[girlimpossible (OP)]

(Not looking for a dx, just looking for dx ideas to bring to my dr) Since about march or April, I've had bilateral swelling in my hands and feet, mild/mod but obvious if you look at before and after photos, starting to cause an aching pain, sometimes causing nerve sx's. I think it's also around my neck/trunk, my jeans started to fit and I had just actually lost weight before this. It is worse when I sit or lay down, possibly even worse when I've slept over night or just a nap. -- what we've ruled out; - medication, - liver, - kidney, - dvt/legs, EKG is normal, CBC normal, thyroid normal. The presentation doesn't seem to for anything I can find anywhere. --- things I already have: unspecified dysautonomia, mild chiari 1, migraine, hx of anemia, Raynauds, no med changes that match up with sx's onset. ---- have repeat autonomic testing scheduled, not until after the event I wanted to not have pain and swelling for of course....... --- if anyone has had similar s a, or knows of something that matches or could match or should be rulled out, or if you know of a specialist who likes puzzles and may have experience, anything would be so very very greatly appreciated!

[RD]

Rather than swollen hands could it be the skin has tightened ? ...


Sclerodactyly , ( which can be associated with Raynaud's ).

https://www.google.com/search?site=imghp&tbm=isch&source=hp&biw=1280&bih=671&q=%22+diffuse+scleroderma%22

[girlimpossible (OP)]

Rings jeans and shoes feel tight, I'll try to post the photo tomorrow somehow the sub megapixel one I have is too large.....

[RD]

I take it that the "zebra hunting" bit means you're in Africa.

There are tropical parasites which cause lymphedema ...

http://en.wikipedia.org/wiki/Lymphedema#Causes

http://en.wikipedia.org/wiki/Filariasis

[girlimpossible (OP)]

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RD no, they sometimes use "zebra" in reference to rare medical problems, "when you hear hoof beats, think horses not zebras"

[RD]

oops  [:I] ( in my defence sometimes there are questions here from people in Africa).

It's difficult to tell from the arty black&white photo ,  but the search term "periungual erythema" may be relevant.

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If you're taking a vasodilator to treat Raynaud's that's a possible explanation swollen feet ... http://www.patient.co.uk/health/peripheral-vasodilators#nav-5