportive, but it still hard. Not sure I have POIS. You have overview symptoms for this group or survey? I have brain fog bad, anxiety, bad dreams etc, not sure this mean I had POIS.
« Last Edit: 24/09/2012 17:38:21 by Danutsy_ »

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17215 on: 22/09/2012 03:22:51 »
Hello All!

A $400 donation to the POIS fund was just received from a forum member.

On behalf of Daveman and Demo, I'm formally thanking the donor for that generous donation!!! Demo has given me his permission to do so.

(Demo used to thank every single donor profusely on this forum from the bottom of his heart -- and with great fanfare. No matter how much the donation was, Demo has always been thrilled by each donation.  He remembers when no one knew about POIS, and the idea of a POIS research grant fund was just a figment of the imagination.)

Additionally, I want to mention that one of you has donated $50 -- twice -- in the past one-two months.  Demo has mentioned it on poiscenter.com -- but I don't know if that donor has made it over to that forum yet. Please know that your donation has been greatly appreciated!

Having had a bit of back-and-forth email with this young man -- he is donating every thing possible!! He is to be applauded!

And to the automatic/monthly donors -- Demo and Daveman send many, many thanks! They know that their pushing and prodding is not in vain, and want to make sure that you know how appreciated those donations are. :-)

If some of you have not made it over to poiscenter.com -- it is worth your while to do so.  Once you get the hang of it -- it's a fabulous forum.  Everything is organized!!

So -- again, on behalf of Demo and Daveman -- thank you both for your recent donations!!!! 

I'm willing to bet that you'll have a scientific research grant started in 2013 -- that will be the ticket out of this POIS hell.

You guys are terrific! :-)

Stef

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17216 on: 23/09/2012 02:53:03 »
I sometimes wonder whether POIS is the intersection of 2 rare diseases.  If it is, hypothyroidism might be related.  I'm going to get myself checked so that I feel good about that, and can resolutely cross it off my list of suspected areas.  Honestly, I didn't understand much of the T3/T4 stuff you wrote below, BUT, the stopthethyroidmadness website was super helpful.  There are tons of reports online about people with hypothyroid who went to multiple doctors before getting properly diagnosed.  I'm going to take the recommended lab tests to my doctor and have her order the right tests.  Thanks for the website info!

A lot of people I feel fall through the cracks when it comes to thyroid. I suspected I was hypothyroid for years. I cannot remember what exactly I had tested when I was younger but was told I was fine by an endo. (probably just TSH) I remember him talking about goitre, so I had the impression he had physical manifestation as a primary guide if a person has a problem, which is wrong.
A few years ago I had another test for TSH and I think T3. I thought I read where there can be issues with TSH or T3 or T4, and then there is issues with other proteins binding to the thyroid hormones, just like with Testosterone, and there are Free T3 and Free T4 tests that measure the actual available levels of these hormones, I also think there are thyroid antibodies tests (not sure how or if they differ from free T3/T4) that people rarely have. If anyone suspects they have a thyroid issue they should read the website called 'stopthethyroidmadness', so they are better prepared to deal with their doctor. I thought there was a female with CFS on this site a few years back that said she had some improvement in her pois after dealing with thyroid issue.

I showed up with no detected iodine in a mineral test a few years back (essential for thyroid), and was put on Ammodine drops by doctor. If anything I thought I felt worse on this, but I was taking a few other supplements at the time. There are a number of health focused websites that talk about detox, so it might have been because of this. I was told to rub it on my skin, but just reading a few sites now, I see most talk of iodine drops being added to a drink.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17217 on: 23/09/2012 11:57:38 »
I sometimes wonder whether POIS is the intersection of 2 rare diseases.  If it is, hypothyroidism might be related.  I'm going to get myself checked so that I feel good about that, and can resolutely cross it off my list of suspected areas.  Honestly, I didn't understand much of the T3/T4 stuff you wrote below, BUT, the stopthethyroidmadness website was super helpful.  There are tons of reports online about people with hypothyroid who went to multiple doctors before getting properly diagnosed.  I'm going to take the recommended lab tests to my doctor and have her order the right tests.  Thanks for the website info!

A lot of people I feel fall through the cracks when it comes to thyroid. I suspected I was hypothyroid for years. I cannot remember what exactly I had tested when I was younger but was told I was fine by an endo. (probably just TSH) I remember him talking about goitre, so I had the impression he had physical manifestation as a primary guide if a person has a problem, which is wrong.
A few years ago I had another test for TSH and I think T3. I thought I read where there can be issues with TSH or T3 or T4, and then there is issues with other proteins binding to the thyroid hormones, just like with Testosterone, and there are Free T3 and Free T4 tests that measure the actual available levels of these hormones, I also think there are thyroid antibodies tests (not sure how or if they differ from free T3/T4) that people rarely have. If anyone suspects they have a thyroid issue they should read the website called 'stopthethyroidmadness', so they are better prepared to deal with their doctor. I thought there was a female with CFS on this site a few years back that said she had some improvement in her pois after dealing with thyroid issue.

I showed up with no detected iodine in a mineral test a few years back (essential for thyroid), and was put on Ammodine drops by doctor. If anything I thought I felt worse on this, but I was taking a few other supplements at the time. There are a number of health focused websites that talk about detox, so it might have been because of this. I was told to rub it on my skin, but just reading a few sites now, I see most talk of iodine drops being added to a drink.

A friend was diagnosed with a tumour in her thyroid by the 5th doctor she saw. By that stage, the consultant doctor said the problem was so bad she needed her thyroid removed. She is much better now and much happier as a result. Some illnesses are difficult to spot and some doctors do not pay enough attention to the presentation of symptoms or even test results. You've got to be very stubborn.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17218 on: 27/09/2012 02:42:45 »
I presented the Selwyn Dexter study to my physician today: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3028282/

She found it interesting and wrote me a prescription for a progesterone drug called norethindrone (the US version of norethisterone).  I also had labwork ordered for my thyroid, hormones and cortisol levels.  I'll post updates on each of these items as I get results.

As a side note, if anybody is looking for another doctor and has really good insurance, I recommend seeing a physician at a Health and Healing or Health and Wellness center (I think her specialty is Integrative Medicine).  The doc I'm seeing has been more than happy to order me whatever tests I want and has been an absolute pleasure to work with.  I only say you need really good insurance bc they're specialists so seeing them is more expensive than seeing a Primary care physician, and all the labwork they order is quite pricey too.

« Last Edit: 01/10/2012 13:55:51 by B_Daniel »
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline Jeffrey9

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17219 on: 27/09/2012 18:26:49 »
Good luck B_Daniel! 

I just recently diagnosed myself with POIS.  I'm 18 and many doctors visits later I still didn't have a good reason for getting sick after sex.  So glad to find this resource.  I'll be doing more research in the coming week and reading through threads here.  Just one thing I've noticed so far is that the Bing search engine seems to give better results for POIS than Google for some reason.  Google gives a lot of non-POIS results (French peas?). 

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Offline Jeffrey9

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17220 on: 29/09/2012 05:47:26 »
Thank you to whoever put the google site for POIS together...very informative.  https://sites.google.com/site/poiswebsite/

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Offline alphaq

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17221 on: 29/09/2012 07:33:08 »
Here's some interesting questions/points:

1. Who here's POIS started with masturbation? Was the masturbation excessive? 1+ times a day? The reason for this question is because for one, there is likely to have been one instance of masturbation or sex that triggered or started POIS. After the trigger, something definitely changed within the body and/or brain. If we find what that change was, we can possibly reverse it.

2. There's currently a common theme upon this forum and POISCenter that the cognitive symptoms might be caused by a severe cerebral vasoconstriction for a period of time, and there has been positive results with certain vasodilators it seems.
     - It will be interesting to actually compare a brain blood flow test (TCD) before and after orgasm to confirm if there's actually a significant cerebral vasoconstriction, if so, at least there possibly can be effective ways to treat it
     - What type of bodily response is cerebral vasoconstriction controlled by? (pituitary? auto-immune? inflammatory? etc) It's possible that this particular system that controls this response has a problem, which allows us to see which supplements we can use to try to fix it

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17222 on: 29/09/2012 10:33:56 »
Here's some interesting questions/points:

1. Who here's POIS started with masturbation? Was the masturbation excessive? 1+ times a day? The reason for this question is because for one, there is likely to have been one instance of masturbation or sex that triggered or started POIS. After the trigger, something definitely changed within the body and/or brain. If we find what that change was, we can possibly reverse it.

2. There's currently a common theme upon this forum and POISCenter that the cognitive symptoms might be caused by a severe cerebral vasoconstriction for a period of time, and there has been positive results with certain vasodilators it seems.
     - It will be interesting to actually compare a brain blood flow test (TCD) before and after orgasm to confirm if there's actually a significant cerebral vasoconstriction, if so, at least there possibly can be effective ways to treat it
     - What type of bodily response is cerebral vasoconstriction controlled by? (pituitary? auto-immune? inflammatory? etc) It's possible that this particular system that controls this response has a problem, which allows us to see which supplements we can use to try to fix it

I think that the vasoconstriction continues because our body cannot regulate stress hormones. I also believe the same problem occurs with NE/Dopamine balance after an O. POIS is possible some kind of autonomic dysregulation condition whether it's caused by autoimmune disease, hormone synthesis abnormalities or a bunch of other possible causes.

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Offline Jeffrey9

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17223 on: 30/09/2012 01:58:42 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17224 on: 30/09/2012 07:01:05 »

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments. 

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Offline makrofag

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17225 on: 30/09/2012 10:02:18 »

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments. 

Sorry Nathan but you seem to positively react to too many "supplements" so that points to you enjoying some placebo effect.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17226 on: 30/09/2012 10:44:54 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17227 on: 30/09/2012 10:53:50 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

I also want to point out that there's a number of comments about "hair loss due to increased testosterone" on this feelalike.com site where there's little or no documented evidence of hair loss by using those supplements. Vitamin C and Ginkgo are not known to promote hair loss. Whoever commented may just be losing hair because of other factors. It's not necessarily POIS nor POIS treatments that are causing that. The same goes for acne.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17228 on: 01/10/2012 04:32:43 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

Feelalike.com is a facebook of sorts for people with different healthcare problems to connect.    The site allows you to share a picture of yourself and information such as city and age, but it doesn't give out email addresses or last names, in order to retain anonymity.  I've been on the site for a while now, and enjoy using it.  Feelalike was actually created by a really smart former POIS forum member (Willem), who cured himself of POIS through sublingual desensitization.  His site is good because it's a)very user-friendly b) more personal c)aggregates data really well, like you saw in that Summary list of treatments page.  Just like with facebook, each person has their own profile page, which includes a list of treatments that work/ don't work for you.  The website then aggregates all that information into the very useful Summary page that ya'll just saw.  So the site is just users chatting to each other and posting their own experiences - which is why nothing about the site is scientific and why you saw incorrect information on testosterone causing hair-loss.  But the goal of the site, besides being a place to connect, is to give everyone a voice, while also aggregating data to provide a view of macro trends across all the members with POIS.  There's only a handful of us on that site, but the more participants that join the more robust that Summary page would be.   
« Last Edit: 01/10/2012 13:58:37 by B_Daniel »
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline Jeffrey9

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17229 on: 01/10/2012 04:49:10 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

I also want to point out that there's a number of comments about "hair loss due to increased testosterone" on this feelalike.com site where there's little or no documented evidence of hair loss by using those supplements. Vitamin C and Ginkgo are not known to promote hair loss. Whoever commented may just be losing hair because of other factors. It's not necessarily POIS nor POIS treatments that are causing that. The same goes for acne.
I hadn't noticed that.  I thought it was interesting to see that brain fog is the most common symptom (seems like a small sample).  Reading through this forum it seems like people spend a lot of time talking about treatments, and that seems to be the focus of this feelalike.com site. 

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17230 on: 01/10/2012 20:34:09 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

I also want to point out that there's a number of comments about "hair loss due to increased testosterone" on this feelalike.com site where there's little or no documented evidence of hair loss by using those supplements. Vitamin C and Ginkgo are not known to promote hair loss. Whoever commented may just be losing hair because of other factors. It's not necessarily POIS nor POIS treatments that are causing that. The same goes for acne.
I hadn't noticed that.  I thought it was interesting to see that brain fog is the most common symptom (seems like a small sample).  Reading through this forum it seems like people spend a lot of time talking about treatments, and that seems to be the focus of this feelalike.com site. 


I wont say brain fog is the most common, there are other symptoms we all share. Brain fog gets the most emphasis because it makes most damage on our everyday life.

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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17231 on: 02/10/2012 06:49:22 »

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments. 

Sorry Nathan but you seem to positively react to too many "supplements" so that points to you enjoying some placebo effect.

Hi, initially few of my supplements i have tried its not worked for fewer days.  But this Herbal life diet has changed my life.  I am only not believing that I am out of POIS now. Yesterday I had four O's and there was no symptoms of POIS.  Today morning I had little bit headche, but after sleeping for 2 more hours, it also gone.   

Now I am enjoying happiest moment in my life after 7 years without any problems.  Believe me friends. Its true.  Its true.  I am out of POIS due to herbal life. 

Herbal life products essential designed to reduce carbo hydrates and fibres and it is one of the diet product.   I don't know how it is helping me to cure POIS.  But its true.  Pl try it.  You will get the result in just 7 days. 

Finally thanks god for curing my POIS. 

I also thanks to this forum.  Upto last 6 years, I thought my problem is psychological one and from 8 months by browsing this forum, I came to know that it is related to o.  From last 8 months, by inspiring from treatement innovated in this forum.  I started taking / trying many supplements / medicine.  Finally I got herbal life product and now I am totally free.  Just go to website of herballife.com and see the how it scientifically works. 

Pl try.  Its real, real.  Try it.



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Offline RD

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17232 on: 02/10/2012 08:45:37 »
...  I am taking following products of Herbal life ...

horrible-life herbal-life has a poor reputation on WOT ... https://www.mywot.com/en/scorecard/herbalife.co.uk

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17233 on: 02/10/2012 09:33:10 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

Feelalike.com is a facebook of sorts for people with different healthcare problems to connect.    The site allows you to share a picture of yourself and information such as city and age, but it doesn't give out email addresses or last names, in order to retain anonymity.  I've been on the site for a while now, and enjoy using it.  Feelalike was actually created by a really smart former POIS forum member (Willem), who cured himself of POIS through sublingual desensitization.  His site is good because it's a)very user-friendly b) more personal c)aggregates data really well, like you saw in that Summary list of treatments page.  Just like with facebook, each person has their own profile page, which includes a list of treatments that work/ don't work for you.  The website then aggregates all that information into the very useful Summary page that ya'll just saw.  So the site is just users chatting to each other and posting their own experiences - which is why nothing about the site is scientific and why you saw incorrect information on testosterone causing hair-loss.  But the goal of the site, besides being a place to connect, is to give everyone a voice, while also aggregating data to provide a view of macro trends across all the members with POIS.  There's only a handful of us on that site, but the more participants that join the more robust that Summary page would be.   

Hi All it's been a while since I've posted.... so this seems to be a good place to jump in!

We're a POIS community of 400 or so. We can go where we want, share our data, compare ourselves to other illnesses, make lists and even run them through databases. There just so much that can be done!

Some of the sites are more "user friendly" perhaps, others are more technical or "scientific", a little of everything! Unfortunately, where want want to go, where we Like to go, is not always the best thing for us, we see that every time we masturbate. LOL

Anyways. Let's just suppose that we, somewhere here in this ever more diversifying community, compile, and sort, and use science and logic, developing theories and discarding bad ideas, find something that works..... MAYBE even a cure!?? WOW, we're home free!! Eventually the cure MAY trickle down to the straggling few who picked the wrong forum.

At least 400 will be cured. 400. Here they can tell you how hard it is to acquire Google visibility. I can vouch for this. Yet, how hard has it been for each of us to find one of our sites? Most have worked for a couple of years at least to find a POIS home. So how many other POIS sufferers are there out there? A hand full at the site mentioned above or even the 400 in our combined forums are just a percentage. Are there 1000, 2000, in it's varying degrees and intensities, I'd say there could be maybe 100,000 POIS sufferers in the world, perhaps a third of those don't have computers.

So my friends, we are helping ourselves. Is that enough? They tell me, NO, we have to get out there we have to let the world know! I wonder what the BIGGEST network of individuals is that can connect ALL the potential POIS patients in the world?

The clue is the word "patient". Patient goes to doctor. As it stands now, we all know that this is not a functional interface for POIS. If we could improve that interface, we could reach many more patients. If we could improve this interface, we bring the treatment to the patient instead of a blank stare or another SSRI.

Wouldn't you love to go to a doctor and say, "Gee doc., after I have sex I fell like crap for a week and a half", and have him say, "Ahh OK you have POIS, here take one of these two times a day and call me in 2 wks!" Doesn't that sort of ring a bell somewhere?

HOW DO WE GET THERE? Chatting in a comfy user friendly armchair? Holding private science conferences. They probably make us feel better! All 400 of us. Well ,no. For some, it isn't an issue of being comfortable, and chatting. I mean that's nice and all, and maybe, just maybe, somehow the ideal that leads us to a cure will surface.

But HOW DO WE GET IT TO THE DOCTORS? Some of us have gone in banging the door off the hinges armed with papers and internet links. The doctor thinks to himself, "Oh Gawd, here's another internet doctor... who's the doctor here". But we say, NO, we have to be firm. WE tell THEM what to do.... NOT!

Who tells the doctors what to do? Have we ever asked that? THAT's the system we have to link up to.

Doctors learn how to be doctors in the universities! But they don't really learn about all of the diseases. Just liek other professionals, they are connected to networks of study, and discoveries filter through their industry. Medical research produces papers that get to the doctors through their own internal source. These papers don't often come through the door in the hands of a patient, and if they do, they are not usually recognized as "official". They have to be validated, corroborated, need to be trusted by them and their peers. With all the lawsuits these days, the information has to be clean and sure.

So let's not bark up the wrong tree. I know I grate on a lot of your nerves, always pushing and pestering for research. But it's the ONLY channel to the doctors, the doctors who treat ALL of the people in the world.

Unfortunately it not one of the most pleasurable things to do.
How does Murphey do it??

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17234 on: 02/10/2012 10:01:03 »

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments. 

Sorry Nathan but you seem to positively react to too many "supplements" so that points to you enjoying some placebo effect.

Hi, initially few of my supplements i have tried its not worked for fewer days.  But this Herbal life diet has changed my life.  I am only not believing that I am out of POIS now. Yesterday I had four O's and there was no symptoms of POIS.  Today morning I had little bit headche, but after sleeping for 2 more hours, it also gone.   

Now I am enjoying happiest moment in my life after 7 years without any problems.  Believe me friends. Its true.  Its true.  I am out of POIS due to herbal life. 

Herbal life products essential designed to reduce carbo hydrates and fibres and it is one of the diet product.   I don't know how it is helping me to cure POIS.  But its true.  Pl try it.  You will get the result in just 7 days. 

Finally thanks god for curing my POIS. 

I also thanks to this forum.  Upto last 6 years, I thought my problem is psychological one and from 8 months by browsing this forum, I came to know that it is related to o.  From last 8 months, by inspiring from treatement innovated in this forum.  I started taking / trying many supplements / medicine.  Finally I got herbal life product and now I am totally free.  Just go to website of herballife.com and see the how it scientifically works. 

Pl try.  Its real, real.  Try it.

Interesting. I compared it with the product I take from Cytosport and I can see 2 major differences. 1) the Muscle Milk Naturals product has more protein and is really for bulking up rather than meal replacement. 2) the herbal life product is a more balanced meal but also has added selenium. Apart from that there's little difference between them. They both have whey and some soya protein and they both have added vitamins and minerals.

I'm wondering if the selenium is leading to some improvement as it has been suggested as one part of a treatment for hypothyroidism.
Have a look at http://www.stopthethyroidmadness.com/selenium/
However, Nathan, I think you should take it for a while and see if it's still working. It's basically a meal replacement rather than a psychoactive substance so if it's providing nutrients that you need then I don't see how it can be harmful. Tell us how you're getting on in another 2 weeks.

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Offline Starsky

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17235 on: 02/10/2012 11:05:21 »
Nathan do you still take neem?

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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17236 on: 02/10/2012 16:09:21 »
Nathan do you still take neem?
Nathan do you still take neem?

From the 8 to 9 months, after discovering this forum and know that my problem with o, I am trying the treatments one by one.  As you aware, POIS is a such a kind that, the medicines work initially, but afterwords the same medicine fails to fight against POIS.  Once one medicine stopped working, my habit was to stop that and try new one within 2 or 3 days by asking what medicines my friends / relatives are taking for their diseases.  Same away, I found my friend who was taking Neem for his allergy problem with sea foods.  this neem worked me for approximately 20 days.  I can say, 60 to 70% of my POIS has reduced.  At one time I thought my POIS has cured by this.  But again my POIS has started.  Then I look back to those 20 days to find out whether i have taken any other extra medicine / followed any other different lifesttyle.   
At that time when I am taking Neem, I was gone to outstation for office work.  There due to non-availability of good hotels, I had very light foods and 4 times I had Soya milk.   
So, after Neem failure, I decided to weight management products / diet/ Nutritition products and one of my is taking this for weight management.  he told it provide complete nutrients for the body and any abnormal problem in the body will solve.  In this way, I started to have Herbal life diet program.  I skipped my break fast and I am having this Herbal life food from last 20 to 25 days.  For first days experienced very reduction in POIS symptoms.  In the 10 day, I had large amount of sweets, then suddenly my POIS symtoms has increased, but within 3 hours after taking of herbal life diet breakfast, POIS came down. 
After this on 14th day had 2 o.  say 10 to 15% of my earlier POIS which cleared in next day.  On 16th day had 1 o, POIS symtoms started after 2 hours of o and cleaared within 3 hours.  On 18th or 19th day had three o's .  No POIS symptoms.  Today two more no POIS,  Decided to not to have any o for next week.   Next week will update my results. 

Finally to say, wonderful life after 7 years. 

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Offline Jeffrey9

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17237 on: 02/10/2012 21:34:34 »
Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

Feelalike.com is a facebook of sorts for people with different healthcare problems to connect.    The site allows you to share a picture of yourself and information such as city and age, but it doesn't give out email addresses or last names, in order to retain anonymity.  I've been on the site for a while now, and enjoy using it.  Feelalike was actually created by a really smart former POIS forum member (Willem), who cured himself of POIS through sublingual desensitization.  His site is good because it's a)very user-friendly b) more personal c)aggregates data really well, like you saw in that Summary list of treatments page.  Just like with facebook, each person has their own profile page, which includes a list of treatments that work/ don't work for you.  The website then aggregates all that information into the very useful Summary page that ya'll just saw.  So the site is just users chatting to each other and posting their own experiences - which is why nothing about the site is scientific and why you saw incorrect information on testosterone causing hair-loss.  But the goal of the site, besides being a place to connect, is to give everyone a voice, while also aggregating data to provide a view of macro trends across all the members with POIS.  There's only a handful of us on that site, but the more participants that join the more robust that Summary page would be.   

Hi All it's been a while since I've posted.... so this seems to be a good place to jump in!

We're a POIS community of 400 or so. We can go where we want, share our data, compare ourselves to other illnesses, make lists and even run them through databases. There just so much that can be done!

Some of the sites are more "user friendly" perhaps, others are more technical or "scientific", a little of everything! Unfortunately, where want want to go, where we Like to go, is not always the best thing for us, we see that every time we masturbate. LOL

Anyways. Let's just suppose that we, somewhere here in this ever more diversifying community, compile, and sort, and use science and logic, developing theories and discarding bad ideas, find something that works..... MAYBE even a cure!?? WOW, we're home free!! Eventually the cure MAY trickle down to the straggling few who picked the wrong forum.

At least 400 will be cured. 400. Here they can tell you how hard it is to acquire Google visibility. I can vouch for this. Yet, how hard has it been for each of us to find one of our sites? Most have worked for a couple of years at least to find a POIS home. So how many other POIS sufferers are there out there? A hand full at the site mentioned above or even the 400 in our combined forums are just a percentage. Are there 1000, 2000, in it's varying degrees and intensities, I'd say there could be maybe 100,000 POIS sufferers in the world, perhaps a third of those don't have computers.

So my friends, we are helping ourselves. Is that enough? They tell me, NO, we have to get out there we have to let the world know! I wonder what the BIGGEST network of individuals is that can connect ALL the potential POIS patients in the world?

The clue is the word "patient". Patient goes to doctor. As it stands now, we all know that this is not a functional interface for POIS. If we could improve that interface, we could reach many more patients. If we could improve this interface, we bring the treatment to the patient instead of a blank stare or another SSRI.

Wouldn't you love to go to a doctor and say, "Gee doc., after I have sex I fell like crap for a week and a half", and have him say, "Ahh OK you have POIS, here take one of these two times a day and call me in 2 wks!" Doesn't that sort of ring a bell somewhere?

HOW DO WE GET THERE? Chatting in a comfy user friendly armchair? Holding private science conferences. They probably make us feel better! All 400 of us. Well ,no. For some, it isn't an issue of being comfortable, and chatting. I mean that's nice and all, and maybe, just maybe, somehow the ideal that leads us to a cure will surface.

But HOW DO WE GET IT TO THE DOCTORS? Some of us have gone in banging the door off the hinges armed with papers and internet links. The doctor thinks to himself, "Oh Gawd, here's another internet doctor... who's the doctor here". But we say, NO, we have to be firm. WE tell THEM what to do.... NOT!

Who tells the doctors what to do? Have we ever asked that? THAT's the system we have to link up to.

Doctors learn how to be doctors in the universities! But they don't really learn about all of the diseases. Just liek other professionals, they are connected to networks of study, and discoveries filter through their industry. Medical research produces papers that get to the doctors through their own internal source. These papers don't often come through the door in the hands of a patient, and if they do, they are not usually recognized as "official". They have to be validated, corroborated, need to be trusted by them and their peers. With all the lawsuits these days, the information has to be clean and sure.

So let's not bark up the wrong tree. I know I grate on a lot of your nerves, always pushing and pestering for research. But it's the ONLY channel to the doctors, the doctors who treat ALL of the people in the world.

Unfortunately it not one of the most pleasurable things to do.

Thanks for the explanations guys.  I'm new to all this and still a lot I don't understand.  The FeelAlike.com survey showed up on the first page google results for "Postorgasmic Illness Syndrome" and looked interesting, that's all. 

I haven't joined because they seem to require a picture.  I can understand it would be nice to see other patients face to face, but this is a very personal condition.  I would guess some symptoms that are very embarrassing like premature ejaculation might be under-reported, where brain fog is easier to talk about.  I just thought it was a pretty well organized overview.

Another great resource on a lighter note (was this written by a POIS patient?):
http://www.thespoof.com/news/science-technology/80082/who-declares-postorgasmic-illness-syndrome-1-threat-against-humanity-boner-wise

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Offline alphaq

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17238 on: 03/10/2012 02:24:02 »
Anyone tried Vinpocetine? It's supposed to have direct cerebral vasodilatory and incremental blood flow features

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17239 on: 03/10/2012 13:24:49 »
IMPORTANT ANNOUNCEMENT!!

Some members have been having very encouraging conversations with a Dr. Juan I.Martínez-Salamanca in Madrid since El Mundo article about POIS. See below:

Juan I.Martínez-Salamanca, MD PhD, FEBU
Attending Urologist
Department of Urology
Urology Oncology & Sexual Medicine

He has been following POIS for some time, and quite closely follows the line that we have been approaching. He has been active, both in his work and studies with POIS patients and has been supportive AND influential in some of our activities.

Presently he wishes to embark upon a preliminary survey of the members that participate in some forums, being this actually the only place where he could reach us.

He has a survey at the following URL.

https://docs.google.com/spreadsheet/viewform?fromEmail=true&formkey=dFpnckhXRlpLSFAwWXlfQWNkclgtZWc6MQ

We recommend and encourage as many as possible to do the survey so that we can begin collecting valuable information
with a professional who very much understands our condition. It is similar to questions that have already been asked, but in his hands, they will be of very  much more benefit.

This questionaire would be a prelude to others by him that seek to delve more deeply into remedial effectivity related to POIS type groupings.

Please help us to find a solution to POIS. Your input here will benefit us all. And we could spread the word from here more easily to reach a lot of POIS sufferers around the world who do not even know that they are suffering from.

Thank you.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17240 on: 03/10/2012 15:11:02 »
Anyone tried Vinpocetine? It's supposed to have direct cerebral vasodilatory and incremental blood flow features

Yes.  it might help you marginally, but not significantly.  I've tried many different smart drugs, and ginkgo biloba is the most helpful of the batch.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17241 on: 03/10/2012 16:33:03 »
Anyone tried Vinpocetine? It's supposed to have direct cerebral vasodilatory and incremental blood flow features

Yes.  it might help you marginally, but not significantly.  I've tried many different smart drugs, and ginkgo biloba is the most helpful of the batch.

i did  to and it didnt help.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17242 on: 03/10/2012 17:27:24 »
Anyone tried Vinpocetine? It's supposed to have direct cerebral vasodilatory and incremental blood flow features

Yes.  it might help you marginally, but not significantly.  I've tried many different smart drugs, and ginkgo biloba is the most helpful of the batch.

i did  to and it didnt help.

Ginkgo has helped me at 240mg / day  with 120mg taken in the morning and 120mg in the afternoon. I'm in agreement with the spoof article that was posted. I have no idea who posted it but I don't think POIS is a single disease either so what works for one person doesn't necessarily work for someone else.

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17243 on: 03/10/2012 22:42:54 »
I answered to the questionnaire !
a good help from this doctor to collect info like that :) It takes 5 minutes and maybe it can bring us something positive so take this time to help us.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17244 on: 04/10/2012 15:42:35 »
I answered the questionnaire too.  It's nice to see a doctor take interest in us.  Thanks Observer.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline Prancer

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17245 on: 04/10/2012 21:42:45 »
K, I also answered the survey. :) The main reason I'm posting though is because I found something interesting. So, a while back I talked about ways one can lower his libido to avoid having too many orgasms, and I gave a link to a site I found called "eunuch.org". People there basically desire to live as a eunuch (I think). But while reading through some posts I found an interesting one that relates to POIS. (http://www.eunuch.org/forums/showthread.php?22847-Testosterone-changed-my-gender-and-eliminated-the-desire-for-castration)

It is the first post (the long one) by user "guy26". What really got my attention was point #11 from the first post by the user. He talks about TAKING testosterone rather than eliminating it. Have we found another case like demografx where testosterone completely cured POIS?

The quote is:
Quote
Immediately following the most intense orgasms, I feel tremendously bad. Not just a little bad, but REALLY bad and in a way that is hard to articulate. It's like being hit with a hammer, but without the pain. It has nothing to do with feeling ashamed, embarrassed, or any other reasonable explanation that would come to mind. It has happened many times over the years. And this bad feeling would last 30 minutes to an hour and then mysteriously disappear. It has been so intense at times that I would take a shower and cry uncontrollably. Some people call this problem Post Orgasmic Illness Syndrome (POIS), which can also have other symptoms. It has only recently being studied and I haven't been diagnosed with it. But I have no better name to call it.

Anyway, one of the most surprising side effects of taking testosterone is that I have not had this happen! Initially when I started taking testosterone it made my climaxes MUCH stronger than on average. The first time it happened I just KNEW that I was going to feel like crap. It didn't happen. Then over the next week I climaxed several times and hard enough that it should have easily caused the problem. But nothing happened. I have absolutely no idea why this problem seems to be totally gone, but I am very thankful!

So yeah, I just thought it was interesting because it might be another testosterone cure case. He describes other symptoms it helped too, like the fact it made him "feel more like a guy" instead of a neutral gender, that it removed his sensitivity to cold (something I might have), increased his appetite, and made him feel more peaceful. Maybe someone can somehow bring/ask him over to this forum one day so he can talk about what he did. He seems like he doesn't mind talking about it.
« Last Edit: 04/10/2012 21:57:29 by Prancer »

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17246 on: 06/10/2012 09:30:40 »
that's somewhat comical to think about a guy on a eunuch website talking about how hard his orgasms are.  Seriously though, he definitely has POIS and it sounds like Testosterone works for him.  Prancer, invite him over here! 

There seems to be a growing amount of evidence that our POIS has a hormonal component.  Given that many of our POIS symptoms stem from the low dopamine state that POIS places us in, a hormonal imbalance that then affects our dopamine levels makes sense.  Dopamine and Testosterone are tightly linked, so it's no surprise that testosterone replacement can raise dopamine and relieve some/all of our POIS.  That  said, I tried T for 6 months and it didn't work for me.  There are other hormones which are directly tied to dopamine though, and I think this should be an active area of research for all of us.  In Dr Dexter's study, an individual was successfully treated with progesterone.  I'll point out here that I've been on Progesterone for about a week and have not felt improvement, but am hopeful I'm on the right path.   
« Last Edit: 06/10/2012 18:03:14 by B_Daniel »
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline Prancer

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17247 on: 06/10/2012 19:36:23 »
Prancer, invite him over here!   

Ok, I sent him an email after signing up over there. He hasn't been active for a few months it looks like, but we'll see what happens!

Also, I'm sorry to hear that the progesterone hasn't been working for you. Maybe it takes a little longer to start having an effect. I know POIS is very tough and want you to feel heathly again ASAP. Keep us updated!

(As a side note, I've been abstaining for about a week now, and I feel a little better. I am traveling from the 10th-20th from Miami to Baltimore and need to be as clear minded as possible during this trip. If I can, I'm going to keep the abstaining going for as long as possible even when I return to see what happens and how I feel.)

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Offline Omen 30

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17248 on: 07/10/2012 23:14:11 »
I think we are all facing the early signs of demetia,maybe alzeimers and post orgasm is one of the symptoms.pls check for any hereditary link,I have it.

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Offline gondal4

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17249 on: 08/10/2012 14:07:07 »
I have POIS since 6 years,im 25 years old firstly it was like fatigue,leg pain,joint pain,then i had hepatitis A which lasted 3,4months  caused me severe general weakness .
After that whenever i ejaculate i get very weak in abdomen severly weak cannot travel in car due to pain in abdomen for 4,5 days and genrally my abdomen has become very week.When i was 13 i got  hit in testicles resulted in severe swelling and blood still left in testes.