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I have a question for everyone!!If a very respected medical institution approached you and offered you a magic pill that would cure you of this hideous disease called POIS, would you pay $100, $1,000, or even $10,000 for it?!! OF COURSE YOU WOULD!!! I certainly would pay as much as possible to be able to live a normal life - be able to interact, feel good, enjoy intimate time with my wife, not have achy joints or worry about NE's, etc., etc.The way I figure it - There are at least 350 of us (I think many more) viewing this site on a regular basis. If each of us gave only $100, we would have the necessary funding to start the NORD study. Some of us have already given or pledged more, so even if it is only $50, I think we can get there. Think about it - for less than the cost of a nice meal out, we may find relief from misery!NORD may very well offer the "magic pill" of which I spoke! We will never know if we don't take a small leap of faith and support ourselves to get the necessary funding. A lot of the questions and speculation we discuss here will be answered when we get a world class institution like NORD on our side.So PLEASE, PLEASE, PLEASE, give what you can to the fund. We simply have to support ourselves... so let's start today! We will surely benefit!! And we all know how much better our quality of life will be if we can beat this plague!!!It is very easy to give with a credit card. Just click on the link below and donate for the betterment of us all.https://rarediseases.org/about/support/research-donations/fg_base_view_p3To quote a famous advertising slogan "JUST DO IT"
Quote from: EDS on 05/09/2011 12:39:26I have a question for everyone!!If a very respected medical institution approached you and offered you a magic pill that would cure you of this hideous disease called POIS, would you pay $100, $1,000, or even $10,000 for it?!! OF COURSE YOU WOULD!!! I certainly would pay as much as possible to be able to live a normal life - be able to interact, feel good, enjoy intimate time with my wife, not have achy joints or worry about NE's, etc., etc.The way I figure it - There are at least 350 of us (I think many more) viewing this site on a regular basis. If each of us gave only $100, we would have the necessary funding to start the NORD study. Some of us have already given or pledged more, so even if it is only $50, I think we can get there. Think about it - for less than the cost of a nice meal out, we may find relief from misery!NORD may very well offer the "magic pill" of which I spoke! We will never know if we don't take a small leap of faith and support ourselves to get the necessary funding. A lot of the questions and speculation we discuss here will be answered when we get a world class institution like NORD on our side.So PLEASE, PLEASE, PLEASE, give what you can to the fund. We simply have to support ourselves... so let's start today! We will surely benefit!! And we all know how much better our quality of life will be if we can beat this plague!!!It is very easy to give with a credit card. Just click on the link below and donate for the betterment of us all.https://rarediseases.org/about/support/research-donations/fg_base_view_p3To quote a famous advertising slogan "JUST DO IT"EDS you're exactly right! Not everyone can afford $100, but also some people can afford more. If we all give $100 we'll have the NORD money raised in no time. If you factor in your happiness, your lost wages/ work potential, quality of life, etc, then Getting rid of this thing is worth a 100 times more than that to EACH of us!
B_Daniel am sure you meant to say at least 10000 times more
Quote from: CCconfucius on 06/09/2011 04:00:24B_Daniel am sure you meant to say at least 10000 times moreEDS, B_DANIEL, AND CCCONFUCIUS....THANK YOU!!!! [] [] []
Honestly guys I dont see what else this could be rather than an allergic reaction.I mean obviously its something in our semen that is making our body act like this, Masturbation without ejaculation doesnt harm but with Ejaculation causes a world of problems!It it just me or when you ejaculate do you feel like a wave through your body that kind of just wipes away your strenght that you dont get back, and you dont feel it get back, I get that back in my sleep 48 hours later.
Quote from: Vincent Marcus on 05/09/2011 21:40:28"Saw palmetto is used by natural health practitioners to treat a variety of ailments in men and women, such as testicular inflammation, urinary tract inflammation, coughs, and respiratory congestion. It is also used to strengthen the thyroid gland, balance the metabolism, stimulate appetite, and aid digestion."http://medical-dictionary.thefreedictionary.com/saw+palmettoSince saw palmetto makes my testicles much less tender and takes away the burning feeling that usually accompanies urination, these facts provide evidence of actual inflammation in my body resulting from orgasm. Saw palmetto also reduces the bloating I have during POIS and makes bowel movements less painful which is evidence that POIS causes my intestines to become inflamed or my digestion to become hindered in some way.I'm glad to hear it's helping you. There are 3 glands that produce the seminal fluid. The seminal vescicles, cowpers, and the prostate. The seminal vescicles and the prostate produce 90% of it. Saw Palmetto helps to shrink the prostate. Our pois is quite possibly caused by one of those glands... so it's makes sense by me that our pois is helped by shrinking the prostate
"Saw palmetto is used by natural health practitioners to treat a variety of ailments in men and women, such as testicular inflammation, urinary tract inflammation, coughs, and respiratory congestion. It is also used to strengthen the thyroid gland, balance the metabolism, stimulate appetite, and aid digestion."http://medical-dictionary.thefreedictionary.com/saw+palmettoSince saw palmetto makes my testicles much less tender and takes away the burning feeling that usually accompanies urination, these facts provide evidence of actual inflammation in my body resulting from orgasm. Saw palmetto also reduces the bloating I have during POIS and makes bowel movements less painful which is evidence that POIS causes my intestines to become inflamed or my digestion to become hindered in some way.
I pledge $500 now to the NORD fund
People,Please don't forget there is another POIS-forum (supported and created by this community), where we can discuss in topics (instead of in one long thread).http://www.poiscenter.com/forums/index.phpPlease have a look.Rocky
Flipping POIS! I pledge $500 now to the NORD fund, maybe more in future. I suspect one of the problems with the NORD system is...what happens to the money donated if we don't actually make it to the required amount? I'm not suggesting we won't make it but its not surprising to me that people aren't making that many donations. However, pledging is a different matter. My only hope is that when the pledged total is actually enough to get the ball rolling, people actually cough up a real donation to make it happen. I think they will. If the donation system were set up such that money would be refunded if the required total for NORD POIS research wasn't reached after say 5 years, people might be more forthcoming with real donations - a sort of guarantee that money donated would only be used for POIS and be refunded if no POIS research was forthcoming. Please don't let it take 5 years to get started though!! Roll up people. As EDS and others have so brilliantly written, it should be easy to get this total. If you don't want to actually part with your money now until you know we're close to $33,500 then at least pledge something...and stick to it. That's where I'm at just now. I know, as usual, I've not been posting very frequently on here... Thanks everyone for carrying on the battle so persistently, I really am grateful to you all.
Would it be dangerous to insert natural lemon juice with water into my urethra? I want to know if it stings, maybe i have some little urethra infection. It may not do any harm, and may clean something.
Quote from: mellivora on 06/09/2011 18:36:07Flipping POIS! I pledge $500 now to the NORD fund, maybe more in future. I suspect one of the problems with the NORD system is...what happens to the money donated if we don't actually make it to the required amount? I'm not suggesting we won't make it but its not surprising to me that people aren't making that many donations. However, pledging is a different matter. My only hope is that when the pledged total is actually enough to get the ball rolling, people actually cough up a real donation to make it happen. I think they will. If the donation system were set up such that money would be refunded if the required total for NORD POIS research wasn't reached after say 5 years, people might be more forthcoming with real donations - a sort of guarantee that money donated would only be used for POIS and be refunded if no POIS research was forthcoming. Please don't let it take 5 years to get started though!! Roll up people. As EDS and others have so brilliantly written, it should be easy to get this total. If you don't want to actually part with your money now until you know we're close to $33,500 then at least pledge something...and stick to it. That's where I'm at just now. I know, as usual, I've not been posting very frequently on here... Thanks everyone for carrying on the battle so persistently, I really am grateful to you all.Thank you sincerely for your donation, Mellivora. With your pledge, we've surpassed the 1/3 marker and are closer than ever! In regards to your points above, I'll tell you what I'm doing. I'm donating my money on a schedule. So I've given the first portion now. When our donation tally reaches $5K, I'll give another bit, and so on and so forth. I know rob58, EDS, and some others have similar strategies. That being said, I think there's also an unspoken agreement that when the total pledged amount exceeds the $33.5K, it'll be time for us all to go all in. Then we can celebrate!
Quote from: Quasar on 07/09/2011 11:28:58Would it be dangerous to insert natural lemon juice with water into my urethra? I want to know if it stings, maybe i have some little urethra infection. It may not do any harm, and may clean something. Quasar, PLEASE ask this of a physician! None of us here are qualified to respond !