[Counterpoints]

My blood tests show that I am absolutly healthy. I was allergic since my borth, but now I'm ok, only in the case of dust and heat I have an itching nose and eyes.

But which blood tests did you have, and how were you feeling when you took them?

As far as organized information -- we have B_Jim's summaries, found on the first page of this discussion, and we also have the questionnaire (http://pois.olympe-network.com), and there is a wikipedia article (http://en.wikipedia.org/wiki/Post_Orgasmic_Illness_Syndrome).

[John21 (OP)]

Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?

[demografx]

Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?

Wow, John, terrific idea! Let's try it. I think the key to people finding us is also related to the volume and repetition of key concepts repeated in different words, so perhaps a lengthy description would work best, and one that includes many of the POIS sufferer's search terms we would anticipate, e.g., fatigue, "after sex", brain fog, exhaustion, orgasm, etc.

Allons!

 []

[demografx]

My blood tests show that I am absolutly healthy.

I agree with Counterpoints' question as to which tests were done? Most of us believe that hormone tests are essential. Here are some previous forum posts, so that you can see what we tested:
http://www.google.com/search?hl=en&q=hormone+test+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com

[demografx]

What is the link between sex and stress, I don't know.

"Underwater", a forum member, has written extensively about his experiences with stress and POIS:
http://www.google.com/search?hl=en&q=underwater+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com

[Counterpoints]

Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?

Great idea John.  I think it certainly would.

[Counterpoints]

Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?

Wow, John, terrific idea! Let's try it. I think the key to people finding us is also related to the volume and repetition of key concepts repeated in different words, so perhaps a lengthy description would work best, and one that includes many of the POIS sufferer's search terms we would anticipate, e.g., fatigue, "after sex", brain fog, exhaustion, orgasm, etc.

Allons!

 []

When I first experienced this, at about 14, I remember having trouble describing it.  I think I usually searched for "dizzy after orgasm".

This is a good discussion question, open to anyone: How did YOU find this forum (thread)?  What did you search for?

[demografx]

Counterpoints, great question for us all!

I searched 2 years ago, right at the beginning when there was practically no information except John's post and maybe B_Jim's.

Since I knew of the Waldinger study, I searched POIS, Post Orgasmic Illness Syndrome. But from John's original post, the Naked Science moderators at the time called this "Post Orgasmic Mental Illness" (John mentioned symptoms akin to 'mental illness' in his post) - but I was able to correct it to Post Orgasmic Illness Syndrome.

Nevertheless, the match worked close enough! I'm sure glad of that.

[Dean93]

Although this doesn't seem to be the main topic of discussion at the moment, I thought I'd post before I forgot.

Recap: 23 days since my last NE, 8 days since my last orgasm, and after 6 days of being out of pois, I had a NE. Afterwards I ate 2 cloves of raw garlic.

I had my NE at 7 AM on Friday. Within the hour, I had two cloves of garlic and I felt fine until 5 o' clock on Saturday, where I got a little bit of brainfog, but not the enveloping debilitating type that I get when I'm totally in pois, just a slight disorientation. Today, Sunday, I feel a bit less alive than I do when I know I'm out of pois, and a little brainfog remains, but it's definitely better than it has been after orgasm without the garlic. Factors like lack of mental stimulation (long weekend, friends seem to be unavailable) and lack of sleep, perhaps, could be the partially or totally the cause.

[John21 (OP)]

CP,
I believe my search terms were along the lines of this "post sex mental change" or "after ejaculation mind" or "sex mental problem" . After trying this for years and years I didn't have high expectations, but whenever in the state I would go digging again. If my memory is correct I came across a summary of the paper by Dres. Waldinger and Schweitzer, which eventually, in a subsequent state, gave me the confidence to post in this forum.

Dean93, glad to hear that garlic may have helped you! Hopefully it will continue.

[CertainlyPOIS]

I kept searching over ejaculation, oversex, mental illness and ejaculation.
I found herabllove, and like ten other websites. One of those web sites lead me to a issm and fromm issm to this forum. 
Those websites also lead to a french forum on this topic i believe. I acutually found french one first.

[CertainlyPOIS]

And for brain orgasm sleep on side works with loose pants.  I believe it works because the penis gets erects freely instead being sandwiched between bed and body.

[Counterpoints]

If you type fatigué après l'orgasme you'll find some hits.  There seem to be many French people complaining of this problem.  I actually remember an entire website (in French) talking about post orgasm symptoms, and neuro-transmitters.  It was titled something like "fatigué après l'orgasme".  It was posted on this forum a long time ago.  Maybe I'll see if I can find it later.

[demografx]

I also recall reading about some French people complaining of a post-sexual condition called "le petit mort", the little death.

Dean93, congrats with the garlic, let's hope it continues!

John, how/why did you pick The Naked Scientists? (Good pick!)

[John21 (OP)]

Demo, I just stumbled upon it while surfing. I found the site interesting, I browsed the forums and listened to some podcasts. Later it dawned on me that it would be the perfect place to post about my condition anonymously.  Perhaps the fact that the site is based in distant England made it easier to go ahead with it, it seemed far removed.

[martin88]

Why not to send a letter to World Health Organisation [WHO], that they finance some kind of research in this subject. May be there is some other thousand men in the world suffering of this.

Good idea. But we need a medical facility that will conduct the research and submit to WHO (http://www.who.int/en/)or others for funding.

Perhaps Pronobis idea is good ? "Only a doc must submit to WHO " :Is that something that you have read on the WHO website ?

[martin88]

About the keywords, good idea John. So if some german people or from other countries want to make a traduction of the symptoms mentionned in the wikipedia article (for example) and post it here in the forum it will be great!

At least fatigue and ejaculation are the same word in english and in french. I think this is how I found this forum.

[Counterpoints]

I also recall reading about some French people complaining of a post-sexual condition called "le petit mort", the little death.

I used to think "la petite mort" = "orgasm" in French. .  Sometimes, apparently, it also refers to the refractory period, and other things: http://en.wikipedia.org/wiki/La_petite_mort

[Counterpoints]

About the keywords, good idea John. So if some german people or from other countries want to make a traduction of the symptoms mentionned in the wikipedia article (for example) and post it here in the forum it will be great!

At least fatigue and ejaculation are the same word in english and in french. I think this is how I found this forum.

Hi Martin,

A wikipedia user has changed the article. Here is the original list of symptoms:

Of the known cases:

    * Over 97% are men
    * A majority report only cognitive symptoms, although physical symptoms (esp. flu-like) are commonly reported
    * Symptoms are independent of how orgasm is achieved
    * Symptoms are usually present within minutes of orgasm
    * On average, symptoms last 1-3 days
    * Symptoms commonly affect sufferers between 20-70% of the time during a given month, depending on a number of variables

Most commonly reported symptoms:

    * anxiety
    * cravings for the relief that follows orgasm
    * difficulty communicating (possibly a temporary aphasia)
    * fatigue or exhaustion
    * inability to focus (attention deficit)
    * inability to relax
    * irritability
    * lack of spontaneity or creativity
    * overall cognitive impairment (brain fog)
    * short term memory problems
    * slow to process information
    * social phobia
    * word-finding difficulty

Many POIS sufferers report nearly all of the above symptoms, regardless of whether they have some of the additional symptoms listed below. Fatigue or exhaustion is an exception. A large number of POIS sufferers report this symptom, but there are several cases where the above symptoms have been reported without fatigue, and where fatigue has been reported, without many of the above symptoms.

Other reported symptoms:

    * palpitations
    * insomnia
    * derealisation
    * appetite affected
    * cold/heat aversion
    * pallor
    * skin conditions
    * visual disturbances
    * hypoglycemia
    * diarrhea
    * depression
    * headache
    * lower back pain
    * muscle tremors
    * muscle spasms
    * elevated blood pressure
    * fear of light
    * flu like symptoms
    * dull head pain
    * dilated pupils
    * burning fingertips
    * aphthous ulcers
    * swollen neck glands

[demografx]

Why not to send a letter to World Health Organisation [WHO], that they finance some kind of research in this subject. May be there is some other thousand men in the world suffering of this.

Good idea. But we need a medical facility that will conduct the research and submit to WHO (http://www.who.int/en/)or others for funding.

Perhaps Pronobis idea is good ? "Only a doc must submit to WHO " :Is that something that you have read on the WHO website ?

No, I just assumed that because they seem to be involved mainly in large scale projects, e.g., AIDS. But maybe I'm wrong!

Martin, can you make a first draft of a letter to WHO?