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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11420 on: 01/02/2011 01:50:40 »
Quote from: Counterpoints on 31/01/2011 21:07:46
Sent to Andrew Daniels:

Quote
Dear Andrew Daniels,

Thank you for an interesting article about the "orgasm flu". I am writing you because there are significant factual errors in the article, which could cause POIS patients to needlessly suffer and to be treated unfairly.

The physician you quote, Dr. Resnick, appears to be unaware of the medical literature relating to auto-immune sperm allergies.  It is said that 60-70% of men who have had a vasectomy develop an auto-immune reaction to their own sperm, because the physical barrier of Sertoli cells is removed.  This is why many vasectomies are not reversible.  To quote from a 2007 medical article (linked below),

"Certain organs – including the testes and the brain – exist in what is the equivalent of a gated community in the body. Tiny tubes within the testes (in which sperm are produced) are protected by a physical barrier of Sertoli cells. The tight connections between these cells prevent blood-borne infections and poisonous molecules from entering the semen.

After a vasectomy, however, the protective barrier is broken and semen mixes into the blood. The immune system recognizes the sperm as invading foreign agents and produces anti-sperm antibodies in 60 to 70 percent of men."

Also, the statements "once thought to be a psychological illness" and "researchers estimate that it affects less than one percent of the population" are untrue.  POIS was not known to the medical community prior to 2002, so it was never generally thought to be a psychological illness.  Likewise, no researchers have attempted to estimate what percent of the population are affected by POIS. This latter statistic may be due to confusion with studies done on post orgasmic headaches.

Finally, the symptom list, which is now routinely getting circulated by the media, is not especially accurate.  The wikipedia article on POIS is a more accurate characterisation.  Specifically, the cognitive problems are severe, and often appear in patients who have no physical symptoms.  One of the significant cognitive problems is aphasia -- finding it difficult to formulate thoughts into sentences, having trouble remembering words, and having difficult reading and absorbing information.  These symptoms are notable, but transient.  They disappear after about a week following orgasm.

Could you please amend your article, for the sake of the many people who have this condition and are hoping for treatment and further research?

Thank you.

Links:
http://ihealthbulletin.com/blog/2007/02/13/vasectomy-may-lead-to-dementia-from-autoimmune-brain-damage/
http://en.wikipedia.org/wiki/POIS

I don't really want to be a pain, but if I see these holes, I'm sure Andrew will do a double check.

From:
US National Library of Medicine and the National Institute of Health
http://www.ncbi.nlm.nih.gov/pubmed/7192697

"Vasectomy, therefore, had no demonstrable effect on Sertoli cell function in the rat and our findings support the concept that ligation of the vas does not result in long-term biochemical testicular damage in the experimental animal."

Go to:
http://www.siteadvisor.com/sites/ihealthbulletin.com
perhaps no indication of the validity of the article, but you have to wonder. I haven't read it, have to admit, but I won't go to the site. The article, from what has been said here and the title itself DOES seem to be an extreme case however.

60% to 70% of vasectomy cases have sperm antibodies, I had sperm antibodies, but without POIS nor allergy. Even after reversal, I was POIS free for several years, but my case was exceptional for the quantity of time that passed pre-reversal.

Most reversals are considered not viable, not because there are antibodies in the blood, but because antibodies bind to the sperm while still within the reproductory system. This happens only in a percentage of those who have antibodies also in the blood. (So of the 60 to 70%, only a percentage of those have antibodies bound to the sperm from within the repro system.

And this does not even come close to forcasting POIS, just suggests that fertility would be low or non-viable.

POIS requires "the gap".

I don't know if Sertoli cells could eventually be responsible for this gap under extended conditions (such as mine for instance - after 22 yrs vasectomy and 15 yrs reversal) or if it's some other mechanism.

Hopefully Andrew will just say Ooops and carry on.





« Last Edit: 01/02/2011 02:00:46 by daveman »
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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11421 on: 01/02/2011 03:52:01 »
According to this the study comes from Northwestern University researchers (I don't know if it's valid) :
http://www.northwestern.edu/newscenter/stories/2007/02/vasectomy.html

I found interesting to read Dr. Resnick comments (accurate or not).
It seems POIS don't have the symptoms experienced by women who have semen allergy (from a quick research).
Quote
What kinds of allergic reactions can people have to semen?
People can have localized problems after immediate contact with semen. They can have burning, pain and swelling that can occur for long periods of time. Typically it affects the outer vaginal vault area, though it can also affect the inner vault. Some women describe severe burning and pain, where it feels like 1,000 needles have been injected in them at one time

About psychological origin of POIS it can come from there:
2002 study by Dr Waldinger:
Quote
there may be biological syndromes, whose symptoms are erroneously ascribed to psychological factors ....,
By previously consulted specialists, their symptoms were diagnosed as psychological in nature
« Last Edit: 01/02/2011 04:06:46 by martin88 »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11422 on: 01/02/2011 04:25:57 »

Martin, thanks, I remember reading that POIS-psychological-origin in the 2002 study.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11423 on: 01/02/2011 04:36:05 »
Quote from: daveman on 31/01/2011 21:04:12

We're also interested in isolating semen components, not just sperm. [:)]


Is there anything in semen -outside of sperm - that we should be concerned about? I always thought non-sperm was just a bunch of harmless preservatives [:)]
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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11424 on: 01/02/2011 04:47:13 »
okay i was curious if women have a prostate too, and actually they do and during the big O they release fluid similar to men. This might be the connection to female pois we are looking for and maybe narrow the pois immflamation causing substance to the prostate gland.

http://en.wikipedia.org/wiki/Skene's_gland
http://en.wikipedia.org/wiki/Prostate
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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11425 on: 01/02/2011 05:39:02 »
Quote from: demografx on 01/02/2011 00:40:26
Quote from: POIS-SUFFERER on 01/02/2011 00:35:48
This "gap" we are looking for, or the faulty blood sperm barrier, could this be my Spermatocele http://emedicine.medscape.com/article/443432-overview
The DR found this a few years back, around the same time my POIS started!
If this "buldge" broke or allow sperm to leak into the blood......
Thoughts?
PS.
You just woke up a dormant memory of my "spermatocele" comments from my urologist. It's been years, but I'll check in with him next time about it.

Seems plausible.... they look like nasty things, and mine on the left can hurt and cause pain down my leg! I can feel it, when its small its fine, when it gets bigger is when I feel the pain and the arches down the leg, not real painful but there is some discomfort.

PS.
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Offline afghan666

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11426 on: 01/02/2011 08:16:26 »
Quote from: demografx on 31/01/2011 15:16:17
Quote from: gabin on 31/01/2011 13:05:50
Quote from: afghan666 on 31/01/2011 06:24:06


Last nyt i took  I TOOK 100 mG TRAMADOL HCL AND 300 MG GABAPENTIN.THE DOSES ARE A BIT HIGH!
  anyways i o'd 2 times and then i slept.the timing of ejac had prolonged significantly.good for PE.


I woke up ryt now.id nt hav any mental pois symptoms except a lil tiredness. - . Less fatigue. I feel good . I love u all.Demo !
[/b]


Hell yeah.. i bet you do feel better. Cocaine or heroine can do the job in the same successful way.


Taking more Tramadol And Gabapentin Drug Interaction than prescribed by your doctor may cause serious side effects or DEATH.
http://www.icq.com/blogs/post/54884 [nofollow]

edit - From a physician friend just now received: "I don't know if it is as destructive as cocaine and heroin (which would do the same job), but tramadol is a synthetic opioid.  Used very judiciously, that is no big deal.  It would be like people who take a Vicodin once in a while when their back goes out.  I don't really know if Tramadol 100 mg is a lot or not.  Gabapentin 300 mg is not a lot."  


 Okay first i googled if tramal and gaba can have bad interactions.but all i found was increased drug effects.
   i know a couple of guys been chronic tramadol addicts.
  anyways the dose is not high but i am talking about if i take them for long term(wenever having an O).
 My 2nd day of 0 isnt gud.i m having irritating cough,dizziness,stuffy nose,eyeline reddened and itching, my whole body is sort of inflammed.
 I will take avil antihistamine tabs and let u all know.
« Last Edit: 02/02/2011 12:11:33 by afghan666 »
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Offline afghan666

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11427 on: 01/02/2011 08:28:45 »
Quote from: demografx on 31/01/2011 17:10:26
Quote from: dbfd588 on 31/01/2011 04:52:45

I read an article on adrenal exhaustion. It gave symtoms and one was about appetite...


Can you provide a link to that article? dbfd, please don't take this personally: the subject has come up often here over the last 4 years by a number of posters. But as I mentioned, we have yet to see good evidence of "adrenal fatigue or exhaustion".


"Adrenal Fatigue is not a real medical condition. There is no test that can detect adrenal fatigue."


"Tests for adrenal fatigue are not based on scientific facts or supported by good scientific studies."


The adrenal fatigue/exhaustion "diagnosis" is often a ruse to sell you health supplements and vitamins....or very questionable "[non]medical consultations". "[Real]doctors are concerned that supplements or vitamins sold as a treatment for adrenal fatigue could hurt you..."

Above bold-italicized quotes are from The Endocrine Society and The Hormone Foundation
August, 2010
http://www.hormone.org/Public/upload/Adrenal-Fatigue-Web.pdf [nofollow]





 As i see it.yes adrenal fatigue is not considered a medical condition.yes there are no tests etc.

 But . .What about adrenal insuffiency??
 It is medical condition i believe. . cuz deltacortril is prescribed for A.Insuffiency.MY friend is on deltacortril.both adrenal fatigue and adrenal insuff.they are nearly the same.they hit the same spot .
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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11428 on: 01/02/2011 11:23:19 »
Quote from: martin88 on 01/02/2011 03:52:01
According to this the study comes from Northwestern University researchers (I don't know if it's valid) :
http://www.northwestern.edu/newscenter/stories/2007/02/vasectomy.html

I found interesting to read Dr. Resnick comments (accurate or not).
It seems POIS don't have the symptoms experienced by women who have semen allergy (from a quick research).
Quote
What kinds of allergic reactions can people have to semen?
People can have localized problems after immediate contact with semen. They can have burning, pain and swelling that can occur for long periods of time. Typically it affects the outer vaginal vault area, though it can also affect the inner vault. Some women describe severe burning and pain, where it feels like 1,000 needles have been injected in them at one time

About psychological origin of POIS it can come from there:
2002 study by Dr Waldinger:
Quote
there may be biological syndromes, whose symptoms are erroneously ascribed to psychological factors ....,
By previously consulted specialists, their symptoms were diagnosed as psychological in nature


Good find on the "vasectomy paper" by Northwest U. The wording is exact. Northwest U / NIH, who are you going to believe? I still think that the cases for this dementia, are rare. It's true, those who have it have high incidence of vasectomy. But there are millions of vasectomy patients who don't have dementia. In the long run, this dementia too, may depend on a "gap".

I think the point is, for whatever reason, Sertoli cell breakdown or other, a person develops antibodies to sperm. In the vast majority of cases, this has no ill effect because the antibodies and sperm are isolated and/or don't interact within the bloodstream. What's more, Fertility is only efected when antibodies bind to sperm in this environment outside of the bloodstream, and yet do not produce the Type I or Type IV reactions, which lead to POIS. That only happens when there is a "gap" permitting the sperm to enter the bloodstream, where a more extensive battle takes place.



As far as allergies to sperm, to me the above doesn't sound too contrary to what Dr. Waldinger is saying. The type of allergies that women tend to have appear to be more "superficial" and, although sperm may actually "break the surface", they don't enter the bloodstream where they can develop into a more systemic reaction. The reactions are more restricted to Type I reactions, inflamation, itching, stinging etc.

I wonder if Dr. Resnick actually read Dr. Waldingers report, or if he's just reacting to the news reports, knee-jerk style?
« Last Edit: 01/02/2011 11:44:21 by daveman »
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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11429 on: 01/02/2011 11:28:05 »
Quote from: daveman on 01/02/2011 00:58:24
Quote from: demografx on 01/02/2011 00:36:46
Quote from: Counterpoints on 31/01/2011 18:20:06

I don't know where they get...

"researchers estimate that it affects less than one percent of the population".


I think wikipedia states 1/4 to 1% of the population?

Yeah, that's where I saw it too, now that you mention it!!
Ya see? With Wikipedia everybody can be an expert! [:D][:D]

"Experts say". Ohh I like that!


Either way, that statistic clearly isn't for POIS.  No one has estimated the prevalence of POIS.  That is for coital headaches, as I said in my letter.
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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11430 on: 01/02/2011 11:31:34 »
Quote from: daveman on 01/02/2011 01:50:40
Quote from: Counterpoints on 31/01/2011 21:07:46
Sent to Andrew Daniels:

Quote
Dear Andrew Daniels,

Thank you for an interesting article about the "orgasm flu". I am writing you because there are significant factual errors in the article, which could cause POIS patients to needlessly suffer and to be treated unfairly.

The physician you quote, Dr. Resnick, appears to be unaware of the medical literature relating to auto-immune sperm allergies.  It is said that 60-70% of men who have had a vasectomy develop an auto-immune reaction to their own sperm, because the physical barrier of Sertoli cells is removed.  This is why many vasectomies are not reversible.  To quote from a 2007 medical article (linked below),

"Certain organs – including the testes and the brain – exist in what is the equivalent of a gated community in the body. Tiny tubes within the testes (in which sperm are produced) are protected by a physical barrier of Sertoli cells. The tight connections between these cells prevent blood-borne infections and poisonous molecules from entering the semen.

After a vasectomy, however, the protective barrier is broken and semen mixes into the blood. The immune system recognizes the sperm as invading foreign agents and produces anti-sperm antibodies in 60 to 70 percent of men."

Also, the statements "once thought to be a psychological illness" and "researchers estimate that it affects less than one percent of the population" are untrue.  POIS was not known to the medical community prior to 2002, so it was never generally thought to be a psychological illness.  Likewise, no researchers have attempted to estimate what percent of the population are affected by POIS. This latter statistic may be due to confusion with studies done on post orgasmic headaches.

Finally, the symptom list, which is now routinely getting circulated by the media, is not especially accurate.  The wikipedia article on POIS is a more accurate characterisation.  Specifically, the cognitive problems are severe, and often appear in patients who have no physical symptoms.  One of the significant cognitive problems is aphasia -- finding it difficult to formulate thoughts into sentences, having trouble remembering words, and having difficult reading and absorbing information.  These symptoms are notable, but transient.  They disappear after about a week following orgasm.

Could you please amend your article, for the sake of the many people who have this condition and are hoping for treatment and further research?

Thank you.

Links:
http://ihealthbulletin.com/blog/2007/02/13/vasectomy-may-lead-to-dementia-from-autoimmune-brain-damage/
http://en.wikipedia.org/wiki/POIS

I don't really want to be a pain, but if I see these holes, I'm sure Andrew will do a double check.

From:
US National Library of Medicine and the National Institute of Health
http://www.ncbi.nlm.nih.gov/pubmed/7192697

"Vasectomy, therefore, had no demonstrable effect on Sertoli cell function in the rat and our findings support the concept that ligation of the vas does not result in long-term biochemical testicular damage in the experimental animal."

Go to:
http://www.siteadvisor.com/sites/ihealthbulletin.com
perhaps no indication of the validity of the article, but you have to wonder. I haven't read it, have to admit, but I won't go to the site. The article, from what has been said here and the title itself DOES seem to be an extreme case however.

60% to 70% of vasectomy cases have sperm antibodies, I had sperm antibodies, but without POIS nor allergy. Even after reversal, I was POIS free for several years, but my case was exceptional for the quantity of time that passed pre-reversal.

Most reversals are considered not viable, not because there are antibodies in the blood, but because antibodies bind to the sperm while still within the reproductory system. This happens only in a percentage of those who have antibodies also in the blood. (So of the 60 to 70%, only a percentage of those have antibodies bound to the sperm from within the repro system.

And this does not even come close to forcasting POIS, just suggests that fertility would be low or non-viable.

POIS requires "the gap".

I don't know if Sertoli cells could eventually be responsible for this gap under extended conditions (such as mine for instance - after 22 yrs vasectomy and 15 yrs reversal) or if it's some other mechanism.

Hopefully Andrew will just say Ooops and carry on.







Excuse me?  Hopefully he will say "oops" and carry on?

I damn well hope he will make changes.

Your 'holes' are not relevant.  He is quoting people saying that we could not become allergic to our own sperm.  It is WELL KNOWN that people develop anti-sperm antibodies.  It DOES NOT MATTER whether or not these people develop POIS.  That was not the point.  There can be different types of reactions.  One scientific journal paper speculates that such a reaction to sperm is responsible for primary progressive aphasia (PPA).

Everything you have pointed out here was obvious to me from the start, and I honestly don't appreciate this 'help', at least in the way that you provided it.  I have had discussions with extremely well regarded endocrinologists about the vasectomy reaction. 
« Last Edit: 01/02/2011 11:41:00 by Counterpoints »
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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11431 on: 01/02/2011 11:53:08 »
Quote from: demografx on 01/02/2011 04:36:05
Quote from: daveman on 31/01/2011 21:04:12

We're also interested in isolating semen components, not just sperm. [:)]


Is there anything in semen -outside of sperm - that we should be concerned about? I always thought non-sperm was just a bunch of harmless preservatives [:)]

Well, of course that would be interesting to know. But something about prostatic antigen rings a bell, for one, although I couldn't say much more than that. Among the other preservatives, I'm not sure how many protiens there may be, or cytokines..... that could effect inflamation/antiinflamation....
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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11432 on: 01/02/2011 12:03:50 »
Quote from: Counterpoints on 01/02/2011 11:31:34
Your 'holes' are not relevant.  He is quoting people saying that we could not become allergic to our own sperm.  It is WELL KNOWN that people develop anti-sperm antibodies.  It DOES NOT MATTER whether or not these people develop POIS.  That was not the point.  There can be different types of reactions.  One scientific journal paper speculates that such a reaction to sperm is responsible for primary progressive aphasia (PPA).

Everything you have pointed out here was obvious to me from the start, and I honestly don't appreciate this 'help', at least in the way that you provided it.  I have had discussions with extremely well regarded endocrinologists about the vasectomy reaction. 

Correct me if I'm wrong, but an allergy is the reaction between an invader and it's antibody.
Vasectomy cases produce antibodies but don't produce allergies!

Thus the Dr's reaction.

However he just didn't take the time to look deeper for the potential.

Sperm antibodies in the blood present a potential for allergy, and it's a remote potential at that.


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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11433 on: 01/02/2011 15:25:48 »
I found out an interesting french study about male contraception : To summerize,  they state that LHRF
synthetic
is a safe way for contraception -> Polypeptide substance secreted by the hypothalamus. She enters the pituitary gland (in the anterior lobe of the gland) through the pituitary stalk.

 It controls the secretion of GnRH in the anterior lobe of the pituitary gland (pituitary gland is the pituitary gland).

It is a great way for young men cause :
efficient, reliable and reversible

After having stopped the treatment for 14 weeks, the synthesis was back to normal without abnormalies. (i talk on behalf of people who would like children later)


In this study, they talk a lot about steroids, as testosterone benefit (demo and co experience [:)])
,and also Gossypol.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11434 on: 01/02/2011 17:01:51 »

Habibou, thank you for that fascinating information!
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11435 on: 01/02/2011 17:12:12 »
Quote from: afghan666 on 01/02/2011 08:16:26

(wenever getting l - - d or mastrbate).


Please change the "intercourse" language and check your spelling just a little. This is a Science Forum. Schoolchildren on Science projects visit here.

It would also help the people reading your posts if you didn't type in "text message" brief-clipped telegraph style, with words shortened.

Thank you very much for your cooperation.
« Last Edit: 01/02/2011 17:19:53 by demografx »
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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11436 on: 01/02/2011 17:20:14 »
Has  anyone else tried Saw Palmetto? I recommend it. It is a natural extract available off the shelf and used to promote prostate health. It helps shrink the prostate. I found it helped my symptoms, and I continue taking it. It reduced ejaculation, and improved POIS symptoms including cognitive function.
« Last Edit: 01/02/2011 17:32:11 by Animus »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11437 on: 01/02/2011 17:29:02 »
From Lindsey Savino - The Learning Channel


"Everyone on the crew agrees that the shoot was one of the best ones we've had by far!  And one of the most meaningful to a cause.  I feel such a sense of gratitude to be part of it all!"


We do, too, Lindsey!! [:)] [:)]
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11438 on: 01/02/2011 17:47:01 »
Quote from: Counterpoints on 01/02/2011 11:28:05
Quote from: daveman on 01/02/2011 00:58:24
Quote from: demografx on 01/02/2011 00:36:46
Quote from: Counterpoints on 31/01/2011 18:20:06

I don't know where they get...

"researchers estimate that it affects less than one percent of the population".


I think wikipedia states 1/4 to 1% of the population?

Yeah, that's where I saw it too, now that you mention it!!
Ya see? With Wikipedia everybody can be an expert! [:D][:D]

"Experts say". Ohh I like that!


Either way, that statistic clearly isn't for POIS.  No one has estimated the prevalence of POIS.  That is for coital headaches, as I said in my letter.


Counterpoints, YOU wrote the following in wikipedia!

"Epidemiology

POIS could affect between 0.25%-1% of the population, or possibly more."
You post a 'headache footnote' but make no distinction directly above regarding headaches!
 
« Last Edit: 01/02/2011 17:53:47 by demografx »
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Offline afghan666

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11439 on: 01/02/2011 19:41:53 »
Quote from: demografx on 01/02/2011 17:12:12
Quote from: afghan666 on 01/02/2011 08:16:26

(wenever getting l - - d or mastrbate).


Please change the "intercourse" language and check your spelling just a little. RThis is a Science Forum. Schoolchildren on Science projects visit here.

It would also help the people reading your posts if you didn't type in "text message" brief-clipped telegraph style, with words shortened.

Thank you very much for your cooperation.



My mistake.....ill b carefull next time...thx..
« Last Edit: 02/02/2011 02:09:21 by demografx »
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