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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline Porke

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6640 on: 30/01/2010 15:17:27 »

Quote from: goingcrazy date=1264646576
The first thing I really tried was probiotics ( I thought it was "candida" ,maybe some growth in my head? sounds crazy). 
I noticed that eating sugar and bread tremendously made me feel angry and tired, just bad.  I stopped eating most of that.  While trying probiotics, I was also trying relora.  It felt good but it also made me feel a bit too relaxed.  I haven't used relora in a while, but it was a good experience, overall beneficial.  I was taking garlic for "anti-candida" measures.  I also ordered Threelac and tried that for candida (if it was candida).  That did nothing at all.  I remember trying cranberry juice and thought that was a miracle cure.  But like demo or someone else said I think it is just the amount of sugar that is in it.

Bro, I have had the same issues to be honest. Sugar, and simple starches like bread, and pasta (over eating these) make me feel tired, lethargic, brain foggy. Many put this down to Candida infection in the gut. Garlic, Threelac, all these "hippy cures" as I call them, with roots and herbs don't do anything. There are only 2 medications that are specifically designed for these infections : Nystatin and Diflucan. I was prescribed one of them a few years back (cant remember which), and its only a single tablet. Felt great for about a month or so, and then back to normal.  It kills candida in your gut, and in your blood if it has spread.

Maybe you should give it a go.


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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6641 on: 30/01/2010 19:16:52 »
Quote from: Porke on 30/01/2010 15:17:27

Quote from: goingcrazy date=1264646576
The first thing I really tried was probiotics ( I thought it was "candida" ,maybe some growth in my head? sounds crazy). 
I noticed that eating sugar and bread tremendously made me feel angry and tired, just bad.  I stopped eating most of that.  While trying probiotics, I was also trying relora.  It felt good but it also made me feel a bit too relaxed.  I haven't used relora in a while, but it was a good experience, overall beneficial.  I was taking garlic for "anti-candida" measures.  I also ordered Threelac and tried that for candida (if it was candida).  That did nothing at all.  I remember trying cranberry juice and thought that was a miracle cure.  But like demo or someone else said I think it is just the amount of sugar that is in it.

Bro, I have had the same issues to be honest. Sugar, and simple starches like bread, and pasta (over eating these) make me feel tired, lethargic, brain foggy. Many put this down to Candida infection in the gut. Garlic, Threelac, all these "hippy cures" as I call them, with roots and herbs don't do anything. There are only 2 medications that are specifically designed for these infections : Nystatin and Diflucan. I was prescribed one of them a few years back (cant remember which), and its only a single tablet. Felt great for about a month or so, and then back to normal.  It kills candida in your gut, and in your blood if it has spread.

Maybe you should give it a go.




Yea, but you're POIS still right?  I was going to try that a few months ago but my mom thinks it will kill me haha.  Well right now I can tolerate sugars and starches I guess from my diet and less caffeine/sugar I am having.  But I am still POIS.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6642 on: 31/01/2010 02:06:26 »
Quote from: daveyboy on 30/01/2010 13:01:24

(I might be wrong but)
dont the testicles regulate the testosterone levels?


They are the manufacturers of testosterone.

Quote from: daveyboy on 30/01/2010 13:01:24

I definitely think I have suffered from low testosterone levels.


Why not test your T and get it corrected?

Quote from: daveyboy on 30/01/2010 13:01:24

But even if testosterone levels are low in my opinion in my case its a symptom not a cause.


Either way, why not see an endocrinologist or two and see if TRT is right for you and can help you feel and look better, and not just for POIS? TRT has enhanced my mood significantly for the better.

Quote from: daveyboy on 30/01/2010 13:01:24

I have only been to the GPs twice about POIS.
The first doctor said its simply unwanted nerves being used during an orgasm and nothing to worry about...be on your way type of thing..
The second doctor about a year later took a blood test. When I went back he said looks like you've had a virus...be on your way goodbye!-didnt wanna know..
since my outside therapies were giving me some relief I didnt bother sitting and arguing with him.


Some of these mainstream GP's make many of us here choke and scream!! They can be pathetic. The only way I know to fix that is to "take charge" and be prepared to fire them.

Good for you for not "bother[ing] sitting and arguing".
« Last Edit: 31/01/2010 02:11:35 by demografx »
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Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6643 on: 31/01/2010 19:15:52 »
yeah, maybe i should, im alot healthier now though, think im ok now, should have done it the past prehaps

Quote from: demografx on 31/01/2010 02:06:26
Quote from: daveyboy on 30/01/2010 13:01:24

(I might be wrong but)
dont the testicles regulate the testosterone levels?


They are the manufacturers of testosterone.


why do you think you have low testosterone?
do you have your own theory?
« Last Edit: 01/02/2010 01:03:37 by daveyboy »
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Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6644 on: 31/01/2010 20:55:40 »
Lyme disease - Not! But maybe psychosomatic? Oh! The unacceptable "P" word!

I received my Lyme Disease test few week ago and it came out negative. So that is another idea going to the round file. At least for me.

Now I am looking at a very different type of explanation. Please no screaming in the room...  I am looking at the possibility of a psychosomatic disorder. I know, I know... The symptoms are physical and very real. But it still can be caused by an emotional response. This is precisely what psycho-somatic means: a physical reaction caused by a psychological event. It does not say it is imaginary, or that it is happening in your mind - it actually specifies it is happening in the body.  I know it happens to me all the time. I got a letter from an attorney last week. My heart went pounding very fast, my mouth became dry, my breathing was faster and my digestive system went crazy for several days. Yet  I was not in any real danger - I was simply reading words on a page. That was a physical effect from an emotional response. And it was greatly exaggerated and unreasonable; all the document was saying is that someone wanted me to be aware of a court case. Nothing against me and nothing to respond. But it clearly got connected in my mind with a court case that "did" bother me a lot few years ago. Back to POIS: it is very real but that does not mean the cause is not emotional/mental.

I realize it may sound like a regression since few doctors finally declared that POIS is NOT in our heads. But I want to leave no stones unturned and I will be looking into this very deeply. I'll report back. http://www.unlearnyourpain.com   Personally I could be the poster model for MBS (Mind Body Syndrome) but again that does not mean it can help me with POIS. Dr Schubiner's book should be out this month and he told me the entire program is in the book with a CD for meditations too. At least it could help us feel better about life in general I think. And less anxious. That by itself would be worth much more than the $25 for the book.

Has this been explored by anyone here?
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Offline pedro05

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6645 on: 31/01/2010 22:01:38 »
Hello everybody

My name is Pedro, i am 24 years old and also have POIS.
I have found this forum by accident a while ago, some months, maybe a year.
I read this first page and i was relief that i finally found some information about this terrible condition.
I must confess i didn't read much after the first page.
I had a alcohol problem some years ago, and i didn't had pois before that so i believed my pois problem was a consequence of that,
and i pursued my own research on pois, believing it was a neurological problem.
I, like many of you, experimented many drugs and treatments in search for a cure.
In my research i found a new Alzheimer’s disease drug called cerebrolysin capable of
exerting a "nerve growth factor like" effect.
You have a good review here: newbielink:http://wiseyoung.wordpress.com/2009/02/10/271/ [nonactive]
i took cerebrolysin 5ml a day for 15 days then i increased it to 10ml for 5 days then i did the withdrawal, 5ml for 3 or 4 days then a shot day yes, day not for 4 days(it was enough for me)

My symptoms before cerebrolysin:

crashed completely after orgasm:
inability to concentrate,
depression,
sore throat (sometimes), ....

that lasted for 2 full days

After cerebrolysin i still have symptoms but they are much weaker and only last a few hours after orgasm(6~8 hours)
ATTENTION i'm not talking of a symptoms treatment(like the other cures you have in the forum)
i'm talking of a CURE, a permanent one, that i tested after stopped taking cerebrolysin (some days after)

I hope you all can replicate my findings. If you have questions or doubts, fell free to ask

Best wishes!!!
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Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6646 on: 31/01/2010 22:48:20 »
pablo,
learning from a book... mmm...cant see it working myself.. but obviously it might be worth ago(?)
did you restart feldenkrais or anything down that route?
what did your alexander teacher say about your posture, psychology and everything?
didnt it ever get you 'out of trouble' from POIS episode at least as a short term fix? Ive never left a session still in POIS but I accept some teachers I tried werent as good as others.
it was the only therapy i tried that seems to 'diffuse' pois effects including acupuncture, even reflexolgy doesnt get you out of pois.

just curious.

i guess the reason im curious is not because im on some manic mission to promote this therapy (!hee it's true!) but its because for MANY YEARS i used to wonder if I was the only person on the planet with this problem, and rationally thought probably not..
but I must be the ONLY PERSON that goes to A.T for it...
...but no! then i discover this forum and there's you with the same problem and went to the same therapy for it..but you gave it up..

so thats why curious and keen to hear all what you make of Alexander technique really and whether you think Im right to recommend it for POIS?
 
« Last Edit: 01/02/2010 00:53:48 by daveyboy »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6647 on: 01/02/2010 05:18:20 »
Quote from: daveyboy on 31/01/2010 19:15:52

why do you think you have low testosterone?


I've done numerous blood tests under the supervision of a top endocrinologist at a major world-class university medical research facility.

Tests included Bioavailable Testosterone, Free Testosterone, Total Testosterone, Sex Hormone Globulin Binding (SHGB).

I've posted all the specific results here previously, before and after treatment.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6648 on: 01/02/2010 05:20:24 »

pedro05, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only formal medical investigation on POIS by Dr. Marcel Waldinger,MD and Dr. Dave Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus well over 500,000 page visits. Not bad for a rare malady!
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6649 on: 01/02/2010 05:27:30 »
pedro05, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: almost 3 years' worth of posts (nearly 7,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
demografx POIS site:http://thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
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Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6650 on: 01/02/2010 11:57:43 »
demo,
sorry i didnt mean it like that, i meant like 'why' as in any theories why it may be low?
e.g upbringing, stress?, diet growing up or something, genetics, posture, structural damage, nerve etc.

nah i just wondered if you had your own theory on your POIS reasons/ etc.
dont worry if not
« Last Edit: 01/02/2010 12:00:28 by daveyboy »
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Offline silverandcol

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6651 on: 02/02/2010 09:45:38 »
Hey guys,
I've found this place like a bit over a year ago, been just reading and stuff.
I'm 19 and pretty sure i have pois.  however sometimes, i'm just not sure...
Once i start abstaining i start thinking the pois effects are all in my mind.   But then again, it does improve my quality of life by sooo much.  This place may just have saved my life o_o.
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Offline John21 (OP)

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6652 on: 02/02/2010 10:55:53 »
Has anyone had their homocysteine or B12 levels checked in POIS? Sunday night I took 1000mg of B12 to see if it would help my insomnia. That night I had an NE, and the following morning I felt fine (plus I did sleep better). I took another 1000mcg that morning, and didn't have any POIS at all during the day. Earlier I had reported that I thought spinach helped my POIS. I am wondering if maybe it's folic acid assisted in B12 absorption. The only other significant change that might have had influence is that I have been eliminating bread from my diet, replacing it with veggies.
« Last Edit: 08/02/2010 21:29:42 by John21 »
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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6653 on: 02/02/2010 17:24:30 »
Quote from: Pablo445 on 31/01/2010 20:55:40
Lyme disease - Not! But maybe psychosomatic? Oh! The unacceptable "P" word!

I received my Lyme Disease test few week ago and it came out negative. So that is another idea going to the round file. At least for me.

Now I am looking at a very different type of explanation. Please no screaming in the room...  I am looking at the possibility of a psychosomatic disorder. I know, I know... The symptoms are physical and very real. But it still can be caused by an emotional response. This is precisely what psycho-somatic means: a physical reaction caused by a psychological event. It does not say it is imaginary, or that it is happening in your mind - it actually specifies it is happening in the body.  I know it happens to me all the time. I got a letter from an attorney last week. My heart went pounding very fast, my mouth became dry, my breathing was faster and my digestive system went crazy for several days. Yet  I was not in any real danger - I was simply reading words on a page. That was a physical effect from an emotional response. And it was greatly exaggerated and unreasonable; all the document was saying is that someone wanted me to be aware of a court case. Nothing against me and nothing to respond. But it clearly got connected in my mind with a court case that "did" bother me a lot few years ago. Back to POIS: it is very real but that does not mean the cause is not emotional/mental.

I realize it may sound like a regression since few doctors finally declared that POIS is NOT in our heads. But I want to leave no stones unturned and I will be looking into this very deeply. I'll report back. http://www.unlearnyourpain.com   Personally I could be the poster model for MBS (Mind Body Syndrome) but again that does not mean it can help me with POIS. Dr Schubiner's book should be out this month and he told me the entire program is in the book with a CD for meditations too. At least it could help us feel better about life in general I think. And less anxious. That by itself would be worth much more than the $25 for the book.

Has this been explored by anyone here?
sounds interesting, have you read dr sarno's book as a start.
I am interested in your results.   
« Last Edit: 02/02/2010 17:37:40 by CCconfucius »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6654 on: 03/02/2010 01:28:58 »
Quote from: daveyboy on 01/02/2010 11:57:43

demo,
sorry i didnt mean it like that, i meant like 'why' as in any theories why it may be low?
e.g upbringing, stress?, diet growing up or something, genetics, posture, structural damage, nerve etc.

nah i just wondered if you had your own theory on your POIS reasons/ etc.
dont worry if not


daveyboy, testosterone declines with age, but apart from that I didn't really delve into the "why" of my low testosterone.

Here at the forum, at least in the early days, we arrived at a consensus that POIS is most probably endocrine-related, and that the best way to start was to get blood-tested for possible hormone imbalances, preferably with an endocrinologist.

I followed that path and it led to a satisfactory cure for me.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6655 on: 03/02/2010 01:30:54 »

silverandcol, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only formal medical investigation on POIS by Dr. Marcel Waldinger,MD and Dr. Dave Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus well over 500,000 page visits. Not bad for a rare malady!
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6656 on: 03/02/2010 01:34:18 »

silverandcol, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: almost 3 years' worth of posts (nearly 7,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
demografx POIS site:http://thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6657 on: 03/02/2010 01:39:36 »

In about 2 weeks, on February 18, it will be our 3rd year anniversary of the POIS thread of the Naked Science Forum, starting with the very first post by John21!

Confetti throwing is permitted. But only in the lobby, please. Thanx. [;D]
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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6658 on: 03/02/2010 07:21:59 »
Quote from: pedro05 on 31/01/2010 22:01:38
Hello everybody

My name is Pedro, i am 24 years old and also have POIS.
I have found this forum by accident a while ago, some months, maybe a year.
I read this first page and i was relief that i finally found some information about this terrible condition.
I must confess i didn't read much after the first page.
I had a alcohol problem some years ago, and i didn't had pois before that so i believed my pois problem was a consequence of that,
and i pursued my own research on pois, believing it was a neurological problem.
I, like many of you, experimented many drugs and treatments in search for a cure.
In my research i found a new Alzheimer’s disease drug called cerebrolysin capable of
exerting a "nerve growth factor like" effect.
You have a good review here: http://wiseyoung.wordpress.com/2009/02/10/271/
i took cerebrolysin 5ml a day for 15 days then i increased it to 10ml for 5 days then i did the withdrawal, 5ml for 3 or 4 days then a shot day yes, day not for 4 days(it was enough for me)

My symptoms before cerebrolysin:

crashed completely after orgasm:
inability to concentrate,
depression,
sore throat (sometimes), ....

that lasted for 2 full days

After cerebrolysin i still have symptoms but they are much weaker and only last a few hours after orgasm(6~8 hours)
ATTENTION i'm not talking of a symptoms treatment(like the other cures you have in the forum)
i'm talking of a CURE, a permanent one, that i tested after stopped taking cerebrolysin (some days after)

I hope you all can replicate my findings. If you have questions or doubts, fell free to ask

Best wishes!!!
how long have you been off cerebrolysin, have you tested it again.  i have read about it extensively for the last two days, its not clear that effects are permanent from cerebrolysin.  some people need to do a cycle every 3 to 6 months to maintain effectiveness. others who use it as a nootropic need to use it every day.
where did you get meds from?, i cant find anything that looks reliable. I'm in USA
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Offline matsoda

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6659 on: 03/02/2010 12:25:40 »
Hi all,

I have suffered from delibatating POIS symptoms as described on this forum for almost 20 years now. It's been a long road and i have tried just about everything to understand it and find relief with very little effect. I ended up avoiding any sexual stimulation altogether.

For what it's worth, i recently found that my POIS symptoms have all but disappeared! It seems that when i consume 50mls of Olive Leaf Extract daily, and extra taken slowly (for 1-2hrs) post orgasm.. my symptoms have all gone. The relief has been consistant and 100% repeatable.

This is my genuine personal experience. Maybe it can help somebody else here.

Kind regards
Darren

PS. Anything liquid you can get from your local health food store should do fine. The recommended dose for the brand i am using is 5ml taken 3x Daily, but my results have come from taking 50ml (mixed in 500ml of pure water) consumed over the day. I also consume another 30mls with water post orgasm. It's not that hard to put it in your water bottle. It's totally natural and from what i have read there is no risk of overdosing, but please do you own research to check that it's safe at these doses.
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