[demografx]

I've talked with RONARD (Romanian National Alliance For Rare Diseases), and they support me. More exactly with prof. dr. Maria Puiu (Medical Genetics). She is vicepresident of RONARD. I'll come with updates as soon as I'll have them. These day she is busy.
Also dr. Nicolae Calomfirescu responded to an e-mail I've sent to him saying that I am an "unique and extremely rare case" and that he has no experience with these cases. He is in ESSM together with Dr.Waldinger

NOTE: I've opened a new topic on the other forum for information about POIS in Romania.

Best wishes.

Excellent, emi_b!

[Vincent M]

I read this quote in the abc news link demo posted:

"Interestingly, some research suggests that women who have been exposed to dogs, then go on to have their first sexual encounter with a man, can develop this seminal allergy."

I was bitten by a dog when I was 7 years old. Anyone else been bitten by a dog? I doubt this could cause POIS, but who knows.

[Animus]

Reminder: "Strange Sex": the POIS Cable-TV episode!  Airs this upcoming Sunday, (May 22nd) at 10pm EST on The Learning Channel (TLC).

I'm interviewed about my ordeal with severe POIS and subsequent surgery to solve it. There is a thread on the new Forum called "Animus Solution" under "Alternative Treatments" which may be a good place to discuss this afterward.

Thanks, Animus, for being our POIS FORUM CELEBRITY!!

Animus: is it also 10pm for CST and PST? (Midwest, West Coast)

Yes, It's listed on the TLC website at this link http://tlc.discovery.com/tv-schedules/series.html?paid=2.1213.56481.39612.4

Look for the "Weight for it & Desperate Measures" episode. The brief summary is pasted below. The show pairs 2 stories together. I am "Frank" in the second half of the show. Pairing me with this other case is just how they do it. When I get the hard copy I'll probably edit out that part if possible!

May 22, 10:00 pm
(30 minutes)
   
Strange Sex
Weight for It & Desperate Measures
TV-MA

For Donna and Phillipe, food is the ultimate aphrodisiac. Phillipe fulfills his sexual fantasies by feeding Donna and watching her gain weight. Frank becomes ill after the act of sex, but how far is he willing to go to cure his mysterious illness.

[Animus]

POIS at ABC News website!
http://abcnews.go.com/Health/sex-allergies-semen-orgasm-latex-dampen-libido/story?id=13593639&page=2

That's an interesting article. For me it raises the question of why a woman's allergic reaction last for 5-7 hours. And yet a man's allergic (POIS) reaction lasts for 5-7 days. What accounts for the difference? The nature of POIS and female semen allergies seem to be so entirely different. They don't seem to be related at all.

[demografx]

Just an idea:
Maybe when www.poiscenter.com website will be on, we can translate it to other languages, including Romanian, because we are all from a lot of countries. To have a single centralised place for the POIS comunity. It could be better instead of separate blogs, sites, and forums. We could then separate it into national centers. But it is just an idea.

Daveman, would it be a big project to have a Google-translate button/feature on the site? Or perhaps just a link to Google-translate...
http://translate.google.com/?vi=c&hl=en#

emi_b, this is a very good idea, we have many countries represented here.

[demografx]

The new forum link is now redirecting to:

www.POISCenter.com/forums/index.php

[Animus]

I looked up Semen Allergy Symptoms- and none of these are consistent with my experience of POIS. Interestingly, male semen allergy has been observed before. And the typical reaction is hives, swelling, itching. I don't think I've encountered anyone here with that group of symptoms.

 
SYMPTOMS
General: Symptoms of semen allergy vary among sensitive patients. The most common symptoms include burning, itching, and swelling of the genitals or areas of the skin that come into contact with the semen.
Hives: Moderate allergic reactions may cause hives. Hives are red, itchy swollen welts on the skin that may appear suddenly and disappear quickly. They often develop in clusters, with new clusters appearing as other areas clear up.
Angioedema: Some allergic patients may develop angioedema. This condition causes swelling in the tissue just below the skin. Angioedema is similar to hives, except it occurs deeper in the skin. The swellings, known as welts, usually appear around the eyes and mouth. They may also be present on the hands, feet, and throat.
Anaphylaxis (anaphylactic shock): In rare cases, a severe allergy reaction called anaphylaxis may occur. Anaphylaxis is a systemic allergic reaction, which means that many parts of the body are affected. Symptoms of anaphylaxis can vary from mild to severe and may be potentially life threatening. The most dangerous symptoms of anaphylaxis are low blood pressure, difficulty breathing, shock, and loss of consciousness, all of which can be fatal. The time lapse between ingestion/or contact with the allergen and anaphylactic symptoms varies among individuals. Symptoms may appear immediately or may be delayed from 30 minutes to one hour after exposure. Symptoms may also disappear and then recur hours later. Once symptoms arise, they progress quickly. Patients who develop symptoms of anaphylaxis should seek immediate medical treatment.

[hurray]

No problem Demo. Google DOES genuinely try to reward good content with high rankings, so as long as we keep on doing what we are doing, we are well on the way to success.

(and if some sites sympathetic to our cause would like to link to the new forum it certainly woudn't hurt  [])

The best way I know to do that would be to offer link-placement exchanges, e.g., the National Dandruff Society will post our link on their site, but only if we reciprocate and do the same.

Link-exchanges aren't a bad thing as such, but the amount of google juice that you get from the link is substantially reduced when google realises that two sites are linking to each other. The link is still worth having, but one-way links are highly preferable.

The ultimate in good inbound links are those from sites that 1) Have a reasonable PageRank (2 upwards) 2) Have few outgoing links. Each site with Pagerank is basically sharing the "google juice" around with all the sites that it links out to. A pagerank 2 site with 1000 outgoing links would be almost useless to us, since you are only getting 1/1000th of the Pagerank available from that site.

Relevance is another major factor - a link from a medical site would be rated much more highly by google than one from "Bob's auto repairs". Too many irrelevant reciprocal links would put the new forum's status with google at risk - the recent J C Penney scandal showed how even the big online players can get SEO very wrong: http://blog.chrisenglund.com/new-york-times-exposes-jc-penney-link-scheme

Using creativity and persuasion is the key to getting high-quality 1 way links. For example, you (Demo) could offer to put another site's link on your welcome sig that you post to new members, in return for a 1-way link to the new forum. That way the link would be counted as 1-way and both parties would be getting something positive from the deal.

Since the new forum is non-commercial, you may be pleasantly surprised at how many sites offer to help you with one way or reciprocal links. An email personally tailored to the owner of the site is essential - bulk-mailing a general HELP US PLEASE PLEASE PLEASE email will get you nowhere and cause ill-will. If the site you are contacting has a very low Pagerank and/or a very high number of outgoing links, don't even bother getting in touch - it's a waste of your time.

[demografx]

Hurray, POIS Center showed up in a Google-Alert today! (I'm assuming that's good news).



On May 19, 2011, at 7:02 AM, Google Alerts <googlealerts-noreply@google.com> wrote:

Web   1 new result for Post Orgasmic Illness Syndrome POIS
 
Relationships
Post Orgasmic Illness Syndrome (P.O.I.S.) ... Spell Check has been added to Posts! 782 Posts in 93 Topics by 52 Members Latest Member: UnderstandingPois ...
poiscenter.com/forums/index.php?board=11.0

[demografx]

POIS at Sexologists Network
http://sexologists.net/cms/forum/13

[daveman]

emi_b,

When I start coding the new page I'll call you for translation in Romainian.

[emi_b]

emi_b,

When I start coding the new page I'll call you for translation in Romainian.

OK, Daveman. Thank you.
It is great. Maybe doctors and patients in Romania, will be more aware of us.
I'll try to do my best.

emi_b

[Green]

Green, sorry to hear that. I was down too the last year. Now I am feeling better. But the negative effect of feeling better (I mean out of POIS) is that you want more O.'s.
Then I feel bad and then I don't have the need for an O.

Well dr. Goldmeier is pretty far from you. I hope that he can help you! Good luck!

Green, I'm VERY sorry to hear this, but if it's any consolation you are in close proximity to 2 of the MOST KNOWLEDGEABLE POIS PHYSICIANS IN THE WORLD.

More importantly, you are ACTING on it!

Very best wishes!!!

Thanks for the kind words guys!

I've narrowed it down to the fact I've got a prostate infection that just will not clear and it's not holding semen and sperm, the symptoms are like heavy POIS but there is a bit of distinction between them, cognition isn't too bad, but the weakness and the loss of muscle is wreaking havoc.

[Green]

I'm seriously considering the possibility of visiting Dr. Waldinger and his team. When some of the brainfog clears, I'll be writing out letters to as many well known Allergist Dr's, abeit research or conventional practising ones within a 100 mile radius, if there is any support from there then I will chase it up.

I am not very sure what the waiting list would be to see Dr. Waldinger, I know he must be an immensely busy man. Demo could you find out for me, if that's OK?

I would be happy to take a few UK POIS sufferers with me, if they'd like to come, I should have a luxury motor later on this year and given the costs incurred, I think it's a better idea just to drive there, approx half the journey would be on a ferry. I drove to the Nurburgring last year with a convoy and posted some flying laps, but I can't drive locally, whilst in POIS, that's the stark differences in life with POIS and without.

Please let me know if you are interested, I can start putting this into action, the quicker things move the quicker we can get along with our lives. I'm going to make sure I harness my time and effort well, this time outside of POIS.

[Hoping]

Did someone of you used Roaccutane/Accutane against acne? It also know as Isotretinoin? I had that 10 years ago against acne. It is a very heavy medicine and doctors warned me. But I asked and asked for it, because it was the only medicine which could get the acne get away. It is bad for the liver. It could be that my hormones were messed up by this medicine and caused POIS.

Van, my two sons both used it without problems. My dermatologist reassured me and my wife that there is no problem with Accutane as long as it is used cautiously. But there have been problems reported, and we were very concerned.

I was on Accutane for a year or two in high school (I'm now 26). I was also wondering if there might be some connection to POIS. I know there was/is some controversy regarding the side effects of the drug. I remember it was in the news -- Accutane was said to be causing severe depression in some patients. Did anyone  else take it?

[Vandemolen3]

For now we are the only one that used Accutane. I remember that I asked for it a few times. And my GP warned me. But because I urged him to give me the Accutane he did. I came up with Accutane because I now rememeber that I already had POIS 10 years ago. Until now I thought I only had POIS for 7 years. But back then I already had itchy eyes and nose after an O. And in that time I used Accutane. There are a lot of side effects. Depression is one. The major problem is liver problems.

[lauracostis]

For now we are the only one that used Accutane. I remember that I asked for it a few times. And my GP warned me. But because I urged him to give me the Accutane he did. I came up with Accutane because I now rememeber that I already had POIS 10 years ago. Until now I thought I only had POIS for 7 years. But back then I already had itchy eyes and nose after an O. And in that time I used Accutane. There are a lot of side effects. Depression is one. The major problem is liver problems.

I took accutane when I was fourteen. I have posted before about accutane, because it might be linked to autoimmune disorders

[lauracostis]

For now we are the only one that used Accutane. I remember that I asked for it a few times. And my GP warned me. But because I urged him to give me the Accutane he did. I came up with Accutane because I now rememeber that I already had POIS 10 years ago. Until now I thought I only had POIS for 7 years. But back then I already had itchy eyes and nose after an O. And in that time I used Accutane. There are a lot of side effects. Depression is one. The major problem is liver problems.

I took accutane when I was fourteen. I have posted before about accutane, because it might be linked to autoimmune disorders

There was actually a commercial from a law firm about all the different auto immune disorders that you could sue the company for, but POIS was not on there, so I changed the channel promptly to watch Pawn Stars.

[demografx]

From Green
" I am not very sure what the waiting list would be to see Dr. Waldinger, I know he must be an immensely busy man. Demo could you find out for me, if that's OK? "

I'm emailing him right now to ask -  demo

[lauracostis]

If anyone is interested type in "accutane autoimmune disorders" into google.
accutane was removed off the market because they were successfully sued by so many people for causing Crohn's Disease and Lupus, among other autoimmune disorders.  If the others(Van) would like to sue, I believe it is Roche, I am ready to bring up a law suit.