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... when I have them with all the nerve endings on the side of the face affected into my teeth and even into my head where i cannot bear to touch my face or hair.
... if I do have a neuralgia pain, how would I know ...
[Trigeminal neuralgia] pain may be felt in the ear, eye, lips, nose, scalp, forehead, cheeks, teeth, and/or jaw and side of the faceThe disorder is characterized by episodes of intense facial pain that last from a few seconds to several minutes or hours. The episodes of intense pain may occur paroxysmally. To describe the pain sensation, patients may describe a trigger area on the face so sensitive that touching or even air currents can trigger an episode; however, in many patients the pain is generated spontaneously without any apparent stimulation. It affects lifestyle as it can be triggered by common activities such as eating, talking, shaving and brushing teeth [and combing hair]. Wind, high pitched sounds, loud noises such as concerts or crowds, chewing, and talking can aggravate the condition in many patients. The attacks are said by those affected to feel like stabbing electric shocks, burning, pressing, crushing, exploding or shooting pain that becomes intractable.There is also a variant of trigeminal neuralgia called atypical trigeminal neuralgia. This variant is also called "trigeminal neuralgia, type 2", based on a recent classification of facial pain. In some cases of atypical trigeminal neuralgia the sufferer experiences a severe, relentless underlying pain similar to a migraine in addition to the stabbing shock-like pains. In other cases, the pain is stabbing and intense but may feel like burning or prickling, rather than a shock. Sometimes the pain is a combination of shock-like sensations, migraine-like pain and burning or prickling pain. It can also manifest as an unrelenting, a boring piercing pain.
I do remember now, many moons ago that I used to take tegratol. Now Im wondering if I should take it again.
I have had recurrent severe cold sores for years, they come one after the other in various places on my face, inside my nose both sides, in my eyes, and ears, and I feel very very ill when I have them with all the nerve endings on the side of the face affected into my teeth and even into my head where i cannot bear to touch my face or hair.I get a temperature, and swollen glands.A year or so ago my GP put me on a maintenance dose of Acyclovir 400mg ever day. I have to say that for a year i did not have a single outbreak. then I did have an outbreak, no where near as bad as the previous ones and zapped it with Valtrex 500mg 5 times a day (double dosed in the first instance)However I now have had three outbreaks one on top of the other despite the valtrex and acylovir. going on now for 6 weeks almost. I am not sure if they have been started because I had ICP Bolt pressure monitoring carried out at the beginning of November. Does anyone think this could be the cause of this very long outbreak? (This involved screwing a bolt into my skull and through to the meningies and brain with a cable left in place for a week to measure liquid levels surrounding my brain as I suffer chronic severe headaches every day and they were trying to see if I had low CSF pressure)This particular time it is inside my top lip my nostril and left eye and whilst the valtrex stops the actual growth of the cold sore, the other symptons are still there with a vengance. Can anyone help me? i was so pleased that I thought i had managed to supress this vile virus, and now here it is, back again with a vengance and I cannot bear it.I would be so grateful if anyone has any ideas.ThanksSarah