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For those seriously suffering. There is a drug called cyproterone ...
guthrie : if you are still watching this forum, would you please let us know how you trial of Vitex has been going? Thanks!
Only 18 years for me... It's amazing how an entire life can really be wasted due to this illness. And with the years i feel that pois is worse because it last longer than before. Please we need someone to find a CURE !
Hi sparx, to answer your question: I took Vitex for about 6 months. While I thought it seemed to be having a bit of an effect at first, it ended up being mostly minimal. So, after a number of months of no further improvement, I stopped taking it.
It seems improbable given all the discussion so far, but I'll ask anyway; Has anyone here experienced "ejaculation without pleasure" ( http://en.wikipedia.org/wiki/Anhedonia ), but still suffer from POIS afterwards?
QuoteWe need to get an outside research endocrinologist to look over all our posts and recommend a cure!Hey demografx: I have put out word to alternative health care providers who are familiar with endocrine testing. I am still waiting... and waiting for a response. It seems like there's two categories of health care providers I've run into: those who smirk and condescend to the idea of POIS, (screw them!Yes--pun intended), and those who show some empathy and interest, but have absolutely no experience with it and are rather baffled by it. I am hoping to appeal to a few of the empathic ones. They are out there, but like needles in the haystack. Maybe we'll get lucky in time, with so many of us persistingand persevering as a united front. It is SO much more encouraging to have a group of us working on this, rather than just each of singly attempting toblast open the minds of all those many closed minded medical doctors. Cliche but true: there is power in numbers. Viva la revolution! 
imre1: I would use cyproterone only as a very last resort. PLEASE try pretty much every SSRI and dopamine reuptake inhibitor (for a period of at least 3 months) before moving onto cyproterone.
MEDICAL ADVICEEveryone: Unless you are a doctor and the person here is your patient, I really feel it could be dangerous giving any medical advice, especially with POIS. It's a condition that can get desperate and lead to an attitude of "what the heck, I'll try anything". Anyway, there is absolutely no way to safely make an accurate individual diagnosis here just from a person's posting! Even by a physician.
It is good sense to consult the doctor; I also worry that people could try potentially harmful medications out of desperation. But it is useful to suggest medications as possible relief, and to share with others what has or hasn't worked. It's just also worth adding a disclaimer.