[demografx]

(1) The first issue that comes to mind is the "sex stigma" of POIS, and somewhat related to that, (2)  our own individual privacy/confidentiality concerns and needs.

Well, we should remember that HIV/AIDS was a worse stigma, yet it somehow managed to raise huge sums!

[demografx]

The 3rd question I have is what % of funds raised go to NORD for administrative, overhead, review of researchers, etc., or is that paid from Govt. grants?

[demografx]

I plan to make a phone call to WHO (World Health Organization)  on Monday to follow up our letter.

Then during the week, I'll call the newspaper reporter recommended by Mary Roach (when they ask "who's calling?", I'll say, "Demo",  that should work!  []) If this trial works, we'll have a blueprint for an expanded publicity campaign. "Next:  Oprah interviews John21, but first a word from our sponsor, Fenugreek! Eyewitness News at 11!"

Then I hope to send out more of Counterpoints' appeal letters to the targeted organizations we discussed a couple weeks back!

[martin88]

WHAT DO WE DO IF SOMETHING IS TO HAPPEN TO THIS WEBSITE.

I think Martin at one time said that he was creating a backup for this thread?
In any event, we've been given reassurance several times that as long as we were moved to "New Theories" (which we have been), we were ok.

I don't remember It was me who talked about a backup for the forum. But it would be wise to make it. Ideally, we should have a backup of all the texts directly from the forum's database. But I'm dreaming (?).

Very nice work to all of you for the letters.
If possible I'd like to have a copy of the compendium made by Pyropeach.THANKS.

(1) The first issue that comes to mind is the "sex stigma" of POIS, and somewhat related to that, (2)  our own individual privacy/confidentiality concerns and needs.

Well, we should remember that HIV/AIDS was a worse stigma, yet it somehow managed to raise huge sums!

Same thoughts for me for the first part.
POIS is killing us too slowly...

[pyropeach]

Just FYI, I'm currently marooned on a lonely island...AKA: I don't have internet at my new apartment, so it'll be hard for me to respond to any edits/suggestions anyone still hasn't sent me about the compendium.  I'm also strapped for time with my new back breaking job....but I will try to access the forum and my email whenever I get the chance.

[John21 (OP)]

I had an NE night before last and I am ingesting more yogurt in case the cultures are helping me somehow. To me this is the most plausible explanation of what making me asymptomatic. I'm not convinced that "candida" is the culprit but I suspect something in the intestinal tract. Of course, take my suspicions with a few tablespoons of salt.

Then during the week, I'll call the newspaper reporter recommended by Mary Roach (when they ask "who's calling?", I'll say, "Demo",  that should work!  ) If this trial works, we'll have a blueprint for an expanded publicity campaign. "Next:  Oprah interviews John21, but first a word from our sponsor, Fenugreek! Eyewitness News at 11!"

I can imagine the Oprah interview now, children asking, "Mommy why is his face so red?"
Maybe the sponsor would be Howaru []

[martin88]

I had an NE night before last and I am ingesting more yogurt in case the cultures are helping me somehow. To me this is the most plausible explanation of what making me asymptomatic.

Why not, yogurt is good for intestinal flora and for calcium and proteins. What is strange for me is that where I live there is a yogurt (only one brand) which is causing me NEs. I can't figure out why!
(By the way some foods systematically cause me NEs: salmon,brown sugar,b6,too much fat or proteins, and eventually unrefined salt)

[Limejuice]

John inspired me and now I'm also trying yogurt diet - yogurt twice daly.

I suppose not matter who the sponsor is we'll perform tv and billboard adds for that company to convince the public the product works. Perhaps the ads will be similar to breakfast cerial or then maybe prescription drug ads.

[demografx]

If possible I'd like to have a copy of the compendium made by Pyropeach.THANKS.

Sent just now via regular email.

[neilep]

Hi Demo !!

Good Job that man !

Neil

[Limejuice]

Its my understanding that probiotics naturally occur by living cultures in yogurtm. I could be wrong though.

[martin88]

Sent just now via regular email.

Thanks!

[demografx]

Hi Demo !!

Good Job that man !

Neil

                              

                                     Thanks, Neil!      

[demografx]

Martin (or anyone else who remembers), I tried a number of Google searches of the forum and I just couldn't find the post about who it was that saved our posts or said that they could in the future. Maybe I used the wrong keywords ("back up posts server"). Any ideas? Anyone?

[Defsync]

man am i glad to see you guys still going strong... too bad the wiki page got cut down to size, since it's said you cant use a forum as a source of reference =( but at least the page is still up

okay so one thing i've been poking around is histamine.

http://en.wikipedia.org/wiki/Histamine_H3_receptor

"The H3 receptor has also been shown to presynaptically inhibit the release of a number of other neurotransmitters (i.e. it acts as an inhibitory heteroreceptor) including, but probably not limited to dopamine, GABA, acetylcholine, noradrenaline, and serotonin."

now about histamine itself:

http://en.wikipedia.org/wiki/Histamine

"Research has shown that histamine is released as part of the human orgasm from mast cells in the genitals."

Now some of the symptoms of having too much histamine in the blood reminds me of POIS symptoms.

Histadelia: This is a disorder, prominent in males, of too
much histamine in the blood.

Symptoms include hyperactivity, compulsions, obsessions, inner
tensions, blank mind episodes, phobias, chronic depression,
and strong suicidal tendencies.

Physical signs can include little tolerance for pain, rapid
metabolism, lean build, profuse sweating, seasonal allergies,
and frequent colds.

So, for POIS symptoms that last a few days, I'm thinking that maybe we have a problem with N-methyltransferase, the chemical that breaks down Histamine.... so after orgasm, Histamine gets in our blood, sits there for too long, and the symptoms develop... after a few days EVENTUALLY the excess Histamine is removed from the blood stream and the symptoms disappear.

Just another random theory i have....

[Pronobis]

Nice job guys,
Congratulations!!!!

Every day I tape in google "post orgasmic illness" to reach at the forum. The first result is the forum's first page. But since today the first result is wikipedia's article. May be it has become more visited.

[demografx]

I can imagine the Oprah interview now, children asking, "Mommy why is his [John21] face so red?"

Mommy says, "Little Jimmy, his face is red because he's embarrassed to have this <cough> "sexual... <eyes rolling to ceiling>...disorder, Jimmy."

"Wait, Mommy, what's a sexual disorder??"

"Jimmy, tuck your shirt in, we're late for soccer practice!"

 []

[demografx]

The 3rd question I have is what % of funds raised go to NORD for administrative, overhead, review of researchers, etc., or is that paid from Govt. grants?

I think I found the answer from a NORD press release:

"DANBURY, CT (Dec. 8, 2008) NORD has been awarded the highest (4-Star) rating for sound fiscal management by Charity Navigator, a leading independent evaluator of charities.
...
Only about four cents of every dollar donated to NORD were spent on administrative or fund-raising costs in 2007, the most recent year for which figures are available."

Very impressive!

My impression (though I could be wrong) is that all the research money raised goes to the researcher(s), none to NORD, and that NORD just acts as non-profit clearinghouse.

[demografx]

Keeping POIS in perspective

I always thought it was one of the "cruelest" twists of fate that most of us spent years with POIS being misdiagnosed by physicians, for example, by being referred to a psychiatrist or psychotherapist, because, as many say, "POIS is all in our heads".

I thought "cruelest", that is, until I read yesterday about a NORD event speaker, one who has a rare disorder and was mistakenly amputated because of the physicians' misdiagnosis of the speaker's rare-disorder ailment.

[demografx]

Nice job guys,
Congratulations!!!!

Every day I type in google 'post orgasmic illness' to reach the forum. The first result is the forum's first page.

Thanks, Pronobis, for your well-wishing to all of us!

You wrote, "Every day I type in google "post orgasmic illness" to reach the forum."

Using the link below might be a little easier for you. It will bring you immediately to the very last POIS post you have read since your last visit.

In this way you can bypass the first POIS page and also bypass the clicking of the last page and then scrolling down to find the last post you have read:

1)  http://www.tinyurl.

2)  com/kvdhhz

Put 1) and 2) together. For some reason this system will not allow me to post the full link in one piece, so I typed it as two pieces.

Don't forget the "dot"  .  after "tinyurl"