Post Orgasmic Illness Syndrome (POIS)

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Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6300 on: 05/12/2009 15:57:42 »
I have always said the NHS is great if you fall out of a tree or something but inept when it comes to dealing with chronic issues.

But to answer the question fully; i'd rather have an alexander session in the emergency room than take a batch of drugs for being ill (of course unlikely). this would give me more easier breathing, more bloodflow to the head, more natural movement to my neck, waking of my senses and sineses etc. etc

last year if had a migraine, i got it instantly sorted via an alexander lesson, as drugs never seemed to work at all. drugs never get to the true cause, at best they only temporarily dampen the symptoms, for me dont seem to even do that.

Contrary to popular belief, people dont get randomly ill anyway, it takes years and years of bad use, which they havent properly dealt with because they are probably unaware of it, most likely unaware how to.

« Last Edit: 05/12/2009 19:52:54 by daveyboy »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6301 on: 05/12/2009 16:05:16 »

Chronic issues like cancer? Kidding aside, I do agree that there is vast ineptness on many issues. But I'm not so sure that the alternative world can reliably point to huge, replicatable successes either.
« Last Edit: 05/12/2009 16:08:28 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6302 on: 05/12/2009 16:09:38 »


@DemoGrafx - do you realise that testosterone also boosts dopamine in the brain. Something I have read on a few occasions. Just throwing it out there as a possible 2ndary effect.


Very interesting. If you run across a reference again, please post a link!
« Last Edit: 06/12/2009 22:27:48 by demografx »

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Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6303 on: 05/12/2009 17:35:40 »
Daveyboy,
[I didn't know that it had a name, Paruresis.

Hey!,
since we're listing embarrassing problems we've all got/had, here's an interesting one.
for all the years ive had pois, since teenager, i've also had something known as 'ppp's - perily penile papules'. They are little white spots on the head on the penis, under the foreskin, on the sort of back edge (feel free to google it!). luckily they have never been that bad but still something that lingers on the mind. To my surprise, i know now, they are linked with the pois because they have dramatically reduced in recent months during my recovery period, virtually unnoticable now.
Just curious!

Another thing also, my penis, although totally straight once totally erect and never crooked, when in the process of getting arused or going back down, in the past would 'want' to lean, sometimes quite forceably, towards one side- towards the tight/operation side of my body- this too is correcting itself (believe it or not)! It doesnt do this anymore, now I have finally released the muscles/nerves on the tight side of body causing the pois, it has straightened things there too!
« Last Edit: 05/12/2009 17:41:35 by daveyboy »

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Offline EDS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6304 on: 05/12/2009 18:41:14 »

EDS, with your new POIS treatment, do you find that some episodes are inexplicably...not so good?

This one right now is that way for me. And it's inexplicable because I thought if I did this...did that...well, this time, I thought I allowed enough time to lapse between episodes. But it's now Day 2 and it's lingering. Most of the time, it's 90% - 95% POIS-free, but now and then....

Mood-and-events might be an explanation. I might have to go back to the ol' diary.

Strange!

During my relatively short time of using T patches, I have noticed one episode that was worse than others. I didn't know what to think of it, though, because of my lack of experience. Makes you wonder if we still need an additional treatment of some sort.

I am still thankful for this partial remedy!

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Offline greg44

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6305 on: 05/12/2009 21:21:12 »
neurologist I saw said I have stiff person syndrome. He said my GABA levels are low in my brain because immune system attacks them. GABA supposed to inhibit muscles and allow rest but if it is very low then muscles will be unable to rest in a constant state of activation that results in severe tightness, muscle knots, muscle spasms.

After I orgasm it releases a ton of tension that built up in all my muscles. However, I start to experience a huge spike in the amount of muscle spasms, random shocks, random pains. My brain seems to go out of control trying to tighten the muscles back up. Same thing happens if I try to stretch any the tight muscles. Symptoms are at their best when I just leave the muscles be and let them be super tight.

He recommends that I take high dose of valium(Diazepam) to enhance GABA.
« Last Edit: 05/12/2009 21:24:29 by greg44 »

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6306 on: 06/12/2009 00:18:58 »
I am looking into boosting dopamine again. The whole, low dopamine, high prolactin makes sense to me. I am going to try some Mucuna first, but I dont have any faith in the herbal/natural products. I am checking out parkinson related meds - which specifically boost dopamine. Not for long term use, but only the day after maybe. Something like Deprenyl, or Sinemet.
[/quote]

Porke
I think the path you are going down is well worth trying. I have made a post in the past regarding Kaunch. This is the Ayurveda (indian medicine) name for Mucuna. I have mixed feelings regarding this herb. I took it a number of years back for precisely the same reason you are going to try it and I had mixed results. I did not think it did much for the first few months I took it, but then I had a good spell of health during winter (I always feel better in winter for my chronic fatigue syndrome) and I noticed my POIS symptoms were better than normal + I had stronger erections, stronger orgasms, more horny, was more motivated, did better in the gym, and was more positive mentally. It seemed to wear off after a while but I also ran out of Kaunch around the same time. The supplier I used was not selling it anymore. I found another local source and took it again the following year but was disappointed. I then ordered some more a year later direct from India and tried it at varying doses but again was disappointed. If you read about its supposed benefits in Ayurvedic medicine it sounds like a very promising herb for us to try, so it was such a shame I did not get consistent results. Earlier this year I read a Parkinsons forum that discussed Mucuna where a number of people critisised it for its variable quality. Nearly all supplies come from India, where there is no standardization in terms of quality. The herb is sourced from many different farmers in different regions at different times of the year and who knows how long it sits on the shelf or in bags. Just be mindful of this. Can you please post your results, even if they disappoint. Deprenyl could be worth trying as well. I took the smart drug Hydergine (for blood flow not dopamine) and I found it did help with cognition but nothing to get really excited about. Good Luck.

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6307 on: 06/12/2009 00:24:42 »
Greg44
I don't really experience stiff muscles to the degree you described. I do however get tender (to touch) muscles. If you are not crazy about taking valium, especially at high dose, you might want to suggest muscle relaxants to your doc. A drug like Baclofen I believe helps with GABA and would not make you so drowsey like valium. Just a thought.

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Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6308 on: 06/12/2009 00:54:32 »
Greg44 - I totally relate to your description of your muscles.

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Offline RhythmSpring

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6309 on: 06/12/2009 01:10:25 »
Once again, has anyone tried cabergoline? It's made for people with hyperprolactinemia. It reduces prolactin and increases dopamine. Seriously, it sounds worth a try.

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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6310 on: 06/12/2009 09:05:57 »

Z_one, if you want to see more testing data from my pre-and-post-POIS-treatment results, just let me know. I got lazy on my last post, but I now have more energy since this is Day 2 [;D]

Demo,
 
Heard you loud and clear.....by the way having trouble on more than one occasion sending more than two PMs or more....I'll try again for what concerns inquiries and replies....Meanwhile your tests results are more than enough for me as posted.....

Many thx. 

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Offline sweden

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6311 on: 06/12/2009 22:17:27 »
Hi,
(I'm no native English writer, there might be some spelling/gramtic errors below)

This is my first post and I found this thread when searching for anything that could explain the symptoms I have.
The description of POIS is not a 100% match of my symptoms, but the closest I have found.
I have had problems with chronic headache and tiredness for 10+ years and have tried countless of drugs and talk to several doctors, physicans, sexual advisers, etc. and done every test/examination they could think of. No one has been able to find what's wrong with me or find any relief from my symptoms.

The thing that has confused me (and the doctors I have talked to most) is that my symptoms get's A LOT worse by having orgasms. It takes about 14-18 hours after orgasms before I get quite bad headache, problems concentrating, tiredness, and basically just want to sleep. This (worse) condition usually last for up to 8 hours, but the chronic headache is quite permanent. This is so problematic for me that it's hard to work and I really try to minimize orgasms.
Having sugar makes my headache/tiredness worse and this (worse state) last for a couple of hours.
Mornings are also problematic with increased headache (and extreme tiredness/sleepiness).

Is it possible that someone with POIS actually get a lot worse not directly after orgasm, but after 12+ hours?

ANY help/input on my condition would be of HUGE value for me. My condition is pretty much destroying my life.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6312 on: 06/12/2009 22:30:31 »

EDS, with your new POIS treatment, do you find that some episodes are inexplicably...not so good?

This one right now is that way for me. And it's inexplicable because I thought if I did this...did that...well, this time, I thought I allowed enough time to lapse between episodes. But it's now Day 2 and it's lingering. Most of the time, it's 90% - 95% POIS-free, but now and then....

Mood-and-events might be an explanation. I might have to go back to the ol' diary.

Strange!

During my relatively short time of using T patches, I have noticed one episode that was worse than others. I didn't know what to think of it, though, because of my lack of experience. Makes you wonder if we still need an additional treatment of some sort.

I am still thankful for this partial remedy!

Me, too!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6313 on: 06/12/2009 22:48:20 »

Once again, has anyone tried cabergoline? It's made for people with hyperprolactinemia. It reduces prolactin and increases dopamine. Seriously, it sounds worth a try.


RhythmSpring, someone here on the forum is about to try it for POIS (told me via confidential Private Message).

I wrote to a friend who is a pharmacologist/attorney for a major State health agency. Here's what he said about cabergoline:

" [Demo], the drug has a side effect of increased libido and hypersexuality [see below]. But it also has some potentially dangerous cardiac and pulmonary [side effects] as well. Here's info from the FDA:

'Physicians should use the lowest effective dose of Cabergoline for the treatment of hyperprolactinemia

[Hyperprolactinemia is the most common endocrine disorder of the hypothalamic-pituitary axis]

and should periodically reassess the need for continuing therapy with Cabergoline. In addition, patients receiving long term treatment with Cabergoline should undergo periodic reassessment of their cardiac status, and echocardiography should be considered. Any patient who develops signs or symptoms of cardiac disease, including dyspnea, edema, congestive heart failure, or a new cardiac murmur, while being treated with Cabergoline should be evaluated for possible valvulopathy

As with other ergot derivatives, pleural effusion or pulmonary fibrosis have been reported following long-term administration of Cabergoline.

Some reports were in patients previously treated with ergotinic dopamine agonists. Cabergoline should not be used in patients
with a history of, or current signs and or clinical symptoms of, respiratory or cardiac disorders linked to fibrotic tissue.

Pathological gambling, increased libido, and hypersexuality have been reported in patients treated with dopamine agonists including Cabergoline. This has been generally reversible upon reduction of the dose or treatment discontinuation.' "

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6314 on: 06/12/2009 22:59:34 »

Is it possible that someone with POIS actually get a lot worse not directly after orgasm, but after 12+ hours?


Yes, sweden, this is a VERY common pattern with POIS.

sweden, welcome to the POIS thread of The Naked Science Forum.




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus nearly 500,000 page visits. Not bad for a rare malady!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6315 on: 06/12/2009 23:02:12 »
sweden, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: almost 3 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6316 on: 06/12/2009 23:07:51 »

having trouble on more than one occasion sending more than two PMs or more....I'll try again for what concerns inquiries and replies.


Z_one, thanks for reporting that. Please let me know if it continues, we've been having some tech difficulties. That way I can report it to tech admin. Thanks!

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6317 on: 07/12/2009 04:19:30 »
I've been sick the past few days and i find it really weird that I no longer wake up with brain fog and derealization, which usually fades later in the day.  I've been excreting tons of yellow mucus indicating an infection of some kind.  Can this all be some sort of infection or sinus inflammation causing weird mental symptoms?  I don't know but I have been feeling 100% the past few days besides the coughing and stuffy nose.

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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6318 on: 07/12/2009 11:52:34 »
Dear fellow members,

This is to report that Iam thx God 100% cured.



Iam currently down from 14 days to 1.....using Rhodiola, Damiana and Sasparilla & Nigella sativa (SEPARATELY)

Main properties of the herbs are the anti-depressant effects of both Rhodiola & Damiana (Increase in Dopamine & Serotinin thx to MAOI properties as well as general tonics)

Natural corticosteroid benefits of Sasparilla....while Nigella sativa boosts both the endo & immuno systems....


Plz read carefully side effects of the herbs & contradictions if u wanna try... special precautions & warnings with regard to using MAOIs

Though everyone is different.....Wishing success to all....


Special thx to Demografx that has really contributed alot & initiators of this forum that really assisted me alot in pinpointing down a cure for myself....Will surely remain an active member as a mean to deepen my knowledge and assist other sufferers...


After years and years of agony and misery....today is hopefully a new dawn for me....a fresh breath...a new life....


P:S Will certainly report the consistency of my formula as well as post any additional helpful info.... 

....though now is time for me to get back to the gym... [;)] [8D]



Kind regards.



« Last Edit: 07/12/2009 11:58:39 by Z_one »

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Offline sweden

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6319 on: 08/12/2009 00:31:33 »
Thanks a lot for feedback!!!  [:)]  [:)]
 I have just ordered a package of Relora and will try this since this seems to be what has helped most people. Unfortunally I have not yet found a place in Sweden that sells fenugreek, but I will continue to look.
I'm very sure that I will get back with updates and questions. Right now I have a lot of information to digest and in my personal life I have a new girlfriend that make life in general great, but my condition a lot worse  [:(]

Best Regards from Sweden.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6320 on: 08/12/2009 01:11:09 »
congratulation z one on your success.   
I have question about your regime.

what do  you mean by you used the products separately. Also what brand did you use and how much you used in a day.

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Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6321 on: 08/12/2009 19:18:49 »
thats great z one,
Although Im always trying and taking Holland and Barratts-type natural herbs, they never have any effect on me. Now i guess you'll be hoping that you experience 0 days of pois instead of 1, that i might bring/require a large physical/muscular and psychological change.
good luck

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6322 on: 08/12/2009 19:42:38 »
I was just wondering what you guys know of symbrax, psychiatrist told me to try that. I am only going to try just to prove it dont work. HOpefully it reduces nocturnal emission.

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Offline Pantaloon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6323 on: 08/12/2009 20:09:48 »
I've been mulling over a theory for what I think might cause pois and a suggestion for a possible solution (see next post)

I suggest that the symptoms that people experience with pois are caused by an imbalance between the sympathetic and para-sympathetic parts of the autonomic nervous system - see http://en.wikipedia.org/wiki/Autonomic_nervous_system.

The sympathetic nervous system is the 'fight or flight' response.
Among its many effects:-
 - stimulates orgasm.
 - directs blood away from the gastro-intestinal tract and skin
 - increases blood flow to lungs and muscles
 - causes pupils to dilate
 - stimulates sweat glands


The parasympathetic nervous system on the other hand is the 'rest and digest' response.
Among its effects are:-
 - it is involved in erection (but not orgasm!!)
 - transfers energy resources to the gut for digestion
 - diminishes the need for oxygen
 - mediates digestion of food and indirectly, the absorption of nutrients.

Normally, the two sides work against each other harmoniously.
I think that pois may be explained by the parasympathetic nervous system not kicking in as it should.

Here's some symptoms/ other things related to pois (either that I suffer or I've read about here)
 that I think may be attributed to this:-

- PE
- tiredness - fight or flight mode for too long.
- lack of emotion - clearly an unnecessary luxury in this state. 
- Fuzzy brain - blood directed to muscles
- bodily warmth - blood directed to muscles
- Dry eyes (constantly dilated for period of time)
- Poor digestion (including desiring easily digestible carbohydrates) following orgasm.
- Skin symptoms - blood directed away from skin.
- Generalized anxiety - not good to be in the fligh or flight mode for long.
- inability to 'come down' after exercise
- blood sugar imbalances

On a personal experience not, this description of what might me going on makes a lot of sense - I just can't get out of the heightened state and back to a normal relaxed state following orgasm.

Well, that's a broad outline of the theory. Any comments?

One more thing, slightly tongue in cheek. For a scientific theory to be valid, it must have predictive power. One of the bodily functions that is triggered by the sympathetic nervous system is secretion from the sebaceous glands. So, I'd guess that maybe pois sufferers tend to have slightly oily noses/a propensity to blocked pores. Any takers? [:)]

 


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Offline Pantaloon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6324 on: 08/12/2009 20:31:56 »
The potential solution hinted at in my previous post is Autogenic Training - see http://en.wikipedia.org/wiki/Autogenic_training.
Autogenic Training (AT) is a way of teaching yourself to control parts of your autonomic nervous system.

The idea being that by performing the exercises you restore a balance between the sympathetic and parasympathetic parts of the autonomic nervous system.

The good news is that's it's potentially free (maybe the cost of a book or possibly even a training course).
The better news is it does't involve drugs.
The bad news is it takes quite a lot of time and even more discipline to learn the technique.

A quick look around the internet suggests that it's offered by a number of dubious sources as a kind of guided meditation/hypnotherapy/new age short cut - 'just listen to the tape and the world is yours' kind of thing.

However, I think this is not the road to go down.
If done properly, it's a serious theraputic tool a lot of sound research behind it.

Right now, I'm feeling quite motivated about this so I'm gonna give it a go.
Obviously I'll report back to the forum.

I'd be really interested in hearing from anybody else on the forum that
might have tried AT either for POIS or any other problems.

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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6325 on: 08/12/2009 20:40:37 »
congratulation z one on your success.   
I have question about your regime.

what do  you mean by you used the products separately. Also what brand did you use and how much you used in a day.

Thank you CConfusion.

To answer your question :

What i mean by separately is : Do not take them together!
 
As to my diet I take :

2 pills of Rhodiola first thing in the morning on empty stomach , 2hrs before breakfast (DO NOT TAKE IT WITH FOOD!)

2 pills of Sasparilla afternoon 2 hours after lunch.

2 pills pf Damiana 3 hrs before sleeping (WITHOUT FOOD!)

One large spoon of black cumin oil prior to each meal.

Brandnames : ALL GNC!

Black cumin oil (Nigella sativa) can be bought from middle eastern grocery stores or through the internet....  

P:S Now it is possible that one herb out of the four might be doing the whole job by itself... But more trial and error is needed to confirm.... Since combination & synergy is the most logical response so far.....again combining MAIOs with certain types of food that contain Tyramine might be dangerous and even fatal! So plz be careful if want to try!

Hope this helps...
« Last Edit: 08/12/2009 20:46:38 by Z_one »

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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6326 on: 08/12/2009 21:00:01 »
I was just wondering what you guys know of symbrax, psychiatrist told me to try that. I am only going to try just to prove it dont work. HOpefully it reduces nocturnal emission.


Just a thought....

Nocturnal emissions are suppose to be a natural way for your body to get rid of extra accumulated semen and if kept for too long will harm your body through constant arousal and therefore floating sexual hormones ....Actually I never use to be in POIS after nocturnal but well on the contrary used to feel like a horse the next day.....Only masturbation used to cause me POIS.,,,,Being in POIS after a nocturnal emission is far from normal....and that's purely my opinion of course....

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6327 on: 08/12/2009 21:58:36 »
Z_one,

How long did you follow this plan before you noticed results?  How long have you experiemented with these supplements?

Thanks in advance.

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Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6328 on: 08/12/2009 22:12:08 »
The potential solution hinted at in my previous post is Autogenic Training - see http://en.wikipedia.org/wiki/Autogenic_training.
Autogenic Training (AT) is a way of teaching yourself to control parts of your autonomic nervous system.

I'd be really interested in hearing from anybody else on the forum that
might have tried AT either for POIS or any other problems.


I have recently been talking about the brilliant Alexander Technique which I abbrievated to A.T which might get confusing for people if another AT comes into discussion (although you may have been first to it! heehee).

Ironically, Alexander Technique is a technique which gets you conscious control of your nervous system, full muscular release. I personally couldnt imagine a better technique to do that than Alexander but i everyone's got their own views and things they prefer.
I say always keep interested in that avenue. (read my all 10 posts starting on page 265 to see if you relate to what i say about my experiences?)

POIS is caused by 'inhibition'(/or lack of control over 'inhibition') during an orgasm.
But yes, 'flight' instead of 'fight' is absolutely crucial.

Sigmund Freud's protege Wilhelm Reich wrote about inhibition in
'The Function of The Orgasm' and it is the key feature of the Alexander Technique.
If you're interested in finding out what inhibition means and how to control it, alexander technique is for you, takes time though, try different teachers.
 
An expert in Alexander Technique doesnt suffer from POIS,
because the two cant co-exist.

« Last Edit: 09/12/2009 03:56:14 by daveyboy »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6329 on: 09/12/2009 03:59:29 »
Thanks to the newcomers for their wonderful posts , orgasm without ejaculation, sperm reabsorption is an interesting fact , Alexander Technique, Nigella oil, new case cured with T.

Also I can confirm magnesium was very helpful for POIS and for PE when I was younger, but now I really don't feel ok after I take it (renal pb, low phosphorus, low B6, ... I can't explain why.) . The reason why it could be effective is eventually because it's necessary for the conversion of dopamine to noradrenaline (sympathetic nervous system).

If I speak for myself aphrodisiacs (I'm referring to damiana and sarsaparilla, I tried them a long time ago) are a temporary cure, eventually aggravating POIS after a while. I would like to be informed if the cure is permanent so I can try again more intensively and with other brand.

B_Jim it's the same for me, sport before orgasm aggravates POIS. Low T or low endorphins after exercise, or both.. (?)
« Last Edit: 10/12/2009 00:05:58 by martin88 »

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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6330 on: 09/12/2009 11:26:38 »
it has occurred to me that any correspondence i have sent out to local health organizations concerning POIS have probably been ignored due to the fact im sending them from a HOTMAIL or GMAIL account. is there any legitimate way to get a .EDU email address without having to pay for it?

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6331 on: 10/12/2009 03:11:11 »
it has occurred to me that any correspondence i have sent out to local health organizations concerning POIS have probably been ignored due to the fact im sending them from a HOTMAIL or GMAIL account. is there any legitimate way to get a .EDU email address without having to pay for it?

You can try going through someone you know that is in college.  I will suggest my self but i am taking a break for right now.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6332 on: 10/12/2009 03:12:46 »
I was just wondering what you guys know of symbrax, psychiatrist told me to try that. I am only going to try just to prove it dont work. HOpefully it reduces nocturnal emission.


i have nothing against nocturnal emissions but it always occurs about a day right after i recover, so basically am always in pois, and am just getting sick of that.

Just a thought....

Nocturnal emissions are suppose to be a natural way for your body to get rid of extra accumulated semen and if kept for too long will harm your body through constant arousal and therefore floating sexual hormones ....Actually I never use to be in POIS after nocturnal but well on the contrary used to feel like a horse the next day.....Only masturbation used to cause me POIS.,,,,Being in POIS after a nocturnal emission is far from normal....and that's purely my opinion of course....


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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6333 on: 10/12/2009 03:13:32 »
on using vitamins and stuff you guys ever consider wholefood forms of multavitamins it supposed to be better for body since it is form it is used to.

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6334 on: 10/12/2009 05:35:44 »
One more thing, slightly tongue in cheek. For a scientific theory to be valid, it must have predictive power. One of the bodily functions that is triggered by the sympathetic nervous system is secretion from the sebaceous glands. So, I'd guess that maybe pois sufferers tend to have slightly oily noses/a propensity to blocked pores. Any takers? [:)]

Well interesting, I have always had zits (I am 44 now! with acne) my nose is crazy oily..... I am always congested, and my mouth is dry and I am not thirsty.......

PS.
 


« Last Edit: 10/12/2009 05:38:18 by POIS-SUFFERER »

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6335 on: 10/12/2009 06:28:50 »
No to sidetrack. But what do you guys think of checking up on some of the people who are no moe posting inorder to make sure no body has gotten stressed to the limit  by this problem

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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6336 on: 10/12/2009 09:40:35 »
okay Defsync coming at you with another theory:

First Im basing this off of my experiences with Adderall and cigarettes, both which increase Norepinephrine in the brain. Both of these seem to give me an undesirable pseudo-POIS effect, hence why I dont do either.

So, orgasm increases blood plasma levels of norepinephrine (see link to article). What if POIS sufferers are those you already have WAY too much norepinephrine in them already, and something like an orgasm sends their body into severe overload, taking the body days to bring the levels back DOWN.

http://www.psychosomaticmedicine.org/cgi/content/full/61/3/290

Problem is finding a prescription that does nothing but lower epinephrine levels without zonking you out.


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Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6337 on: 10/12/2009 12:59:46 »
Z_one,

How long did you follow this plan before you noticed results?  How long have you experiemented with these supplements?

Thanks in advance.

Tried it twice so far.....since it is still at its infant stage...more trial and error is definitely needed....

Thx.

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Offline JJGuy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6338 on: 10/12/2009 18:12:57 »
Hi i am new here , just found this forum yesterday and glad to read up on alot of your findings and trials with finding what has help some of you with POIS

this is my story,

I have never had an issue close to this, I am a personal fitness trainer and body builder, i have been very sexually active in my life, i could have sex 3 to 4 times a day without issues, just the usual tired and relaxed feeling but fresh the next day

at the age of 38 i became to feel ill with something that i could not figure out, and searched for a diagnose for 2 years, my sex life was still decent a bit less active and tired feeling after orgasm but nothing i couldnt handle, so at 40 i was diagnosed with "Lyme Disease", where i got it from was unknown, well Lyme is usually caught from a bite of an infected tick, mostly deer ticks, i began to treat with antibiotics, at 41 still treating Lyme i developed POIS , I would get increased symptoms of Lyme , Lyme symptoms are similar to CFS ones, so I was already fatigued from having Lyme but after an orgasm it would incraese symptoms dramatically at times, from increased headaches, sore glands in my throat, vision promblems, memory, brain fog, fatigue,muscle and joint aches,etc. but i still went on with my day that help make my symptoms a bit more tolerable, 2nd day seemed to be worse but with having Lyme and POIS i still went to work and carried out the whole day , if I just slept in it would make me more depressed and my symptoms would worsen, this went on anywhere from 2 days of recovery time to 3 weeks it varied for me, what has helped me a bit in the past is testoserone, I cant get precsiption for it at the moment but would definetly go back on it, it increased my strength,moods, and a sense of well being and helped out with POIS, but was not a cure, so sufferring from an Autoimmune disease seemed to trigger this for me and might have something to do with POIS

I spoke with my LLMD ( Lyme Literate Medical Doctor) yesterday, as she is aware of my issue POIS and has been searching for an answer and solution for me in this matter for about 1 yr now,she wrote to me about a new found discovery that could be helpful to us, I am not able to post this new findings as yet, as it is confidential information , a paper is being published soon and i will be able to share it with all of you,new discovery has been isolated from tissues of prostate cancer patients with impaired RNase L activity  and that is found in many of CFS patients, so if it is a postive discovery or not is yet to be seen and tested, tests are still not good that are producing alot false negatives she stated

i have a question in regards to testoserone that my doctor asked me to post to all of you that could be of help on some information on this matter below and get back to her on it
-What happens to testosterone levels before, during and after ejaculation?

Thanks John

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Offline Pantaloon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6339 on: 10/12/2009 20:19:45 »
One more thing, slightly tongue in cheek. For a scientific theory to be valid, it must have predictive power. One of the bodily functions that is triggered by the sympathetic nervous system is secretion from the sebaceous glands. So, I'd guess that maybe pois sufferers tend to have slightly oily noses/a propensity to blocked pores. Any takers? [:)]

Well interesting, I have always had zits (I am 44 now! with acne) my nose is crazy oily..... I am always congested, and my mouth is dry and I am not thirsty.......

PS.
 




Hi PS

A dry mouth is definitely a sympathetic (fight or flight) symptom. Who needs saliva when being chased by a lion?
I guess the interesting question is whether the nose gets worse in POIS?
I have a similar symptom and I'd say it probably does, but then I'm looking for evidence to back up my theory:-)

Anyway, why not give the Autogenic Training a try? It's not a controlled trial if there's just one person!

I've been doing it for about a week now and feel great. Whilst I'm wise enough to know this may be largely, possibly even wholly the placebo effect, I'm still hopeful.  I'm also steering clear of orgasm at the moment so as not to hamper the training and this clearly has an effect.

Regards

Pantaloon

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6340 on: 10/12/2009 21:22:22 »

Interesting post, john . Do you know how long it will take before paper published.

Closest i have to your question. 
During two day high- am basically recovering by being super hyper. 
My tesosterone was aroung 613ng/dl
three days after after orgasm it is 292 ng/dl

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6341 on: 10/12/2009 21:29:06 »
going with jjguy's post.  It seems the Rnase l activity is activated during virus infection.  And jjguy's symptoms were activated after getting lyme. It made me think, when i was younger i had measles, which i just found out is a virus infection, could this activated this  enzyme. Just wondering what other dieaseases we have contacted in this forum.

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Offline JJGuy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6342 on: 10/12/2009 23:33:46 »
CCconfucius i dont have a date on this letter but as per my doctor there is some research going on right now and a paper will be published soon and she will send me the a copy as soon as its relaesed and i will post it, hopefully its sooner then later, there is more info to add on this new discovery that she told me a bit more about what the name of the findings were, but im not able to fully share all info as yet before its relaesed and it becomes avaliable to the public

i have been a super healthy person before lyme and never had any family history of serious genetic illness's that would trigger POIS, and POIS followed during my lyme episode, in the beginning stages of my lyme it wasnt a real bother, after 1 yr into my treatment i have developed POIS, im hoping when i rid myself of lyme this will go aswell, but i know that lyme was definetly a contributor for me in developing POIS , and yes it makes me also wonder if its triggered by a viral infection

CCconfucius when did you notice POIS started for you, was it during or after your bout with the measles? can you pinpoint a time when it started for you?

thanks for your reply inregards to the testoserone question,i will share that with my dr, she is very helpful,knowledgeable,and responds usually the same day, the more info we share especially with the medical field makes for more findings on what triggers POIS, so we can better treat ourselfs

the saying goes if we dont know what we are treating its like a wild goose chase of trial and error's, if we can established what triggers POIS or causes it then we have a target we can attack, hopefully these new findings can shed some new light on this matter
« Last Edit: 10/12/2009 23:36:04 by JJGuy »

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Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6343 on: 11/12/2009 03:59:02 »
Hi All,

Demografx has given me permission to let you all know that he will be away for a little while.

He is actually having a quadruple bypass tomorrow and I am sure that with me, we all send him our fondest wishes and look forward to his speedy return.

Get well soon demo !


Men are the same as women, just inside out !

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6344 on: 11/12/2009 05:11:14 »
Good luck Demo.  I will pray for you.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6345 on: 11/12/2009 10:36:08 »
We will miss you while you are away Demo, good luck getting the ticker tuned. 

I don't have any knowledge of being bitten by a tick but I was raised in a rural area and spent plenty time in the woods, I suppose Lyme is possible.

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Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6346 on: 11/12/2009 16:34:25 »
I'll update you all as soon I hear anything about Demo.
Men are the same as women, just inside out !

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Offline JJGuy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6347 on: 11/12/2009 17:10:44 »
Thank you B_Jim

Also best wishes goes out to Demo as I did read many of his posts from the beginning of this group

I can say yes that Lyme did cause POIS with me, wondering if it is caused by a viral infection that triggers POIS, i do see there are a few on here that have ossociated Lyme with POIS,HMMMM!

Lyme D is very wide spread and it does mimmic alot of diffrent conditions , such as MS, Fibro,CFS, Depression, i know of many that have recieved diagnoses of MS later found out to have Lyme not MS, also CFS, LYME again, with me aswell i recieved the diagnose of  CFS,Depression, it turned out to be Lyme, Lyme is an epedemic in north america and around the world its the fastest growing disease and the largest more then aids and cancer, it is the most political aswell because of its long and very expensive antibiotic treatments some LYME suffers have been 10 yrs in treatments, so insurance companies are also involved in the political part of LYME and not being recognized as an epedemic, I am canadian and in Canada we have alot of Lyme cases that we know about more that we dont , but in the USA you guys are full of Lyme infected Ticks, whole familes have fallen ill to Lyme, many of whom are in my chat group, also they are now saying that Misquitos can also infect us with Lyme, sexual contact aswell,it is still being studied, and when you get bite by a tick you can get you to 4  strains bacterias infecting you at once so we treat all 4 together , its pretty messed up stuff when u go into it

B_Jim you have mentioned you have been bitten 10 times and John states he hads no knowledge of being bite, well I have Lyme and i dont recall a time that i have been bite over 50% of suffurers never recall a time of being bitten, so B_Jim you can recall on 10 occassions that you have been bitten,  but there might have been many more, dont want to freak anybody out but this is the truth,the size of this period .  is about the actual size of most adult ticks,very hard to spot
B_Jim do you ever recall a rash after being bitten? or feeling ill days later?have you any daily symptoms other then after orgasms? Lyme can go doormant for 2-5- 10- 20 or more yrs and come out in a trauma situation such as operation, car accident, bad flu, depression,etc, mine came out after a bad bout of food poisioning on vacation

there are good tests for it and only at 1 or 2 reputable labs in america , other ones will not detect lyme or your routine labs, I tested Negative in Canada and positive at Igenex the most reputal lab in the world for Tick bourne illness


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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6348 on: 11/12/2009 21:38:05 »
Demo, I wish you a prompt recovery. I'm looking forward to see you back. 
Thanks a lot Neilep for your updates.

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Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6349 on: 12/12/2009 00:37:55 »
Hi All,

Demo is now out of surgery and is doing really well !

Thanks for all your kind wishes

It'll probably be a while before we hear from him directly but I thought I'd let you all know that he seems to have done really well.

Best Wishes

Neil
Men are the same as women, just inside out !