[Mer]

Hi everyone!

Instead of semen allergy, I think POIS is some sort of neural fatigue triggered during/after orgasm.  Basically all the nerves in body suddenly get very weak in responding. The drop and looseness of all the hair on body after orgasm, drop of facial tissues, slow motor response, weakness of all muscles, slow mental functioning (brain fog), vision tiredness/fatigue, etc. all could be strongly related to how responsive our nerves are.  I think this fatigue is caused by a delay in responsiveness of the neural network throughout body, caused perhaps by presence of an "extreme amount" of some series of chemicals. I put the "extreme amount" in quotation marks, implying that the amount of those chemicals present in our blood tests may be considered normal to doctors, while it is too much for our body. One type of experiment could be useful in testing this hypothesis, in which a series of complete blood tests before and after orgasm to be taken; identify which chemical levels in blood has dropped/increased. Externally inject those chemicals in body and see if POIS symptoms appear. Or possibly a series of simulation of orgasmic functions on body could sort out what causes what during orgasm.

Whatever it is, once released causes my nose to become inflamed both internally and externally. Breathing then becomes difficult for me. I also get a lump on my throat with  white color. I have to put more efforts to focus my eyes on an object. I look at things but then it takes me a few seconds to realize what I just looked at and then associate it with my current thought process. I can only remember 1 or 2 words at a time and I can't simply put words in a sequence in my mind once I heard them and recall them. (I speak English everyday, but it is not my first language. I perform better when I have to speak my first language when in POIS but still the problem exists in either case.)

My brain fog disappears quicker when I speak to someone and discuss about something that I know a lot about or something that makes me think in depth. I find talking a very quick way to get rid of my brain fog. Folks, you could try it and see if it works!

I used to stutter a lot when I was a teenager. after the age of 18 my stuttering reduced significantly that it became unnoticeable. However, when in POIS mode, I just stutter like I was younger. I feel I cannot take full control of my speech. After a few days, when my POIS is gone, I then speak normally.

I strongly believe that we need to focus on neurological changes after orgasm and during POIS. The re-appearance or increase of stuttering seem to be highly correlated to neural responsiveness.

Does anyone else has/had stuttering issues and has felt the difference while in POIS?

[meteo74]

 
  Surely , stuttering is the big problem with me while in pois,and I can't find words .

hi every one  ,Is there some food reduces pois?

[answon1]

newbielink:https://www.aldi-sued.de/de/angebote/angebote-ab-donnerstag-2-mai/detailseite-kw18-do/ps/p/multinorm-power-eiweiss-shake-122portionen1/ [nonactive]

Its not from meat, its from milk, soy, collagen, egg-white..

I'm German too and at the moment looking for a protein shake. Gonna try that too

It's only the brain fog that i have the same symptom like you, but hope it will work for you too.. Grüße

[gondal4]

For some reason no one wants to reply to my posts,im leaving this forum.Thank you

[answon1]

First i had symptoms like all you guys brain fog,fatigue etc which usuallly lasted on day,then i had jaundice, it remain for 4 months i could not eat anything and got sevely weak lost more than half of my weight.(it was in 2009)
After that the symptoms changed,brain fog was permanent after O my abdomen becomes so weak that i could barely walk and could not travel in car because abdomen becomes so weak it feels like it will break when i walk more than five minutes i cannot.these symptoms remains 4,5 days.
Any idea what causing this?

i don't know, but it's sad man.. what do you have for symptoms now? you said you had, but now?

[johanstefansson]

So my question to all of you is: has anyone else tried going gluten and lactose free and did that affect your POIS symptoms?
Cheers

Swedish: POIS gör oss extremt mer känsliga för ibs, gluten, laktos. Har samma erfarenhet. Har också drabbats av en i mitt fall tung depression.

POIS makes me much more vulnerable for IBS, lactose, gluten.
However, not doing O:s I have no major problems with lactose and gluten.

[johanstefansson]

This site has made me much stronger. Try it, will open your eyes to porn addiction.
http://yourbrainonporn.com/uncle-bob-porn-addiction-recovery-tips

[LAPOISSE2]

I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

[johanstefansson]

I too have had test results with a heighten level of calcium.

[urano75]

I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

Low ceruloplasmin points to underactive adrenals and/or copper deficiency/biounavailability (which some say to be related to each other).
This confirms the possibility of low adrenals, as lowish sodium indicated. Probably adrenals are weaker than thyroid.
I'll let Herman speak :-)

[Vincent M]

Thanks for listing your symptoms, answon1. I've added the data to my compilation.

As of now the work is far from complete and mostly what I've tried to do so far is get a link to each pois member on nsf in order to easily find their profile/posts along with a few symptoms/treatments that I happened across in the process. Eventually I want to have all the members symptom data and primary treatments with links to their posts all on one page so a simple ctr + f search will return that data, but I'll be taking a break from working on it for a while.

Here is the link to what I have done so far in case anyone is curious or would like to continue where I've left off:

https://sites.google.com/site/poiscompilationsbyvm/

Also I'd like to remind everyone to post your pois summary, which should at least include your symptoms and treatments in an organized manner at this thread on our main forum: http://poiscenter.com/forums/index.php?topic=81.0

[Vincent M]

For some reason no one wants to reply to my posts,im leaving this forum.Thank you

Many ideas and much speculation on the cause of POIS has taken place on this thread and at our main forum. All of that data is available for you to search through, although I don't remember any other members including jaundice and intense abdominal weakness among their POIS symptoms. None of us can tell you for sure why you had jaundice or why your abdomen got weak. Many of us do experience muscle weakness as a symptom and it seems like your abdominal weakness could be a more severe form of that.

You have contributed to our cause by sharing your experience with POIS with us. Perhaps others will come here with the same symptoms as you and may benefit from the data you've provided. I'm sorry you haven't found a treatment to relieve your symptoms yet.

[LAPOISSE2]

I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

Low ceruloplasmin points to underactive adrenals and/or copper deficiency/biounavailability (which some say to be related to each other).
This confirms the possibility of low adrenals, as lowish sodium indicated. Probably adrenals are weaker than thyroid.
I'll let Herman speak :-)

Urano, thanks for your explanations wich are always interesting to hear.
From what I understand, low ceruloplasmin/low total copper would be more mean copper toxicity due to to much free copper than the opposite.

Actually with this blood tests and my symtoms, it could be a suspicion of Wilson disease.

I dont think I have Wilson's(I need to check My 24h copper) but I could have a problem due too a bit two much of free copper in my system.

How do you see that adrenals are week ?..what is the link with ceruloplasmin ? Is there a way to monitor adrenal functions ? A way too improove it's functions ?Have you heard about hyperparathyroidy ?

[urano75]

I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

Low ceruloplasmin points to underactive adrenals and/or copper deficiency/biounavailability (which some say to be related to each other).
This confirms the possibility of low adrenals, as lowish sodium indicated. Probably adrenals are weaker than thyroid.
I'll let Herman speak :-)

Urano, thanks for your explanations wich are always interesting to hear.
From what I understand, low ceruloplasmin/low total copper would be more mean copper toxicity due to to much free copper than the opposite.

Actually with this blood tests and my symtoms, it could be a suspicion of Wilson disease.

I dont think I have Wilson's(I need to check My 24h copper) but I could have a problem due too a bit two much of free copper in my system.

How do you see that adrenals are week ?..what is the link with ceruloplasmin ? Is there a way to monitor adrenal functions ? A way too improove it's functions ?Have you heard about hyperparathyroidy ?

Lapoisse,

I have already answered to some of your questions about your labs in #18821, you possibly overlooked it:

"About (very slightly) high calcium, have your PTH and Vit D3 tested to rule out hyperpara or D overdosing. It can be an idea to test ionized calcium too next time.
Sodium is a pinch low maybe, ideal is about 141. Check if you had aldosterone/renin in some recent labs, and they were OK. Do you have postural (orthostatic) hypotension?
Your TSH is a little on the low side, even though plain FT3/FT4 values don't fully suggest overactive thyroid. Check your temps and heart rate as I suggested in my previous post.

I've also written several posts recently on how to assess adrenal function with temperatures, blood pressure, salivar and blood tests, please check them.

I don't normally write much about recovering adrenal function because I'm in the process of finding the way out myself after trying so many different things.
Also, recovering from an adrenal crash can be a process lasting for months and even years, and demands a change of lifestyle in terms of stress management, diet, exercise, sleep habits, so it requires a lot of dedication and patience.

In a nutshell, depending on the adrenal status, you can use adaptogenics herbs, vitamins & minerals, glandulars and in more serious cases hormones replacement (pregnenolone, DHEA, HC or isocort...). I don't really recommend using hormones (which I did) if not strictly necessary, because they just replace from the external what should be balanced from the inside, and worst might lead to adrenal suppression if not used very carefully.

This is really something one has to find his own way. Some startup resources in http://www.stopthethyroidmadness.com/adrenal-info/

About ceruloplasmin I am not very expert on this, so take my statements easy. And the copper topic is a tricky one morever.
Low ceruloplasmin depends either on the fact that you liver dosn't make enough of it, and one of the most likely causes is low adrenals.
Or that you do not have enough bioavailable copper around, either because you are copper deficient, or because you tend to accumulate it in tissues (Wilson is a rare and extreme cause of that). Copper imbalance typically affects iron metabolism as well.
As serum copper/zinc values do not seem to be very representative of what's stored in tissues or used by cells, they don't really shed much light in themselves.

Personally, I do have a cerulosplasmin on the low side the same as you do, and I've had a chance to see the same in few other POIS suffererers, so I tend to believe that copper metabolism might have an importance in our symptoms, at least for some of us.

Maybe someone knows more about this and can explain it better.

I hope this helps in the meantime.

[johanstefansson]

Thanks for listing your symptoms, answon1. I've added the data to my compilation.

https://sites.google.com/site/poiscompilationsbyvm/

Wow, what a work you have put down. Impressing, you are a true hero to me 

[johanstefansson]

Could it be that we suffer from some worm or bacteria induced by cunnilingus?

[urano75]

As I sometimes receive questions on what I say about adrenals and adrenal fatigue, I've come across this very simple and concise article:

http://www.liveinthenow.com/article/10-ways-to-optimize-your-adrenal-function

[Over it]

First i had symptoms like all you guys brain fog,fatigue etc which usuallly lasted on day,then i had jaundice, it remain for 4 months i could not eat anything and got sevely weak lost more than half of my weight.(it was in 2009)
After that the symptoms changed,brain fog was permanent after O my abdomen becomes so weak that i could barely walk and could not travel in car because abdomen becomes so weak it feels like it will break when i walk more than five minutes i cannot.these symptoms remains 4,5 days.
Any idea what causing this?

I have weak abdomen & weak posture in pois. I feel as if this particular problem is emminating from a singular point in my right hand side lower back. It is always a bit stiff but realy locks up in pois (after O, but not immediately after) and muscles around it don't work as they should. It also has a domino effect on all the other joints in my body. The degree of stiffness in my right hand side lower back is in direct correlation with the degree of brain fog, joint pain, headache & mood I experience. A smaller degree of stiffness & the other symptoms can be induced by high stress & strenuous physcial activity, but does not last 3-4 days as after O (maybe 1 or 2). Could this be nerve damage/impingment? Perhaps of the nerve that is involved in ejaculation/erection/orgasm. Even when out of pois I feel this problem remains, yet somewhat dormant, as I still get stiff/cracking joints and general postural discomfort. The best way I have found to relieve this is by sitting cross legged on a soft matress for a time. my neck, elbow soulders, pelvis all start cracking when I stand back up. This does not seem to offer much relief when deep in pois (possibly from too much inflammation). God I love pois.

[LAPOISSE2]

I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

Low ceruloplasmin points to underactive adrenals and/or copper deficiency/biounavailability (which some say to be related to each other).
This confirms the possibility of low adrenals, as lowish sodium indicated. Probably adrenals are weaker than thyroid.
I'll let Herman speak :-)

Urano, thanks for your explanations wich are always interesting to hear.
From what I understand, low ceruloplasmin/low total copper would be more mean copper toxicity due to to much free copper than the opposite.

Actually with this blood tests and my symtoms, it could be a suspicion of Wilson disease.

I dont think I have Wilson's(I need to check My 24h copper) but I could have a problem due too a bit two much of free copper in my system.

How do you see that adrenals are week ?..what is the link with ceruloplasmin ? Is there a way to monitor adrenal functions ? A way too improove it's functions ?Have you heard about hyperparathyroidy ?

Lapoisse,

I have already answered to some of your questions about your labs in #18821, you possibly overlooked it:

"About (very slightly) high calcium, have your PTH and Vit D3 tested to rule out hyperpara or D overdosing. It can be an idea to test ionized calcium too next time.
Sodium is a pinch low maybe, ideal is about 141. Check if you had aldosterone/renin in some recent labs, and they were OK. Do you have postural (orthostatic) hypotension?
Your TSH is a little on the low side, even though plain FT3/FT4 values don't fully suggest overactive thyroid. Check your temps and heart rate as I suggested in my previous post.

I've also written several posts recently on how to assess adrenal function with temperatures, blood pressure, salivar and blood tests, please check them.

I don't normally write much about recovering adrenal function because I'm in the process of finding the way out myself after trying so many different things.
Also, recovering from an adrenal crash can be a process lasting for months and even years, and demands a change of lifestyle in terms of stress management, diet, exercise, sleep habits, so it requires a lot of dedication and patience.

In a nutshell, depending on the adrenal status, you can use adaptogenics herbs, vitamins & minerals, glandulars and in more serious cases hormones replacement (pregnenolone, DHEA, HC or isocort...). I don't really recommend using hormones (which I did) if not strictly necessary, because they just replace from the external what should be balanced from the inside, and worst might lead to adrenal suppression if not used very carefully.

This is really something one has to find his own way. Some startup resources in http://www.stopthethyroidmadness.com/adrenal-info/

About ceruloplasmin I am not very expert on this, so take my statements easy. And the copper topic is a tricky one morever.
Low ceruloplasmin depends either on the fact that you liver dosn't make enough of it, and one of the most likely causes is low adrenals.
Or that you do not have enough bioavailable copper around, either because you are copper deficient, or because you tend to accumulate it in tissues (Wilson is a rare and extreme cause of that). Copper imbalance typically affects iron metabolism as well.
As serum copper/zinc values do not seem to be very representative of what's stored in tissues or used by cells, they don't really shed much light in themselves.

Personally, I do have a cerulosplasmin on the low side the same as you do, and I've had a chance to see the same in few other POIS suffererers, so I tend to believe that copper metabolism might have an importance in our symptoms, at least for some of us.

Maybe someone knows more about this and can explain it better.

I hope this helps in the meantime.

Copper mecanism is not well understood, copper toxicity is mainly discussed in non conventional medecine and things are not very clear and scientificly established ; Dr Wilson and all the ARL laboratories provide informations about that :
http://www.drlwilson.com/

Still, having to much unbound(free) copper is clearly established as toxic.Extreme case are Wilson.

To calculate the amount a free copper you can use this website ; I sourced other calculation method, results are pretty much the same :

http://www.wilsonsdisease.org/wilson-disease-patients/wilsondisease-calculator.php

My serum is copper is 79mcg/dl and ceruloplasmin is 16mg/dl ; it give a unbound copper of 31 ug/dl and it should be between 5 and 15 ; Wilson people have up to 60

http://www.clinchem.org/content/51/8/1558.full

Maybe the blood test are wrong..and I need to check at 24urine copper.

I would not be amazed if there is a link between O and copper/zinc release/consumption.

Right now, it's really theorical and frankly i'm not expecting a lot from this, but still, it's an interesting lead to explore(there is a lot of people that claim felling much better from symtoms like us after a kind of "copper detox protocol")

I'm curious to know if anyone explored already this lead

Cheers

[LAPOISSE2]

By the way, copper is related to inflamation :

http://ajcp.ascpjournals.org/content/131/2/160.full

For me, there is no doubt that POIS is(or cause an) inflammation ; All the single technics/suplements/drugs you use as anti-inflamatory properties in common.