Post Orgasmic Illness Syndrome (POIS)

  • 20068 Replies
  • 6523122 Views

0 Members and 1 Guest are viewing this topic.

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14400 on: 24/08/2011 15:11:44 »


Pinhole glasses are good for POIS.



Horizon, can you please elaborate on that?


yep, i get about 50%+ [POIS] relief wearing them..until i take them off


http://en.wikipedia.org/wiki/Pinhole_glasses

That's cool about the pinhole glasses. Makes a lot os sense. When we are in Brain Fog, lessening the confusion aby way possible has got to help.

When I need to read something, or a night when I need to see what time it is, I make a small hole with my fingers, and look through that, much easier to focus.

How does Murphey do it??

*

Offline B_Daniel

  • Sr. Member
  • ****
  • 288
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14401 on: 26/08/2011 06:11:49 »
I wanted to try T-therapy, but to see an endocrinologist you've first got to see your primary and get lab work done.  So I had some blood lab-work performed finally. 

The doc had me get a whole bunch of things tested but there were the only 3 i thought that matter to us.  Here are my results:

Testosterone, serum:         540 ng/dL      Reference interval 249 - 836
Free Testosterone (direct): 13.3 pg/mL    Reference interval 9.3  - 26.5
Vitamin D, 25-Hydroxy:      43.0 ng/mL    Reference interval 32  - 100

So none are low.  The Vitamin D may just be normal bc just 2 weeks prior I had been in the sun for 2 weeks straight.  The testosterone though I was surprised about, given all the discussion we have on this site about pois closely correlating with low T - I had all but assumed mine was low. 

Anyway, so I asked my primary about putting me on T-therapy.  He said NO given my normal levels.  I then asked him to refer me to an endo to discuss this with.  He was hesitant to do so bc he said he greatly advises I dont take an unnecessary risk with T-therapy (he thinks there's a 0% chance it'll help me), but begrudgingly agreed.  I asked him to refer me to one of the best doctors in the area... the supervising physician in UCSF's endocrinology dept, whose name is Dr. Blake Tyrell.  My doctor sent him an email, which he didn't let me see.  But here is Dr. Tyrell's response:   

... I have heard of this once (POIS) before but could find no evidence that it is an endocrine disorder.
Given that his testosterone is 540, I would agree that androgen therapy is not indicated.
So-we would not see him."

I can't say I'm surprised by that.   But I thought I'd share.  I have found an internist who also has a phD in sexology - so I have an appt with that guy in a month.  hopefully that yields better results
« Last Edit: 26/08/2011 06:13:53 by B_Daniel »
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

*

Offline John21

  • Hero Member
  • *****
  • 518
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14402 on: 26/08/2011 10:41:51 »
B.Daniel, I would listen to the docs on that issue, I wouldn't want to mess with T levels if everything appears normal. Have you tried fenugreeek? I have been having no symptoms from my NEs and fenugreek might be the reason why.  I also often try to eat anti-inflammatory foods.  I have been chaste for 3-4 years now so it is also possible that my body is better able to deal with whatever POIS is, but I suspect that this is not the most influential reason,

*

Offline Quasar

  • Sr. Member
  • ****
  • 104
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14403 on: 26/08/2011 12:00:33 »
B.Daniel, I would listen to the docs on that issue, I wouldn't want to mess with T levels if everything appears normal. Have you tried fenugreeek? I have been having no symptoms from my NEs and fenugreek might be the reason why.  I also often try to eat anti-inflammatory foods.  I have been chaste for 3-4 years now so it is also possible that my body is better able to deal with whatever POIS is, but I suspect that this is not the most influential reason,

I've found this about Fenugreek:

"A formulation containing a standardized extract of Trigonella foenum-graecum and minerals was associated with an improvement in libido for 81% of the men in the study, and a 63% improvement in the "quality of sexual performance," compared with no such improvements in the placebo group, according to findings published in Phytotherapy Research.

The study used Gencor’s Testofen® ingredient and was conducted by scientists from Applied Science and Nutrition Pty Ltd, Clinical Trials, Brisbane and the University of Queensland.

The Australian researchers recruited 60 healthy men aged between 25 and 52, and randomly assigned them to receive 600 mg of Testofen per day or placebo for six weeks. None of the men had erectile dysfunction at the start of the study.

In addition to the reported improvements in libido and quality of sexual performance, the researchers noted that 66% of the men in the active intervention group reported improvements in recovery time, 82% reported improvements in general energy and 56% reported improvements in well-being.

It was concluded that Testofen demonstrated a significant positive effect on physiological aspects of libido and may assist to maintain normal healthy testosterone levels.

Commenting on the active ingredients and the mechanism, the researchers note that saponins are probably responsible for these physiological effects. "The mechanisms may be quite complex," they said."

*

Offline Quasar

  • Sr. Member
  • ****
  • 104
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14404 on: 26/08/2011 12:24:21 »
One more thing i'd like to comment: Does anyone have some trouble maintaining eye contact? I have a lot of trouble maintaing it when i am under Pois. I don't know if it's because i don't want people to see that i am not fine (headache, etc.), or if it's because Pois does some brain chemistry changes.

Without Pois i also have some trouble maintaining eye contact, but i don't know if it's because i'm a quite shy person, or because i've got some imbalance, but every additional day without Pois my eye contact improves.
« Last Edit: 26/08/2011 12:27:28 by Quasar »

*

Offline pois1

  • Jr. Member
  • **
  • 11
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14405 on: 26/08/2011 19:02:32 »
Has anyone experienced light sensitivity with POIS?  I get the usual symptoms with POIS but I also tend to immediately get pale and get some sensitivity to light for a day.

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14406 on: 26/08/2011 21:03:21 »

I wanted to try T-therapy, but to see an endocrinologist you've first got to see your primary and get lab work done.  So I had some blood lab-work performed finally. 

The doc had me get a whole bunch of things tested but there were the only 3 i thought that matter to us.  Here are my results:

Testosterone, serum:         540 ng/dL      Reference interval 249 - 836
Free Testosterone (direct): 13.3 pg/mL    Reference interval 9.3  - 26.5
Vitamin D, 25-Hydroxy:      43.0 ng/mL    Reference interval 32  - 100

So none are low.  The Vitamin D may just be normal bc just 2 weeks prior I had been in the sun for 2 weeks straight.  The testosterone though I was surprised about, given all the discussion we have on this site about pois closely correlating with low T - I had all but assumed mine was low. 

Anyway, so I asked my primary about putting me on T-therapy.  He said NO given my normal levels.  I then asked him to refer me to an endo to discuss this with.  He was hesitant to do so bc he said he greatly advises I dont take an unnecessary risk with T-therapy (he thinks there's a 0% chance it'll help me), but begrudgingly agreed.  I asked him to refer me to one of the best doctors in the area... the supervising physician in UCSF's endocrinology dept, whose name is Dr. Blake Tyrell.  My doctor sent him an email, which he didn't let me see.  But here is Dr. Tyrell's response:   

... I have heard of this once (POIS) before but could find no evidence that it is an endocrine disorder.
Given that his testosterone is 540, I would agree that androgen therapy is not indicated.
So-we would not see him."

I can't say I'm surprised by that.   But I thought I'd share.  I have found an internist who also has a phD in sexology - so I have an appt with that guy in a month.  hopefully that yields better results


In my earlier days of testosterone experimentation, I went through a similar thing with my docs, and I just got...ANGRY and aggressive. I DEMANDED testosterone, and talked very emphatically about POIS as if I were a worldwide expert (I was!!).

The fact is: doc's don't know!

It worked. They put me through a lot, but it worked. And now I am on TRT with proper testing and a sympathetic endo.

HOWEVER, THERE ARE RISKS WITH TRT (TESTOSTERONE TREATMENT) AND THEY NEED TO BE UNDERSTOOD BY ANYONE CONTEMPLATING TREATMENT. THE POSSIBLE INABILITY TO RE-START YOUR NATURAL TESTOSTERONE PRODUCTION IF YOU QUIT TRT IS AN IMPORTANT CONSIDERATION.

My hunch (NOT empirically proven fact) is that TRT can help anyone, regardless of testosterone readings.
« Last Edit: 26/08/2011 23:31:20 by demografx »

*

Offline Vincent M

  • Sr. Member
  • ****
  • 285
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14407 on: 26/08/2011 21:04:42 »
To Quasar and pois1: yes other members here have previously mentioned that during POIS light sensitivity is increased, eye contact is more difficult, and anxiety in general as well as social anxiety is increased.

I know I experience all of these things while in POIS.
« Last Edit: 26/08/2011 21:12:06 by Vincent Marcus »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

*

Offline Vincent M

  • Sr. Member
  • ****
  • 285
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14408 on: 26/08/2011 21:09:12 »
This morning, I applied 6 patches at POIS onset, way beyond the normal dose. It might not be the safest thing, but we are guinea pigs in POIS and I'm willing to grow a 3rd ear to help cure this damn stupid disorder!


Demo, it's true it may not be the safest thing. And it seems testosterone therapy may have helped you only because it possibly permanently stopped all sperm production in your body, correct?

I'm just saying that if this is the case then it may not be the best course of treatment for B_Daniel to take at this time in his life. (I'm not sure how old he is)
« Last Edit: 26/08/2011 21:16:34 by Vincent Marcus »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

*

Offline Defsync

  • Sr. Member
  • ****
  • 161
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14409 on: 26/08/2011 21:52:51 »
i am posting this only as a record of failing to deal with this disorder, for future researchers.

i found a girl, and also a new job that required much more intellect and cognitive focus then my last job. Unfortunately, it was becoming apparent that ANY intercourse at all, even where I dont have a full orgasm, was impacting my work. Also this girl was incredible beautiful and sexy, and wanted far more intercourse then I would ever be able to give her.

To her credit, she was willing to continue the relationship with as little intercourse as I could provide, probably God's gift to a POIS inflicted man. However, it was far too great to ask such a sacrifice of such a beautiful passionate and very sexual young woman.

I then came to realize that I needed to never have intercourse again, and that that it pretty much meant the end to any possible meaningful relationship ever in my life. I also realized that such a relationship was the only thing that was going to truly make me happy in this life.

I flipped out. I lost the girl, I lost the job all in the same week. I have completely fallen from grace. Soon I will be homeless and/or worse. I have lost the will to continue on with a normal life.

I have unsuccessfully dealt with this disorder my whole life. Not knowing that the intercourse was causing the cognitive loss in the first 20 years of my life did immeasurable damage to my self worth and peace of mind. I am now 34.

Knowing now that I am never going to be able to have a meaningful relationship ever, and that that is the only thing that I've ever really wanted to make me happy, has made the will to live very difficult. Although I would never kill myself outright, I find no other recourse but to do everything else possible, short of anything illegal (jail... i still have a conscience).

I wish you all the best of luck in your endeavors, and I am truly sorry I couldnt be of more help, although my celibacy regimen to prevent nocturnal emissions I do consider a great offering.

Peace

*

Offline Willem

  • Jr. Member
  • **
  • 48
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14410 on: 26/08/2011 22:14:22 »
This morning, I applied 6 patches at POIS onset, way beyond the normal dose. It might not be the safest thing, but we are guinea pigs in POIS and I'm willing to grow a 3rd ear to help cure this damn stupid disorder!


Demo, it's true it may not be the safest thing. And it seems testosterone therapy may have helped you only because it possibly permanently stopped all sperm production in your body, correct?

I'm just saying that if this is the case then it may not be the best course of treatment for B_Daniel to take at this time in his life. (I'm not sure how old he is)
I agree, and will go out on a limb and guess that Demo understands very well the drawbacks of a testosterone treatment and which POISers it might or might not be suitable for.  I personally wish he would advocate his treatment even more, but it's tough knowing who might be a good candidate (I'm not, still young and plan on having more kids).  Honestly, I want EVERYONE to strongly advocate for the treatments that they've found to work so we can build more cases and improve lives. 

*

Offline B_Daniel

  • Sr. Member
  • ****
  • 288
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14411 on: 26/08/2011 22:26:30 »
You spin your wheels faster than those around you, but you move so much slower.  Every day presents a new struggle, but those struggles dont seem to make you stronger - instead your growth as a person feels stagnant, which is amazingly frustrating.

Defsync, without pois you're capable of being with a beautiful girl and working in a challenging field, and why settle for 1% less than what you're capable of.  But pois brings cuts you in half and really changes your emotional, mental, and behavioral profile.  you're a different person with pois, and you need to find the job and girl that are perfectly compatible with THAT, not with yourself without pois.  I think you need to accept a less rigorous job until you can manage your pois better.  And then on the girl front, it's painful to lose someone you love, but there are many great girls out there - not all of whom are so sexual.  If a relationship is what you're after, don't stop until you've found the perfect girl.  she has to be caring, understanding, and compatible with you on your good and bad days - not just your good days.  Also, you may need to put more effort into learning how to manage your pois (fenugreek, niacin, abstinence, whatever...).  

Defsync, I hate to use your sad situation as a plug, but what you've gone through is reminiscent with all of us - maybe not to that extent though.  We're all so much closer to letting our lives fall apart than we are to excelling and reaching new heights.  I also didn't know for 14 years that I had pois.  I wondered why my whole family was smart, capable, and successful and was typically moody, untalkative, nervous, and on the dumb side (what a combination, huh).  We've each lost so much through pois - we really need to beat this thing (nord nord nord).

also, completely giving up is not the answer.  youve worked your whole life to be where you are, dont break down and give it all up.  deep down you've got to know thats not the answer.  I'm sorry this has all happened to you.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14412 on: 26/08/2011 22:40:18 »

This morning, I applied 6 patches at POIS onset, way beyond the normal dose. It might not be the safest thing, but we are guinea pigs in POIS and I'm willing to grow a 3rd ear to help cure this damn stupid disorder!


Demo, it's true it may not be the safest thing. And it seems testosterone therapy may have helped you only because it possibly permanently stopped all sperm production in your body, correct?

I'm just saying that if this is the case then it may not be the best course of treatment for B_Daniel to take at this time in his life. (I'm not sure how old he is)


I agree, and will go out on a limb and guess that Demo understands very well the drawbacks of a testosterone treatment and which POISers it might or might not be suitable for.  I personally wish he would advocate his treatment even more, but it's tough knowing who might be a good candidate (I'm not, still young and plan on having more kids).  Honestly, I want EVERYONE to strongly advocate for the treatments that they've found to work so we can build more cases and improve lives. 


VM, your statement/question, "And it seems testosterone therapy may have helped you only because it possibly permanently stopped all sperm production in your body, correct?" is unlikely to be true. Why? I have no sperm, yet I still have POIS.

We will never know if testosterone caused zero sperm count, unfortunately, because I did not do "before" and "after" sperm testing. Only 2+ years "after" starting TRT. I contacted both the manufacturer of my testosterone, Watson Pharma, and my endocrinologist, and neither believed testosterone caused my zero-sperm count.

But even if we did have that information, we still do not know the role that non-sperm semen plays in my POIS.

Semen still seems to be related to my POIS. Somehow. But could it be the ejaculatory mechanism itself that causes POIS instead?

We are still facing a mystery!

But yes, I have repeatedly stressed THE RISKS associated with TRT. I have done that deliberately and continuously here at the forum.

I have pointed that out to B_Daniel, yet he seems to still be interested in pursuing it.

I will send this to him by private message as well.
« Last Edit: 26/08/2011 23:29:38 by demografx »

*

Offline B_Daniel

  • Sr. Member
  • ****
  • 288
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14413 on: 26/08/2011 22:56:49 »
defsync's case shows the harm that pois can do.  how much harm can T therapy do and will it be worth it?  I guess that depends on how much of a benefit it is to me.  Which I won't know until I try.  It'll likely be a couple months before it begins - but assuming a doctor approves of me to try it, I'll certainly keep you all informed of how it works out.  thank you all for your concern.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

*

Offline silverandcol

  • Jr. Member
  • **
  • 49
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14414 on: 27/08/2011 01:10:09 »
Ahh light sensitivity is such a pain.  When I go outside with POIS it feels liek the sun is drilling through my eyes. 

Also Defsync, please give niacin or xanthinoal nicotate a try.  It makes pois so much more manageable, almost to the point of a full normal life.

=D

*

Offline Stef

  • Full Member
  • ***
  • 72
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14415 on: 27/08/2011 02:29:47 »
Hi All,

I hope you don't mind my leaping in here.

I feel compelled to respond to Defsync and to comment on testosterone treatment (TRT).

First -- Defsync -- NEVER SAY NEVER!!! There are so many possibilities on the horizon for POIS, and for now there is at the least the potential of TRT and niacin. And there are very likely a few other potentials that have not yet been published.

From what I have read on both forums, POIS can make a person feel absolutely hopeless and severely depressed. Part of that is the result of the isolation that POIS causes, but another major part may actually be the chemical effect of POIS, physically, on the brain. It's really hard to remember this when feeling so horrid -- that the POIS, itself -- whatever it is -- can have a direct effect on the brain.

This is ONE MISERABLE DISORDER!!!

You've got great support and suggestions here and on the SMF site. Please try some of those suggestions until a major treatment is discovered.  You have no idea what treatment might be just around the corner!

Regarding the TRT, as Demo says, there are risks. But -- it should be understood that lab values are not the end-all, be-all regarding any type of hormone replacement therapy.  A GOOD endocrinologist - especially one whose focus is andrology -- will understand that the lab values only provide some information.  Also, testosterone levels vary throughout the day, and vary from day to day.

What matters most are the symptoms of the patient -- there are many subtle ones that a good andrology/endocrinology specialist will be able to ascertain.

I'm not trying to push TRT, by any means!  But just want you all to be aware that one test does not provide an answer, and that a lab reference table is not a human reference table!  Sometimes, just a really small dose of certain hormones (testosterone and thyroid hormone come to mind immediately) can make a MAJOR difference in one's health and quality of life.

It's so important to do what Demo did -- get assertive, advocate for yourselves, don't take a simple "no" for an answer. If possible, enlist the help of a friend when going for your appointment -- two are stronger than one, especially when feeling so vulnerable.

Although the exact cause(s) and treatment(s) for POIS are not yet clear, any physician who leaves you to fend for yourself is not the right physician! That's a red flag -- and a BIG indication for a second, or third, etc, opinion.

       

*

Offline CertainlyPOIS

  • Hero Member
  • *****
  • 727
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14416 on: 27/08/2011 02:54:40 »
defsync's case shows the harm that pois can do.  how much harm can T therapy do and will it be worth it?  I guess that depends on how much of a benefit it is to me.  Which I won't know until I try.  It'll likely be a couple months before it begins - but assuming a doctor approves of me to try it, I'll certainly keep you all informed of how it works out.  thank you all for your concern.



Defysnc you definately dont want to give up just yet, try some niacin seems to be helping alot and start looking for an allergist that can help with you immunotherapy.

*

Offline CertainlyPOIS

  • Hero Member
  • *****
  • 727
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14417 on: 27/08/2011 02:58:27 »
defsync's case shows the harm that pois can do.  how much harm can T therapy do and will it be worth it?  I guess that depends on how much of a benefit it is to me.  Which I won't know until I try.  It'll likely be a couple months before it begins - but assuming a doctor approves of me to try it, I'll certainly keep you all informed of how it works out.  thank you all for your concern.



Defysnc you definately dont want to give up just yet, try some niacin seems to be helping alot and start looking for an allergist that can help with you immunotherapy.  If you give up the deperession is definately going to drag you to beyond worse.

*

Offline Vincent M

  • Sr. Member
  • ****
  • 285
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14418 on: 27/08/2011 12:46:51 »

VM, your statement/question, "And it seems testosterone therapy may have helped you only because it possibly permanently stopped all sperm production in your body, correct?" is unlikely to be true. Why? I have no sperm, yet I still have POIS.

We will never know if testosterone caused zero sperm count, unfortunately, because I did not do "before" and "after" sperm testing. Only 2+ years "after" starting TRT. I contacted both the manufacturer of my testosterone, Watson Pharma, and my endocrinologist, and neither believed testosterone caused my zero-sperm count.

But even if we did have that information, we still do not know the role that non-sperm semen plays in my POIS.

Semen still seems to be related to my POIS. Somehow. But could it be the ejaculatory mechanism itself that causes POIS instead?

We are still facing a mystery!

But yes, I have repeatedly stressed THE RISKS associated with TRT. I have done that deliberately and continuously here at the forum.

I have pointed that out to B_Daniel, yet he seems to still be interested in pursuing it.

I will send this to him by private message as well.

You're right, we can't know for sure how testosterone treatment has helped you, Demo. Also you do always point out risks and advocate safety. I just woke up and I'm out of it so ummm carry on lol. Carry on fighting the good fight! Down with POIS!
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

*

Offline Itsthatskater

  • Jr. Member
  • **
  • 30
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14419 on: 27/08/2011 17:21:06 »
Alright I have to say enough is enough, It is literally haunting me and my dreams, Im scared to ejaculate. I cut off from sexual activity completely for now, But sometimes it happens when im sleeping and I have no control over it whatsoever. I hate the feeling, Im not weak but when i try to use my arms it just doesnt happen. My sinuses flare up, My brain shuts down, and I have the least bit of motivation ever. I cant keep living like this.

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14420 on: 27/08/2011 18:45:00 »
Itsthatskater, my heart goes out to you!!

I went through 35 years of feeling like that. You know what helped me (before my successful POIS treatment)?

FIGHTING!

Yes, whatever it takes for you to go "the next round".

For me, that meant tracking down an "expert" on CNN. Calling another "expert" in the Czech Republic. Marching into a doctor's office insisting on supervised testosterone injections. Posting like  a madman at this forum ! Talking to other POISers!

Get the picture?

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14421 on: 27/08/2011 18:50:27 »
Vincent Marcus, thank you so much for that kind reply ! (3 posts above)

*

Offline janiv

  • First timers
  • *
  • 5
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14422 on: 27/08/2011 21:30:04 »
Hi Guys,

Just want to have your thought about something that I think is missing.
I believe that many of us started to take POIS more seriously since each of us understood he is not the only one on earth with such a disorder.

That means that each one of us has lot of medical information [Comprehensive Blood tests, sperm tests, allergy tests and etc.]

I'd say, what is missing is an integration of all that data - if we could do a data analysis of all that data -we might find some commonalities, I be live the answer is might be there;
what we do have now is individuals that kindly shares their medical tests data along the hundreds of pages of this forum. If we only could have a share point or shared excel document/ web document including all tests of each 1 of us - that could be a big step forward.

I would go further and say we could build a profile of each 1 of us. But let's start with integrating the medical data of each of us. That's lot of work that demands how to organize the file, adding into it all test in details, I won't get technically now how it should be looked, first let's have your feedbacks,

Wish you all health !


*

Offline lauracostis

  • Sr. Member
  • ****
  • 257
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14423 on: 27/08/2011 22:53:20 »
Demo,

I cant remember, I know we have talked about FMRI's, but has anyone taken an FMRI while in pois or out.

*

Offline JRD

  • Jr. Member
  • **
  • 15
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14424 on: 27/08/2011 22:56:40 »
Has anybody here tried to masturbate several times in a row (i.e. 4 - 10 times in a few hours) and watched its effects or better - tried to masturbate as many times as possible per day and keep continuing in the following days?

Btw. an interesting article to read:
http://www.drlwilson.com/ARTICLES/MASTURBATION.htm

"Holding the mind in unhealthy thought patterns. This is a further problem with frequent masturbation in both men and women.  It is worse in women, in fact.  This problem simply means that stimulating the genital organs tends to cause a certain type of thinking and feeling that is generally harmful for a person.  Once in a while it is fine, but it is not healthful, overall, especially if it is a habit that one does daily or more often.  This applies to sexual relations also, along with pornography.
This is more complex topic that has to do with the type of energy that resides in the lower part of the body, as compared with the type of energies that reside in the upper part of one’s body.
The symptoms of this problem include difficulty concentrating, attention deficit or ADD, ADHD, irritability, superficiality in your thinking, lack of intelligence, lack of follow through ability, impaired school or work performance, and other difficulties in thinking clearly and forcefully.
"

*

Offline lauracostis

  • Sr. Member
  • ****
  • 257
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14425 on: 28/08/2011 00:31:00 »
Here is a new and interesting drug to look at, "Vinpocetine", it is a prescription drug in Europe marketed for cerebral vascular disease, but recently approved as a over the counter supplement marketed for cognitive enhancement in the United states and Canada.  It says it is a cerebral vascular dilator, increasing blood flow to the brain.  After our recent mixed success with xanthinol nicotinate and niacin, I started to look into drugs that might increase blood flow to the brain.  Unrelated to my search, I found a web page that referenced both vinpocetine and XN.

http://www.vinpocetine.com/how-can-vinpocetine-help-us.html


"In 1976 Vamosi and colleagues reported their favorable results comparing Vinpocetine with Xanthinol Nicotinate in treating 143 patients with various cerebrovascular diseases. They measured a large number of blood and cerebrospinal fluid variables before and after treatment, such as glucose, lactate, pyruvate, oxygen, pH, electrolyte levels, etc. They concluded from their study "…Though not all the changes are significant statistically, yet connected with each other they prove that Vinpocetine enhances both glycolytic and oxidative reactions of glucose breakdown in eNS [brain]. The changes in the concentration of K [potassium] and Mg [magnesium]. .. may be considered a sign of recovery of the energy metabolism of the nerve cells.…"1
Vamosi's study also demonstrated a superior clinical efficacy of Vinpocetine over Xanthinol Nicotinate."

This may lead to other drugs that may help us such as Vinpocetine or may just give us a better understanding of how Niacin containing compounds may be helping us, such as increasing cerebral blood flow.
« Last Edit: 28/08/2011 00:33:27 by lauracostis »

*

Offline danny123

  • First timers
  • *
  • 2
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14426 on: 28/08/2011 11:23:00 »
I think I have POIS psychological effects but none of the physical effects of POIS. I also have a very adverse reaction to alcohol or drugs where I am psychologically damaged for months afterwards from only a few beers or even being in a room that has marijuwana smoke. after a long period of soberiety I have healed from previous alcohol/drug intake. It seems like I have a hyper sensitivity to anything that is mind altering including an orgasm. It can take me about 6 weeks after orgasm to be mentally sharp, relaxed, not anxious but confident but the side effect of abstaining from an orgasm is over confidence. I feel like I'm alternating between two worlds never knowing who I am. The person with POIS symptoms who takes life seriously and works really hard to get by or the recovered but over confident person. Does anyone else have a hyper sesitivity to alchol, fumes, or drug smoke and have POIS? I wish I knew why I am so super sensitive to anythig mind altering including an orgasim.

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14427 on: 28/08/2011 13:10:33 »
Here is a new and interesting drug to look at, "Vinpocetine", it is a prescription drug in Europe marketed for cerebral vascular disease, but recently approved as a over the counter supplement marketed for cognitive enhancement in the United states and Canada.  It says it is a cerebral vascular dilator, increasing blood flow to the brain.  After our recent mixed success with xanthinol nicotinate and niacin, I started to look into drugs that might increase blood flow to the brain.  Unrelated to my search, I found a web page that referenced both vinpocetine and XN.

http://www.vinpocetine.com/how-can-vinpocetine-help-us.html


"In 1976 Vamosi and colleagues reported their favorable results comparing Vinpocetine with Xanthinol Nicotinate in treating 143 patients with various cerebrovascular diseases. They measured a large number of blood and cerebrospinal fluid variables before and after treatment, such as glucose, lactate, pyruvate, oxygen, pH, electrolyte levels, etc. They concluded from their study "…Though not all the changes are significant statistically, yet connected with each other they prove that Vinpocetine enhances both glycolytic and oxidative reactions of glucose breakdown in eNS [brain]. The changes in the concentration of K [potassium] and Mg [magnesium]. .. may be considered a sign of recovery of the energy metabolism of the nerve cells.…"1
Vamosi's study also demonstrated a superior clinical efficacy of Vinpocetine over Xanthinol Nicotinate."

This may lead to other drugs that may help us such as Vinpocetine or may just give us a better understanding of how Niacin containing compounds may be helping us, such as increasing cerebral blood flow.

This could be a good test to make to determine if it as a result of vasodilation in the brain or
some other effect like the building of missing components in important brain components like serotonine and dopamine et al. see: http://poiscenter.com/forums/index.php?topic=197.0
How does Murphey do it??

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14428 on: 28/08/2011 13:18:10 »
I think I have POIS psychological effects but none of the physical effects of POIS. I also have a very adverse reaction to alcohol or drugs where I am psychologically damaged for months afterwards from only a few beers or even being in a room that has marijuwana smoke. after a long period of soberiety I have healed from previous alcohol/drug intake. It seems like I have a hyper sensitivity to anything that is mind altering including an orgasm. It can take me about 6 weeks after orgasm to be mentally sharp, relaxed, not anxious but confident but the side effect of abstaining from an orgasm is over confidence. I feel like I'm alternating between two worlds never knowing who I am. The person with POIS symptoms who takes life seriously and works really hard to get by or the recovered but over confident person. Does anyone else have a hyper sesitivity to alchol, fumes, or drug smoke and have POIS? I wish I knew why I am so super sensitive to anythig mind altering including an orgasim.


Hey Danny123,

Over at reuniting.info they have a whole forum dedicated to addiction / withdrawl which even includes sex. You can probably get a lot of help over there.
How does Murphey do it??

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14429 on: 28/08/2011 13:33:55 »
Has anybody here tried to masturbate several times in a row (i.e. 4 - 10 times in a few hours) and watched its effects or better - tried to masturbate as many times as possible per day and keep continuing in the following days?


Are you kidding, if I have one "O" on each of two days in a row, I'm practically ready for the hospital.

If there's anyone here that can have several "O"s per day, I don't think it's POIS that they have.
How does Murphey do it??

*

Offline Habibou

  • Sr. Member
  • ****
  • 196
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14430 on: 28/08/2011 14:39:28 »
Hi Guys,

Just want to have your thought about something that I think is missing.
I believe that many of us started to take POIS more seriously since each of us understood he is not the only one on earth with such a disorder.

That means that each one of us has lot of medical information [Comprehensive Blood tests, sperm tests, allergy tests and etc.]

I'd say, what is missing is an integration of all that data - if we could do a data analysis of all that data -we might find some commonalities, I be live the answer is might be there;
what we do have now is individuals that kindly shares their medical tests data along the hundreds of pages of this forum. If we only could have a share point or shared excel document/ web document including all tests of each 1 of us - that could be a big step forward.

I would go further and say we could build a profile of each 1 of us. But let's start with integrating the medical data of each of us. That's lot of work that demands how to organize the file, adding into it all test in details, I won't get technically now how it should be looked, first let's have your feedbacks,

Wish you all health !



GREAT THAT SOMEONE THINKS THE SAME AS ME ! I already created a topic on the other forum, please post there to have more info : http://poiscenter.com/forums/index.php?topic=98.0
« Last Edit: 28/08/2011 14:43:02 by Habibou »

*

Offline JRD

  • Jr. Member
  • **
  • 15
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14431 on: 28/08/2011 14:52:53 »

Are you kidding, if I have one "O" on each of two days in a row, I'm practically ready for the hospital.

If there's anyone here that can have several "O"s per day, I don't think it's POIS that they have.

As far as I know, most people have no physical abnormalities capable of explaining such a variety of symptoms and no diagnostic criteria has been constitued to prove this mystical illness. The only certain thing disproving the suspicion is not to have post-orgasmic complications and probably nobody like this has joined the discussion yet.

And I am curious what reaching several orgasms in a row (even if the first one or two brings up problems) looks like in your case or in case of somebody who has experimented this way.

*

Offline Starsky

  • Full Member
  • ***
  • 99
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14432 on: 28/08/2011 14:54:33 »
[/quote
Has anybody here tried to masturbate several times in a row (i.e. 4 - 10 times in a few hours) and watched its effects or better - tried to masturbate as many times as possible per day and keep continuing in the following days?


Are you kidding, if I have one "O" on each of two days in a row, I'm practically ready for the hospital.

If there's anyone here that can have several "O"s per day, I don't think it's POIS that they have.

Which hospital? Psychiatric? POIS is not a life threatening condition...



Has anybody here tried to masturbate several times in a row (i.e. 4 - 10 times in a few hours) and watched its effects or better - tried to masturbate as many times as possible per day and keep continuing in the following days?


Last week I tried to force as many ejacalutions as i could get on a day... 2days, 7 ejaculations... i would be normally sick after 2 but thanks to XN i was able to get to the point where i got dry ejaculations. I wasnt sick, i was just tired and really unmotivated. Was it POIS or was it a normal reaction to so many ejaculations?
« Last Edit: 28/08/2011 15:06:05 by Starsky »

*

Offline B_Daniel

  • Sr. Member
  • ****
  • 288
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14433 on: 28/08/2011 15:35:14 »
Here is a new and interesting drug to look at, "Vinpocetine", it is a prescription drug in Europe marketed for cerebral vascular disease, but recently approved as a over the counter supplement marketed for cognitive enhancement in the United states and Canada.  It says it is a cerebral vascular dilator, increasing blood flow to the brain.  After our recent mixed success with xanthinol nicotinate and niacin, I started to look into drugs that might increase blood flow to the brain.  Unrelated to my search, I found a web page that referenced both vinpocetine and XN.

http://www.vinpocetine.com/how-can-vinpocetine-help-us.html


Anyone want to try it and report back to the group?  It's relatively cheap ($13.99):
http://www.antiaging-systems.com/159-vinpocetine-intelectol
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

*

Offline Vincent M

  • Sr. Member
  • ****
  • 285
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14434 on: 28/08/2011 16:14:36 »

Which hospital? Psychiatric? POIS is not a life threatening condition...


I don't think there's enough data gathered to prove whether anyone has died from it yet. Before I found fenugreek I could barely leave my bed and I could forget about getting a job ever. I'm fairly certain that people have lost jobs and gone homeless from POIS...death could easily follow that.

Besides as we've seen there is a spectrum of the severity which POIS symptoms manifest themselves in different people. Who can say with all certainty that some of the earlier members who no longer post on our forums have not died from POIS?
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

*

Offline Quasar

  • Sr. Member
  • ****
  • 104
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14435 on: 28/08/2011 16:31:06 »
Here is a new and interesting drug to look at, "Vinpocetine", it is a prescription drug in Europe marketed for cerebral vascular disease, but recently approved as a over the counter supplement marketed for cognitive enhancement in the United states and Canada.  It says it is a cerebral vascular dilator, increasing blood flow to the brain.  After our recent mixed success with xanthinol nicotinate and niacin, I started to look into drugs that might increase blood flow to the brain.  Unrelated to my search, I found a web page that referenced both vinpocetine and XN.

http://www.vinpocetine.com/how-can-vinpocetine-help-us.html


"In 1976 Vamosi and colleagues reported their favorable results comparing Vinpocetine with Xanthinol Nicotinate in treating 143 patients with various cerebrovascular diseases. They measured a large number of blood and cerebrospinal fluid variables before and after treatment, such as glucose, lactate, pyruvate, oxygen, pH, electrolyte levels, etc. They concluded from their study "…Though not all the changes are significant statistically, yet connected with each other they prove that Vinpocetine enhances both glycolytic and oxidative reactions of glucose breakdown in eNS [brain]. The changes in the concentration of K [potassium] and Mg [magnesium]. .. may be considered a sign of recovery of the energy metabolism of the nerve cells.…"1
Vamosi's study also demonstrated a superior clinical efficacy of Vinpocetine over Xanthinol Nicotinate."

This may lead to other drugs that may help us such as Vinpocetine or may just give us a better understanding of how Niacin containing compounds may be helping us, such as increasing cerebral blood flow.

Lauracostis, really thanks for that. It goes in the same direction i've been thinking about (migraine/blood circulation/serotonin theory...)

Some replies ago i posted that the Niacin flush was caused by a release in peripheral serotonin, which causes a vasodilation in the body. The raised levels of peripheral serotonin inhibit the release of brain serotonin, so it prevents the contraction of brain blood vessels (serotonin inside the brain causes contraction).

So, Vinpocetine seems to work in a similar way as Niacin, but in a more active way. Maybe it's a little more aggressive than Niacin, but also more effective. It should be very interesting to try it!!

BTW, at last i've bough Niacin pills!! THis afternoon i'll try them and comment on how they've worked for me!

Another one i'd like to try is Pycnogenol:

In addition, the particular proanthocyanidins found in the propriety extract for maritime pine bark called Pycnogenol have been shown to optimize the production of nitric oxide in the artery walls so as to relax them and allow greater blood flow and reduced pressure.[23] Additionally, this same preparation, Pycnogenol, has been found to normalize platelet adhesion (aggregation) so as to facilitate normal blood flow.[24]



« Last Edit: 28/08/2011 16:37:12 by Quasar »

*

Offline Vincent M

  • Sr. Member
  • ****
  • 285
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14436 on: 28/08/2011 16:53:39 »

Are you kidding, if I have one "O" on each of two days in a row, I'm practically ready for the hospital.

If there's anyone here that can have several "O"s per day, I don't think it's POIS that they have.

I disagree with you here, Daveman. I am able to have multiple orgasms a day, but I am always in a constant state of POIS because of this. My major recent accomplishment has been being able to stay awake during the day and sleep at night, but I've only accomplished that with fenugreek. I'm still quite a ways off from being able to work. I suffer from almost every symptom that POIS sufferers have mentioned except for, perhaps, headaches.

In addition I wear a chastity device which I had to design myself since I don't have money to buy a real one and when I get an erection what are basically metal spikes drive into my penis causing enough pain to force me to stop the erection. I wear this device everyday now just so I can stay on a normal sleep schedule in hope that I'll one day be able work up enough energy and confidence to apply for some jobs.

Just because my sex drive is higher or the time between orgasm and when I'm able to ejaculate again is shorter than normal doesn't mean that my POIS symptoms are any less debilitating than yours.

I like you, Daveman, and I agree with many of your points. But I know you are wrong when you say that I don't have POIS, because I know I do. POIS is defined by debilitating symptoms that last for multiple days after orgasm. It takes me about a week after an orgasm before I feel able to get out of my bed and even have a normal conversation with one of my close friends or do any kind of physical labor. Until that point all I wanna do is lay in my bed and try to figure out a way to make the horrible pain go away.

I believe that this forum might prevent me from becoming homeless one day since my mom's not gonna be able to support me forever. So don't count me out. I understand you think I probably have sexual exhaustion and not POIS, but how can you say that when there is no precise definition of either that differentiates POIS from SE? If you believe that SE is a milder version of POIS then I have POIS. Not SE.
« Last Edit: 28/08/2011 16:57:40 by Vincent Marcus »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14437 on: 28/08/2011 17:05:35 »
Has anybody here tried to masturbate several times in a row (i.e. 4 - 10 times in a few hours) and watched its effects or better - tried to masturbate as many times as possible per day and keep continuing in the following days?


Are you kidding, if I have one "O" on each of two days in a row, I'm practically ready for the hospital.

If there's anyone here that can have several "O"s per day, I don't think it's POIS that they have.

Which hospital? Psychiatric? POIS is not a life threatening condition...

Yes psychiatric! I did it once and thought I was going out of my mind. It was at night, perhaps a combination of panic atttack and a strong after POIS depression!

Not at all to laugh at. I hope that wasn't your intention!



How does Murphey do it??

*

Offline Vincent M

  • Sr. Member
  • ****
  • 285
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14438 on: 28/08/2011 17:13:17 »
Has anybody here tried to masturbate several times in a row (i.e. 4 - 10 times in a few hours) and watched its effects or better - tried to masturbate as many times as possible per day and keep continuing in the following days?


Yep I think when I tried doing that I masturbated like 10 times in one day. My POIS symptoms just became so severe that I could barely walk because my knees and tendons felt so inflamed and all I could do was lie down and think about ways to kill myself. Even lying down didn't take away all the pain since my face was so inflamed or something it felt like my skin was barely attached to my face and my eyes felt like they were on fire if I tried to open them. Oh and my intestines were probly inflamed too because my belly ballooned to the point where it looked like I had a soccer ball stuffed in there even though normally I had a fairly visible abs. I remember I couldn't wear pants because my skin was so irritated.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14439 on: 28/08/2011 17:16:41 »

Are you kidding, if I have one "O" on each of two days in a row, I'm practically ready for the hospital.

If there's anyone here that can have several "O"s per day, I don't think it's POIS that they have.

As far as I know, most people have no physical abnormalities capable of explaining such a variety of symptoms and no diagnostic criteria has been constitued to prove this mystical illness. The only certain thing disproving the suspicion is not to have post-orgasmic complications and probably nobody like this has joined the discussion yet.

And I am curious what reaching several orgasms in a row (even if the first one or two brings up problems) looks like in your case or in case of somebody who has experimented this way.

Are you saying JRD that POIS is a mystical illness? How many of you all agree with this!

We've spent too much time taking POIS out of some etheral space to have it put back into a fantasy category again.


How does Murphey do it??

*

Offline JRD

  • Jr. Member
  • **
  • 15
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14440 on: 28/08/2011 17:53:46 »
Well, no satisfactory explanation has been found, so it is quite obvious for me, it is mystical in the same sense such as schizophrenia or depression - scientists and doctors claim they know a lot, but in fact, they only offer many speculative approaches with little to no effective help to their patients.

*

Offline Starsky

  • Full Member
  • ***
  • 99
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14441 on: 28/08/2011 18:48:54 »
Has anybody here tried to masturbate several times in a row (i.e. 4 - 10 times in a few hours) and watched its effects or better - tried to masturbate as many times as possible per day and keep continuing in the following days?


Are you kidding, if I have one "O" on each of two days in a row, I'm practically ready for the hospital.

If there's anyone here that can have several "O"s per day, I don't think it's POIS that they have.

Which hospital? Psychiatric? POIS is not a life threatening condition...

Yes psychiatric! I did it once and thought I was going out of my mind. It was at night, perhaps a combination of panic atttack and a strong after POIS depression!

Not at all to laugh at. I hope that wasn't your intention!




Sorry. I was ironic... But I asked myself what kind of help we could get in a hospital? Intravenous fenugreek? :D

You were going out of mind because of POIS or because of things they gave you? I think if someone is lucky, will get just a hand full of benzodiazepines, if not.... they can make you really bad with neuroleptics.
« Last Edit: 28/08/2011 18:57:41 by Starsky »

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14442 on: 28/08/2011 19:20:15 »
Well, no satisfactory explanation has been found, so it is quite obvious for me, it is mystical in the same sense such as schizophrenia or depression - scientists and doctors claim they know a lot, but in fact, they only offer many speculative approaches with little to no effective help to their patients.

Phrases like "little to no help" are purely opinion, and make unfounded implications of failure. As far as I know, there are even fewer solutions in addiction/withdrawl theory that help POIS, less so solutions documented by specialists.

There are several fronts that are finding success with desensitization. Perhaps not yet complete nor extensive, but it is not a "failure" situation, as much as it is a situation of needing time to complete more thourough testing.

Inasmuch as the papers have not conclusively defined a solution, they have opened a path that is being actively pursued by TOP experts. NOT just the one.


How does Murphey do it??

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14443 on: 28/08/2011 19:32:28 »
Has anybody here tried to masturbate several times in a row (i.e. 4 - 10 times in a few hours) and watched its effects or better - tried to masturbate as many times as possible per day and keep continuing in the following days?


Are you kidding, if I have one "O" on each of two days in a row, I'm practically ready for the hospital.

If there's anyone here that can have several "O"s per day, I don't think it's POIS that they have.

Which hospital? Psychiatric? POIS is not a life threatening condition...

Yes psychiatric! I did it once and thought I was going out of my mind. It was at night, perhaps a combination of panic atttack and a strong after POIS depression!

Not at all to laugh at. I hope that wasn't your intention!




Sorry. I was ironic... But I asked myself what kind of help we could get in a hospital? Intravenous fenugreek? :D

You were going out of mind because of POIS or because of things they gave you? I think if someone is lucky, will get just a hand full of benzodiazepines, if not.... they can make you really bad with neuroleptics.

I came just short of waking my wife to take me to the hospital, but knew there was nothing they could do other than give me one of those things you speak of.

I felt like I was on the verge of insanity for about 2 or 3 days.
« Last Edit: 28/08/2011 21:00:33 by daveman »
How does Murphey do it??

*

Offline JRD

  • Jr. Member
  • **
  • 15
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14444 on: 28/08/2011 19:51:34 »
Phrases like "little to no help" are purely opinion, and make unfounded implications of failure.

From the scientific point of view, there is the only solution involving psychopharmaceuticals or ECT, which, in fact, is nothing less than a further dumbing down your already dumbed brain, interpreted as a therapeutical effect.

And don't be misunderstood, I really like a "new direction" of XN and everything positive, its users are experiencing (I am going to order a package of it for myself).

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14445 on: 28/08/2011 20:28:32 »


danny123, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the file for that TV documentary, "Desperate Measures", which can be downloaded and played. The segment starts at about 12:20..
http://www.fileserve.com/file/cUtJa9R/TITLE01.mp4

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat


POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggests one possible avenue of treatment.

First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

  
Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, i.e., "demografx", or "daveman".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus over 1,300,000 page visits. Not bad for a rare malady!



SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.





*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14446 on: 28/08/2011 20:32:54 »
Well, no satisfactory explanation has been found, so it is quite obvious for me, it is mystical in the same sense such as schizophrenia or depression - scientists and doctors claim they know a lot, but in fact, they only offer many speculative approaches with little to no effective help to their patients.

Phrases like "little to no help" are purely opinion, and make unfounded implications of failure. As far as I know, there are even fewer solutions in addiction/withdrawl theory that help POIS, less so solutions documented by specialists.

There are several fronts that are finding success with desensitization. Perhaps not yet complete nor extensive, but it is not a "failure" situation, as much as it is a situation of needing time to complete more thourough testing.

Inasmuch as the papers have not conclusively defined a solution, they have opened a path that is being actively pursued by TOP experts. NOT just the one.


Not to beat a dead horse, but I agree. It has been the theme of the forum since the beginning and why we chose Naked SCIENCE Forum as our preferred venue.

*

Offline Quasar

  • Sr. Member
  • ****
  • 104
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14447 on: 28/08/2011 20:40:39 »
Guys, i have taken the 100mg Niacin pill 1 hour and a half ago. I haven't noticed anything. I have no flush  [>:(]

I did take it in a semi-empty stomach. I haven't had sex or masturbate because i want to try it with the flush.

Maybe tomorrow i will take 200mg in an empty stomach.

Why it didn't make a flush for me?

A) I have extremely low B3 levels.
B) Too low serotonin level, even after taken Niacin.
C) My tryptophan--> serotonin connection is screwed.
D) I just had bad luck  [>:(]

Who knows, i hope tomorrow with 200mg i have better luck!

*

Offline Quasar

  • Sr. Member
  • ****
  • 104
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14448 on: 28/08/2011 20:54:03 »
BTW, i've found that Vinpocetine is sold by Solaray, so it should be easy to find a shop to try it. EDIT: It only includes 5mg of Vinpocetine. I think there are other brands that include more quantity.
« Last Edit: 28/08/2011 20:57:16 by Quasar »

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #14449 on: 28/08/2011 20:54:43 »

Demo,

I cant remember, I know we have talked about FMRI's, but has anyone taken an FMRI while in pois or out.



I'm still waiting! I have great hopes for (f)MRI and POIS!

I think John21 has come the closest to it, perhaps waiting to see if he can? (I'll send this to John by PM as well).