[POIS-SUFFERER]

I have read that people are getting results with RELORA, so I have bought some and will try it myself... I think I am also suffering from POIS for around 2 years now....

How much RELORA are people taking?
How long before poeple are seeing results?

I have read a lot of this HUGE group and have not really seen these numbers.

Thanks!

[demografx]

Fascinating articles, Counterpoints!

[demografx]

B_Jim, terrific expose on Histamine!

[demografx]

POIS DIARY

Last night needed over 12 hours sleep. Today is Day One. I feel pretty good now. I wonder if 8x activity since 3/19 finally caught up with me. Prior to POIS treatment that amount of activity would've certainly landed me in the hospital or morgue!

[demografx]

Counterpoints, I read that LH test may be important to properly read T results for AMBIENT. And how about bioavailable T, FSH?

My understanding of Free T is that it can be tricky to determine the "true" level of Free T vs. binding T.

[POIS-SUFFERER]

demo,

I understand you on a testosterone patch? are these OTC or perscribed?

guess my next step is to have my T checked, looks like we are not 100% clear yet on what to have checked... which on the many T numbers.....

I am trying RELOARA right now... just waiting for it to "kick" in... not sure what to expect yet.

Thanks!

[demografx]

POIS-SUFFERER, welcome to the POIS thread of The Naked Science Forum!



The consensus at this forum to heal your POIS, is to start with hormonal bloodtesting, preferably with an endocrinologist.

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community.

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 250,000 page visits. Not bad for a rare malady!

[demografx]

For POIS-SUFFERER and others: there are some variations of opinion about what to test, here at the forum, so you may wish to ask others as well.

MY ENDOCRINOLOGIST'S LABWORK ORDERED FOR POIS

-PROLACTIN

-TESTOSTERONE(Bioavailable Testosterone, Free Testosterone, Total Testosterone, [SHGB] Sex Hormone Globulin Binding)

-DHEA-SULFATE

-FSH (Follicle Stimulating Hormone)

-LH (Luteinizing Hormone)

-TSH (Thyroid-Stimulating Hormone)

-CORTISOL AM

[demografx]

demo, I understand you on a testosterone patch? are these OTC or prescribed?

Prescribed. By my endocrinologist. Only after bloodtesting of the hormones in my just-previous post, and then an MRI of the pituitary to rule out tumors.

[demografx]

How much RELORA are people taking?
How long before poeple are seeing results?

P-S, here are some previous forum discussions about Relora:
http://www.google.com/search?hl=en&q=relora+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com

After clicking the above link, you then click on a link of a discussion that is of interest to you, and use Ctrl+F and type keyword(s) to zero in on the specific post you're looking for.

[demografx]

TESTOSTERONE CAUTION

Please keep in mind that testosterone is not a universal POIS healer. It works for me. And for at least one other sufferer (Dave23 on Page 4). Labwork in conjunction with seeing a physician, preferably an endocrinologist, is the best way to find out if it's right for you.

This forum is not intended for POIS medical treatment advice, it only puts forth the theories and treatments of the individual poster.

[POIS-SUFFERER]

For POIS-SUFFERER and others: there are some variations of opinion about what to test, here at the forum, so you may wish to ask others as well.

MY ENDOCRINOLOGIST'S LABWORK ORDERED FOR POIS

-PROLACTIN

-TESTOSTERONE(Bioavailable Testosterone, Free Testosterone, Total Testosterone, [SHGB] Sex Hormone Globulin Binding)

-DHEA-SULFATE

-FSH (Follicle Stimulating Hormone)

-LH (Luteinizing Hormone)

-TSH (Thyroid-Stimulating Hormone)

-CORTISOL AM

Wonder what my doctor is going to say about this.... :-) I guess I then post the results and others can comment on what they see....

Need to find an ENDO...

Thanks.

[POIS-SUFFERER]

Hello everyone! I wanted to let you know that I tried Relora and it was a disaster for me. It made my fingers tingle and I felt like I was in POIS - especially mentally. I'm glad it seems to be working for some, but I did not have a good first experience. I will wait a few days and give it one more attempt to make sure it wasn't something else. I see where some others are are trying it as well.... I will be curious if they experience any of the same symptoms.

Just today I took 250x2 in the morning and by noon I was feeling off and very odd.... it made me have a bad panic attack and ended in me taking a BENZO! But it could be other thinks.... so I will continue also.....

[Deniseamonalisa]

Are there any females with this syndrome in this forum? I need help and answers I am just body slammed after intercourse, usually within 6-12 hours. Fever, with all of it's associated pain. Misery! I have been evaluated in the ER with NO explanation for the fever $5000 bill (thank god for ins, but still?) My husband finally made the connection that these episodes coincide with our lovemaking. We have limited the activity and it is absolutely the cause. AHHHH! I have racked my brain & found this forum, but it seems to be mostly men. (I feel your pain, guys!) Any help would be greatly appreciated!

[demografx]

Hello everyone! I wanted to let you know that I tried Relora and it was a disaster for me. It made my fingers tingle and I felt like I was in POIS - especially mentally. I'm glad it seems to be working for some, but I did not have a good first experience. I will wait a few days and give it one more attempt to make sure it wasn't something else. I see where some others are are trying it as well.... I will be curious if they experience any of the same symptoms.

EDS, very sorry to hear about the bad experience! I hope that somehow this leads you to the right path for you.

[demografx]

Are there any females with this syndrome in this forum? I need help and answers I am just body slammed after intercourse, usually within 6-12 hours. Fever, with all of it's associated pain. Misery! I have been evaluated in the ER with NO explanation for the fever $5000 bill (thank god for ins, but still?) My husband finally made the connection that these episodes coincide with our lovemaking. We have limited the activity and it is absolutely the cause. AHHHH! I have racked my brain & found this forum, but it seems to be mostly men. (I feel your pain, guys!) Any help would be greatly appreciated!

Denise, a few women have been here or represented by their partners. The most recent is ajs:
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg243338#msg243338

You can also try to send a Private Message to "Girlwind". She created our POIS video.

[demografx]

Denise, welcome to the POIS thread of The Naked Science Forum!



The consensus at this forum to heal your POIS, is to start with hormonal bloodtesting, preferably with an endocrinologist.

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community.

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 250,000 page visits. Not bad for a rare malady!

[GoingCrazy]

Hello everyone! I wanted to let you know that I tried Relora and it was a disaster for me. It made my fingers tingle and I felt like I was in POIS - especially mentally. I'm glad it seems to be working for some, but I did not have a good first experience. I will wait a few days and give it one more attempt to make sure it wasn't something else. I see where some others are are trying it as well.... I will be curious if they experience any of the same symptoms.

Just today I took 250x2 in the morning and by noon I was feeling off and very odd.... it made me have a bad panic attack and ended in me taking a BENZO! But it could be other thinks.... so I will continue also.....

Wait... you took  2 pills 250 milligrams? shouldn't you be taking one at a time... I have to say this is a strange herb, as soon as i took it I felt calm, almost a little too calm to the point where I was feeling almost feminine lol... but after taking it for a few days you seem to experience it better.  At least for me.

[POIS-SUFFERER]

I will try one at a time now and see (RELORA), it was an odd feeling, and anything odd for too long triggers my anxiety! Its a vicious battle, even feeling too calm can trigger it! Its only been a couple days on it so its hard to tell at this point.....

Thanks.

[pyropeach]

Congrats Demo on your continued success.  I can only wish your solution could work for me, except getting T patches would be crazy for me since my last blood test showed I have a sky-soaring 164 pg/mL of free T.  (My actual reported number was 16.4 ng/dL with a range of 9-30 ng/dL).  Since I haven't posted in a long time, I felt it was time to give a brief update.  I'm sorry to say that Relora and PS just don't cut it.  Yes, they do help reduce the symptoms after a couple orgasms.  But after subsequent orgasms, they don't do much, if not just make me feel worse.  Don't get me wrong though, I'm definitely better off with Relora and PS, but its still no cure.

Have those who have had success with Relora continuously take it?  or only after orgasm?  I only take it afterwards in addition to PS. 

Seeing that different things are working on different people seems to show that they don't really fix the problem, but just mask the symptoms.