Post Orgasmic Illness Syndrome (POIS)

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #600 on: 02/06/2008 07:29:51 »
Perhaps I misunderstood an earlier post, but do you have POIS? I only ask because you said something about a contact at another Forum, so I wasn't sure if you are interested as a researcher, a sufferer or both. Thank you.

I found this forum because for most of 9 years I have suffered from severe and unusual symptoms following orgasm; like usual, I was looking on google to see if anyone else had suffered from similar symptoms.  My symptoms include anxiety, exhaustion, and difficulty focusing following orgasm.  I am also a physicist who works with medical researchers, so I have some contacts who might help me and others here. 

The other forum is a French forum that Guthrie mentioned.  I thought I could make a simple HTML form with text boxes like "Treatments attempted", "Symptoms", "Duration of symptoms", "Test history", etc.  This way people could fill out a "form", and it could easily be done in both French and English, so we could combine our efforts with the French website and have a very organized database of information to accompany our posts in this thread.  We could could provide a link to this "form" in our thread here, and continue our discussion here without starting any new forum, etc.

So "both" is probably the best answer to your question.

The most phenomenal aspect of my case of "POIS", is that orgasm was not only the source of some of the problems, but also the cure.  It took me 8 years of experimentation to find this out.
« Last Edit: 02/06/2008 07:39:51 by Counterpoints »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #601 on: 02/06/2008 08:23:19 »
Here is a letter I wrote, similar to demografx, that people here are free to use or combine with demografx' and B_jim's thoughtful letter.  I *strongly recommend* we compile everything in an organized manner though; we will want to do it sooner or later, so we should probably do it before we talk to very many researchers.  If anyone can provide some modest web-hosting, I will put up my form for this.


To whom this concerns,

I am writing on behalf of a group of a least a hundred people who suffer from crippling symptoms following orgasm.  We are referring to it as Post Orgasmic Illness Syndrome (POIS).  These symptoms include exhaustion, difficulty concentrating, anxiety, loss of speech fluency, and cloudy mindedness; they are often severe, and can take up to a week to dissipate. 

These symptoms are preventing a large group of otherwise intelligent and motivated people from functioning properly.  We are desperately hoping that you would be interested in studying our condition.  Each of us have written about our medical history, which medications we have attempted, which tests we have taken, and our particular symptoms. 

Could you please read this information and provide us with some feedback?  We could discuss re-reimbursement although we do not have a great deal of money.  However, your research into these cases would certainly provide for interesting journal publications.  There was much interest when Dr. Marcel Waldinger published some research in regards to this ailment (unfortunately he is no longer available for contact). Further, any insights you have into our condition could likely lead to groundbreaking developments towards treating connected but more well known conditions that are the focus of much current research.  And any time you invest in helping us will collectively salvage hundreds of years worth of our time, which would otherwise be spent conducting amateur investigations and suffering alongside our families who are also deeply affected by association.

Thanks, and please give this some sincere consideration; we are all desperately hoping for your help.



« Last Edit: 02/06/2008 17:20:49 by Counterpoints »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #602 on: 02/06/2008 15:17:37 »
Demografx--a definite yes to the research endocrinologist.

I'm not finding the "posted results of the data form B_Jim compiled." Where is that?

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Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #603 on: 02/06/2008 20:33:44 »
I would'nt worry about Imre1 folks. I find that he is a good guy but often confused, probably POIS overdrive and the valium he is taking.

Yes. I seem to pissing more people then usualy of these days. Maybe I should be seeing a psychologist.

Anyway the stuff in second life has been removed.

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Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #604 on: 02/06/2008 20:53:04 »
Good on you! Let's find a solution!

I have this "fatigue, brain fog, can't concentrate, irritable, weird feeling in stomach, dry skin, pale, feel like sleep" after orgasm for several days too. I'm in my late 20's. Regular doctors say it's psychological, so can't help me. I am from Holland. I believe the whole thing has something to do with an imbalance of hormones or stuff.

So I say "yes" to an endocrinologist. I think putting data together does not combat this idea. Instead it adds value. We make it easier for the researcher to get an idea of what's going on, so increasing chances he will go for it.

I don't have a website to host your form, Counterpoints. Anyone? We might have to create a free site somewhere. I haven't found B_Jim's form either.

I would like to add to the questions on the list: "do the symptoms occur after a wet dream as well? (so to exclude the possibility of psychological causes).
« Last Edit: 25/01/2011 21:34:08 by rock27 »
POIS, fatigue, brain fog, can't find words, irritated, can't concentrate.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #605 on: 03/06/2008 06:02:47 »
Demografx--a definite yes to the research endocrinologist.

I'm not finding the "posted results of the data form B_Jim compiled." Where is that?


Girlwind, and rock27, there is a search function at the top of this page. If it didn't work for you...

B_JIM, CAN YOU PLEASE POINT US TO THE POSTS? Thanks!
« Last Edit: 03/06/2008 06:48:13 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #606 on: 03/06/2008 06:06:46 »
Counterpoints writes, "The most phenomenal aspect of my case of "POIS", is that orgasm was not only the source of some of the problems, but also the cure.  It took me 8 years of experimentation to find this out."

CP, sorry if you already wrote about this, if so, could you point me to "the cure"? Was it repeated orgasms? I recall seeing something about that. Thanks.
 

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #607 on: 03/06/2008 06:10:35 »

If anyone can provide some modest web-hosting, I will put up my form for this.


Counterpoints, I just asked one of the TNS moderators.
« Last Edit: 03/06/2008 06:34:43 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #608 on: 03/06/2008 06:39:22 »
I would like to add to the questions on the list: "do the symptoms occur after a wet dream as well? (so to exclude the possibility of psychological causes).

rock27, very interesting, I never thought of that objectivity/psychological link.

In earlier years, wet dreams ALWAYS resulted in POIS for me. Later years the dreams eventually stopped (thankfully!!)
« Last Edit: 03/06/2008 06:49:54 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #609 on: 03/06/2008 06:45:09 »
Here is a letter I wrote, similar to demografx, that people here are free to use or combine with demografx' and B_jim's thoughtful letter.  I *strongly recommend* we compile everything in an organized manner though; we will want to do it sooner or later, so we should probably do it before we talk to very many researchers.  If anyone can provide some modest web-hosting, I will put up my form for this.


To whom this concerns,

I am writing on behalf of a group of a least a hundred people who suffer from crippling symptoms following orgasm.  We are referring to it as Post Orgasmic Illness Syndrome (POIS).  These symptoms include exhaustion, difficulty concentrating, anxiety, loss of speech fluency, and cloudy mindedness; they are often severe, and can take up to a week to dissipate. 

These symptoms are preventing a large group of otherwise intelligent and motivated people from functioning properly.  We are desperately hoping that you would be interested in studying our condition.  Each of us have written about our medical history, which medications we have attempted, which tests we have taken, and our particular symptoms. 

Could you please read this information and provide us with some feedback?  We could discuss re-reimbursement although we do not have a great deal of money.  However, your research into these cases would certainly provide for interesting journal publications.  There was much interest when Dr. Marcel Waldinger published some research in regards to this ailment (unfortunately he is no longer available for contact). Further, any insights you have into our condition could likely lead to groundbreaking developments towards treating connected but more well known conditions that are the focus of much current research.  And any time you invest in helping us will collectively salvage hundreds of years worth of our time, which would otherwise be spent conducting amateur investigations and suffering alongside our families who are also deeply affected by association.

Thanks, and please give this some sincere consideration; we are all desperately hoping for your help.


Counterpoints, terrific letter!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #610 on: 03/06/2008 07:06:11 »
You want the posts related to what i wrote in letter ?
- agjchs and DHEA


other good posts :

-Bizzy's theory
- Dave23 protocol


B_Jim, you did a survey of all the people at POIS Forum, symptoms, and then posted the results of those who responded. It was a few months ago? Then you tabulated the results, showing for example, my work with Levitra and someone else for DHEA, but with ALL your survey questions, and it showed everyone who replied, not just the DHEA and Levitra results.

Many thanks, if you can find the relevant post(s) would you kindly "Quote" them here again? THANKS!

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Offline Bizzy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #611 on: 03/06/2008 16:40:11 »
For most of the year, I had completely treated "POIS" by having orgasm to sexually stimulating images when feeling affected.  If I felt bad, I would have another orgasm; I would try again and again until the "good orgasm" undid the affects of the other ones.  On average, I masturbated once a day to sexually stimulating images.  Sometimes I would do it twice if the first one didn't work.

It seems that in your case you are able to lock in a 'good orgasm' by using sexually stimulating content and having further orgasms if things didnt work. So it seems you have found a partial solution that works for you. The fact that you can go back and correct the condition means that you are rather more fortunate than others.
I know that this routine does not work for me and probably many other people. The content I focus on makes no difference to the outcome and having more orgasms brings about even more severe symptoms.
We can see that there are variations in the way POIS affects us but the core symptoms seem to be the same.
« Last Edit: 03/06/2008 16:45:43 by Bizzy »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #612 on: 03/06/2008 19:16:47 »
I am in a rush right now, so I will respond to some of your questions tonight.
Tonight I will also post my questionnaire here to see if there is anything anyone would like added before I write the code and put it up on a website.  Suggestions for questions are welcome.  I will look at B_jim's questionnaire and some of the responses to it as a guide for designing some of the questions.

Basically, there will be a bunch of text boxes you can fill out in response to questions.  Once finished, you would press a 'submit' button.  This would then save a text (or HTML) file of your answers, associated with whatever identity you chose for yourself when filling out the form;  (e.g. 'Counterpoints.txt' could be generated).  These text files would automatically be viewable on a website.  You would have the option to add information to your file afterwards, though it is generally best if you be as detailed and thorough as possible on the first time you fill it out.

« Last Edit: 03/06/2008 19:19:24 by Counterpoints »

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Offline jamie_wood888

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #613 on: 03/06/2008 22:23:07 »
Does anyone still post on this forum, i know the last post was a while ago but could do with some advise  or information

I have problems with what i think is pois, i have a few symptoms that arnt really listed. If anyone has any comments please feel free to chat to me about this.
1/ Tiredness, ie in the morning finding it hard to awake propely, not wanting to get up
2/ After orgasm my sweat smells very sweet and distinctively salty. literally strait after orgasm, it lasts for several days.
3/ I work out in the gym but find it hard to keep focused and though i dont feel sleep tired i feel letharigic, i just want to lie down and rest. Im more focused after a week without orgasm but tend not to last more than a week so cant tell if it will be better if i dont orgasm after a week.
4/ If im not mentally or physically stimulated i find my eyes wanting to close and sleep, espeacially while driving or in meetings. I literally have to hold my eyes open, even with great concerntration i find it so hard to stay awake.
5/ Testcles ache, feel drained if thats a sensation that ppl are aware of.

Any posts to this would be grateful. thanks.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #614 on: 03/06/2008 23:19:32 »
Jamie,

With an unexplained condition such as POIS it is hard to nail down how dynamic the underlying problem might be, for example is it possible for a person have it slightly? That being said your experience does not sound to be of the same nature as mine: serious mental "change" that feels awful in an indescribable way and thinking is more difficult. There have been other "symptoms" but the cognitive problem is the worst offender. An odd thing about my POIS is that I have no memory of what it "feels" like until I am back in it again, it is that elusive to description.

The fact that your testicles ache might be indicative of a problem, I suggest you talk to a doctor about it if you have not done so already.

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Offline jamie_wood888

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #615 on: 03/06/2008 23:32:02 »
yes seen a doctor about the aching, ive had several ultrasound and nothing there, its only wen i emitt. for a few days after. i dont change in a mental way, but do feel as if somethingisnt right, unableto fully think and even keep awake. are u aware of any of my symptoms?

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Offline Bizzy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #616 on: 04/06/2008 00:21:52 »
If the symptoms occur after orgasm then they correlate to the POIS condition we are talking about here. The core symptoms are :

Confusion, tiredness, inability to concentrate, sleepiness, difficulty of speech, depression, muscular weakness, depersonalization and derealization
« Last Edit: 04/06/2008 00:27:37 by Bizzy »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #617 on: 04/06/2008 02:58:32 »
Girlwind responses to B_Jim's survey:

1)- Number of days after orgasm you have problems : It varies a lot depending on how healthy I am at
the time. (I have Chronic Fatigue Syndrome in addition.) The POIS symptoms can last a minimum of 1 to 2 days,
if I'm successful at "treating" them with my vitamin/herb mixes. But if I'm low energy already, then orgasms can
trigger a draining fatigue that brings on a month long flu or infection.
 
-- How many hours after orgasm start symptoms ?  Usually after 4-5 hours, I really begin to feel it.
-- In the first hours after orgasm, how do you feel ? I feel okay for the first 2 hours, pleasantly relaxed and
comfortable in my body. The POIS symptom peak of discomfort comes during the next 24-48 hours. At first
I feel agitated, jittery and spaced out (day 1); then I feel the exhaustion on day 2 on.

2) Symptoms :
Give a mark for each symptom :
0=No   1=Very Low   2=Low    3=Average   4=Severe   5=Very Severe

-Physical tiredness 4
-Mental tiredness: 4
-Lethargy/Derealisation 3
-Lack of concentration/Brain fog: 4
-Sweatings and heat feelings:4
-Cold feelings/cold hands/cold body:0
-Myalgias:0
-Anxiety: 3-4
-Depression:3-4
-Agoraphobia/Social phobia: 3
-Not motived:3
-Memory problems:4
-Difficult to speak/communication:4
-Insomnias/sleep problems: 4
-Headaches:0
-Stomachaches:0
-Restless/agitation: 4
-Blurred vision: 2
-Buzzing ears:0
-Dizziness: 3
-Muscle tremors:0
-Diarrhea day1: 0
-Hair problems:0
-Mouth problems:0
-Skin problems:0
-Eyes problems:0
-Short breathing Day1:2
-Premature Ejaculation: 0
-Sexual pain after sex :0
-Erection problems:0
-Libido problems: 4 (in general my libido is low already, POIS makes it worse)

Others Symptoms ?  I get so worn down that I sometimes end up with a cold or sinus infection for 2-4 weeks after.
(CFS is most likely a contributing factor.) My immune system can't handle the drain of orgasm.

3) What medical test you made ? In the days following orgasm ?
-Thyroid ?
-Prolactine ?
-Testosterone?
-Blood pression?
-Others..
I've never had bloodwork on a POIS day. I have had tests in the last 2 years that indicated a thyroid on the low end
of normal, low testosterone, and low DHEA--less than half of normal. My blood pressure has always been low. (110/65)


4)What meds did you test ? What effect on POIS ?
-Ssri ?
-Stimulants? Dopaminergic ?
-Benzodiazepine ?
-Piracetam ?

I avoid prescription medications, as I have had many severe drug reactions in the past, even to aspirin and novacaine.
I have found that adrenal boosting herbs and supplements have helped to somewhat alleviate my POIS symptoms,if
I take them before sex or immediately after orgasm. Schizandra adrenal support by Planetary Formulas and Siberian
Ginseng have been the most helpful, along with a big dose of sublingual B vitamins and large doses of B5 with Vit. C.
Recently I have begun taking DHEA and will see if this works to help the POIS problem.


5)Others
-What about you diet ? I eat all organic foods--meat, vegetables, whole grains, goat dairy products (allergic to cow dairy),
fruit in season, salads. No sugar, coffee or alcohol. And I drink only filtered water.
-Sport ? I do yoga, walk, ride my bike and kayak in summer. It all depends on where my energy is at.
-Heavy Computer user ?  I can use the computer up to 6 hours/day. It is draining after 4 hours.
-Coffee user ? No.

I want to add that before I got Chronic Fatigue Syndrome, I never had POIS symptoms. I have now lived with CFS for 30
years and I notice the POIS symptoms are worst when CFS is at its worst. There is a connection between how much energy
I have and how much sexual energy I can afford to burn. I also notice that when I have spontaneous orgasms in dreams, the
exhaustion level is never as great or as long lasting as when I have a "conscious" orgasms. I am fairly sure that this is
due to the fact that my mid-sleep orgasms only happen in mid-cycle, when progesterone is peaking. (I must have an
abundance of hormones to spare at those moments and this must have some EXTRA to burn.)


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #618 on: 04/06/2008 03:03:43 »

having more orgasms brings about even more severe symptoms.


This is absolutely and painfully true for me. I shudder to think of those multiple orgasm occasions!

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #619 on: 04/06/2008 04:53:05 »
The Orgasm Cure


Counterpoints writes, "The most phenomenal aspect of my case of "POIS", is that orgasm was not only the source of some of the problems, but also the cure.  It took me 8 years of experimentation to find this out."

Here is my story explaining the "cure" and how I came about finding it.  I don't think I can do justice to this discovery with a short description, so here goes:

I have had this problem for about 10 years.  For 9 of those years, I would be absolutely terrified to follow the "multiple orgasm" suggestion: orgasm always made me feel very cloudy-minded, anxious, like I couldn't express myself, etc.  Like I've heard a few times now, there's not much I can relate the experience to.  When I am not feeling POIS symptoms, the anxiety I might feel about talking to a certain person, or taking a test, or whatever, is very different than the anxiety I constantly feel during POIS.  I obviously didn't have many "multiple orgasm" moments, since the first one usually made me feel so bad I wouldn't want to repeat something like that.  And when I did have several orgasms, they didn't seem to make me feel better - either I would feel roughly the same or worse.  Of the people here, John's experience is the one I most relate to.

However, in the last few years, I noticed there were odd times when I would go to bed feeling very affected by POIS, and then I would wake up feeling very relieved and mildly euphoric; all of the POIS symptoms had quickly disappeared: I was my old self again.  I then realized I had had a wet dream.   But when I had orgasms through masturbation, I usually felt horrible.  And I usually felt horrible after wet dreams too (though sometimes not as bad). So there didn't seem to be much I could do other than hope for the very rare occasion I would have a good wet dream; this happened about every 10 to 20 wet dreams... so I would have to wait months, and it wasn't particularly something that would help me function on a day to day basis.

At this point, I was quite terrified of orgasm, or really anything too sexually provocative.  I felt as though I was doing something "wrong" by looking at any sexually explicit material, or by masturbating.  Needless to say, I was never comfortable about masturbation because I was always waiting for the horrible after-symptoms to follow.

I began to talk about this problem with a friend, and after awhile I felt slightly more comfortable towards these activities.  I had an orgasm after looking at some sexually explicit material, and I didn't feel pronounced side effects; I'm sure a person without POIS would still think that whatever I was feeling was pretty dramatic, but after being used to completely intolerable and long lasting (days, weeks, ..) symptoms, this was a relief.

I began to fall into a pattern of an orgasm every 3 days or so.  Then every 2 days.  These patterns usually lasted for months.  I noticed the more frequently I had orgasms/week (during these month long patterns), generally the faster my recovery from POIS was.  For example, if I were having an orgasm a month, it would take me a week to recover.  If I were having an orgasm a week, it would take me 3 days to recover, etc.  Of course this only applies to long term patterns; if I was in a pattern of 1 orgasm/month, then if I quickly shifted to an orgasm a week, I would not notice my POIS symptoms getting better more quickly.

One day, I was feeling very affected by POIS.  I got home, I was totally fed up, and I masturbated -- sort of like someone who is upset that he was foolish while drunk, so out of frustration for life he decides to drink more.  20 minutes later, I realized that I felt great.  I felt a huge relief, and again, I was mildly euphoric. Eventually, I got into a pattern of having an orgasm to alleviate myself from POIS.  This is something I had to break myself into over a couple years.  I imagine if I had told myself this 4-5 years ago, perhaps I could begin to benefit from it within about 6-8 months.

This is also not a cure.  It is not reliable -- I don't know when I'll have a "good orgasm", and when I'll have a POIS one, and there is a limit on how many orgasms are safe to try in one day.  Even if they aren't making me feel worse, it is not safe to have my body adjust to something I can't sustain given POIS symptoms.

The only vague ideas I have about what increases the likelihood of a "good orgasm" is
1) Stimulating images
2) "stimulate" yourself for at least 5 mins.  do not have a "quickie".
3) RELAX.  It is sometimes best to try this after having had a beer.

Finally, I'm sure this description makes POIS sound completely psychological.  I don't think this is the case.  When I have a "good orgasm", it alleviates my symptoms, whereas alcohol, ativan, tranquilizers, etc. only make me care less about my symptoms -- they are still there, and will still be there when the effects of the drugs wear off.  Also, I can't will POIS symptoms to take effect, and I can't will them away either.  And even feeling quite comfortable with masturbation, sex, etc., I still have POIS.  I've just found a way to help me manage it somewhat better.

If anything, perhaps this 'good orgasm' effect will help us learn more about the underlying cause of this problem: how could the *severe* symptoms that follow one orgasm be alleviated by a subsequent orgasm? 
« Last Edit: 04/06/2008 05:04:33 by Counterpoints »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #620 on: 04/06/2008 05:12:17 »
I am wondering if anyone has had a functional MRI scan, or a PET scan?  I am very worried about damage.  My guess is that there is very little damage, although I find even when POIS free my lexical recall (my ability to remember the words I want to use in a description) is getting worse.  For example, the word for 'bench' might slip my mind, or 'shelf', or other simple words I obviously know, but just can't recall. 

I am a pianist, and I have noticed that while POIS affects the quality of my playing, it does not affect my motor control.  So I am not 'impaired' in the same sense I would be after drinking or taking most drugs, for example.
« Last Edit: 04/06/2008 05:18:02 by Counterpoints »

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #621 on: 04/06/2008 06:51:45 »
I am wondering if anyone has had a functional MRI scan, or a PET scan? 

I've had an MRI of my brain.  Everything checked out except for a very small growth (about 2mm) on my pituitary was found.  It seemed to coincide with my prolactin levels being slightly too high.  But no damage was reported.  Difficulty in recalling words is defiantly one of my top symptoms; in fact it is only now, a few days after my last orgasm, I can finally think and find words to finally write my term papers X_X


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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #622 on: 04/06/2008 06:56:50 »
I am wondering if anyone has had a functional MRI scan, or a PET scan? 

I've had an MRI of my brain.  Everything checked out except for a very small growth (about 2mm) on my pituitary was found.  It seemed to coincide with my prolactin levels being slightly too high.  But no damage was reported.  Difficulty in recalling words is defiantly one of my top symptoms; in fact it is only now, a few days after my last orgasm, I can finally think and find words to finally write my term papers X_X



Good luck on your papers! I hope you continue to feel well.

I meant "functional" MRI (abbreviated as fMRI).  Rather than producing anatomical pictures, this type of MRI allows one to see functional activity.  So we could see which parts of the brain are active, for example.  This could also show damage.  And Positron Emission Tomography (PET) also gives us these kinds of pictures. 

These types of scans can even be used to diagnose schizophrenia, alzheimers, bipolar disorder, and other psychiatric conditions, based on pictures of brain metabolism.

Regardless of what specific type of condition POIS is (even if it is completely psychological, which I find very very unlikely), I think a PET scan would point us in the right direction, so long as it were taken while we were feeling POIS symptoms.

« Last Edit: 04/06/2008 07:22:48 by Counterpoints »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #623 on: 04/06/2008 10:39:16 »
Counterpoints, often times on the initial day of POIS I would feel mildly euphoric, perhaps closer to what is typical of "normal" people post orgasm, but these mental states could not be held for long and any positive sensation would eventually nosedive as I had to deal with the "mental change" that had occurred.  In my POIS state the difficulty in communicating verbally with others in this state was most distressing. I don't recall ever having an improvement from further ejaculation, rather it would amplify the problem. 

I have had only a basic MRI and nothing was found.  [:D]
« Last Edit: 04/06/2008 10:53:44 by John21 »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #624 on: 04/06/2008 22:37:30 »
Counterpoints, often times on the initial day of POIS I would feel mildly euphoric, perhaps closer to what is typical of "normal" people post orgasm, but these mental states could not be held for long and any positive sensation would eventually nosedive as I had to deal with the "mental change" that had occurred.  In my POIS state the difficulty in communicating verbally with others in this state was most distressing. I don't recall ever having an improvement from further ejaculation, rather it would amplify the problem. 

I have had only a basic MRI and nothing was found.  [:D]

No MRI here, but you reminded me of my earlier years' POIS, in which the first day's mild euphoria eventually nosedives. In recent years, I seem to go directly to nosedive [;D] - "do not pass GO, do not collect $200"

How did we all end up with this crazy, cruel malady????

By the way, I noticed that eating pasta or piza sometimes provides minor POIS relief. Anyone else experience certain foods/drink helping? (Caffeine helped, and now I'm quitting that, I simply can't moderate it successfully which leads to all sorts of probs)
« Last Edit: 04/06/2008 22:40:21 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #625 on: 04/06/2008 22:58:23 »

...how could the *severe* symptoms that follow one orgasm be alleviated by a subsequent orgasm? 


When successful, is it permanent (for the current POIS cycle only) or temporary relief?

Our outside researcher will certainly have some interesting work cut out for him/her! Too bad it's unlikely we'll ever find an endocrinologist  _with_  POIS  [:D]
« Last Edit: 04/06/2008 23:01:29 by demografx »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #626 on: 05/06/2008 05:04:24 »
demografx--You mentioned carbos (like pizza and pasta) being helpful. In my case I find that it's something rich
and oily like avocados or coconut creme or almond butter on a cracker that helps calm my system down, along with
my handful of vitamins--post orgasm. I'm glad my partner has a sense of humor about that. He teases me about my
orgasmic "supplementation," and also sympathizes with the issue. He has no POIS problems, but supports and partici-
pates in a non orgasmic sex life, that he calls "riding the pleasure peak." He's happy I found a name for this weird
exhausting condition, but I know he can't comprehend the level of exhaustion that comes with it. You have to have it
to really understand how debilitating it is. I'm very relieved that this group exists and that we are all so determined
to find answers.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #627 on: 05/06/2008 05:25:46 »
When successful, is it permanent (for the current POIS cycle only) or temporary relief?

It is permanent.  I also notice that when I have a "bad" orgasm, I feel it within 10 to 40 minutes -- the symptoms hit pretty quickly.  Likewise, a "good" orgasm alleviates symptoms within the same time frame (10 to 40 minutes). 

Also, in general, I don't seem to be continously "improving" when I wait out POIS.  I will have POIS for a certain number of days, and then the symptoms improve to the point where I am POIS free within a relatively short time period (hours..).

One thing I've noticed, that I haven't seen mentioned here, is that during POIS physical exertion appears to aggravate my symptoms.

fMRI and PET are very expensive tests, so doctors are hesitant to order them without what appears to be a very strong justification.  Unfortunately our symptoms are unknown and vague enough that most doctors would not order these tests.  I think the case to have them conducted is VERY strong, however, especially with this number of people complaining of similar symptoms and the degree to which these symptoms affect us.
 
« Last Edit: 05/06/2008 05:29:08 by Counterpoints »

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Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #628 on: 05/06/2008 16:41:23 »
I second Counterpoints' observation that the POIS period often ends relatively 'suddenly.'  I'll be feeling pretty bad throughout it, but then often I'll just be walking along and feel the symptoms draining away pretty much all of a sudden (maybe over a period of twenty minutes or so), and then I have a feeling of relief, with a bit of a lingering aftereffect--sort of similar to what it feel like when a headache or a fever 'breaks'.  It definitely seems to be a non-continuous, non-linear recovery gradient.
« Last Edit: 05/06/2008 16:45:28 by Guthrie »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #629 on: 05/06/2008 17:36:32 »

You have to have it [POIS] to really understand how debilitating it is.


Right, girlwind! And what drives me nuts, and probably most of you as well, is that DOCTORS, who should be our knights in shining armor, fail us miserably with their blank stares and "Gee, never heard that one before...next patient, please!"

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #630 on: 05/06/2008 17:42:17 »
SUGGESTION

If anyone is in contact with a University or Medical/Research facility, if you can just obtain an EMAIL ADDRESS of "Chief of Endocrinology" or somesuch, please post it here and we can get going with an email letter from Counterpoints, B_Jim and my templates! Thank you! Or just send it yourself and post the contact here so we don't overlap one another! Thanks again!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #631 on: 05/06/2008 17:49:05 »

...I think the case to have them [fMRI/PET scans]conducted is VERY strong, however, especially with this number of people complaining of similar symptoms and the degree to which these symptoms affect us.


Do you think that pointing to this forum + 30 pages is also good evidence? Maybe it would help to document our case with a complaint submitted to doctors and/or health plan?

Why, oh why, does our life have to be so complicated??Arrrggghhh! [;D]

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #632 on: 05/06/2008 18:10:44 »
Do you think that pointing to this forum + 30 pages is also good evidence? Maybe it would help to document our case with a complaint submitted to doctors and/or health plan?

I think it is OK, although it would be most effective to have a bunch of viewable files for each of us, which could be generated by an online submission form.  I'll work on it this weekend; I've been pretty busy at work this week.   I'll look into hosting (I have some friends who could host a web-page), but I am still hoping that someone here might be able to host it.



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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #633 on: 06/06/2008 00:07:11 »
Do you think that pointing to this forum + 30 pages is also good evidence? Maybe it would help to document our case with a complaint submitted to doctors and/or health plan?

I think it is OK, although it would be most effective to have a bunch of viewable files for each of us, which could be generated by an online submission form.  I'll work on it this weekend; I've been pretty busy at work this week.   I'll look into hosting (I have some friends who could host a web-page), but I am still hoping that someone here might be able to host it.




Counterpoints, I passed along your post above to TNS as well as sending in my earlier email request. Hopefully they will host.

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Offline Porke

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #634 on: 06/06/2008 06:25:52 »
Seems we havent really made much progress

I have posted here before

What does seem interesting to me is that alot of members also describe CFS. I find this interesting because ive been suffering from CFS for some time now as well. I think somehow adrenal fatigue / Chronic Fatigue Syndrome / Heavy Metals tie into this. The symptoms for all of these problems overlap in many areas, and are difficult to tell apart

Recently ive been doing some reading on adrenal fatigue and mercury (heavy metal) poisoning or overload. It seems they are linked. My question for those with POIS is this: Have any of you had dental fillings(amalgams) with mercury in them (they are usually silver / shiny)

Im just trying to see a common pattern here....

On a side note, I have had limited success with herbal/vitamin supplements. Last weekend i tried a handful of whatever I could find in the cupboard (B vitamins, Zinc, Rhodiola... etc etc etc) and although recovery was shortened to a day or two less, I felt very weird on all stuff.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #635 on: 06/06/2008 07:03:04 »
Seems we havent really made much progress

I have posted here before

What does seem interesting to me is that alot of members also describe CFS. I find this interesting because ive been suffering from CFS for some time now as well. I think somehow adrenal fatigue / Chronic Fatigue Syndrome / Heavy Metals tie into this. The symptoms for all of these problems overlap in many areas, and are difficult to tell apart

Recently ive been doing some reading on adrenal fatigue and mercury (heavy metal) poisoning or overload. It seems they are linked. My question for those with POIS is this: Have any of you had dental fillings(amalgams) with mercury in them (they are usually silver / shiny)

Im just trying to see a common pattern here....

On a side note, I have had limited success with herbal/vitamin supplements. Last weekend i tried a handful of whatever I could find in the cupboard (B vitamins, Zinc, Rhodiola... etc etc etc) and although recovery was shortened to a day or two less, I felt very weird on all stuff.

A day or two less without POIS symptoms seems like a *really* good thing..  It definitely seems worth any side effects from vitamins you might be feeling.  I am guessing that whatever you are feeling (from vitamins) is psychological: you are taking something that is, in almost all cases, good for you.  However, I have a few suggestions.  Be extra careful with Zinc and certain elements -- it can be quite dangerous to take too much of these.  The same goes for vitamins which are stored in fat (e.g. vitamins A and D).

I am confident that POIS has very little to do with mercury poisoning.  You can get a blood test for mercury if you are worried, but my guess is that nothing worrying would show up in the results.  As far as I know, the symptoms described here are not indicative of heavy-metal poisoning.  And I can't see why orgasm would aggravate heavy metal poisoning either.  (To answer your question, I have no mercury fillings).

I also don't think POIS has any connection to chronic fatigue syndrome.

« Last Edit: 06/06/2008 07:07:38 by Counterpoints »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #636 on: 06/06/2008 10:52:28 »
Porke, a couple of years ago I had all my amalgams replaced with white filling on the fear that it might be responsible. It cost me thousands and lots of physical pain as well. The anti-amalgam theories sounded plausible at the time, but now I'm doubting that mercury is the culprit, as I have had POIS symptoms since then.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #637 on: 06/06/2008 16:56:14 »
Quote
I also don't think POIS has any connection to chronic fatigue syndrome.

In my situation, CFS and POIS are CLEARLY related. I also know of several other people with CFS (all men) who have both low libido and POIS symptoms.
I don't assume that everyone who has POIS has CFS, but I have read and witnessed that CFS usually does affect both hormonal levels and libido.

As for the heavy metals, I have had several toxic metals show up at very high levels in hair analysis. After a round of oral chelation last year, the levels were
much lower, but not completely gone. I was planning on doing another round of chelation next month and will keep you posted on that.

Heavy metals have definite well documented adverse affects on neurological functioning, especially for the significant percentage of us who are genetically
deficient in the enzymes to effectively eliminate them from our systems. Lead poisoning in children is one cause of learning disabilities, and mercury removal
via chelation has helped some children recover from autism. In addition, heavy metal toxins are considered hormonal disruptors, and since we've all been
subjected to the "wonders of modern chemistry" since the 1950's (via exposure to pesticides, PCB's, dioxin, heavy metals, etc.), it shouldn't be a big surprise
that we've been seriously hormonal disrupted. The xeno-estrogenic effects of these substances have reeked havoc on our entire environment--from fish to
frogs to humans, from huge increases in breast and prostate cancer to astronomical increases in autism. It seems absolutely logical and highly likely for there
to be some correlation between the effects of heavy metal toxins and POIS, and I don't think we should dismiss that possibility.   


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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #638 on: 06/06/2008 17:16:00 »
Quote
I also don't think POIS has any connection to chronic fatigue syndrome.

In my situation, CFS and POIS are CLEARLY related. I also know of several other people with CFS (all men) who have both low libido and POIS symptoms.

Where are these people?  I don't think they are generally connected.  A majority of POIS cases do not involve CFS.

Again, I am quite confident heavy metal poisoning has little to do with POIS.  If we were to have mercury poisoning, for instance, there is no good reason the symptoms would be aggravated by orgasm, and there is also no good reason the people here would fully recover after several days.  Also, even if we  ignore both stimuli and recovery, I don't think the symptoms quite fit what have been described here.  In any case, it is quite easy to test for these things, and I would guess that a large majority of people here would not have toxic heavy metal levels.

There are a lot of things like CFS, heavy metal poisoning, diet, exercise, and so on, which affect how we feel in a way that concerns POIS symptoms, but they are not causes or cures.

In any case, I'll let the data speak for itself.  But my scientific background and intuition suggests that these things are mostly separate issues from POIS.
« Last Edit: 06/06/2008 17:29:58 by Counterpoints »

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Offline Porke

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #639 on: 06/06/2008 18:42:05 »
You cant view these issues separately. The reason why I brought up the mercury issue is because ive done tons of research where it not only ties in with adrenal fatigue, but ESPECIALLY with brain chemicals. Mercury accumulates in the brain. Here it disrupts neuro chemicals such as dopamine, seratonin etc etc. So my thought was everyone mentioning dopamine being too low or too high with POIS for several days. The connection comes with mercury then delaying these chemicals replenishing to their 'normal' levels.

Im no doctor, but the adrenal/pituitary/hormonal systems are all linked. If one is out of whack, it affects a bunch of other systems. I keep coming back to CFS and adrenal issues because the side effects of POIS very closely mirror the side effects of when im really under stress / not much sleep, and my adrenals are taking a whack.

Somehow I do think there is a link between these (maybe not even directly, but indirectly) and Mercury could very definitely tie into all of this

Someone on the board mentioned seeing a endocrinologist and ask him about all of this. I think its an excellent idea. Maybe just mention these other issues to him and see what he says. The body is a complex machine... 

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #640 on: 06/06/2008 21:43:12 »

Someone on the board mentioned seeing a endocrinologist and ask him about all of this. I think its an excellent idea.


Porke, we are in the process of recruiting an endocrinologist to read these posts and suggest low-risk trial cures to this POIS Forum. We have 3 letter templates and progress. Please refer to previous, recent posts. If you can help, that would be great.

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Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #641 on: 07/06/2008 07:27:14 »
Investigating what Porke said about mercury poisoning, concludes that the POIS is directly related to the intestines. According to what I read about bacteria and fungi that live there, their behavior can cause fatigue. The theory I have is that in the intestines after a POIS is poured a kind of natural antibiotic that acts like mercury and that attacks the normal flora present in the intestines. This effect is related to the investigation that made Jeff Clark on Chronic Fatigue Syndrome and Chronic Mercury Poisoning. That bacterial imbalance produces chronic fatigue. Reading what it is said there an exess of antibiotic kills bacteria and produces diarrhea, in short. Similar to POIS symptom in many cases but not mine, in my case the antibiotic produces quite the opposite, a bacterial imbalance that produces constipation. Wherever, in both cases fatigue arise.
Somewhere in the web page mentions that a cleansing of the bowel as a good measure. Something that I come to experience a long time and the results are consistent, it is there something in the intestines that makes appear fatigue in the brain. I think it needs to be investigated by that side. I will recomend to try farma antibiotics effects on POIS to see what happens next.

Please read this very interesting
The Chronic Candidiasis Syndrome:     http://www.cfs-recovery.org/docdarren2.html [nofollow]


http://perso.wanadoo.es/salud_armonia/articulo32.htm [nofollow]        translate
« Last Edit: 07/06/2008 08:09:37 by solution »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #642 on: 07/06/2008 07:56:22 »
Okay, I will modify my previous statement.  This seems like a very far fetched theory, and before taking antibiotics I strongly suggest you consult with a physician.  Also, as far as the other discussion goes, I am quite positive that POIS is not a result of heavy metal poisoning; I say this as someone with a very rigorous and extensive scientific background, who also knows about this subject.  I'd bet that if you were to ask any physician if mercury poisoning were likely connected to POIS the answer would be "no".  Get a test.  I make these comments not to be argumentative, but sincerely hoping for an effective investigation towards treating POIS.



« Last Edit: 07/06/2008 08:27:19 by Counterpoints »

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Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #643 on: 07/06/2008 08:13:32 »
I think you are wrong! you must read I am not saying that mercury is affected. What I am saying is there is a substance poured in the intestine that acts "like" mercury or "like" antibiotic. Investigators said that Chronic Fatigue Syndrome is because that antibiotic effect that mercury has. Please read this The Chronic Candidiasis Syndrome:     http://www.cfs-recovery.org/docdarren2.html
The bacterial unbalance is temporary, that substance poured during the orgasm slowly dissapear letting the bacterial balance recovery again.
« Last Edit: 07/06/2008 08:16:07 by solution »

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Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #644 on: 07/06/2008 08:21:33 »
Why diarreas is a common symthom?

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Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #645 on: 07/06/2008 08:26:27 »
...If you suffer from CFS, you should avoid sugar and sweet foods...Chronic Fatigue Syndrome http://www.naturaltherapypages.com.au/article/Chronic_Fatigue_Syndrome [nofollow]

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Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #646 on: 07/06/2008 08:36:07 »
...Routine blood tests usually don't reveal anything unusual...There are many factors that may contribute to Candida proliferation in the intestines. The primary contributing factor is the use of oral antibiotics ...intestinal Candida proliferation is becoming an ever increasing problem. (Have you ever wondered why so many people recently seem to be suffering from Chronic Fatigue Syndrome and Irritable Bowel Syndrome?) The treatment of teenage acne with such drugs as tetracycline has been implicated as one of the most important factors in the Chronic ...Candidiasis Syndrome



The Chronic Candidiasis Syndrome:     http://www.cfs-recovery.org/docdarren2.html
« Last Edit: 07/06/2008 08:40:22 by solution »

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Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #647 on: 07/06/2008 08:42:19 »
I think is because intestinal Candida proliferation when an orgasm occurs

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Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #648 on: 07/06/2008 08:46:09 »
Candida has also been suggested to play a part in creating what is called a "leaky gut," an unfavorable increase in intestinal permeability. Undigested macromolecule food particles and toxins are allowed to pass directly into the body creating a host of problems. This creates havoc with the immune system when these particles trigger an immune response sensitizing the individual to normally harmless molecules

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Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #649 on: 07/06/2008 08:50:06 »
Symptoms of The Chronic Candidiasis Syndrome
Fatigue or lethargy
Feeling of being drained
Depression or manic depression
Numbness, burning, or tingling
Headaches
Muscle Aches
Muscle weakness or paralysis
Pain and/or swelling in joints
Abdominal Pain
Constipation and/or diarrhea
Bloating, belching or intestinal gas
Women - Troublesome vaginal burning, itching or discharge
Prostatitis
Impotence
Loss of sexual desire or feeling
Endometriosis or infertility
Cramps and/or other menstrual irregularities
Premenstrual tension
Attacks of anxiety or crying
Cold hands or feet, low body temperature
Hypothroidism
Shaking or irritable when hungry
Cystitis or interstitial cystitis
Other
Drowsiness
Ittitability
Incoordination
Frequent mood swings
Insomnia
Dizziness/loss of balance
Pressure above ears...feeling of head swelling
Sinus problems...tenderness of cheekbones or forehead
Tendency to bruise easy
Eczema, itching eyes
Psoriasis
Chronic hives (urticaria)
Indigestion or heartburn
Sensitivity to milk, wheat, corn or other common foods
Mucous in stools
Rectal itching
Dry mouth or throat
Mouth rashes including :white" tongue
Bad breath
Foot, hair, or body odor not relieved by washing
Nasal congestion or post nasal drip
Nasal itching
Sore throat
Laryngitis, loss of voice
Cough or recurrent bronchitis
Pain or tightness in chest
Wheezing or shortness of breath
Urinary frequency or urgency
Burning on urination
Spots in front of eyes or erratic vision
Burning or tearing eyes
Recurrent infections or fluid in ears
Ear pain or deafness

--------------------------------------------------------------------------------
More
Inability to concentrate
Skin problems (hives, athlete's foot, fungous infection of the nails, jock itch, psoriasis (including of the scalp) or other chronic skin rashes)
Gastrointestinal symptoms (constipation, abdominal pain, diarrhea, gas, or bloating)
Symptoms involving your reproductive organs
Muscular and nervous system symptoms (including aching or swelling in your muscles and joints, numbness, burning or tingling, muscle weakness or paralysis)
Recurrent ear problems resulting in antibiotic therapy
Respiratory symptoms
Lupus
Hyperactivity/Attention Deficit Disorder
Recurrent yeast infections in women