0 Members and 7 Guests are viewing this topic.
I just added a signature to my profile: "POIS, fatigue, brain fog, can't find words, can't concentrate". This to give us high rankings and to make us easily found by new cases. B_Jim was the first to do this. Unfortunately my signature is not displayed here, because TNS says they only display it when you are a "trusted member", to prevent spam. So apparently I am not a trusted member.
Quote from: Animus on 09/05/2011 05:04:20John21 and B_Jim, I will be getting a dvd copy of the show after it airs. Once I do, I'll see if I can try to get it to those of you who want to see it! Or somehow upload it. Thanks!I haven't posted here in a while -- been pretty busy. I just wanted to say that there are several software programs that might help with recording and/or uploading the DVD. You can rip (which basically means "record") the DVD to your hard drive. I use free software called DVD Shrink (http://www.afterdawn.com/software/cd_dvd/copy_dvd/dvd_shrink.cfm) and have never had a problem. You can also do a screen capture, which will record anything (sound, visual, movies, etc.) that appears on your computer screen. CamStudio is a good free software for that (http://camstudio.org/). As to uploading and sharing... I'm sure there's a good way to do it. As others have mentioned, youtube might be difficult due to copywrite stuff. I'm pretty sure there's a way to upload videos and share them so only people with a link can access them -- in other words, it's not open to the public. This might be a possible solution? Just brainstorming.
John21 and B_Jim, I will be getting a dvd copy of the show after it airs. Once I do, I'll see if I can try to get it to those of you who want to see it! Or somehow upload it. Thanks!
I was taking various types of antidepressants including SSRI, SNRI and IMAO, which made things much worse (so I coldturkeyed them in November '10 and since then I've still been experiencing some protracted withdrawal symptoms, although I feel way better now).
4.) occasional nerve & muscle pain + numbness throught the whole body (this is really mild and I don't find it much important)
I've started a reserarch of possible causes - with the help of google. Lupus, MS, Adrenal fatigue, Hypothyroidism, brain lesions, nutritional deficiency, Hypoglycemia, Celiac disease, Lyme, bizzare ones like Chronic fatigue syndome or Fibromyalgia, Leaky gut syndrome and POIS.
I would really appriciate some tips or advices from all of you experiencing similar symptoms and states of mind.
I would like to provide more info on my recent experience. I had a week of brain fog which wasn't attached to sexual activity, as my latest NE was almost four weeks ago. It is unusual for me to have such a fog outside of POIS. Two item come to mind on what might have been involved in the fog lifting:1 Milk I always have yogurt with my berries nightly, but on that foggy week I had been eating a different kind, "Greek yogurt" which is higher in protein. The fog seemed to start around the time that I started eating this type of yogurt, and it also ended the day after I hadn't eaten any. The reason that I make this possible connection is that giving up milk products was the first thing that helped my POIS years ago. I had been testing the waters with yogurt for a long time. If it contributed to minor POIS I put up with it because I like it so much. So what is in milk protein that might be messing me up mentally? This idea has been discussed in the past here, I remember that opiate peptides were a possible cause of such a reaction.2 Vitamin DThe other thing that I did on the day before the fog lifted was to consume a couple of vitamin D pills (1000mg?). I used to take one of these daily but fell out of the habit a while ago.My suspicion is that the yogurt is the most likely, as it's consumption fit the period directly. And if my D was low would a couple of pills make that much difference that fast? So I have switched to a soy based yogurt (which doesn't taste as good but oh well), and I'll probably start back on daily D. Even if it isn't a contributing factor it is supposed to be a good thing to take for general health.
Quote from: John21 on 15/05/2011 20:23:33I would like to provide more info on my recent experience. I had a week of brain fog which wasn't attached to sexual activity, as my latest NE was almost four weeks ago. It is unusual for me to have such a fog outside of POIS. Two item come to mind on what might have been involved in the fog lifting:1 Milk I always have yogurt with my berries nightly, but on that foggy week I had been eating a different kind, "Greek yogurt" which is higher in protein. The fog seemed to start around the time that I started eating this type of yogurt, and it also ended the day after I hadn't eaten any. The reason that I make this possible connection is that giving up milk products was the first thing that helped my POIS years ago. I had been testing the waters with yogurt for a long time. If it contributed to minor POIS I put up with it because I like it so much. So what is in milk protein that might be messing me up mentally? This idea has been discussed in the past here, I remember that opiate peptides were a possible cause of such a reaction.2 Vitamin DThe other thing that I did on the day before the fog lifted was to consume a couple of vitamin D pills (1000mg?). I used to take one of these daily but fell out of the habit a while ago.My suspicion is that the yogurt is the most likely, as it's consumption fit the period directly. And if my D was low would a couple of pills make that much difference that fast? So I have switched to a soy based yogurt (which doesn't taste as good but oh well), and I'll probably start back on daily D. Even if it isn't a contributing factor it is supposed to be a good thing to take for general health. There's a Greek yogurt marketed here (don't know if it's really Greek, but the name is something like "Greek Yogurt") which is supposed to be really creamy. Honestly listed in the contents "in small print" is high cream content! So as you imply, all yogurt isn't "all yogurt".We're not all alike, but I have had some negative experience with milk more recently, although mild. I have to mention again, that my symptoms are more physical than cognitive, so perhaps milk could have greater effect over the cognitive.Most likely it's the combination of the two. Maybe we can't cure POIS this way, but we sure can make it somewhat more livable.
Thanks Hurray. Some people will think this subject is disruptive but in my opinion is very important to discuss to increase our chance to attract more cases, so potentially more interest from researchers. I remember how Dr Waldinger was impressed by our number of cases. I think it's great you help with this. I agree with you for duplicate content, what decided me to post about it was to prevent copying entire pages and because Google said they want to keep some quality for the users who are forced to read two times the same thing so I had a little doubt. I'm sure you know that the exact ways search engines are managing rankings is somewhat secret so it's hard to be perfect.Yes forums with low pagerank are indexed and I think they won't appear first in the results compared with best PR, even for Google, the web is big.. If an other topic at TNS is 4 then we can do it too by following your suggestions, we are 3/10! But it's not only pagerank. Keywords are important, if someone talk about Lyme disease in the new forum and not here, then maybe for the next two years we'll fail to attract new POIS cases who have Lyme disease and who could help us with treatments as well. I know we must start somewhere but indexing should be done asap.I agree with you 110% for what you say about the new forum and I'm now reassured it will be indexed because it was not sure at the beginning, I was dismissed several times when trying to discuss about it. I think we definitely need a MAIN forum with more complexity (but not too much!) ---because the way we are discussing here is not adapted:I understand we should have the discussions topic after topic rather than posts after posts in one topic, this has many advantages:e.g: we can come back easily on unanswered points - There's a search functionality in all SMF forums limited only to the first pages of a topic- More keywords are in the title of the topics page (better for search engines)--- but the question is will everybody post in the new forum? I'll go with the majority.btw we can do polls at forumup.orgPerhaps there would have been serious other places on the web ready to give us a childboard and we can try again here first in case they changed their opinion. There are medical forums, science forums, where we can ask. Like Demo said one day, we can have several churches.This could be a temporary solution the time everything is in place at the new forum. And I really think having our own forum with our own domain name is an advantage if the site represent the majority of the POIS sufferers.About adwords it can be good and can add something but personally I avoid to click on sponsored links to have reliable scientific info. Except maybe if I see "fatigue after orgasm"..
Quote from: Hoping on 14/05/2011 19:02:31Quote from: Animus on 09/05/2011 05:04:20John21 and B_Jim, I will be getting a dvd copy of the show after it airs. Once I do, I'll see if I can try to get it to those of you who want to see it! Or somehow upload it. Thanks!I haven't posted here in a while -- been pretty busy. I just wanted to say that there are several software programs that might help with recording and/or uploading the DVD. You can rip (which basically means "record") the DVD to your hard drive. I use free software called DVD Shrink (http://www.afterdawn.com/software/cd_dvd/copy_dvd/dvd_shrink.cfm) and have never had a problem. You can also do a screen capture, which will record anything (sound, visual, movies, etc.) that appears on your computer screen. CamStudio is a good free software for that (http://camstudio.org/). As to uploading and sharing... I'm sure there's a good way to do it. As others have mentioned, youtube might be difficult due to copywrite stuff. I'm pretty sure there's a way to upload videos and share them so only people with a link can access them -- in other words, it's not open to the public. This might be a possible solution? Just brainstorming. I think these are good ideas. I didn't know about these programs.