[Dean93]

Hey everyone. Just checking back in after a long while. How is everything going? How's everyone doing?

[acronym]

Ricky - I also noticed years ago that I felt better when I stopped eating. It was so hard for me embrace the concept since I was skinny and it had been doing weight lifting and force feeding myself in the years leading up to this realization. I stumbled on it after I visited an allergy specialist and tested positive to so many different foods and was placed on a restricted diet. Even some of the foods I showed up okay on in the testing I was sure I still reacted to, and dropped these (maybe intolerant but not allergy) and sometimes it was just too much trouble to find something to eat that I could tolerate that I skipped meals and picked up how I would feel more energy (physical & mental). I think I had gut disorder/dysbiosis/parasites. Things improved for me quite a lot in this regard after I did a series of colonics (some with O2). Still now though I find diet has a big impact. Avoiding too much grains is good, but I also find avoiding red meat is good for me. When I was young we used to have a lot of BBQs, and I would always have a terrible night's sleep after them and feel really tired. Eating small amounts of quality mince is ok though and I feel good when I eat liver (like its therapeutic).

I eat a lot of fish and take sprouted rice, hemp, pea protein shakes. A diet in mainly vegetables are the best. I also had to give up potato as well. (I reacted to all in this food family) and when I was young we used to have it frikken every night for dinner.  Some fruits are okay and some are not for me. I avoid sugars and deserts. I love dairy (but its not good for me), and do take it every now and then...but I tried out oat and almond milk and goat milk and I dont feel the best on them even (though I would drink a ltr a day when I was on them)  I work out so I need carbs to try get some fat on me, and basically follow gluten free diet in that regard. I don't think rice is all that good for me even though it show up okay on allergy tests. I prefer to take wild rice or quinoa. I take nuts & seeds. I take ghee + olive oil + flax oil. Even these days though I find if I skip dinner and I have a better night's sleep. It could still be gut issue maybe or even just giving my liver a chance to rest. Even yrs later I find if I take colon cleanze or Heb-a-lax every so often I have an improvement in my health (pois symptoms) for a week, but that is because sometimes I don't always do the right thing with diet. A good quality liquid chlorophyll helps me feel good too. If I was fat, then having skimpy meals would be great, but I am trying to bulk up. : (   

I also think missing from Herman's theory is the diet aspect, which would help with inflammation in a number of us (maybe not all) I am sure.
Rick - Your use of Levitra..is not part of pois treatment, rather you just need it for ED?
Rick - Even though you feel pretty damn good now, if you masturbate - you get pois?

ajs - bizarre how you do well on red meat. So that is better than fish or chicken/turkey? with read meat I notice it talks me longer to digest a meal, and also my anxiousness & stress levels would go up.

[Over it]

For those that get Pois symptoms upon exertion.
This may be of interest.
http://en.m.wikipedia.org/wiki/Da_Costa's_syndrome [nofollow]

[johanstefansson]

What causes post-orgasmic symptoms?

http://www.yourbrainonporn.com/what-causes-post-orgasmic-symptoms

What should we conclude from that ?

the symptoms we get is caused by an addiction. for the last 8 months i have not consumed porn and i can say that i feel that my pois is about to leave me permanently. however its all about an absolute ban of porn.

[Gbolduev]

I have also  fasted  many times during the recovery  year.  The longest was  a 25 day  water  fast.  After which  I lost  20 kg in 25 days,  my overall health improved  dramatically after the fast. POIS improved  about 40% or so. For some people with impaired liver function  it can be that   they  dont convert ammonia  to urea in the liver and since ammonia is  created by bacteria in your gut from  protein ,  then for some   when they dont eat  they feel better  not nessarily for POIS but for overall fatgue.
As far as diet is concerned, I had  many sensetivities to food  and  sugars. But  then they  went away as I started to balance.
Simple diet would be this:
NO sugars(  no  juices,  no fruit of any kind, nothing that contains sugars)
No dairy , except  goat milk and if it is  fresh and not from the store, otherwise stay away from dairy.
No breads of any sort
no white rice
no pastas
eat a lof ot broccoli and califlower
eat cooked vegatables with meat
oils  in your diet should be  eaten according to your metabolism ,    if slow you eat  less oils if fast you eat more oils( this is critical) and can be  judged by temperatures at 3 pm.

Liver flushes , no matter what people say  is  the best  procedure and  needs to be done.  Otherwise you can substitute it with cofee enemas daily, not once a month. 
If you dont do this, the only other way that worked for me was to load my gut with probiotics in the enemas. Actually  it had an immediate affect on POIS, since  most of our guts are impaired.

Hope this helps

[acronym]

Herman - There is no way I could do a 25 day fast. I could do a fresh vegetable juice fast for a week at very most. You can see the veins & muscle striations already on me as it is. If you are a beefy guy then you can afford to lose 20kg. For someone like me, fasting is crazy thought in your opinion...no.
I always suspected the problem I had with meat was the ammonia. I've experimented a little with charcol powder and I think it helps me after the evening meal. The thing is I have also read by others on special diets that the sulphites in Brocolli and Cauliflower also increase ammonia so it made me not sure of these.
No bread for you -not even bread made out of tapioca or pumpkin type breads or not available where you live?
No rice for you - funny another person anti rice, yet so many allergy specialists give the thumbs up on rice for sensitive people.
No pastas for you - not even non wheat types?
Did you take any liver support herbs or supps like methionine?
How much probiotic you use in an enema...like a teaspoon? I have taken probiotics on and off over the years and some have helped a little but for the $ I spent over the years it has not been anything to rave about. I take good quality ones and am on them while I am on the Abx for Lyme.
I would always find it a little hard to stick to my diet as I would start to feel better I would get hungrier and I would eat a hamburger or eat some ice-cream and I would feel even more wonderful....the first few times only.

[Gbolduev]

Ammonia is the number one reason  for fatique in  liver or metabolic imbalances.  You can check   Wilson desease forums,  those people  get rid of ammonia problem and fatigue disappears. There are many ways to do it, I will post  later how to do  it or try to do it . but of course it would be best to check  it first.  By the way  ammonia causes neurological  problems also. 

I dont eat any breads at all. I try not to eat pasta  but sometimes  I do  from brown rice( very seldom  though)
I try to eat buckwheat and also  make pancakes out of buckwheat powder which are good. In russia buckwheat is given  to cancer patients and I observed how  my wife was  getting much better on   buckwheat diet, of course  later she got  totally careless and started to cheat   and hide things from me , that is when she started to  die fast and furious.  I was not even  aware of medicine then  or balance and could not help since we  relied on  those stupid  ignorant doctors, who knew nothing.

As far as fasting , I did it since my POIS got  so far that I had lymph nodes enlarged and  I suspected  lymphoma.  So I did not really  care about weight , I was trying to burn anything  that is  foriegn in me. 
If you  have any lumps or  bumps that would be a good idea. Catabolism will take care of them.
I was always skiny  since I  did sports all my life,  but when  I got stress from my  wives death sentence and  started to lose hair and at the same time thanks again to our  medical community  who gave me  freaking   Propecia for hairloss that I started to  experience from this stress, I got my POIS. And from Propecia I gained weight like crazy.  Anyone who took Propecia,  detox your livers , that stuff sits in there and that is your problem. Propecia is synthetic  progesterone and it  lowers your thyroid/ Low  thyroid = loss of energy same as high thyroid. Loss of electrical energy  leads to  hang over  symptoms after any stress.(Orgasm,  hard work out, fight)  Before that  I  could do it  10 times a day  and I would feel fine.
You can look up  loss of energy % on ARL site where they  give you % of energy loss based on  how away from normal your glands are working ,   if you are losing more than 25% you are in POIS,  if you are losing more than 50% you are in constant POIS.


25 day fast was a  hard fast, but  it is amazing how it cleared out my head. In any case I would not reccomend this fast  to  people with POIS , it is  huge stress on the adrenal system.  I   did it since I had to and had nothing to lose.
As far as probiotics I used 2 full table spoons of the powder on 1 litre of water  and this water went in and stayed in. It was kind of hard to keep it in since  probiotic made  a little bloated and leaky , but  the  effect I started to experience right away  POIS got smaller.
As for liver supplements, I used milk thisle  TMG. But  it was a mediocre experience to say the least.
Liver flushes  seemed to do a lot more, especially    starting  from the 8 th or so  liver flush,   At first ones I felt terrible  as many report also. 
Malic acid  helps with  ammonia,   helped me tremendoulsy with  energy. As it did for many people  here, that is why I always recommend it.

[Maciej]

Herman,
Ok, we should read biochemistry literature and find more and more about minerals, but please, tell me how can I calculate these all ratios so that I could find my own way to replenish them. Hair analysis isn't so popular and it is not available here in my country. Is there any other way? All I could measure was blood levels of minerals and proteins you advised here some time ago. Haven't you cured yourself before taking hair test? 

[LAPOISSE2]

Herman,

What do you think about aluminium ?  It's often correlated with cognitive disorders

My symptoms started after I got different vaccination for Africa...at this time I also used a strong perspirant with a lot of aluminium in it...

Buy the way Malic acid is a chelator of aluminium

Additionnaly there is a rare disease called http://en.wikipedia.org/wiki/Macrophagic_myofasciitis

It has been discovered by french researcher so not a lot of english litterature about it but basicly it creates cognitive impairment,neurotransmission deficiency,  intense fatigue, joint and muscle weekness, moderate fever and digestive perturbation...A 2009 study link it to CFS

[Gbolduev]

LAPOISSE

You  are right on  alluminum. Usually alluminum   toxicity  goes with  iron and  manganese. together,  and Wilson calls them amigos,  as per ECK  every one is toxic in iron and copper alluminun and cadmium. You are correct that alluminum is the problem . This is one of the reason I give malic acid. It chelates alluminum  and  every single body is toxic in alluminium , I did not see one  person who wasnt.   Helda Clark claimed that  alluminium  and nickel was the  cause of  liver flukes / I am not sure if it is true or not.  One thing  I know the malic acid chelates it   out. 

Malic acid  chelates it  100% I saw it on   hairtests. You  can always try it yourself,  take malic acid and then do hair, your alluminium will  be sky high in hair.

Anyway, I am  going to   wrap  it up here, since I mentioned  that I cant post much anymore.

But I wanted to answer some questions before I go.

Good luck , guys
I hope  you listen  to what I told you . 

[Gbolduev]

One last thing  that I wanted to mention...

In the body niacin picks up an ammonia
molecule and becomes niacinamide that is eliminated mostly in the urine. If we take
niacinamide the reaction runs backward and we become tired with excessive ammonia.
This ammonia is toxic to the brain and liver and from this we are told that niacin is toxic
when in fact it is the more commonly used niacinamide, as often found in multi-vitamins.

That is another  possiblity why niacin works for some.   

I hope this is not what SLAVRS going to post on his portal...))))   KNOWN for years.

Try to check your ammonia levels, people.

[Prancer]

It's odd cuz I actually would feel better the longer i would go without eating too. At one point my pois would not kick in until I ate something.

Same here, I notice that when I go a while without eating I feel better, and then it kicks in when I eat something.

As a side note, it would be great to be able to cure pois and still be able to eat whatever we want because I like dairy, desserts and certain foods so much that it would be sad to not be able to eat them anymore. I would 'prolly still eat them anyway. [wink]

[ricky79]

Ricky79....do you think you had food allergies or intolerant of certain foods? It's odd cuz I actually would feel better the longer i would go without eating too. At one point my pois would not kick in until I ate something. I do the best by just eating meat....I'll probably have a heart attack by 45 but u gotta do what u gotta do!

Hi Ajs, I think it is not exactly a food allergy, all tests that I've done to food allergies are negative, also tested for food intolerance and only just a few foods were positive, it didn't helped much and it was a wast of money (those food intolerance tests are expensive). I call it food intolerance when I have to explain it to my friends and family and call it food allergy if I go to a restaurant and need to explain it to the waiter. I think that the name doesn't matter as soon as the other people understand and respect that you have some limitations with food. 
Yep, it seems that food can put a lot of stress on the system but for the long term one must find a consistent diet that feeds the body in a healthy non-stressfull way.

[victor.kons]

Herman has posted a link on a very interesting article about Niacin on Russian forum. I would like to share it here as well, very interesting stuff:

http://www.reboundhealth.com/cms/images/pdf/rdid129niacintoflushornottoflush.pdf

Victor

[ricky79]

Still now though I find diet has a big impact. Avoiding too much grains is good, but I also find avoiding red meat is good for me.

Eating small amounts of quality mince is ok though and I feel good when I eat liver (like its therapeutic).

A good quality liquid chlorophyll helps me feel good too. If I was fat, then having skimpy meals would be great, but I am trying to bulk up. : (   

Rick - Your use of Levitra..is not part of pois treatment, rather you just need it for ED?
Rick - Even though you feel pretty damn good now, if you masturbate - you get pois?

acronym - All you've said about your diet so far is exactly what a Paleo Diet is, even more strictly than the one I currently do. If you feel interest on this subject google on Dr. Loren Cordain.
I never tried liver and that's something I already thought about. I'll give it a try very soon. Will also check about chlorophyll, that one is totally new for me.
You're right about Levitra, I was diagnosed ED when I was under strong POIS, even without POIS my erection is not always so good so I'm still taking it at very low doses. Wouldn't recommend it to you guys, the first medicine I tried Ciallis triggered strong relapses, later my doctor changed my prescription to Levitra and I tolerated it better, but only after a few years I was able to take it without relapses, when my body got stronger. I do feel that avoiding any chance of ED lessens my worries and stress when it comes to sex.
About masturbation, it's still a big mystery for me, but I don't buy the theory of the allergy to semen. Maybe some lack of prolactin production when masturbating makes a difference... But the relapses I would get from it is a strong indicator that I'm still not cured.

[victor.kons]

Hi Victor,

Can you confirm that from the test you have seen in the russian forum, people have low ceruloplasmin ?

5 people have ceruloplasmin close to middle, 6 have low ceruloplasmin.

Additionaly have you seen recoveries by Herman protocol ? Are you personnaly still symptomatic ?

I haven't seen recoveries yet. I'm still symptomatic. But almost everyone feel general improvement, including myself. I generally benefit from Malic Acid, coffe enemas and Zinc supplementation, everything as was forecast by Herman for my case.

I'm not going to coment your explanation of the POIS mecanism as I'm not competent to do it

I'm not competent as well. Still I think we need to do our best to realize everything we can, we need to think and learn, think and learn all the time.

Victor

[ricky79]

Ammonia is the number one reason  for fatique in  liver or metabolic imbalances.  You can check   Wilson desease forums,  those people  get rid of ammonia problem and fatigue disappears. There are many ways to do it, I will post  later how to do  it or try to do it . but of course it would be best to check  it first.  By the way  ammonia causes neurological  problems also. 

Herman - I've already made a treatment for Ammonia. It's a quite easy and non-painful treatment. Just went to a pharmacy and bought a Lactulose laxative. Didn't need any prescription. The taste was not bad and it improved my brain fog, but the benefits ceased after few weeks.

[Gbolduev]

Ammonia cant be  cured with what you did, you   lowered it with Lactulose     which is  correct, but you have to\ keep doing  it,   untill you fix your liver.  Of course it will  wear out. I am saying that ammonia is one of the things that causes  the  brain fog. fatique and  neurological  symptoms in  CFS patients, POIS , Wilson patients,  to fix it  you need to fix your liver detox  so it can  detox ammonia into  urea,  for that you need to get balanced( balance your mineral balance,   so   niacin and other vitamins  can  be kept on  mineral shelves.   MINERALS are shelves for vitamins. Since vitamins are not stored in the body  mostly  Trust me  it is not very hard  to fix this, you need to get tested.

[LAPOISSE2]

This ammonium stuff is pretty interesting ;

http://emedicine.medscape.com/article/1174503-overview

My urea is pretty high it could be a sign of too much ammonium...Beside, when I sneeze, it's often smells bad..i think it's ammonium

With the niacin connection it's definitly something to look at for me....Any clue about a link with O ?

[B_Daniel]

Hair analysis isn't so popular and it is not available here in my country.

Hair analysis is available in every country. You just have to find a practitioner to work with you. Most US based practitioners i am guessing would be happy to order your hair test for a small upcharge for the additional shipping cost.  The only issue is that you might have trouble ordering the ARL endo-met supplements in your country- but that shouldnt prevent you from getting the hair test done.