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Another thought: $35,000 is what NORD wants. If we started more independently, who's to say $5,000 couldn't get us rolling? We should all think about the first steps and perhaps take it a step at a time, as they say, while we're looking for Bill Gates to write us a big check.
I think we're not so far of a research on POIS. If 100 pois sufferers give 350$ to the persons in charge of the research then it's the required 35000$ !
If we have some funds to offer, it's possible that the likes of Dr. Waldinger and Dr. Schweitzer may look into conducting more research into POIS. I'm not sure how you would go about fundraising on a forum, perhaps a combination of public and private pledges for funds towards a specific goal?
repetitive lab tests, scans, etc is probably more than 2000$/person (but this can perhaps be paid by our own insurances). So 5000$ seems to me to be low to conduct a serious study.I think the money could be sent directly to NORD (?) or to the organization where the researchers are. But definitely they should find something for sure if we send money. At least they should be able to rule out some of the possible causes we have explored.
Raising money out of pocket for NORD seems worth while but some of us have insurance we can use. We pay for insurance so we can use it when were sick and help mitigate high cost of medical assistance. That sounds a lot like what we need for POIS.
SEARCH POIS FORUM WITH GOOGLEWe have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members.In the Google search box, typewhatever you're interested in finding[space]site:http://www.thenakedscientists.com/for example, I trieddemografx site:http://www.thenakedscientists.com/and 1,000+ results came up for "demografx" within POIS Forum.be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
At the same time, there's no reason we can't continue to send out appeal emails, like we did with WHO and NORD.