Post Orgasmic Illness Syndrome (POIS)

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Offline Pantaloon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3500 on: 16/02/2009 20:00:42 »

I would also like to ask the group how their symptoms are affected by smoking/nictone patches.


Although not a regular smoker, I smoke the occasional cigar and have often thought that it has a beneficial effect on my POIS symptoms. Maybe I'll buy myself a pack and do some research :-)

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3501 on: 16/02/2009 21:42:25 »
Experiement

50mcg Synthriod and 300mg PS per day.  Synthriod used for 1 month and PS used for 5 days.

Sunday afternoon double release

Day 0 - symptoms of mild confusion, spaciness, and apathy.  Difficulty sleeping.

Day 1 - feel 95% normal!! Relatively creative, low fog

Theory - A.) The synthriod has finally kicked in
         B.) The PS was the final straw with the synthriod
         C.) The obligatory fault alert placebo

CounterPoint - have you done further testing with cortisol or have other clinical information/doctor advised info?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3502 on: 16/02/2009 22:06:58 »

and in some of us, getting worse as time passes


Do people generally find that POIS gets worse as you get older?
My experience is that it maybe gets worse, but my ability to manage/mitigate it gets better.


Pantaloon, and Underwater, that's my experience too.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3503 on: 16/02/2009 22:10:36 »

Experiement

50mcg Synthriod and 300mg PS per day.  Synthriod used for 1 month and PS used for 5 days.

Sunday afternoon double release

Day 0 - symptoms of mild confusion, spaciness, and apathy.  Difficulty sleeping.

Day 1 - feel 95% normal!! Relatively creative, low fog

Theory - A.) The synthriod has finally kicked in
         B.) The PS was the final straw with the synthriod
         C.) The obligatory fault alert placebo

CounterPoint - have you done further testing with cortisol or have other clinical information/doctor advised info?


Limejuice, terrific to hear!

Day Zero is when I'm still affected too. Then Day 1+ is also like yours.

Unbelievable feeling of elation, isn't it?

PS - what is PS? [:)]
« Last Edit: 16/02/2009 22:43:55 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3504 on: 16/02/2009 22:31:05 »

Hi All,

My name is Jon. I am a 30yo male living in the UK. I was astonished to discover this thread via google. I didn't know about POIS prior to reading this thread but believe that it reasonably accurately describes what happens to me...


Hi Jon, we're mostly astonished too! As just one example here, I was all alone in the POIS-wilderness for over 30 years, never dreamed of finding this "POIS family" here! Similar stories abound here.

Your ideas about acetylcholine deficiency are very interesting. There have been some discussions here at this forum about acetylcholine, which you can find at:
http://www.google.com/search?hl=en&q=Acetylcholine+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&aq=f&oq=

When you see a Google-result post that you like, look at the message number (msg) in the link, but since the numbers do change, just use them as a rough guide. Look at posts before and after the msg number of the link which interests you, and you will find it.

Welcome to the POIS thread of The Naked Science Forum!

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web:
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video: A first!
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the above resources can be useful for you to show the medical world - who often shows little understanding of our plight and is sometimes skeptical of our condition - that POIS truly has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapy community.

Again, Jon, welcome!
« Last Edit: 16/02/2009 22:41:41 by demografx »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3505 on: 17/02/2009 05:55:26 »
I don't think zinc alone is the solution for pois but here are some facts :

If I take a zinc supplement, a small dose under the tongue while sexually abstinent for 2 weeks, I can feel very clearly increased energy and libido.
Product: http://www.labcatal.com/produits1zn.htm

According to this page zinc is linked with a hyperadrenal syndrome and ADHD :
http://www.fabresearch.org/view_item.aspx?item_id=423
Zinc is an essential co-factor in a huge number of different processes in the brain and body. With respect to ADHD symptoms, the authors point out that zinc deficiencies have been linked with a 'hyperadrenal' syndrome and also with reduced production of melatonin and serotonin, either of which could plausibly contribute to the kinds of behavioural disturbances found in ADHD

A study report, zinc has an action on testicular steroidogenesis (rats) :
http://ajplegacy.physiology.org/cgi/content/abstract/230/6/1730

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Offline adam jarred

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3506 on: 17/02/2009 21:01:29 »
Hi
    I only found out yesterday that my counselor told me that have Post Orgasmic syndrome!!  Iíve had all the test done, and there found nothing!!  My problem is after having sex. Iím in lot of pain, and even getting hard one is no no! Iíve had this problem for about 13 months now!! Iím looking for information on, so I can take to my doctor!! Or even cure if there is one for this!! Iíve been told this rare!!

Can anyone plz help! Iím 34 now!!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3507 on: 17/02/2009 22:58:15 »

Hi
    I only found out yesterday that my counselor told me that have Post Orgasmic syndrome!!...Can anyone plz help! Iím 34 now!!


Hi Adam, we're not medical support people, so I would suggest that you take a medical study on POIS that we have, and show it to your doctor.

Send me, "demografx", a Private Message with your regular email address and I'll send you back the study in PDF format.

To send me a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate. Remember to put a quote around my name, i.e., "demografx".

Best wishes to you!
« Last Edit: 18/02/2009 01:27:56 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3508 on: 17/02/2009 23:22:30 »
Martin, interesting ideas about zinc!
« Last Edit: 17/02/2009 23:28:33 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3509 on: 17/02/2009 23:27:28 »

TESTOSTERONE SAGA

Endo is switching me to gel after patches caused a suddenly strong allergic reaction 3 weeks into application. So will start POIS Forum birthday with slightly new direction!


I decided to continue with patches despite the "allergic reaction," which endo doesn't think comes from the patches. Bizarre, but if it happens again, maybe I'll switch to gel.

Meanwhile, this is working so I'm glad not to "fix it"!

ps - I'm amazed at how much better I feel with the patches. I know it sounds 'addictive' but hey, I clearly have a testosterone deficiency. And my GP's and urologists said no I didn't! Total and FREE testosterone testing: thank you, forum!
« Last Edit: 18/02/2009 00:58:21 by demografx »

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3510 on: 18/02/2009 00:00:24 »

Experiement

50mcg Synthriod and 300mg PS per day.  Synthriod used for 1 month and PS used for 5 days.

Sunday afternoon double release

Day 0 - symptoms of mild confusion, spaciness, and apathy.  Difficulty sleeping.

Day 1 - feel 95% normal!! Relatively creative, low fog

Theory - A.) The synthriod has finally kicked in
         B.) The PS was the final straw with the synthriod
         C.) The obligatory fault alert placebo

CounterPoint - have you done further testing with cortisol or have other clinical information/doctor advised info?


Limejuice, terrific to hear!

Day Zero is when I'm still affected too. Then Day 1+ is also like yours.

Unbelievable feeling of elation, isn't it?

PS - what is PS? [:)]

It is!!

Update:

Day 2 (when it rains it pours) - Had an NE last night, in addition to double release two days ago.  Result today, I still almost normal with only slight sign of symptoms.

Observations - I know almost for fact now that stress is the primary cause of my POIS symptoms.  A situation occured at work today that would have usually fustrated me to no end, especially in a state of POIS, that I was able to address calmly and resolve.  Also today, under POIS, I was able to compose a large detailed specification that I othewise wouldn't have with stress.  I 'feel' life abundant within me, like emotions of excitement and sorrow and compation, I haven't felt during POIS. 

The suppliment PS is mitigating the stress for me.

It's also interesting - I finally see how other secondary hormones can attribute indirectly to a problem.  For example, my thyriod production is low, which is secondary, but it often fustrates and stresses me that I don't have energy (something thyriod creates).  The big picture is really coming together.

I also don't want to sound like I'm bragging thats not my intention.  But when a revelation like this hits you, its a deep impact and other people should know about it.

My next step is to get cortisol tested and consult with a doctor.
« Last Edit: 18/02/2009 00:02:07 by Limejuice »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3511 on: 18/02/2009 00:30:34 »


February 18th, 2009, our 2nd Anniversary! Thank you John21, and then B_Jim, our very first posters!!



And we're all still waiting impatiently for Counterpoints to send us those all-expense-paid tickets and vouchers to our First Annual POIS Retreat above! C'mon CP!!  [;D]
« Last Edit: 18/02/2009 21:00:23 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3512 on: 18/02/2009 01:12:17 »

I 'feel' life abundant within me, like emotions of excitement and sorrow and compassion, I haven't felt during POIS....I also don't want to sound like I'm bragging thats not my intention.  But when a revelation like this hits you, its a deep impact and other people should know about it.


Limejuice, thank you so much for that most inspirational post! This is what we're all fervently hoping for. I feel the exact same way, it's an absolutely thrilling adventure when we're POIS-free, even when it's not 100%!!

ps - what is the supplement PS?

pps - I'm testing for cortisol, too, as you are.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3513 on: 18/02/2009 01:59:09 »
Experiement

50mcg Synthriod and 300mg PS per day.  Synthriod used for 1 month and PS used for 5 days.

Sunday afternoon double release

Day 0 - symptoms of mild confusion, spaciness, and apathy.  Difficulty sleeping.

Day 1 - feel 95% normal!! Relatively creative, low fog

Theory - A.) The synthriod has finally kicked in
         B.) The PS was the final straw with the synthriod
         C.) The obligatory fault alert placebo

CounterPoint - have you done further testing with cortisol or have other clinical information/doctor advised info?

Hi Limejuice,
I am happy to hear your good news.  I am (definitely) getting an MRI of my pituitary (with gadolinium contrast), within the next three weeks.  I am probably going to get a CT of my abdomen (adrenals) soon, as well.  I am also considering other tests.

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Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3514 on: 18/02/2009 04:36:52 »
Limejuice
I also agree that stress may be a "major" contributing factor for POIS.
This is why I am taking an approach to GAD that will also focus on POIS.
GAD is a stress illness. I keep saying that I will soon be finished with this GAD episode in my life, but it is too undertain as yet to make such a final statement.
My chart says I'm near the end, but my body says, "not so fast". Also, CONGRATULATIONS
and THANK YOU to all who have had real successes lately. Let's hope this is contagious. Sometimes solutions to problems just cluster in a critical mass with success after success. Let's hope this is another example of this phenomenon!!!!!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3515 on: 18/02/2009 04:55:37 »

CONGRATULATIONS and THANK YOU to all who have had real successes lately. Let's hope this is contagious. Sometimes solutions to problems just cluster in a critical mass with success after success. Let's hope this is another example of this phenomenon!!!!!


Underwater, thanks much for the terrific encouragement. It can only come back full circle to you!

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Offline pois.suffered

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3516 on: 18/02/2009 14:53:24 »
I always had felt that I've a very little life and today somehow I found about POIS I'm sure I'll be no more soon, so I'll be trying to be more good for rest of my life, lol! Yet, thanks to that Youtube video, I found this forum.
I am not sure how exactly I got infected to this but as far as I remember, I think POIS has been hitting me for at least last decade or from the beginning. In the early years I thought this was a some sort of allergy problem as doctors prescribed but later I did sometimes notice its relation with post orgasm and now it usually happens to me even if there is no PO involved. I was given lot of vaccines and other anti allergic antibiotics but I was told there is no permanent remedy for this so called 'acute-allergy' yet I've now to tell them about POIS which I never did before as I found it now as symptoms matched are 100% same and I'm more than sure now what I've been suffering from last couple of years. The attacks are so severe that I keep sneezing with watery eyes and flu for days and weeks until i take antibiotics, some steroids and sleep for some hours but the effect of it vanishes after 3-4 days. And this happens every twice or thrice in a month. I'm almost dead when this happens, my brain ceases, water starts rushing from nose and eyes and I cannot survive without sleeping for a while. I know there's nothing I can do now but I'll try to post back before dieing.
I would like to thank everyone putting more information on it!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3517 on: 18/02/2009 21:33:54 »
Hi pois.suffered, I'm very sorry to hear of your extreme difficulties. Dr. Waldinger's paper below might give you some ideas because he studied flu-like symptoms.

Welcome to the POIS thread of The Naked Science Forum!

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web:
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the above resources can be useful for you to show the medical world - who often shows little understanding of our plight and is sometimes skeptical of our condition - that POIS truly has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapy community.

Again, pois.suffered, welcome!
« Last Edit: 19/02/2009 04:17:19 by demografx »

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3518 on: 18/02/2009 23:03:43 »
Demo - PS is short for Phosphatedylserine (and now we know why it's abbreviated!).

The internet is littered with PS articles where PS is known as brain food and a cortisol reducer.

I thought this was interesting - here is a research study showing PS lowers cortisol and increases testosterone.

http://www.vrp.com/articles.aspx?ProdID=art2408&zTYPE=2


Underwater - adrenals do looked closely linked with cortisol.  How has that treatment been?

It looks like you and CounterPoint has been on top of this the whole time.
ciao

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3519 on: 19/02/2009 02:48:18 »

Demo - PS is short for Phosphatedylserine (and now we know why it's abbreviated!).

The internet is littered with PS articles where PS is known as brain food and a cortisol reducer.

I thought this was interesting - here is a research study showing PS lowers cortisol and increases testosterone.

http://www.vrp.com/articles.aspx?ProdID=art2408&zTYPE=2


Limejuice, LOL, PS is definitely easier to pronounce! Very interesting article, rigorous scientific study there.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3520 on: 19/02/2009 03:24:01 »
I havnt got copy of blood test result but nurse told me that everything was normal but my dhea was elevated.
And i read dhea is connected to andrenal and it is good to check pituary gland when dhea elevated.
Am hoping doctor does not waste time on me and send me straight to endo. ( can endo check testertorone and prolactin and dhea).

My only problem with the test is my blood was taken during 2 day recovery mode( when i am very hyper and my brain is sharper than usual).

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3521 on: 19/02/2009 04:01:09 »
CC, sounds like you're making good headway. I had an MRI of the pituitary, nothing bad found. Let us know how this progresses.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3522 on: 19/02/2009 04:06:24 »

I am (definitely) getting an MRI of my pituitary (with gadolinium contrast), within the next three weeks.  I am probably going to get a CT of my abdomen (adrenals) soon, as well.  I am also considering other tests.


CP, very ambitious! I didn't know adrenals could be CT'd.

I had my MRI of the pituitary with and without contrast...dunno if it was gadolinium though.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3523 on: 19/02/2009 04:20:43 »

If you want a quick solution 100% reliable : we don't have it.


B_Jim, a very well stated position on where we are today with POIS!

Perhaps one day there will be an "Alka-Seltzer for POIS"! [:D]

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Offline latebind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3524 on: 19/02/2009 11:15:44 »
this blog is huuuuge! Is it still a new theory?
« Last Edit: 19/02/2009 12:04:15 by latebind »
Late

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3525 on: 19/02/2009 15:20:55 »

I think that's ["POIS Alka-Seltzer"] seriously possible with anti-inflammatory, hormone boosters for different forms of Pois or even vitamins (B5/C).  [:)]

The most difficult is to find what's wrong after orgasm for each sufferer.


OK, so I'll take the "POIS Alka-Seltzer" for primarily-exhaustion/fatigue suffering but not for primarily-cognitive suffering right now.

Wouldn't that be nice?
« Last Edit: 19/02/2009 15:30:09 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3526 on: 19/02/2009 15:26:47 »

this blog is huuuuge! Is it still a new theory?


Latebind, welcome. I assume you're not a POIS sufferer. It's still new in the sense that there is no universal cure yet for POIS. But we are making inroads to individual cases. Pull up a seat and have some coffee!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3527 on: 19/02/2009 17:33:59 »
What is the latest news about fenugreek or relora? Anyone?

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Offline adam jarred

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3528 on: 19/02/2009 18:12:45 »
Hi All
         Iím looking for information on Post Orgasmic Syndrome? Iím 34 year male from the uk!! Iíve just been told that I have Post Orgasmic Syndrome! I need to know how to u cure, if possible! Iíve had this condition for 14 months and very pain fully after masterbaiting or even getting hard on is very pain fully!! Pain last up to 3-to 4 weeks!!


My e-mail is adjrr@aol.com!! 


Regards
 Adam jarred

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Offline latebind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3529 on: 19/02/2009 21:14:50 »
Latebind, welcome. I assume you're not a POIS sufferer. It's still new in the sense that there is no universal cure yet for POIS. But we are making inroads to individual cases. Pull up a seat and have some coffee!

Hi demografx

It is an interesting topic, and I guess I don't get it as bad as some folks. I can say that I feel drained afterwards, physically weak, but I have never felt sick, that must be a really hard thing to live with, I hope you find cures for everyone here cos every guy should be able to do their thing in peace
« Last Edit: 19/02/2009 21:23:02 by latebind »
Late

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3530 on: 19/02/2009 21:27:25 »
CC, sounds like you're making good headway. I had an MRI of the pituitary, nothing bad found. Let us know how this progresses.

?? Didn't they find that you had an empty sella?  The sella surrounds the pituitary.

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Offline latebind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3531 on: 19/02/2009 21:28:35 »
My contribution, although its probably somewhere in the blog already...

It seems doctors feel this might be an allergic reaction to hormones released via erections and ejacs.
Perhaps try some hayfever medicine or some allergy medicine?


mod edit - erections
« Last Edit: 20/02/2009 05:50:52 by demografx »
Late

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3532 on: 20/02/2009 01:07:38 »
My contribution, although its probably somewhere in the blog already...

It seems doctors feel this might be an allergic reaction to hormones released via erections and ejacs.
Perhaps try some hayfever medicine or some allergy medicine?

Which doctors?  For everyone (99%+?) here, it is just ejaculation that causes problems, not erection.



mod edit - erections/latebind
« Last Edit: 20/02/2009 05:54:02 by demografx »

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Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3533 on: 20/02/2009 01:16:41 »
THEORY FROM A NEWBIE

Hey everyone.

As you can already gather, i am a fellow POIS sufferer. Have been for quite a few years now. My symptoms post-ejaculation are:

-Mental and Physical Fatigue
-Inability to Concentrate
-World appears colourless and dull
-Depressive tendancies
-Negative outlook
-Cold intolerance

Have struggled to find a "cure" as it were.

Recently, however, i developed a little theory, which im certain is ridiculous, but here it is nonetheless. It is awkward to follow, but bare with me:

Basically, after ejaculation, it is known that Dopamine is low, which might very well be emphasised in our case. So, when this dopamine is low, we can also assume that the key nutrients or "amino acids" used to create dopamine (Phenylalanine and Tyrosine) are low. Since this is the case, not only do we experience the symptoms of low dopamine and POIS, but we also experience the symptoms brought on by these low amino acid levels.
  For example, Tyrosine (used to create dopamine) is normal. Then ejaculation occurs, causing low dopamine. Since the dopamine is low, then it could be said that Tyrosine is also low, since the hormone it produces is low.
  Therefore, by replenishing these amino acids, such as Tyrosine, POIS symptoms may be alleviated.

Also, Tyrosine is a particular example used here because of its connection with the Thyroid gland. When tyrosine is low, the Thyroid glad does not function correctly, and when the Tyroid is not functioning properly, it causes many symptoms which are similar to POIS (look up Hypothyroidism), such as depression.

Thus, what i am suggesting is to take Tyrosine supplements (which can be bought at local health food stores) just after orgasming, then follow what happens and see if a difference is noticed.

In short, my theory is that we may already be slightly deficient in amino acids, which are aggravated by orgasm.

Apologies for the herculean length of this post. Please reply with your thoughts.

[Note: Be careful not to take too much Tyrosine. Take only the dose which is stated on the bottle]
« Last Edit: 20/02/2009 01:23:36 by Ambient123 »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3534 on: 20/02/2009 02:18:42 »

Hi All
         Iím looking for information on Post Orgasmic Syndrome? Iím 34 year male from the uk!! Iíve just been told that I have Post Orgasmic Syndrome! I need to know how to u cure, if possible! Iíve had this condition for 14 months and very pain fully after masterbaiting or even getting hard on is very pain fully!! Pain last up to 3-to 4 weeks!!


My e-mail is adjrr@aol.com!! 


Regards
 Adam jarred


To All: I posted a reply yesterday. Here's what I emailed him just now:

Hi Adam, we're not medical support people, so I would suggest that you take a medical study [by Dr Waldinger and Dr Schwartz] on POIS that we have (it's attached) , and show it to your doctor.
 
Please post again at the forum and let us know how you're doing!
 
Best wishes,
 
demografx
POIS forum moderator


If anyone else feels like sending Adam a word of encouragement, please feel free to do so!
« Last Edit: 20/02/2009 03:09:28 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3535 on: 20/02/2009 02:24:23 »

CC, sounds like you're making good headway. I had an MRI of the pituitary, nothing bad found. Let us know how this progresses.


?? Didn't they find that you had an empty sella?  The sella surrounds the pituitary.


Counterpoints, absolutely right, a partially empty sella was found. But the endocrinologist doesn't seem concerned that there's any immediate associated pathology to be concerned about, which is why I said "nothing bad found", including no tumors!

Low testosterone/high prolactin is the immediate concern, and his treatment is working well on my POIS. More tests and info to come in March...
« Last Edit: 20/02/2009 04:49:29 by demografx »

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Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3536 on: 20/02/2009 03:06:21 »
The last few days have been interesting. I am now beginning to think that my allergies connect to GAD which connects to POIS. The big change in my thinking lately has been to consider inflammation as a MAJOR factor in my biochemistry. I have so many inflammatory responses to POIS and GAD and allergies that I am thinking in a new direction. Obviously allergies are inflammatory reactions; stress and anxiety for me cause inflammation and may very well have the same trigger mechanisms as allergens; so might POIS? I am not so sure my amino acid experiments were worth it. Right now I am considering antihistamines for my GAD. If anxiety causes inflammation and POIS is interprested as stressful by my CNS.......? The more I consider something new, the more confused I get. However, in reflecting on my life history, I have clearly recalled that my GAD and bad POIS episodes were always connected to nasty allergic periods. This is a new memory recall for me. I also recall many times with  a panic attack and POIS that my sinuses felt full and skin tingly. I sprayed Dristan into my nostrils last night; my theory being a latent allergic condition??Had a very good day. We'll see what happens????????????????????????????????

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3537 on: 20/02/2009 03:24:07 »

THEORY FROM A NEWBIE



Hi Ambient123 Thanks for posting your ideas about Tyrosine. There have been some discussions here at this forum about Tyrosine, which you can find at:
http://www.google.com/search?hl=en&q=tyrosine+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com

When you see a Google-result post that you like, look at the message number (msg) in the link, but since the numbers do change, just use them as a rough guide. Look at posts before and after the msg number of the link which interests you, and you will find it.

Welcome to the POIS thread of The Naked Science Forum!

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web:
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the above resources can be useful for you to show the medical world - who often shows little understanding of our plight and is sometimes skeptical of our condition - that POIS truly has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapy community.

Again, Ambient123, welcome!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3538 on: 20/02/2009 04:46:40 »

I am considering antihistamines for my GAD.


Underwater, just a few forum references to antihistamines, but maybe worth a look?
http://www.google.com/search?hl=en&q=antihistamines+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com


The more I consider something new, the more confused I get.


Underwater, I think many of us get confused. Certainly I do. The POIS options presented here are overwhelming! Occam's Razor rule seems to work for me: the simplest explanation is often the most correct. Besides, for me, endless pursuit just doesn't work and is not possible anyway. Simple, intuitive, logical, efficient trial and error is all I can handle.

I'm sure I get some things wrong, but who doesn't?
« Last Edit: 20/02/2009 05:27:40 by demografx »

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3539 on: 20/02/2009 08:46:31 »
What is the latest news about fenugreek or relora? Anyone?

Relora seems to only reduce the palpitations and anxiety, which helps clear the brain fog so at least I can get through the day.  But overall, the symptoms are still hell even with Relora...gaah.  The best relief i can get is with tyrosine, L-phenylalanine, Relora, Advil, and, of course, as much quality sleep as possible.  Has there been anything said from Dr. Waldinger as of late???

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Offline latebind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3540 on: 20/02/2009 08:47:22 »
My contribution, although its probably somewhere in the blog already...

It seems doctors feel this might be an allergic reaction to hormones released via erections and ejacs.
Perhaps try some hayfever medicine or some allergy medicine?


mod edit - erections

The link for this comes from an article

http://www.discussanything.com/forums/archive/index.php/t-6889.html

Late

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3541 on: 20/02/2009 16:34:19 »
What is the latest news about fenugreek or relora? Anyone?

RE: Relora and Fenugreek - For me

Relora gave me extremely intense headaches, which turns out is a documented side-effect.

Fenugreek does reduce some POIS symptoms - I'd say overall relief is 50%


The PS has the greatest impact and reduces POIS symptoms to 5% and recovery to one day!
« Last Edit: 20/02/2009 16:52:56 by Limejuice »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3542 on: 20/02/2009 16:51:36 »

The PS [Phosphatedylserine] has the greatest impact and reduces POIS symptoms to 5% and recovery to one day!


WOW! Wonderful, Limejuice!!!

Limejuice, it would help others if you could quickly re-cap your profile/symptoms so similarly afflicted can ask their doctors? Appreciate it!


Limejuice bold emphasis mine - mod
« Last Edit: 20/02/2009 17:02:40 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3543 on: 20/02/2009 16:55:53 »

Has there been anything said from Dr. Waldinger as of late???


Pyro, he continues to be powerfully......quiet [:)]

Forum contributors and forum members' endocrinologists seem to be the most helpful at this time, Pyro.
« Last Edit: 21/02/2009 01:04:52 by demografx »

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3544 on: 20/02/2009 19:14:20 »
No worries B_Jim - heres a recap:

Limejuice, it would help others if you could quickly re-cap your profile/symptoms so similarly afflicted can ask their doctors? Appreciate it!
Limejuice bold emphasis mine - mod

Heres a recap of the symptoms I experienced during POIS and the duration of those symptoms (in outline format)

Symptoms:
- brain fog (struggle with concentration, finding the right words to say)
- apathy (emotional numbness)
- insomnia (tired during the day but awake/wired feeling at night)
- loss of inhibition
- stress (although I didn't recognize it was stress until days ago..after  12 years)
- Social Anxiety
- sensitivity to carbohydrates and stimulants (sugar, alcohol, pasta, caffine)

Recovery:
- Day 0 felt mild POIS as if feeling the onset of a headcold
- Day 1 significat POIS symptoms descibed above at around 80%
- Day 2 height of POIS symptom at 100%
- Day 3 slight reduction of symptoms back to 80%
- Day 4 40% symptoms
- Day 5 10%
And so on.
« Last Edit: 20/02/2009 19:34:02 by Limejuice »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3545 on: 20/02/2009 21:00:32 »
The PS has the greatest impact and reduces POIS symptoms to 5% and recovery to one day!
Limejuice, it's great for your success.

I'd have 2 questions :
-Do you think the thyroid medication is involved in your improvement ?
-Is your PS supplement from brain or from soya ?

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3546 on: 20/02/2009 21:25:08 »
The PS has the greatest impact and reduces POIS symptoms to 5% and recovery to one day!
Limejuice, it's great for your success.

I'd have 2 questions :
-Do you think the thyroid medication is involved in your improvement ?
-Is your PS supplement from brain or from soya ?

-It's difficult determine how much impact the thyriod medication has on the improvement as it's effect has been more gradual.  But I can tell the impact of the effect from the PS as it feels like it wears off and when I take another it feels like it kicks back in.

-I beleive the PS is made from soy (and from what I read PS is no longer made from brain because of scare from animal diseases like mad cow).

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3547 on: 21/02/2009 00:52:59 »

Limejuice, thank you for so generously sharing your success story with us!

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Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3548 on: 21/02/2009 01:21:31 »
The PS has the greatest impact and reduces POIS symptoms to 5% and recovery to one day!

Limejuice, could you let us know what brand of PS you use?
« Last Edit: 21/02/2009 01:25:30 by Guthrie »

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3549 on: 21/02/2009 01:23:48 »
Welcome new sufferers .
Quote
The best relief i can get is with tyrosine, L-phenylalanine, Relora, Advil, and, of course, as much quality sleep as possible

Interesting Pyro, i din't notice this point. When do you take it ? Just after ?

Limejuice, sorry i forgot ure  good results with PS. I need to read again :)

I do take it right after for relief of the headache.

What is PS?