[rosalind dna (OP)]

I cannot see the point in investing in a dehumidifier when I can easily open my windows and in fact it's healthier to have fresh air circulating through our homes than the electronic version of it. BTW I have my windows open NOW.

BTW it is safer when I have a seizure than to have a machine going that I might fall on then get hurt. last one was very very recently.

Also I have 2 cats and they would sniff at anything new so get hurt whereas they've grown up with windows and vets bills are pricey.


Also I happen to know my epilepsy seizures better than anyone as it is me they happen too. So I reckon that I know the reasons for them and as I have said before over-doing things, too much stress, being over-tired even not eating properly. But humidity is just part of life and I have grown up in London so I know all about the concrete, pavements, buildings and accept it as part of my life from day    1.



What is wrong with open windows and fresh air???

[neilep]

Thank you for this ongoing thread Rosalind.....

Have you ever had a seizure when showering...?...or even worse....... when in the bath ?....could you drown ?

[rosalind dna (OP)]

Thank you for this ongoing thread Rosalind.....

Have you ever had a seizure when showering...?...or even worse....... when in the bath ?....could you drown ?

Neil Thanks for your good questions and I do not have a shower but
once I nearly had one in the bath only I was quick enough to pull the plug. grab the towel etc.

Now that was scarey and when I think that something is up then I do not risk having a bath.

Yes I could drown as I would be unconscious and in fact it is possible
to drown in as little water as just 2 inches deep.

[rosalind dna (OP)]

Just thought that you might be interested to see how epilepsy was
regarded as in historical data. In fact it goes back as far as the New Testament.
Not well and up to the middle of the 18th - 19th Centuries it had been thought of as a condition sent from the gods as a punishment to the person. No way.

Also they were given Brimstone and soap to wash it all out of the person. 

http://www.who.int/mediacentre/factsheets/fs168/en/
http://www.epilepsy.com/epilepsy/history

[Andrew K Fletcher]

http://www.blackwell-synergy.com/doi/pdf/10.1111/j.0013-9580.2005.49504.x
Found this Neil.

Rosalind; Open windows and fresh relatively low humidity air is fine. Open windows and a relatively damp home is fine.

Open windows during high atmospheric humidity and you might find yoursel experiencing another S.

Having a hot shower is a great way to increase the humidity in the homw.

A dehumidifier used on days when humidity in the home is high will only rectify the problem if the windos are closed while it is operating. Having the windows open and running a dehumidifier will result in you trying to dehumidify the whole world!

Thank you for this ongoing thread Rosalind.....

Have you ever had a seizure when showering...?...or even worse....... when in the bath ?....could you drown ?

[rosalind dna (OP)]

Andrew

I prefer to have the windows open as I would have to have several de-humidifiers in my home and as I have repeatedly said that it's FREE to open
my windows. the air is on damp when it rains !! LOL
I do not own or have a shower as I had replied to Neil's good questions !!

It is also nice to see the butterflies and fresh air come in through the windows.

I have had another seizure recently and had the window OPEN also did the same thing that I have mentioned in other posts, Stayed in my sitting room while
it happened no injuries and I have encountered this many times.

How can I make note of anything let alone a seizure when I am completely
unconscious.

BTW I heard this type of thing in the 1970s from my then doctors and no
doctor would go on and on about Humifidying or damp in the home now !!!

[Andrew K Fletcher]

Andrew Bangs head against wall.

[rosalind dna (OP)]

When I have had a seizure or seizures then I won't watch or use
either my PC or my TV because sometimes the slight flickers from these screens could trigger new seizures, but I am fine with the radio and enjoy that more.


Any more questions are welcome thanks

[Carolyn]

Andrew Bangs head against wall.

Andrew, hasn't anyone ever told you that causes headaches?

[Carolyn]

Rosalind, thank you for the very informative and interesting topic.  All the questions I had have already been asked by Karen & Neil, but if I have any more I'll be sure to ask away!  Thanks again for all the info!

[rosalind dna (OP)]

Carolyn thanks and that is fine. I am glad that I have had a chance to share my experiences with you all, also hopefully to help not only myself to understand this condition better but TNS too.

[skeptic]

       I have had epilepsy since early childhood. Among the "triggers" I've personally noticed are Tobacco smoke(it inspired me to quit), Artificial Cinnamon flavor(the non-food type, used to flavor tooth picks), an unknown ingredient in store-bought ice cream(soft-serve and homemade have no effect), and a Full Moon.
       That last one may get a few laughs(or groans), but it's true. I found out from a friend that the word lunatic was inspired by epilepsy in ancient times. In fact, the bible refers to a "lunatick" boy (Matthew 17:15) taken to Jesus, to be healed. The verse describes the symptoms of "Falling Syndrome", another name for Epilepsy. When I read this, I started looking back through my diaries at the dates of my episodes, and found that most of them occurred on or within a few days of a full moon.
       Of course, modern medicine has dismissed the idea that the moon's gravity is strong enough to affect us, though no one argues against the fact that the tidal rhythms of hundreds of billions of gallons of water are controlled by it. Perhaps, they fear the discovery of the ancient wisdom that will stop the lunatics from beating a path to their doors.

[rosalind dna (OP)]

Welcome skeptic

That is interesting to know about your experiences with smoking and the reasons for stopping then using cinnamon flavoured things. Have you ever
bought cinnamon sticks as you can cook or use them in hot drinks.
I have never smoked anything in my life nor do I intend too.

So how do you stop the triggers being a problem during the full moon because
as we know that it happens once every month???

Yes I agree with you about the older myths about epilepsy that go all the way back to the Bible. As you said with the "falling sickness" that Jesus cured
that is something that I'd always thought was epilepsy.

[Andrew K Fletcher]

Hi Skeptic, you have done a grand job of identifying trigger factors!

The mention of lunar phases and how they relate to Epilepsy, albeit anecdotal evidence is fascinating to myself and for my research it provides a connection between ourselves and the way gravity drives the circulation. I can see patterns emerging from many presumed unconnected medical conditions and yours fits the pattern perfectly.

I wonder if Rosalind Dna can also relate to lunar influences with a diary and an online calendar showing the moon phases?

       I have had epilepsy since early childhood. Among the "triggers" I've personally noticed are Tobacco smoke(it inspired me to quit), Artificial Cinnamon flavor(the non-food type, used to flavor tooth picks), an unknown ingredient in store-bought ice cream(soft-serve and homemade have no effect), and a Full Moon.
       That last one may get a few laughs(or groans), but it's true. I found out from a friend that the word lunatic was inspired by epilepsy in ancient times. In fact, the bible refers to a "lunatick" boy (Matthew 17:15) taken to Jesus, to be healed. The verse describes the symptoms of "Falling Syndrome", another name for Epilepsy. When I read this, I started looking back through my diaries at the dates of my episodes, and found that most of them occurred on or within a few days of a full moon.
       Of course, modern medicine has dismissed the idea that the moon's gravity is strong enough to affect us, though no one argues against the fact that the tidal rhythms of hundreds of billions of gallons of water are controlled by it. Perhaps, they fear the discovery of the ancient wisdom that will stop the lunatics from beating a path to their doors.

[rosalind dna (OP)]

I wonder if Rosalind Dna can also relate to lunar influences with a diary and an online calendar showing the moon phases?

Andrew no I don't notice the difference with the lunar influences and
that is just a female age thing as happens to middle-aged women.

No I will not keep an online diary ever.

[skeptic]

Welcome skeptic

That is interesting to know about your experiences with smoking and the reasons for stopping then using cinnamon flavoured things. Have you ever
bought cinnamon sticks as you can cook or use them in hot drinks.
I have never smoked anything in my life nor do I intend too.

So how do you stop the triggers being a problem during the full moon because
as we know that it happens once every month???

Yes I agree with you about the older myths about epilepsy that go all the way back to the Bible. As you said with the "falling sickness" that Jesus cured
that is something that I'd always thought was epilepsy.

Rosalind,
         I can and do use natural cinnamon to flavor things, with no adverse effects. The FDA assured me, several years ago, that the Artificial Cinnamon Flavor that I am allergic to is not approved for any kind of food use, including candy. I only have to avoid 'hot toothpicks'.
         I took up smoking as a teen, thinking there must be some reason millions do it. Like most, I figured out that the hardest part was giving it up. People who say they want to quit are sincere, they hate it, but it has them. On an occasion when I was low on cash, I could go for a few days without, till payday. The first night after I got another pack was the beginning of several days of 'gran mals'. When I noticed the connection, I put them down, FOREVER. For years after, my 'worst nightmare' involved 'enjoying a cigarette', then waking in absolute fear. If every smoker could only experience that, they would all have the strength to quit. In this, Epilepsy is a blessing.   
           

[Andrew K Fletcher]

I did not ask you to keep an online diary> I asked you if you coul compare your diary with an online calender that has lunar events on it. Sorry for any confusion. I mentioned online to save you buying one. Just trying to be helpful but learning fast.

I wonder if Rosalind Dna can also relate to lunar influences with a diary and an online calendar showing the moon phases?

Andrew no I don't notice the difference with the lunar influences and
that is just a female age thing as happens to middle-aged women.

No I will not keep an online diary ever.

[rosalind dna (OP)]

Welcome skeptic

That is interesting to know about your experiences with smoking and the reasons for stopping then using cinnamon flavoured things. Have you ever
bought cinnamon sticks as you can cook or use them in hot drinks.
I have never smoked anything in my life nor do I intend too.

So how do you stop the triggers being a problem during the full moon because
as we know that it happens once every month???

Yes I agree with you about the older myths about epilepsy that go all the way back to the Bible. As you said with the "falling sickness" that Jesus cured
that is something that I'd always thought was epilepsy.

Rosalind,
         I can and do use natural cinnamon to flavor things, with no adverse effects. The FDA assured me, several years ago, that the Artificial Cinnamon Flavor that I am allergic to is not approved for any kind of food use, including candy. I only have to avoid 'hot toothpicks'.
         I took up smoking as a teen, thinking there must be some reason millions do it. Like most, I figured out that the hardest part was giving it up. People who say they want to quit are sincere, they hate it, but it has them. On an occasion when I was low on cash, I could go for a few days without, till payday. The first night after I got another pack was the beginning of several days of 'gran mals'. When I noticed the connection, I put them down, FOREVER. For years after, my 'worst nightmare' involved 'enjoying a cigarette', then waking in absolute fear. If every smoker could only experience that, they would all have the strength to quit. In this, Epilepsy is a blessing.  
          

skeptic That is interesting but sorry I have to disagree with you
about Epilepsy being a blessing. I have had many broken bones, cuts scars and so on over the 30+ years.
With the "change" it's meant to have calmed down because of the
hormonal change in women but not so much for me, having had
15 seizures in one day in March.

When the Clonic-Tonic/Grand Mal seizures rolled one after the other, I thought that they'd never stop. I had to ask myself to do that. I could hardly eat as I was so exhausted.
Buyt if you think that smoking has helped or not then do what you feel is right and good luck. I use cinnamon in hot winter drinks. I will PM you those later
(What are Hot Toothpicks, I have not come across them here in the UK)??

[rosalind dna (OP)]

I did not ask you to keep an online diary> I asked you if you coul compare your diary with an online calender that has lunar events on it. Sorry for any confusion. I mentioned online to save you buying one. Just trying to be helpful but learning fast.

I wonder if Rosalind Dna can also relate to lunar influences with a diary and an online calendar showing the moon phases?

Andrew no I don't notice the difference with the lunar influences and
that is just a female age thing as happens to middle-aged women.

No I will not keep an online diary ever.

Andrew no worries and I do have the lunar calendar in my own personal diary just for appointments stuff.
Also the cats play up then as well so I do have natures pair here too.
It is sort of helpful and given me something else to consider but for the future. Next lunar/calendar year>>>

[skeptic]

Rosalind,
         I can and do use natural cinnamon to flavor things, with no adverse effects. The FDA assured me, several years ago, that the Artificial Cinnamon Flavor that I am allergic to is not approved for any kind of food use, including candy. I only have to avoid 'hot toothpicks'.
         I took up smoking as a teen, thinking there must be some reason millions do it. Like most, I figured out that the hardest part was giving it up. People who say they want to quit are sincere, they hate it, but it has them. On an occasion when I was low on cash, I could go for a few days without, till payday. The first night after I got another pack was the beginning of several days of 'gran mals'. When I noticed the connection, I put them down, FOREVER. For years after, my 'worst nightmare' involved 'enjoying a cigarette', then waking in absolute fear. If every smoker could only experience that, they would all have the strength to quit. In this, Epilepsy is a blessing.       
[/quote]
skeptic That is interesting but sorry I have to disagree with you
about Epilepsy being a blessing. I have had many broken bones, cuts scars and so on over the 30+ years.
With the "change" it's meant to have calmed down because of the
hormonal change in women but not so much for me, having had
15 seizures in one day in March.
When the Clonic-Tonic/Grand Mal seizures rolled one after the other, I thought that they'd never stop. I had to ask myself to do that. I could hardly eat as I was so exhausted.
Buyt if you think that smoking has helped or not then do what you feel is right and good luck. I use cinnamon in hot winter drinks. I will PM you those later
(What are Hot Toothpicks, I have not come across them here in the UK)??[/quote]

First, let me clear up one thing. When I referred to it as a blessing, I meant only in the sense that it prevents me from a lifetime of Heart, Lung, and other problems associated with Smoking. I also understand about 'never-ending' days of seizures - I had about a dozen such days the last time I smoked, in the early 80's. The one thing my 'triggers' have in common is they are all things nobody needs to begin with. My sensitivity to them is a sort of warning system, that helps me avoid such things.   
'Hot Toothpicks' are toothpicks that have been flavored with that artificial cinnamon flavor that I mentioned. They are common in the US, at restaurants and convenience stores. The one good thing about this flavoring is that it is prohibited from food.