[demografx]

Scotty9193, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php [Links inactive - To make links active and clickable, login or click here to register]
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the file for that TV documentary, "Desperate Measures", which can be downloaded and played. The segment starts at about 12:20..
http://www.fileserve.com/file/cUtJa9R/TITLE01.mp4 [Links inactive - To make links active and clickable, login or click here to register]

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/ [Links inactive - To make links active and clickable, login or click here to register]

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

[B_Daniel]

Hi everyone,
I have had my first sexual release in about 18 months apart from a few NE's. Straight away i become more irritable, body starting to ache and an itchy, dirty feeling about my body. Does anyone else get this??
I have to take antidepressant Paroxetine(Seroxat) for my depression and anxiety but i believe it is caused by sexual release. I have tried so hard to beat this with abstinence but it is virtually impossible. I do not know the answer? After so long without sex you would think i would be cured! I even sometimes have itchy hive type spots on my neck of all places which says it is an allergy of some sort. I just feel so helpless as its such an embarassing condition.

Scooby - do you feel good during most of that 18 months?  BC if so your abstinence DOES beat it - as miserable as that abstinence may be

[B_Daniel]

....Meanwhile, elevated testosterone can suppress oxytocin and vasopressin..."

As Demo showed before, the testosterone patches speed up his recovery, this might of had something to do with it's relationship to oxytocin and vasopressin.

Hey Scott, thanks for posting!  So testosterone and oxytocin ARE correlated.  However, if testosterone (good at reducing POIS) goes up when oxytocin goes down (bad for us), then it appears as if their relationship is the INVERSE of what we'd expect to see.

I found over a period of time researching oxytocin, prolactin, dopamine, and serotonin, that although they share a strong relationship with our symptoms, they just can't be at the core of our problems.  There are just too many discrepancies that I found.  Like, for instance, caffeine makes me feel better on POIS days.  But caffeine raises prolactin levels, not reduces them.  One other big tell all for me is that I've tried every anti-depressant out there.  The anti-depressants specifically adjust my dopamine and serotonin levels - But that didn't make me feel any better... although garlic did.  I know garlic didn't just boost my serotonin more dramatically then ________ (fill in anti-depressant name here). 

I don't know.  Those are my thoughts on that.  Not to say I couldn't be completely wrong though.

And about the hypoglycemic stuff, I wouldn't doubt AT ALL that the pois gives me low blood sugar.  There is definitely a relationship btwn the two.  Just look at B_Jim's healthy diet - it's a diet that prevents hypoglycemia (i believe), and it dually helps reduce his pois symptoms.  Once again though, that might be a component of our symptoms, but i just have trouble believing that that could be a root cause of it all.  Because if that were the case then a sandwich and a nap would cure me  []

[demografx]

IF YOU DID NOT RECEIVE THIS IN YOUR EMAIL RECENTLY, KINDLY LET ME OR DAVEMAN KNOW. THANX!!

[EDS]

I tried the Niacin test before my most recent "O".
I have to say that it seems to help! I is not 100%, but I would rate it at around 50%... possibly more.
I took 250mg 1 hr before "O" and about 1 hr after a large evening meal. I did not feel the "flush" so I did not know if it would help and was wondering if I had the right form of Niacin. I could not find a bottle that listed Nicotinic Acid - only Niacin as the active ingredient. But the label did have the "flush" warning so I assumed it was the right stuff.

I got up the next morning and felt okay (although my worst day is usually day 2) and ate a small breakfast (cereal). Soon after eating I took another 250mg tablet. Nothing happened for about an hour so I thought for sure I had the wrong form of Niacin. Then it hit... hard. The "flush" was very intense, starting at the top of my head and working down to my toes. This is not a good feeling! My skin turned very red and my blood pressure went up - not to a dangerous level, but elevated above my normal BP for morning. I had to get in the pool to help offset the intense heat for about 20 minutes. It took about an hour for the symptoms to subside. I know the hot flush is suppose to be normal, but it was not a good experience  [!] (this is about the color I was too).

The great news is... I had one of the best second and third days from "O" than I've had in a long time  []. I understand that the "flush" is less intense each time you take Niacin. I don't fully understand why it did not "flush" the first time, unless it was the large meal prior, which caused a very slow ingestion rate of the Niacin.

So do we really have to feel the flush or does it still help if you take it after a large meal? Or, is the one in the am where I felt the intense flush the one that helped the most? More experimentation  []. 

At any rate, I will definitely try Niacin the next time and hope for the same good results and less burning.

Keep up the good work all and let's get OUR NORD fund FULLY funded!!!!

[daveman]

From what we've been learning, it seems the flush is helpful, if not required. And I was JUST reading on Niacin, they recommend taking it on a full stomach to reduce the effect of the flush.

The flush doesn't need to be as strong as it was with your second dose. If you can try a lower dose, maybe half, it would be a good starting point, and take it before food intake.

Victor indicates that the flush should be present and then just pass before the "O".

[daveman]

For those who did not receive the last newsletter, you can read it at http://poiscenter.com/newsletters/NL-2.htm [Links inactive - To make links active and clickable, login or click here to register]

I will be posting them there as they also go out by mail. this way if we find anything of value that we can pass on to others, they will be available on the WEB.

[Laura_L]

I'm a journalist interested in doing a story on POIS for a major men's magazine. For it, I'm looking for a few men who would be willing to go on the record and talk about their experience with the disease. (You can remain anonymous, if you'd like.) If you're interested in being interviewed or have questions about the story, please email me at laura.leu@gmail.com

[apostate801]

Is Niacin to be taken only when you know you'll orgasm?  If you're already POISed, will taking it alleviate the symptoms?  If you take it regularly and O 6 hours after your last dosage will that help? 

[jivetalk]

Is Niacin to be taken only when you know you'll orgasm?  If you're already POISed, will taking it alleviate the symptoms?  If you take it regularly and O 6 hours after your last dosage will that help? 

Is Niacin to be taken only when you know you'll orgasm?  If you're already POISed, will taking it alleviate the symptoms?  If you take it regularly and O 6 hours after your last dosage will that help? 

Hi Apostate,

These are some very good questions. From my experience taking Niacin whilst in POIS does little to alleviate symptoms. As far as taking it regularly, I don't think this will help - All this seems to do is increase your resistance to Niacin making it harder to get a 'flush' when you need it.

The way to use Niacin that seems most effective is to take a dosage of Niacin (I have been taking 300mg) about 45 minutes-60minutes prior to orgasm. You should feel a 'Flush' and let it pass before you O. The Amount of time before the flush, and duration Flush seems to vary depending on how much food is in your stomach.

We are very much in the early stages of testing Niacin, but my results and some others on here have been very promising. Please remember to talk to your health professional before taking Niacin - Yes it is readily available and just a Vitamin Supplement but it can interfere with other medicines and can damage the liver.

If you do try Niacin - Please post your results here, Good or Bad - This will certainly contribute to this groups further understanding.

JT.

[jivetalk]

I tried the Niacin test before my most recent "O".
I have to say that it seems to help! I is not 100%, but I would rate it at around 50%... possibly more.
I took 250mg 1 hr before "O" and about 1 hr after a large evening meal. I did not feel the "flush" so I did not know if it would help and was wondering if I had the right form of Niacin. I could not find a bottle that listed Nicotinic Acid - only Niacin as the active ingredient. But the label did have the "flush" warning so I assumed it was the right stuff.

I got up the next morning and felt okay (although my worst day is usually day 2) and ate a small breakfast (cereal). Soon after eating I took another 250mg tablet. Nothing happened for about an hour so I thought for sure I had the wrong form of Niacin. Then it hit... hard. The "flush" was very intense, starting at the top of my head and working down to my toes. This is not a good feeling! My skin turned very red and my blood pressure went up - not to a dangerous level, but elevated above my normal BP for morning. I had to get in the pool to help offset the intense heat for about 20 minutes. It took about an hour for the symptoms to subside. I know the hot flush is suppose to be normal, but it was not a good experience  [!] (this is about the color I was too).

The great news is... I had one of the best second and third days from "O" than I've had in a long time  []. I understand that the "flush" is less intense each time you take Niacin. I don't fully understand why it did not "flush" the first time, unless it was the large meal prior, which caused a very slow ingestion rate of the Niacin.

So do we really have to feel the flush or does it still help if you take it after a large meal? Or, is the one in the am where I felt the intense flush the one that helped the most? More experimentation  []. 

At any rate, I will definitely try Niacin the next time and hope for the same good results and less burning.

Keep up the good work all and let's get OUR NORD fund FULLY funded!!!!

Thanks for the Report EDS. Great to hear you got some reasonable results first try around. In my experiments I think I seem to get better results based on 'timing', I need to make sure I've had the flush (even if it is minor) before O. But you are right - If I've had a big dinner or something I get very very minor flush or sometimes even none at all.....I just wait about 60 minutes, and by then its usually okay.

Please keep letting us know how you go.

JT

[daveman]

Is Niacin to be taken only when you know you'll orgasm?  If you're already POISed, will taking it alleviate the symptoms?  If you take it regularly and O 6 hours after your last dosage will that help? 

Apostate801,

There's lot's of information on our other forum of the Niacin experiments at:
http://poiscenter.com/forums/index.php?topic=174.0 [Links inactive - To make links active and clickable, login or click here to register]

Basically it is best taken about an hour before "O". A dosages of somewhere around 150 to 300 mg (experiment beforehand with the smaller dose to see how you react to the flush).
Taken after the "O", has much less effect.
Taking it regularly seems to reduce the effectivity, as it seems to desensitize rather than strengthen the effect.

[daveman]

FYI

 [ Invalid Attachment ]

[victor.kons]

Hi All,

I continue experiments with Niacin Acid tablets. Seems the effect is stable for me, e.g. no POIS symptoms if tablets are taken 1 hour before "O" in dosage of 150 mg. I've tried this trick 3 times so far, and every time - no POIS.

Warning! Taking Niacin in high doses might cause damage to your liver, please consult with your doctor first

Victor

[demografx]

FYI

 [ Invalid Attachment ]

"Is it my breath???"

[demografx]

C'mon...someone give $5...it'll still be progress!
http://www.rarediseases.org/about/support/research-donations/fg_base_view_p3 [Links inactive - To make links active and clickable, login or click here to register]

[demografx]

I'm a journalist interested in doing a story on
POIS for a major men's magazine. For it, I'm looking for a few men who would be willing to go on the record and talk about their experience with the disease. (You can remain anonymous, if you'd like.) If you're interested in being interviewed or have questions about the story, please email me at laura.leu@gmail.com

Thank you, Laura, and welcome to The POIS Forums!

[ophicus1213]

I have been taking Niacin for over a year now and have been benefiting greatly from it.  I have extended into the higher doses above three grams per day.  If anyone is interested I would suggest looking into a disorder called B3 dependency.  I will be attaching some quality articles I have found about the potential for Niacin to be used in clinical settings to treat anxiety. 

http://www.orthomolecular.org/library/jom/2004/pdf/2004-v19n02-p104.pdf [nofollow]

http://orthomolecular.org/library/jom/2005/pdf/2005-v20n03-p167.pdf [nofollow]

[demografx]

ophicus1213, thank you very much for your encouraging reporting!

demo

[victor.kons]

I have been taking Niacin for over a year now and have been benefiting greatly from it.  I have extended into the higher doses above three grams per day.  If anyone is interested I would suggest looking into a disorder called B3 dependency.  I will be attaching some quality articles I have found about the potential for Niacin to be used in clinical settings to treat anxiety. 

http://www.orthomolecular.org/library/jom/2004/pdf/2004-v19n02-p104.pdf [Links inactive - To make links active and clickable, login or click here to register]

http://orthomolecular.org/library/jom/2005/pdf/2005-v20n03-p167.pdf [Links inactive - To make links active and clickable, login or click here to register]

Thank you ophicus1213, the papers are very interesting.

Btw, I noticed that jumping to high doses of Niacin Acid from the start is not good and it can cause negative response from liver and heart. But if you continue smoothly increasing dose, the body somehow adapts to it and there is no any discomfort even from the doses that caused terrible effects at the start.

Victor

[demografx]

Just posted at Men's Health UK
(posted by MHUK forum member "poisissue")

Subject: Post Orgasmic Illness Syndrome

I have been suffering from this condition for a few years now.

The conditions symptons first start after an orgasm from having sex or masturbation. The symptons that last for 1-2 days (in my case) will usually include, lack of concentration/focus (Brain Fog),lethargy, headache, mylagia (muscle pain/weakness), anxiety, irratability, low ebb, etc.
Just thought i'd put it out on here to see if there are any other unfortunate sufferers on here and to make aware that i recently typed this problem into a search engine online, found a forum for it, and was surprised how many other victims there were of this rubbish condition. Because there has so far not been a great deal of awareness or publicity aimed at this condition, only very limited research has been made into it, which in turn has not led to validated treatment medication.
Guys on the forum i found, were trying out different types of medicines, practices pre and post orgasm to try and find a cure. Basically experimenting stuff for themselves, then posting their results. It would be good if anyone on here could give any results of their own experiences etc, or guys out there who thought they were the only ones with this condition can be made aware that they are far from alone.


I hope this can lead to better things and appreciate all comments (Good of course, not crass) put forward.

And just to inform all that the symptons i have are post having sex with my FEMALE partner, and that i am besides this condition, a generally fit healthy guy, with a normal stable mind, as are most of the other peeps on the forum i have been on.......

[daveman]

I have been taking Niacin for over a year now and have been benefiting greatly from it.  I have extended into the higher doses above three grams per day.  If anyone is interested I would suggest looking into a disorder called B3 dependency.  I will be attaching some quality articles I have found about the potential for Niacin to be used in clinical settings to treat anxiety. 

http://www.orthomolecular.org/library/jom/2004/pdf/2004-v19n02-p104.pdf [Links inactive - To make links active and clickable, login or click here to register]

http://orthomolecular.org/library/jom/2005/pdf/2005-v20n03-p167.pdf [Links inactive - To make links active and clickable, login or click here to register]

Thank you ophicus1213, the papers are very interesting.

Btw, I noticed that jumping to high doses of Niacin Acid from the start is not good and it can cause negative response from liver and heart. But if you continue smoothly increasing dose, the body somehow adapts to it and there is no any discomfort even from the doses that caused terrible effects at the start.

Victor

If it can work at 150-300 mg just before orgasm, why would you take it daily to raise the threshold and dose to such high values?

Taking it less often (as little as possible) avoids raising the dose to such levels.

[jivetalk]

Hi All,

I continue experiments with Niacin Acid tablets. Seems the effect is stable for me, e.g. no POIS symptoms if tablets are taken 1 hour before "O" in dosage of 150 mg. I've tried this trick 3 times so far, and every time - no POIS.

Warning! Taking Niacin in high doses might cause damage to your liver, please consult with your doctor first

Victor

Hi Victor, Thanks for the continuing reports. I am the same, If I continue to take Niacin my symptoms are much less that I would if I did not take the Niacin prior to O. I am still taking 300mg at the moment.

Just a note: One time, after I had just had a meal, I took 300mg. I could not tell if or when I had a flush and lost track of time. I think I only waited 30 minutes or so before I. That time, my POIS symptoms returned to their usual state which lasted a few days. I have learnt now to wait about 60 minutes like you so before O.

It does seem this has everything to do with timing, and that timing also depends on if you have a full stomach or not.

JT

[daveman]

I have read as well that taking Niacin just after a meal, reduces the flush. So you had both going against you. Victor had noted that it seems to work best, with a flush, and the flush should at least begin to subside before the "O".

[victor.kons]

I have been taking Niacin for over a year now and have been benefiting greatly from it.  I have extended into the higher doses above three grams per day.  If anyone is interested I would suggest looking into a disorder called B3 dependency.  I will be attaching some quality articles I have found about the potential for Niacin to be used in clinical settings to treat anxiety. 

http://www.orthomolecular.org/library/jom/2004/pdf/2004-v19n02-p104.pdf [Links inactive - To make links active and clickable, login or click here to register]

http://orthomolecular.org/library/jom/2005/pdf/2005-v20n03-p167.pdf [Links inactive - To make links active and clickable, login or click here to register]

Thank you ophicus1213, the papers are very interesting.

Btw, I noticed that jumping to high doses of Niacin Acid from the start is not good and it can cause negative response from liver and heart. But if you continue smoothly increasing dose, the body somehow adapts to it and there is no any discomfort even from the doses that caused terrible effects at the start.

Victor

If it can work at 150-300 mg just before orgasm, why would you take it daily to raise the threshold and dose to such high values?

Taking it less often (as little as possible) avoids raising the dose to such levels.

Yes, Dave, I'm taking it as less often as possible, by high doses I meant 150 mg. As you remember the first dose I took was 100mg and I felt terrible, my liver and heart started to go crazy. But now with 150mg dose I feel just fine. So, I just recommend to take your time and let your body adapt to Niacin a bit, before making decision that Niacin is not a good fit for you.

Victor

[victor.kons]

Btw, forgot to say. I tried having 2 - 3 O's after taking 150mg in Niacin Acid tablets and had no POIS after that. Seems effect of niacin lasts for many hours.

Victor

[scooby]

Does anyone think we may have underlying infectios of our immune or nervous systems?
When we orgasm it aggravates the infection. Some people may have lyme disease or parasite infection.

[demografx]

Btw, forgot to say. I tried having 2 - 3 O's after taking 150mg in Niacin Acid tablets and had no POIS after that. Seems effect of niacin lasts for many hours.

Victor

Wow!!!

[demografx]

We started a POIS Research Fund to boost our final and fatal attack on The POIS Monster! Explained here:
http://poiscenter.com/forums/index.php?topic=125.0 [Links inactive - To make links active and clickable, login or click here to register]

We raised nearly $3,000 with more pledged, but we need $33,500. Please give today so we can get rid of POIS once and for all!

Please go to the POIS Fund donation site - NOW - and Let's Make It Happen, Everybody!
http://rarediseases.org/about/support/research-donations [Links inactive - To make links active and clickable, login or click here to register]

[B_Daniel]

We started a POIS Research Fund to boost our final and fatal attack on The POIS Monster! Explained here:
http://poiscenter.com/forums/index.php?topic=125.0 [Links inactive - To make links active and clickable, login or click here to register]

We raised nearly $3,000 with more pledged, but we need $33,500. Please give today so we can get rid of POIS once and for all!

Please go to the POIS Fund donation site - NOW - and Let's Make It Happen, Everybody!
http://rarediseases.org/about/support/research-donations [Links inactive - To make links active and clickable, login or click here to register]

Sorry to embarass the 3 recent, generous donors: Ccconfucius, rjmlr, and Observer.  I just wanted to point out to Demografx that 3 members have already just answered your call!  I've highlighted them RED in the table of all our donations so far.  Also, it's nice to see the 'Pledge' table growing so large.  Once we get to the point when our Actual Donations + Pledges = $33,500, all of us with outstanding pledges can finalize those donations and we can make this much needed research a reality.  Here's a list of our donations and pledges to date:


       MONEY DONATED TO NORD
Donor                                      Given ($)
Demografx                                250                        
Animus                                     100
EDS                                          100                    
B_Daniel                                    500                    
Rock27                                      1,000
Martin88                                    100                          
Hoping                                       unspecified
John21                                      100
Habibou                                     100                                    
Ccconfucius                                50  
ACTUAL NORD TOTAL   $2,685

                   PLEDGED
Donor                                     Pledged ($)
Demografx                                unspecified
Limejuice                                  1,000
Rock27                                     unspecified
Green                                       500
Vandemolen3                            unspecified
EDS                                          900
B_Daniel                                    4,500        
Habibou                                     unspecified                  
Counterpoints                             unspecified
jivetalk                                       100
Ccconfucius                                450
rjmlr                                          100
Observer                                    100[/u]  
Atleast $7,650 more!

[pois1]

Hello,

I'm new to this site and just found out that there is such a thing as POIS.  I thought maybe I was the only one in the world.

Does anyone have a list of doctors who will test for semen allergy?  What treatment options are available now?  Are there any studies being conducted where they are recruiting new patients?

Besides semen allergy treatment, are there any other types of treatments available?

[Counterpoints]

As has been usual this past year, it seems there has been a lot of good progress since my last visit!  I want to bring up a topic that has recurred now and then, but hasn't had a full fledged discussion.

In short, I think POIS (possibly for many of us) is a type of addiction.  It results from unusual connections made in the brain, around the age of puberty, stemming from a pronounced response to sexual stimuli.  This has caused us to be 'addicted' to sexual stimulation, and has disrupted the normal neurochemical response to orgasm.  The susceptibility to this problem is likely genetic, and can be triggered by our environment.  Perhaps it is also a result of a physical brain abnormality (e.g. pituitary adenoma).  Now here's my (longer) observations:

- When I was 12, I first discovered internet pornography.  While I had not achieved orgasm up until that point, and would not for another 1.5 years, I found myself very mentally stimulated by the images.  And since there was the internet, there was a limitless supply.  I was looking at very 'normal' pornography (e.g. playboy type material), but I could tell within months that I was addicted.  I was spending a lot of time looking, and at times when I went on the internet, I would feel the almost uncontrollable urge to look at pornography.  My reasoning, as a 12 year old, was that although I felt addicted, I was not ingesting any dangerous chemical -- it was just a natural response to something -- so I was not going to physically harm myself like a normal drug addict might.  Nonetheless, I felt guilty and basically gave up pornography, with a few notable lapses, until I could achieve orgasm 1.5 years later, at which pointed I resumed my pornography use.

- Now I note that when I see pornography, my response to orgasm is altered, and even if I do not have orgasm, I will feel very stunned after looking at pornography -- poor short term memory, difficult focusing, etc.  It feels like I have been bumped on the head very hard.  I also notice that if I go without orgasm for over 8 days, I end up with similar problems.  And I am still very much addicted.  Though I do not view pornography more than once a week (and usually less than once every couple months), the urge is still there.  I even notice that if I do look at pornography, sometimes I will develop a tremor.

Unfortunately there is a stigma attached to something like pornography addiction.  Probably there is some assumption that anyone who would be 'addicted' is perverted, etc.  This is of course rubbish.  These days younger generations probably look at pornography quite regularly -- much more regularly than I do despite my addiction -- because of its wide accessibility.  I also have reasonably normal sexual tastes.

So please tell me if you relate to this story at all. 

[Counterpoints]

Has anyone noticed that POIS affects their metabolism?  When I am OUT of POIS, I get hungry very easily, especially if I eat any sweet food.  When I am IN POIS, my metabolism appears more normal.  I do not get hungry easily, and sweet foods do not make me especially hungry.

This has been noticeable for the past 8 years or so.

[Kingkong]

I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

[demografx]

pois1, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php [Links inactive - To make links active and clickable, login or click here to register]
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the file for that TV documentary, "Desperate Measures", which can be downloaded and played. The segment starts at about 12:20..
http://www.fileserve.com/file/cUtJa9R/TITLE01.mp4 [Links inactive - To make links active and clickable, login or click here to register]

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/ [Links inactive - To make links active and clickable, login or click here to register]

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

[demografx]

We started a POIS Research Fund to boost our final and fatal attack on The POIS Monster! Explained here:
http://poiscenter.com/forums/index.php?topic=125.0 [Links inactive - To make links active and clickable, login or click here to register]

We raised nearly $3,000 with more pledged, but we need $33,500. Please give today so we can get rid of POIS once and for all!

Please go to the POIS Fund donation site - NOW - and Let's Make It Happen, Everybody!
http://rarediseases.org/about/support/research-donations [Links inactive - To make links active and clickable, login or click here to register]

Sorry to embarass the 3 recent, generous donors: Ccconfucius, rjmlr, and Observer.  I just wanted to point out to Demografx that 3 members have already just answered your call!  I've highlighted them RED in the table of all our donations so far.  Also, it's nice to see the 'Pledge' table growing so large.  Once we get to the point when our Actual Donations + Pledges = $33,500, all of us with outstanding pledges can finalize those donations and we can make this much needed research a reality.  Here's a list of our donations and pledges to date:


        MONEY DONATED TO NORD
Donor                                      Given ($)
Demografx                                250                       
Animus                                     100
EDS                                          100                   
B_Daniel                                    500                   
Rock27                                      1,000
Martin88                                    100                           
Hoping                                       unspecified
John21                                      100
Habibou                                     100                                   
Ccconfucius                                50    
ACTUAL NORD TOTAL   $2,685

                   PLEDGED
Donor                                     Pledged ($)
Demografx                                unspecified
Limejuice                                  1,000
Rock27                                     unspecified
Green                                       500
Vandemolen3                            unspecified
EDS                                          900
B_Daniel                                    4,500       
Habibou                                     unspecified                   
Counterpoints                             unspecified
jivetalk                                       100
Ccconfucius                                450
rjmlr                                          100
Observer                                    100[/u] 

Atleast $7,650 more!

B_Daniel, thank you so much for this most encouraging post!!!

[demografx]

Hi, my name is Katie and I spoke with Daveman and Demografx last week about a documentary series we are working on.  We’re looking for someone with POIS to participate and share their story on camera.  Please contact me if you are interested or have any questions: Katie.sciortino@gmail.com.  I look forward to hearing from you.
Thanks!

[demografx]

I'm a journalist interested in doing a story on POIS for a major men's magazine. For it, I'm looking for a few men who would be willing to go on the record and talk about their experience with the disease. (You can remain anonymous, if you'd like.) If you're interested in being interviewed or have questions about the story, please email me at laura.leu@gmail.com

[demografx]

Demografx, I didn't receive your mail that every one must receive from you. Thank you.

Kingkong, I hope this is the mail that you are referring to: welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php [Links inactive - To make links active and clickable, login or click here to register]
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the file for that TV documentary, "Desperate Measures", which can be downloaded and played. The segment starts at about 12:20..
http://www.fileserve.com/file/cUtJa9R/TITLE01.mp4 [Links inactive - To make links active and clickable, login or click here to register]

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/ [Links inactive - To make links active and clickable, login or click here to register]

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

[victor.kons]

I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi Kingkong,

Thank you for your report! I'm glad that Niacin helps you too.

From what you write it looks like you are taking too much Niacin after O, whereas the point is to take the minimum _necessary_ dose of Niacin _prior_ to O so that you don't have to take any Niacin after O, because taking Niacin after O has far less effect. You said that you wait 30 minutes, sounds like too short time before O. After taking niacin pills we usually wait 60 minutes, you should feel the flush and let it starting go away before you have the O.

Victor

[jivetalk]

I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi King Kong, that is FANTASTIC News. I am very glad Niacin is working well for you - As Victor noted, one of the key things which we need to try and do is to reduce the amount of Niacin being taken.

Having said that, I also feel I need to take Niacin for the following couple of days in order to avoid going deeper into POIS. If I take Additional Niacin I feel POIS around 5-10% like yourself, if I don't I can sometimes feel it a lot stronger 30%-40%

It is obviously VERY Early days in the Niacin testing - But your results and reporting is very very exciting.

JT

[Kingkong]

Hi Demographx,

I'M talking about the mail that you post the 3/08/2011.
Posts: 6255
View Profile Personal Message (Offline)
Link to this post 364044
03/08/2011 07:11:08 »
IF YOU DID NOT RECEIVE THIS IN YOUR EMAIL RECENTLY, KINDLY LET ME OR DAVEMAN KNOW. THANX!!

[jivetalk]

I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi Kingkong,

Thank you for your report! I'm glad that Niacin helps you too.

From what you write it looks like you are taking too much Niacin after O, whereas the point is to take the minimum _necessary_ dose of Niacin _prior_ to O so that you don't have to take any Niacin after O, because taking Niacin after O has far less effect. You said that you wait 30 minutes, sounds like too short time before O. After taking niacin pills we usually wait 60 minutes, you should feel the flush and let it starting go away before you have the O.

Victor

Hi Victor, As you know I've been taking 300mg for a little while now - and I can barely feel the Flush anymore if I take it at night (after dinner). (I can feel it if I take it on an empty stomach in the morning)

When you take 150mg especially after food - Do you still feel the Flush at all? or do you Just time it, and ensure that you O at least 60 minutes after Niacin?

[Kingkong]

I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi King Kong, that is FANTASTIC News. I am very glad Niacin is working well for you - As Victor noted, one of the key things which we need to try and do is to reduce the amount of Niacin being taken.

Having said that, I also feel I need to take Niacin for the following couple of days in order to avoid going deeper into POIS. If I take Additional Niacin I feel POIS around 5-10% like yourself, if I don't I can sometimes feel it a lot stronger 30%-40%

It is obviously VERY Early days in the Niacin testing - But your results and reporting is very very exciting.

JT

Victor and Jivetalk, thank you for your good advice. I will follow your advice.For all these year I suffered of this desease and after everything that I have tried to fight POIS, it's the first time that I have a result. Also, I have clothe allergy and I think that NIACIN is helping me. I don't undestand why but it's seems to help. Maybe it's placebo effect but I will see in the futur if it's that so.

[jivetalk]

I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi King Kong, that is FANTASTIC News. I am very glad Niacin is working well for you - As Victor noted, one of the key things which we need to try and do is to reduce the amount of Niacin being taken.

Having said that, I also feel I need to take Niacin for the following couple of days in order to avoid going deeper into POIS. If I take Additional Niacin I feel POIS around 5-10% like yourself, if I don't I can sometimes feel it a lot stronger 30%-40%

It is obviously VERY Early days in the Niacin testing - But your results and reporting is very very exciting.

JT

Victor and Jivetalk, thank you for your good advice. I will follow your advice.For all these year I suffered of this desease and after everything that I have tried to fight POIS, it's the first time that I have a result. Also, I have clothe allergy and I think that NIACIN is helping me. I don't undestand why but it's seems to help. Maybe it's placebo effect but I will see in the futur if it's that so.

KingKong, I know the feeling. I have also been a long time POIS sufferer so the relief that comes from Niacin is AMAZING. I'm on day 1 now and took 100mg of Niacin earlier when I felt POIS was coming on, and I'm only feeling POIS about 5% now.

Because Niacin as a defence against POIS is new to us at the moment, one of the things I will be doing is talking to my doctor about how Much Niacin I'm taking. Even if he is not convinced about POIS, I will ask him to monitor the effects of NIACIN on my body, especially my liver. I would certainly suggest doing the same.

I'm convinced that this is NOT Placebo, I've tried many other things with nothing like what I am getting from Niacin.

Please keep us posted on your progress, especially when you're convinced its not a Placebo.

JT

[demografx]

Hi Demographx,

I'M talking about the mail that you post the 3/08/2011.
Posts: 6255
View Profile Personal Message (Offline)
Link to this post 364044
03/08/2011 07:11:08 »
IF YOU DID NOT RECEIVE THIS IN YOUR EMAIL RECENTLY, KINDLY LET ME OR DAVEMAN KNOW. THANX!!

Kingkong, sorry for the confusion. The link below is what was mailed, and I will notify daveman that you did not receive it and we will make certain that you are included on future emails.

For those who did not receive the last newsletter, you can read it at
http://poiscenter.com/newsletters/NL-2.htm [Links inactive - To make links active and clickable, login or click here to register]

I will be posting them there as they also go out by mail. this way if we find anything of value that we can pass on to others, they will be available on the WEB.

[victor.kons]

I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi Kingkong,

Thank you for your report! I'm glad that Niacin helps you too.

From what you write it looks like you are taking too much Niacin after O, whereas the point is to take the minimum _necessary_ dose of Niacin _prior_ to O so that you don't have to take any Niacin after O, because taking Niacin after O has far less effect. You said that you wait 30 minutes, sounds like too short time before O. After taking niacin pills we usually wait 60 minutes, you should feel the flush and let it starting go away before you have the O.

Victor

Hi Victor, As you know I've been taking 300mg for a little while now - and I can barely feel the Flush anymore if I take it at night (after dinner). (I can feel it if I take it on an empty stomach in the morning)

When you take 150mg especially after food - Do you still feel the Flush at all? or do you Just time it, and ensure that you O at least 60 minutes after Niacin?

I still feel some flush, but it is much less stronger than before. And I ensure that I have first O at least 60 minutes after Niacin.

Victor

[demografx]

I'm in POIS too, so I could only come up with this idea for a T-shirt:






If you're curious about the above, see the discussion which starts with B_Daniel's post at:
http://poiscenter.com/forums/index.php?topic=125.msg2156#msg2156 [Links inactive - To make links active and clickable, login or click here to register]   []

[jivetalk]

I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi Kingkong,

Thank you for your report! I'm glad that Niacin helps you too.

From what you write it looks like you are taking too much Niacin after O, whereas the point is to take the minimum _necessary_ dose of Niacin _prior_ to O so that you don't have to take any Niacin after O, because taking Niacin after O has far less effect. You said that you wait 30 minutes, sounds like too short time before O. After taking niacin pills we usually wait 60 minutes, you should feel the flush and let it starting go away before you have the O.

Victor

Hi Victor, As you know I've been taking 300mg for a little while now - and I can barely feel the Flush anymore if I take it at night (after dinner). (I can feel it if I take it on an empty stomach in the morning)

When you take 150mg especially after food - Do you still feel the Flush at all? or do you Just time it, and ensure that you O at least 60 minutes after Niacin?

I still feel some flush, but it is much less stronger than before. And I ensure that I have first O at least 60 minutes after Niacin.

Victor

Thanks Victor

[daveman]

I'm in POIS too, so I could only come up with this idea for a T-shirt:






If you're curious about the above, see the discussion which starts with B_Daniel's post at:
http://poiscenter.com/forums/index.php?topic=125.msg2156#msg2156 [Links inactive - To make links active and clickable, login or click here to register]   []

Can someone look up what it costs to print 100 T-Shirts, let's say just one color, this one above as an example?

I'm in Chile, a quote here wouldn't make sense. One from the US maybe.