[demografx]

If the majority of us POIS sufferers were to fit into this category of prepubescent sexual activity I think this would be valuable data. It might give ourselves or researchers a cue to what mechanism might be causing our suffering, perhaps leading to a remedy.  For most of us this problem has been very destructive in our lives and it is understandable that we would hate the thought of personally having a hand in it (pun intended). Believe me, I have agonized about this as well. Hopefully it is not true, but I don't think we should cover our eyes to keep from seeing something unpleasant. 

I agree, John, that facing old traumas is much, much easier to avoid! And my comment was really glib, perhaps to cover up some unpleasant memories of youth. I don't know if you agree with me, but I do wonder about excessive guilt and shame - which I was certainly taught - that might have created "the punishment for 'wrongful' sexual indulgence" early on...and then blossomed into a full-swing hormonal imbalance that is now known as POIS?

[hurray]

Thanks for the encouragement demografx, fenugreek really does seem to have nailed POIS for me!

One way of getting more publicity might be to try to get a wikipedia entry set up for POIS, with a link to this forum as a source. Millions of people read and trust wikipedia, and it always gets very high on googles ranking for any given word. Unfortunately, wikipedia can be a bit elitist with their entries, so any new entry would probably need to be written and formatted by an exprienced wikipedian to stand a chance of surviving.

[demografx]

Thanks for the encouragement demografx, fenugreek really does seem to have nailed POIS for me!

I know I've heard it, but it's still exciting!!!

One way of getting more publicity might be to try to get a wikipedia entry set up for POIS, with a link to this forum as a source. Millions of people read and trust wikipedia, and it always gets very high on googles ranking for any given word. Unfortunately, wikipedia can be a bit elitist with their entries, so any new entry would probably need to be written and formatted by an exprienced wikipedian to stand a chance of surviving.

Fantastic idea! I think someone else may have proposed that once, but we didn't move on it. Wow. Thank you, hurray!

I don't think I'm the best guy/gal to take a stab at it. Any takers?

ANOTHER THOUGHT: this one might even be tougher...how do we reach the offline world of POIS sufferers? And no, I'm not willing to go on 60 Minutes []

[John21 (OP)]

Demo, I understand your concern in upping your dosage. The listed side effects of medications can make one quite apprehensive, been there done that.

Sure, early feelings about masturbation are definitely worth a look. Could shame influence our systems to morph into this problem we have? I don't know, but I find it more plausible that our sexual nervous/endocrine system was exercised to go big while it was still developing. I personally did not experience feelings of shame specific to masturbation that I can remember.

No 60 Minutes? How about Oprah?

[demografx]

Demo, I understand your concern in upping your dosage. The listed side effects of medications can make one quite apprehensive, been there done that.

Sure, early feelings about masturbation are definitely worth a look. Could shame influence our systems to morph into this problem we have? I don't know, but I find it more plausible that our sexual nervous/endocrine system was exercised to go big while it was still developing. I personally did not experience feelings of shame specific to masturbation that I can remember.

No 60 Minutes? How about Oprah?

OK, John...Oprah it is. What I wouldn't do for the First Poster At The POIS Forum!

Very interesting about "going big"...reminds me of what my Korean Alternative Medicine guru said: "your adrenal glands are too small to withstand orgasm."

You're right. That sounds more plausible than the early guilt and shame.

[demografx]

OK, John, Oprah it is, but I want my voice disguised too!!

[demografx]

I just had a thought, maybe our efforts should be aimed at attracting researchers tied to universities rather than more of the public. This forum might eventually get flooded with people posting about their experiences. That might leed to difficulties in our communication and campaign planning.
For example the youtube video could link to a wikipedia page providing a discription of the illness. The wikipedia page should end with advising people to see endocrinologists and start their own campaigns in the aim of attracting researchers. The wikipedia page should also make a direct appeal to medical researchers.

Hurray, this might have been the wikipedia reference (bold emphasis is mine) that I mentioned earlier.

[tarkington]

I want to mention that before I found this forum I was reading religious forums like
http://www.fredstoeker.com/community/viewforum.php?f=2&sid=b16fea73a5ad7b6641f12646c030013d [nofollow]

There are alot of people that believe their POIS symptoms are due to guilt and religious in nature.  I thought this for a long time.  But I realized after reading this forum that I was suffering from a physical problem, not spiritual.

[Counterpoints]

Tarkington... I'm so glad you found this place.  I'm going to try Relora soon.  There are also some other very good supplements to deal with cortisol problems, I will post about shortly.

[Finally]

If the disease was totally from guilt of taking part in an immoral act then married people would no longer get POIS and I believe several here are married.  

I experienced 1st sexual feelings at 11 or 12 more psychological than physical. NEs at 12 or 13 and began masturbation at 14. I was into sports so at times I didn't have time or energy to go overboard.  After HS it became more of an everyday thing. I had a near death experience which made me stop for a few months.  Once I started again is when the POIs really began.  So abstinence seemed like the  cure.    
I almost got married to be cured but fortunately that never came about.  Not a good reason.

No 60 minutes or Oprah.  But what about DR Drew?

[CertainlyPOIS]

I psychology and religeous faith thingy, i think is very bull.  If we get pois from NE which is not masturbation. What is there to be guilty about NE. I had not guilt at all.
But I think may be overdoing since i was fourteen could have created or made it worse. 
I remember when i was younger i used to absent minded alot, that could have been from pois and it got worse over years due to doing it too much. 

A 

[CertainlyPOIS]

What about about talk sex with that old lady on oxygen, she seems like the kind that will believe us.

[CertainlyPOIS]

Something funny happened though.
After orgasm i ate a jar of garlic and used relora.   Right after I went to sleep, which i believe was due to relora. And in sleep i had NE, which i believe was due to garlic. 
This combination seems to have reduced my recovery time from one week to one day.
I have been using relora for about a week or two at night before this incidence.

[girlwind]

There are alot of people that believe their POIS symptoms are due to guilt and religious in nature.  I thought this for a
long time.  But I realized after reading this forum that I was suffering from a physical problem, not spiritual.

Any illness for which they have not figured out a clear cause is in danger of being categorized as a "psychological
or spiritual problem." This is especially true with conditions that affect the brain and cause "mental" symptoms, as
does POIS. And when it comes to ailments pertaining to sex, the chances of being pigeonholed into that psycho-
spiritual waste basket of a category are multiplied exponentially.

It's a predictable scenario. As one with both CFS and POIS, I was subjected to it for decades, but I'm not willing to be
subjected to it any more.

[demografx]

There are alot of people that believe their POIS symptoms are due to guilt and religious in nature.  I thought this for a long time.  But I realized after reading this forum that I was suffering from a physical problem, not spiritual.

Tarkington, seems like you and I have traveled similar paths! I also thought it was guilt/religious/spiritual at one time.

[demografx]

No 60 minutes or Oprah.  But what about DR Drew?

I think Dr Drew (who once had a sex-TV show) is now too busy overseeing celebrity drug/alcohol rehab on TV series plus his real life as Hospital Rehab Director.

[demografx]

What about about talk sex with that old lady on oxygen, she seems like the kind that will believe us.

CCconfucius: Excellent idea! Sue Johanson, Canadian talk show (link below). CCconfucius, how about writing her about POIS Forum and showing girlwind's video link? Tell her we've had over 160,000 viewers at our site.

I would write her and say that her viewers who are POIS sufferers would be thrilled to know about this.

http://www.talksexwithsue.com/contact.html


CC, they don't want "sex questions" by email...so just say that we'd like to mutually promote each other!

But if you don't wish to, CC, that's fine, just let me know.

[demografx]

There are alot of people that believe their POIS symptoms are due to guilt and religious in nature.  I thought this for a
long time.  But I realized after reading this forum that I was suffering from a physical problem, not spiritual.

Any illness for which they have not figured out a clear cause is in danger of being categorized as a "psychological
or spiritual problem." This is especially true with conditions that affect the brain and cause "mental" symptoms, as
does POIS. And when it comes to ailments pertaining to sex, the chances of being pigeonholed into that psycho-
spiritual waste basket of a category are multiplied exponentially.

It's a predictable scenario. As one with both CFS and POIS, I was subjected to it for decades, but I'm not willing to be
subjected to it any more.

Girlwind, congratulations on "escaping". As you well know, it is a very long, difficult road to disentagle from stupid societal norms/bugaboos/controls! Albeit stupid, it's really tough to be "one against the masses".

[Limejuice]

I just had a heart to heart with my Endocrinologyst.  This is the first time I told her about POIS directly.  In the past I alway told her about the symptoms so that I could get tests (doctors tend to give you tests when just give them 'blind' symptoms).  So now she knows they weren't 'blind'

Anyhow, she had no idea what was causing POIS ; however, she did recommend that I see a urologyst (sp?).  She said that urologysts deal with sexual problems.  Sigh...I tried to tell her that the symptoms all led to endrocine problems.  She also said she doesn't think it's endocrine because I don't have physical problems like troubles getting erection or ejaculating.  But that the problems are cognative (and boy do I hate cognative problems).  So thats that.  I just wanted to share it with you and add to our 'library'.

Dazed and confused (literally),
Limejuice

[girlwind]

Anyhow, she had no idea what was causing POIS ; however, she did recommend that I see a urologyst (sp?).  She said that
urologysts deal with sexual problems.  Sigh...I tried to tell her that the symptoms all led to endrocine problems.  She also
said she doesn't think it's endocrine because I don't have physical problems like troubles getting erection or ejaculating. 
But that the problems are cognative (and boy do I hate cognative problems).  So thats that.  I just wanted to share it with
you and add to our 'library'.

Dazed and confused (literally),
Limejuice

Limejuice I'm sorry for your bad experience with the endocrinologist.

Last I heard the brain is a physical organ with GLANDS in it. Hello!  So that would make at least some
cognitive problems physical problems. Too bad that she managed to misplace that fact.