Post Orgasmic Illness Syndrome (POIS)

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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5900 on: 26/10/2009 01:14:02 »
i figured i should note that even outside of POIS, I have poor memory recall. you know how you watch a tv show or movie, or an event happens in yer life, or a conversation you over hear, how you can later recall details of those things to others? yeah, i cant. have never been able to. when i try to remember specifics of things its like trying to recall a distant dream through a huge fog of confusion. so maybe i have a memory dysfunction to begin with, where a normally functioning O causes problems? my grandfather had Alzheimers. maybe another factor? i was wondering if any other POIS sufferers suffer from some kind of memory dysfunction even outside of POIS?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5901 on: 26/10/2009 02:18:50 »


I was wondering if any other POIS sufferers suffer from some kind of memory dysfunction even outside of POIS?


I worry about this one. I've been told it's just aging-related memory decline (40 is worse than 30, 50 is worse than 40, etc.).

ADHD is another factor for me, although I'm skeptical of the diagnosis in general.

But I do know that stimulants, including caffeine, help me.

I periodically try to force myself to consciously remember things. Little things. Anything. I 'reward' myself for even spontaneous memory recall. You know, a thought pops in your head about some strange song you liked long ago and how it reminds you of some characters in your life.

I think that's the key: "use it or lose it".

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5902 on: 27/10/2009 03:00:55 »

Has anybody checked for any kind of adrenal tumors, I think adrenaline just may be released too much after sex.  All my POIS is now is a rush of adrenaline and energy or something that keeps me up at night, thats why i'm posting here at 6 in the morning


I do notice a rush of energy immediately afterwards, whereas the "normal" response for guys is to roll over and snooze.  [;D]

Yes, thats really weird.  It's just the past 2 months where now if I orgasm I get a rush of energy, go temporarily manic, and than the crash a day aferward, but the POIS time has pretty much shortened in length, honestly lasting 3-4 days, sometimes 2 days after O instead of the 2 weeks it had taken me before.

Does anybody here have acne?  I think that might have something to do with my POIS, since I also tend to really break out after O.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5903 on: 27/10/2009 15:20:22 »
And Demo, doesn't this symptom seem like a "too much is being released" problem instead of any other, eg. candida, auto-immune, etc.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5904 on: 27/10/2009 19:40:23 »

GC, it could be that too much is being released. But it could also be that not enough is being released, I just don't know.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5905 on: 27/10/2009 20:42:21 »
Just curious does anybody know if doctor waldinger did any test to check immune response of his patients during study on pois,since he postulated that pois could be immune response.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5906 on: 27/10/2009 20:44:20 »


I think instead of thinking of pois as been caused by multiple things, we should look at it as something caused by one thing.  


CC, if that's true, then in my case, the "one thing" causing my POIS would be hypogonadism, i. e., my body produces insufficient tosterone.

do you know why you have hypogonadism, is it because of Lh production or just lack of testicles producing testosterone.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5907 on: 28/10/2009 00:51:48 »
The latter.

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Offline mat780

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5908 on: 28/10/2009 01:29:01 »
i figured i should note that even outside of POIS, I have poor memory recall. you know how you watch a tv show or movie, or an event happens in yer life, or a conversation you over hear, how you can later recall details of those things to others? yeah, i cant. have never been able to. when i try to remember specifics of things its like trying to recall a distant dream through a huge fog of confusion. so maybe i have a memory dysfunction to begin with, where a normally functioning O causes problems? my grandfather had Alzheimers. maybe another factor? i was wondering if any other POIS sufferers suffer from some kind of memory dysfunction even outside of POIS?

I donít know if there is any relation with POIS, but I have a poor long memory too.

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5909 on: 28/10/2009 03:18:49 »

Has anybody checked for any kind of adrenal tumors, I think adrenaline just may be released too much after sex.  All my POIS is now is a rush of adrenaline and energy or something that keeps me up at night, thats why i'm posting here at 6 in the morning


I do notice a rush of energy immediately afterwards, whereas the "normal" response for guys is to roll over and snooze.  [;D]

Yes, thats really weird.  It's just the past 2 months where now if I orgasm I get a rush of energy, go temporarily manic, and than the crash a day aferward, but the POIS time has pretty much shortened in length, honestly lasting 3-4 days, sometimes 2 days after O instead of the 2 weeks it had taken me before.

Does anybody here have acne?  I think that might have something to do with my POIS, since I also tend to really break out after O.

any body ever take acutane?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5910 on: 28/10/2009 15:55:04 »

FROM Watson Pharmaceuticals
Today, October 28

Hi [demo],  I received your email [my follow up email to my initial email request to Watson to study POIS after my telephone discussion/introduction with Watson about POIS - demo]. I have been extremely busy and have not had a chance to write anything up for management. Please give me a week before you check in. I also got your voice mail. I cannot promise anything. I am the conveyor of information and I am not a decision maker. I will keep you posted as to when I send your information over to management. Have a great night!

Best Regards,


Associate Director, Biopharmaceutics
Watson Laboratories, Inc.
« Last Edit: 28/10/2009 17:33:20 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5911 on: 28/10/2009 16:05:22 »

Laurac, this prolly doesn't help, but both of my sons took Accutane with good results.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5912 on: 28/10/2009 16:11:00 »

GC, it could be that too much is being released. But it could also be that not enough is being released, I just don't know.


GC, afterthought: it could also be that just the right amount could be released. POIS might be due entirely to something else. We desperately need research on POIS by medical professionals!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5913 on: 28/10/2009 16:44:09 »
An open post to hurray, EDS, and Defsync

The three of you magnanimously pledged some financial support to studying POIS. Many thanks again, that was an incredibly wonderful gesture on your part!

By pledging, you have done enormous good to the cause of curing POIS, giving us all renewed hope and confidence that we're on the right track.

Just wondering lately, since the outside world of research is slow in rushing to our aid (we've been at this forum for 3 years now), how would you three feel about starting "somewhere". Anywhere. But Now! Using our own considerable resources?

A few of us here think that a state-of-the-art SCAN of the brain, such as an fMRI, before, during and after orgasm, could reveal plenty.

This advanced scanning (not generally available publicly) could give us deeper insight into the hormonal/neurotransmitter/brain-function data that we seem to be "just around the corner" from finding. I would be glad to be "team captain" with doctors, labs, etc., but not a good subject because of my testosterone/stimulant POIS treatment regimen.

I posted this here, publicly, because the more input (from you as well as everyone else here at the forum) the better!

What do you think?   
« Last Edit: 31/10/2009 19:32:47 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5914 on: 28/10/2009 17:18:38 »

                          


               hurray   and   EDS   and   Defsync


                                For your incredible show
                               of good faith and early support
                           towards funding POIS Research!!!


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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5915 on: 28/10/2009 18:49:21 »
I wouldn't mind donating a small personal contribution to support us.  But before we spend money, I think it's important that we develop a plan, step by step with justificaiton and financial information, to ensure were all on board.  A plan might generate additional support from other forum members as well by proving organization and direction.

Thoughts?

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Offline RhythmSpring

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5916 on: 28/10/2009 19:06:37 »
I have another theory! It may seem hokey, like in the category with the chi theory, but don't you dare shoot it down 'til you've tried it.

I'll be simple and quick. I notice when I'm O'ing I tense my abdominal muscles. I also notice I'm tensing my abdominal muscles when I'm experiencing social anxiety and gastrointestinal difficulty.

So try, next time you O, do not constrict any abdominal muscles throughout the whole thing. Make it a note to leave those muscles relaxed in the minutes, hours then days after O'ing.

It doesn't have to make sense in your mind to work in your body. Just try it.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5917 on: 29/10/2009 00:00:52 »
LJ, I agree about the wisdom of plans. On the other hand, I've been through plan exercises that were Masterpieces To Behold, raised lots of money, and burned through the money with no results. I'm a little biased perhaps because I started a very successful company with a BOE plan. (Written on the Back Of an Envelope).

I'm also impatient because we have 3 years here and made no research headway.  But by picking a starting point as I outlined in my previous post, we could have something concrete by Year End: advanced scan results of POIS sufferers! LJ, I would see that result dictating Step 2.

I'm also wide open to an alternate starting point. The one I've recommended comes from 3 years' mental sifting of all the ideas and theories presented here. Also, our budget is $2,500, which does not allow for a great deal of research. But with our zeal and entrepreneurial spirit, I'm hopeful it can go a long way.

If my BOE sketch above is appealing, I'm sure it will require a number of "mini-plans" just to accomplish that, e.g., who will volunteer to be studied, costs of various scans, what will we scan, which doctor(s) and/or institution(s) do we recruit. etc. This will certainly generate time and effort to reach consensus.

LJ, you've been a teriffic supportive contributor. If this was closer to the start of our forum, I would agree 100% with a  more thorough plan. I also feel badly that I have found some relief for myself, but not for others.

Maybe we can do both?   

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5918 on: 29/10/2009 00:02:11 »

RS, that sounds good! I'll try it.

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Offline Looking_for_answer

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5919 on: 29/10/2009 05:24:27 »
anybody wants to reduce prolactin? http://www.patentgenius.com/patent/4618601.html   [:D]

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5920 on: 29/10/2009 17:24:40 »
Have someone noticed a strange sensation when laughing a lot during Pois days ?
If someone have ideas about synthesis of endorphins or "how to avoid his depletion", telle me how :)
Endorphins can be stimulated by eating chilli pepper,exercising - runners high, accupunture. 

when i exercise i get a high but cognition/memory does not leave.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5921 on: 29/10/2009 17:30:07 »

An open post to hurray, EDS, and Defsync

The three of you magnanimously pledged some financial support to studying POIS. Many thanks again, that was an incredibly wonderful gesture on your part!

By pledging, you have done enormous good to the cause of curing POIS, giving us all renewed hope and confidence that we're on the right track.

Just wondering lately, since the outside world of research is slow in rushing to our aid (we've been at this forum for 3 years now), how would you three feel about starting "somwhere". Anywhere. But Now! Using our own considerable resources?

A few of us here think that a state-of-the-art SCAN of the brain, such as an fMRI, before, during and after orgasm, could reveal plenty.

This advanced scanning (not generally available publicly) could give us deeper insight into the hormonal/neurotransmitter/brain-function data that we seem to be "just around the corner" from finding. I would be glad to be "team captain" with doctors, labs, etc., but not a good subject because of my testosterone/stimulant POIS treatment regimen.

I posted this here, publicly, because the more input (from you as well as everyone else here at the forum) the better!

What do you think?   


I am down for these it is time we take this problem to the next stage. But i will love to have a plan and know who the money is going to within the group. It will be nice if we can add blood testing to the brain scan. 
I dont know how much i can give yet, but i shall be.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5922 on: 29/10/2009 21:22:10 »

An open post to hurray, EDS, and Defsync

POIS Forum Research Study



I am down for these it is time we take this problem to the next stage. But i will love to have a plan and know who the money is going to within the group. It will be nice if we can add blood testing to the brain scan. 

I dont know how much i can give yet, but i shall be.


Thanks, CC!

I've been thinking about this some more and wonder if a good starting point might be to ask the current donor group (CDG), hurray, EDS, Defsync, and possibly Limejuice and CCconfucius to also be the first POIS-study volunteers.

The CDG would simply pay out-of-pocket costs directly to the lab/medical facility.

That should eliminate any concerns of "where's the money going" and it would also relieve me or anyone else of the burden of playing POIS Research Study "banker".

To be more conservative, we could also just start with one study volunteer to see if his lab results prove meaningful. In that case, the finances get a little trickier in that the other CDG's plus the first study volunteer would split the first bill. We could start a "dba" like "POIS Research Group" (PRG), and the CDG's could make an initial deposit into the PRG bank account, just enough to cover the first study volunteer's costs.

If this makes sense to any of you, let's start with finding a lab and/or physician willing to cooperate and see what the costs are. I can help do that if any/all of the CDG (or any new volunteer!)sends me a Private Message with the name of the city closest to him.

Once I receive that, I'll make calls, email contact, etc. A relative is a top medical facility radiologist, I will also try to enlist his help, and then report back to the group with specific ideas, procedures, and costs. I won't reveal the volunteer's city name in a public post here without permission from the volunteer. And, if preferred for confidentiality, the communication initially can be kept private within the CDG, with approved summaries reported to the forum.

CC, of course blood testing can be added. There's nothing "etched in stone" here.

Anyone:       Thoughts? Questions? Comments?





Some links on (f)MRI Of The Brain
http://www.radiologyinfo.org/en/info.cfm?PG=fmribrain
http://en.wikipedia.org/wiki/Functional_magnetic_resonance_imaging
http://www.psc.edu/science/goddard.html

2003 Study on Ejaculation And The Brain
http://www.jneurosci.org/cgi/content/full/23/27/9185?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&fulltext=ejaculation&searchid=1&FIRSTINDEX=0&sortspec=relevance&resourcetype=HWCIT

My thanks to Counterpoints for alerting me to some of the research possibilities in using fMRI to study POIS
« Last Edit: 29/10/2009 22:33:22 by demografx »

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5923 on: 30/10/2009 18:51:03 »
any body ever take acutane?

I think this has been asked before.... but the answer here is yes, lots of it for ACNE 26 years ago.

PS.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5924 on: 30/10/2009 20:06:00 »
I haven't taken accutane

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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5925 on: 31/10/2009 02:16:49 »
Sounds like a good plan Demo! Has anybody else had an fMRI scan on this forum? Could it provide the answers to the questions we have been asking for the last 3 years?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5926 on: 31/10/2009 06:30:47 »

Sounds like a good plan Demo! Has anybody else had an fMRI scan on this forum? Could it provide the answers to the questions we have been asking for the last 3 years?


Thanks, hurray!!

No one here has had an fMRI as far as I know. I had a plain MRI of the brain/pituitary.

Yes, providing answers to the last 3 years' burning questions (10, 20, 30 years for some of us!) - that's my fervent hope, hurray!

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5927 on: 31/10/2009 11:27:55 »
I'll give money for research and participate to do some tests, count me in Demo :)

Chinese medicine:
Anyone tried the suggestions for POIS mentionned here ?
Your kidney energy is deficient, and your liver qi is stuck.
http://www.thetaobums.com/index.php?showtopic=3631

I didn't know semen retention is causing liver stagnation .
Semen retention is when you're sexually aroused but you don't have ejaculation.
http://precisiondocs.com/~altaoism/HLDangerMain.htm
http://www.precisiondocs.com/~altaoism/MsgDistal.htm
http://www.precisiondocs.com/~altaoism/IS2TendonChanging.htm#HinduSquats

« Last Edit: 31/10/2009 14:53:18 by martin88 »

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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5928 on: 31/10/2009 13:40:13 »
Could POIS simply be a severe symptom of Adrenal exhaustion or adrenal disease rather than being a disease itself?

Some causes of adrenal disorders are Cushing's syndrome, hypothalamic disorders, pituitary gland disorders, pheochromocytoma and benign and cancerous adrenal tumours.


The reason why Iam thinking of that is because sexual exhaustion and adrenal fatigue are suppose to be very much interrelated ...and with very common symptoms....

Also last month I totally abstained  for 3 weeks in a row...after which I noticed that POIS was 90% cured after the first time....When my sexual activity resumed and increased in frequency ( Four times and above within the fourth week)...POIS was back....I guess it was an false early Hurray....but apparently with a pause, my overall body & metabolism have dramaticaly improved....

By the way, I had done a complete blood test including Hormonal & Immune system check three weeks ago,,,both my Endo & Generalist doctors think that all test are normal,,,,which only makes me shift again my focus to the adrenal fatigue theory,,,since apparently unless adrenal fatigue is severe..it is hard to detect with routine tests....

On the other hand, I am also considering a hypothalamus/pituitary gland disorder which only gets manifested during release of sexual hormones....I am still inquiring & researching with regard to that,,,,


B_Jim sorry for not replying to ur PM earlier...I was inactive for a while...as to answer u..my symptoms are similar to everybody else but without the flu symptoms ( I thankfully never got those). Therefore I beleive those who have flu symptoms are more or less dealing with an auto-immune disorder such as Addison disease or others...

My symptoms are mainly:

1- Excessive fatigue (Impossible to wake up early the next day!)
2- Fast heart palpitations
3- Weight & muscle loss
4- Eating disorder/ Cravings.
5- Brain fog
6- All senses get confused.
7- Low blood pressure.
8- Anti-social mood.

If I would to put a title I would choose: " The 72hrs body crash!"

Hope this helps.....Also with regard to Black seed oil or Nigella Sativa..it personally helps me alot....it is a general tonic and cure all for the body and works well with Ginseng and Tribulus....

In addition, at a certain stage , Maca worked like magic for me,,,somehow after 2 weeks of use it appears to have completely lost its effectiveness...like a reverse effect or something from overuse....

Tribulus & Ginseng has proven the most effective for me, while Fenugreek, Zinc & Garlic were useless....

I still have not tried Relora nor Rhodiola.....ordered them from the US.

Hope this helps....



Peace.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5929 on: 31/10/2009 16:57:26 »
I think it would be possible that maybe one of us could somehow get onto a talk-show such as Dr. Oz or something where they can help us figure out whats happening

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5930 on: 31/10/2009 18:25:13 »

Could POIS simply be a severe symptom of Adrenal exhaustion or adrenal disease rather than being a disease itself?


Z_one, we've had quite a few discussions about it. Here are some previous forum posts:
http://www.google.com/search?hl=en&q=adrenal+fatigue+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&aq=f&oq=&aqi=

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5931 on: 31/10/2009 18:27:13 »


I'll give money for research and participate to do some tests, count me in Demo :)


Thanks, Martin! We now have 6 possible participants in the current donor group.
« Last Edit: 31/10/2009 19:22:11 by demografx »

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5932 on: 31/10/2009 18:42:56 »
More on fungal infection...:  http://www.healthboards.com/boards/showthread.php?t=601079

He had sex headaches and cured them with nystatin, maybe it is related to pois?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5933 on: 31/10/2009 19:19:40 »


I think it would be possible that maybe one of us could somehow get onto a talk-show such as Dr. Oz or something where they can help us figure out whats happening


Oprah's reaction to "goingcrazy"'s story! [;D]


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5934 on: 31/10/2009 19:27:23 »

GC, kidding aside, we've discussed that before. If someone volunteers to discuss POIS on international TV, I'll write a letter to Oprah, Dr. Oz, or whoever.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5935 on: 31/10/2009 19:39:54 »

POIS DIARY

Well, I'm not at a 100% cure. Sometimes (usually) I am close to 100%, but not always. It takes me by surprise because I don't know "why". But even at their worst, POIS episodes today last, at the most, 1 day and not 4.

I sincerely wish this progress for everyone.

Anyway, I'm not discouraged. Just wanted to report.

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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5936 on: 31/10/2009 20:35:10 »


I think it would be possible that maybe one of us could somehow get onto a talk-show such as Dr. Oz or something where they can help us figure out whats happening


ive emailed oprah and ellen a couple times already, with no such luck

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5937 on: 31/10/2009 20:39:37 »
any body ever take acutane?
i just threw that acutane thing out there because i took it when i was young.

I think this has been asked before.... but the answer here is yes, lots of it for ACNE 26 years ago.

PS.

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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5938 on: 31/10/2009 21:03:00 »
An open post to hurray, EDS, and Defsync

The three of you magnanimously pledged some financial support to studying POIS. Many thanks again, that was an incredibly wonderful gesture on your part!

By pledging, you have done enormous good to the cause of curing POIS, giving us all renewed hope and confidence that we're on the right track.

Just wondering lately, since the outside world of research is slow in rushing to our aid (we've been at this forum for 3 years now), how would you three feel about starting "somewhere". Anywhere. But Now! Using our own considerable resources?

A few of us here think that a state-of-the-art SCAN of the brain, such as an fMRI, before, during and after orgasm, could reveal plenty.

This advanced scanning (not generally available publicly) could give us deeper insight into the hormonal/neurotransmitter/brain-function data that we seem to be "just around the corner" from finding. I would be glad to be "team captain" with doctors, labs, etc., but not a good subject because of my testosterone/stimulant POIS treatment regimen.

I posted this here, publicly, because the more input (from you as well as everyone else here at the forum) the better!

What do you think?   

Judging from what I've seen around the interwebs on fMRI's of brains during orgasm, I'm not sure how well a tool it would be for zeroing in on POIS related structures/causes. I say this because it seems there are very different results from fMRI's of different "normal" people's orgasms, and it appears that doctor's aren't exactly sure yet why that is yet. I may also be biased since my doctor ordered a $18,000 MRI and EKG for my POIS and it showed nothing abnormal. Granted an fMRI shows bloodflow and oxygen level changes within structures of the brain, without a fram of reference or a "what exactly are we looking for" I'm not sure how this might work. I guess if someone did have a pretty good reason, and they were insured, convince their doctor to obtain one of these through insurance just like some of us have with regular MRIs?

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5939 on: 31/10/2009 21:03:30 »


I think it would be possible that maybe one of us could somehow get onto a talk-show such as Dr. Oz or something where they can help us figure out whats happening


ive emailed oprah and ellen a couple times already, with no such luck
to get on Oprah we need to come up with some horror stories about our lives that read like a Greek tragedy, people love to hear about others who have worse problems then they do. pois sounds like the perfect subject for an Oprah/Dr. oz special.

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5940 on: 31/10/2009 21:28:30 »
An open post to hurray, EDS, and Defsync

The three of you magnanimously pledged some financial support to studying POIS. Many thanks again, that was an incredibly wonderful gesture on your part!

By pledging, you have done enormous good to the cause of curing POIS, giving us all renewed hope and confidence that we're on the right track.

Just wondering lately, since the outside world of research is slow in rushing to our aid (we've been at this forum for 3 years now), how would you three feel about starting "somewhere". Anywhere. But Now! Using our own considerable resources?

A few of us here think that a state-of-the-art SCAN of the brain, such as an fMRI, before, during and after orgasm, could reveal plenty.

This advanced scanning (not generally available publicly) could give us deeper insight into the hormonal/neurotransmitter/brain-function data that we seem to be "just around the corner" from finding. I would be glad to be "team captain" with doctors, labs, etc., but not a good subject because of my testosterone/stimulant POIS treatment regimen.

I posted this here, publicly, because the more input (from you as well as everyone else here at the forum) the better!

What do you think?   

Judging from what I've seen around the interwebs on fMRI's of brains during orgasm, I'm not sure how well a tool it would be for zeroing in on POIS related structures/causes. I say this because it seems there are very different results from fMRI's of different "normal" people's orgasms, and it appears that doctor's aren't exactly sure yet why that is yet. I may also be biased since my doctor ordered a $18,000 MRI and EKG for my POIS and it showed nothing abnormal. Granted an fMRI shows bloodflow and oxygen level changes within structures of the brain, without a fram of reference or a "what exactly are we looking for" I'm not sure how this might work. I guess if someone did have a pretty good reason, and they were insured, convince their doctor to obtain one of these through insurance just like some of us have with regular MRIs?

i think he might be right about the fmri,if normal people have varying results, we might not have anything concrete to interpret the data with. i personally think that my brain would look normal durning o anyways. somthing like taking a math test(on fmri or mri) before o, and after while in pois, would tell us a great deal about what areas are affected by cognitive dysfuntion. narrowing down what areas are effected by decreased brain activity is the first step in the right direction. another step in the right direction would be to match a pois patient test agian the data from that study(prolactin/dopamine) where the people were hook up to a machine that automatical draws blood at givin intervals before, during, and after orgasm. in this case we would have solid data from that study that we could match our nuero/endocrine chemicals toward.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5941 on: 01/11/2009 01:16:19 »

pois sounds like the perfect subject for an Oprah/Dr. oz special.


Should we all chip in and hire a publicist? Trying to stand out in a stack of 10,000 emails is unlikely to work.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5942 on: 01/11/2009 01:24:49 »

i think he [Defsync] might be right about the fmri,if normal people have varying results, we might not have anything concrete to interpret the data with. i personally think that my brain would look normal during o anyways. somthing like taking a math test(on fmri or mri) before o, and after while in pois, would tell us a great deal about what areas are affected by cognitive dysfuntion. narrowing down what areas are effected by decreased brain activity is the first step in the right direction[. another step in the right direction would be to match a pois patient test agian the data from that study(prolactin/dopamine) where the people were hook up to a machine that automatical draws blood at givin intervals before, during, and after orgasm. in this case we would have solid data from that study that we could match our nuero/endocrine chemicals toward.

[emphasis above mine - demo]


Thank you!

As I wrote, "let's start somewhere"! I'm not "married" to fMRI by any means. I'm just tired of waiting for that institution-in-the-sky to "save us"!

Laurac, can you break that suggestion down to the very next step for us here? Perhaps starting with 1-2 volunteers?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5943 on: 01/11/2009 01:32:48 »

I may also be biased since my doctor ordered a $18,000 MRI and EKG for my POIS and it showed nothing abnormal.


I understand that. My endo ordered a $9,000 (mostly insurance-paid) MRI brain scan of the pituitary and it only revealed that I didn't have tumors. A partially empty sella was found, which meant nothing to the endo as far as suggesting treatment.

But it did keep me on track with testosterone treatment, which the hormonal bloodtests identified as necessary, and was/is a successful POIS treatment for me.

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5944 on: 02/11/2009 01:54:30 »
So whats everyones thoughts now on getting H1N1 shots?

Some people saying people with FM and CFS could be at risk of it....

Thoughts?

PS.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5945 on: 02/11/2009 10:23:33 »
PS,
Quote
So whats everyones thoughts now on getting H1N1 shots?

Some people saying people with FM and CFS could be at risk of it....

Thoughts?

PS.

I plan on getting it, I think everyone in our camp should.


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Offline Finally

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5946 on: 02/11/2009 18:47:13 »
[
Quote
So whats everyones thoughts now on getting H1N1 shots?

Some people saying people with FM and CFS could be at risk of it....

Thoughts?


I won't be needing the shot since I had the disease a couple weeks ago.  Usually I get rid of these things in a day or two but It dragged me down for about a week then recovered "slowly".  Brushed my teeth and needed to rest for a half hour.
I do have CFS/fibro. My immune system seems to work well sometimes maybe too well? 
« Last Edit: 02/11/2009 18:55:08 by Finally »

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5947 on: 02/11/2009 19:49:07 »
PS,
Quote
So whats everyones thoughts now on getting H1N1 shots?

Some people saying people with FM and CFS could be at risk of it....

Thoughts?

PS.

I plan on getting it, I think everyone in our camp should.



I say do it, but if pois is immune related, i say stay away from orgasm for a while, so body dont over react.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5948 on: 02/11/2009 23:08:22 »
So whats everyones thoughts now on getting H1N1 shots?

Some people saying people with FM and CFS could be at risk of it....

Thoughts?

PS.
I'm not getting it. I see an I Am Legend reality.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5949 on: 03/11/2009 17:29:52 »
I think someone should try nystatin.