[demografx]

I can try to do a draft next week-end, if you agree Pronobis, it's your idea

Then I hope you'll arrange this in correct english Demo.

Pronobis, is that ok with you that Martin drafts a letter to WHO? (And I will help edit)

[Counterpoints]

I'll also volunteer to help edit.

[Pronobis]

I can try to do a draft next week-end, if you agree Pronobis, it's your idea

Then I hope you'll arrange this in correct english Demo.

Pronobis, is that ok with you that Martin drafts a letter to WHO? (And I will help edit)

Sure, one of you should do that, cause you know better the problem and you're native english speaker.

[Pronobis]

my POIS has dramatically improved. Most times I feel healed 90%. This is after 30+ years of consistently agonizing POIS episodes.

It means that you have solved your problem or you have aggravated it?

[Pronobis]

Bonjour,

Je suis très fatigué et épuisé après le sexe (toute sorte d'éjaculation; que ça soit la masturbation ou le rapport sexuel). S'y ajoute encore les simptômes grippaux (les yeux qui grattent, le nez qui coule), les problèmes de peau (démangeaisons, pellicules), les problèmes de concentration, les maux à la tête, au dos, les spasmes musculaires etc. qui peuvent durer jusqu'à 1 semaine et plus (en fonction du nombre d'éjaculation). Les medecins nient toute liaison entre le sexe et ces problèmes, ils disent que c'est dans ma tête alors que j'observe cette liaison depuis des années et j'en suis absolument sûr. Finalement je suis désespéré et je suis resté devant le choix dûr - je dois choisir entre le sexe et la vie normale.

[demografx]

my POIS has dramatically improved. Most times I feel healed 90%. This is after 30+ years of consistently agonizing POIS episodes.

It means that you have solved your problem or you aggravated it?

It means that I have solved my problem 90%. If I exceed "reasonable" limits as to frequency, it is less. I'm finding these new limits by trial and error. So far, the "safe" new limits appear to be 10X greater than the old limits.

This assumes that my testosterone therapy (Androderm patches, 10mg daily) will continue to work. I've been on them now for over 3 months.

[demografx]

Thank you, Pronobis, for posting that in French! []

[demografx]

I'll also volunteer to help edit.

Thanks, CP!

[demografx]

Martin, Pronobis, B_Jim, please feel free to invite this French POIS-sufferer to our forum!
http://www.sexologie-magazine.com/corps/questionsCorps/CorpsQR25.html

[Pronobis]

Martin, Pronobis, B_Jim, please feel free to invite this French POIS-sufferer to our forum!
http://www.sexologie-magazine.com/corps/questionsCorps/CorpsQR25.html

It is impossible to contact persons who ask questions in this site. It would be very interesting because he wants even to create an association.

[Pronobis]

Thank you, Pronobis, for posting that in French! []

Thank YOU for the hope

[demografx]

Thank you, Pronobis, for posting that in French! []

Thank YOU for the hope

We all get it from each other here.

Before coming here 2 years ago, I was resigned to a hopeless outcome, since I tried everything - for decades - and nothing seemed to work. Now, all that has changed with this forum. I've become very hopeful because of it.

[Guthrie]

Some potentially significant bloodwork results:

This past week, I went to my doctor for a routine physical.  They did some standard bloodwork (CBC profile, metabolic panel), which I had also had done in previous visits.  All of these came back normal. 

However, this time, they also tested for Vitamin D, which I had not been tested for previously.  According to the results, I am severely deficient in vitamin D!  The normal range is 25 to 80 ng/mL, whereas mine was measured at 12.9 ng/mL.  So, the doctor recommended supplementation, which I will start right away.

The doctor's primary concern involved the relation between vitamin D and calcium absorption, such that a deficiency in vitamin D could lead to bone problems over the long term.  However, after coming home from the doctor, I did some further investigating, and found that Vitamin D is also involved in other processes that may have a more direct connection to POIS!

Just drawing upon the basic wikipedia article on vitamin D (http://en.wikipedia.org/wiki/Vitamin_D), it appears that vitamin D is involved in autoimmune response, seasonal affective disorder (i.e. certain forms of depression), and forms of cognitive impairment (including "foggy brain" i.e. our old friend brain fog).  All of these seems related to key POIS symptoms.

From searching the POIS thread on the forum, I noticed that vitamin D had been mentioned a few times before.  So, I will start supplementation, and report on my results.  Who knows, perhaps this could turn out to be a key breakthrough (although I shouldn't jump too quickly to any conclusions). 

The one thing that I'm most happy about (although this may seem a little weird) is that the doctors finally found something wrong with me.  That is, I'd been going to the doctor for a couple of years now specifically for POIS, and I've had a number of tests done (including testosterone), and they all came back normal--ARRRGH!  Now, at least, there is a little proof that my personal experience of "unhealth" is not all in my head (even though this vitamin D issue may turn out to be unrelated to POIS).  So, that is nice.

[martin88]

Then we could translate the Wiki article and post it in the different language sections of the site.

Let me know exactly what we need to translate, I'll try to do this.

I am severely deficient in vitamin D!  The normal range is 25 to 80 ng/mL, whereas mine was measured at 12.9 ng/mL.  So, the doctor recommended supplementation, which I will start right away.

Guthrie,
Your report is terrific! Wish you better health soon.
There was also one or two other case of pois who were tested and deficient.
What dosage did your doctor give you ? That can explain why I'm better with halibut liver oil, even if I think that vitamin A can also be helpful for pois.
The advantage of this oil is that a very small amount contains a big dose of vitamin. (5000 UI A and 400 UI D for one small capsule). Not to be taken everyday because it can be toxic.


Vitamin A and D are also given for pancreatic insufficiency (source:from a book written by MD or here :
http://translate.google.ca/translate?hl=en&sl=fr&u=http://www.medicinales.fr/Insuffisance-pancreatique&ei=UXsTStWxNJSS9QTs96X_Aw&sa=X&oi=translate&resnum=6&ct=result&prev=/search%3Fq%3Dinsuffisance%2Bpancr%25C3%25A9atique%2Bvitamin%2Ba%2Bd%26hl%3Den%26safe%3Doff

[Counterpoints]

Some potentially significant bloodwork results:

This past week, I went to my doctor for a routine physical.  They did some standard bloodwork (CBC profile, metabolic panel), which I had also had done in previous visits.  All of these came back normal. 

However, this time, they also tested for Vitamin D, which I had not been tested for previously.  According to the results, I am severely deficient in vitamin D!  The normal range is 25 to 80 ng/mL, whereas mine was measured at 12.9 ng/mL.  So, the doctor recommended supplementation, which I will start right away.

The doctor's primary concern involved the relation between vitamin D and calcium absorption, such that a deficiency in vitamin D could lead to bone problems over the long term.  However, after coming home from the doctor, I did some further investigating, and found that Vitamin D is also involved in other processes that may have a more direct connection to POIS!

Just drawing upon the basic wikipedia article on vitamin D (http://en.wikipedia.org/wiki/Vitamin_D), it appears that vitamin D is involved in autoimmune response, seasonal affective disorder (i.e. certain forms of depression), and forms of cognitive impairment (including "foggy brain" i.e. our old friend brain fog).  All of these seems related to key POIS symptoms.

From searching the POIS thread on the forum, I noticed that vitamin D had been mentioned a few times before.  So, I will start supplementation, and report on my results.  Who knows, perhaps this could turn out to be a key breakthrough (although I shouldn't jump too quickly to any conclusions). 

The one thing that I'm most happy about (although this may seem a little weird) is that the doctors finally found something wrong with me.  That is, I'd been going to the doctor for a couple of years now specifically for POIS, and I've had a number of tests done (including testosterone), and they all came back normal--ARRRGH!  Now, at least, there is a little proof that my personal experience of "unhealth" is not all in my head (even though this vitamin D issue may turn out to be unrelated to POIS).  So, that is nice.

Hi Guthrie.  Good news!  Interestingly enough, a very good endocrinologist, after hearing my symptoms, actually suggested I get "25 OH Vitamin D" tested.  Is this the specific test you had?

PS.  Don't overdose on vitamin D! It can be dangerous to take too much.

[demografx]

Guthrie, I never thought I would ever congratulate anyone for having found something wrong with them! []

My very best wishes!

[Ambient123]

5-HTP

Hey everyone.

Apologies for the large gap in my posts, but I have been conducting my experiment based on my Serotonin Imbalance theory

My projected self-treatment consisted of:

X2 100mg 5-HTP capsules per day (One late morning, the other before bed)

Prior to treatments, my POIS symptoms, and quite frequent out-of-POIS symptoms included:

Depression
Low Mood
Negativity and obsessive thoughts
Low self-esteem
Strong fatigue
Carbohydrate cravings
Low mental energy
Poor attention span
Impatience
Poor concentration
Poor memory
Thoughts of death (these were only during the intense POIS stages, don't worry
Low motivation

etc...

I conducted the experiment for the length of two weeks, with the same regime of 2 100mg 5-HTP capsules daily.

Here is my feedback.

I am delighted to report that I now consider myself virtually cured of POIS since this treatment began, leading me to believe that my POIS was Serotonin-related. As you can see, almost every symptoms listed above mirrors those of a Serotonin imbalance. (Percentage cured 90+ %)

Here are the symptoms which have been alleviated:

Depression - My depressive symptoms have disappeared completely. I am more content and happy after orgasm.

Low Mood - I no longer suffer from a low mood the day following orgasm and thereafter.

Negativity - My thoughts dwell on only the positive since my treatment began.

Low self-esteem - I have found myself to be more confident than previously following orgasm (though i am still quite quiet)

Strong Fatigue - My fatigue has also almost completely disappeared. Now, following orgasm, i can find the strength to do virtually anything physical.

Carbohydrate cravings - After orgasm, i would usually feel intense pangs of hunger, which would only disappear temporarily if I were to eat a lot of carbohydrates. This is no longer an issue, and I hardly ever snack now.

Low mental energy - After orgasm, i used to feel exhausted and tired mentally. This tiredness would ususally last a few days. Now, however I have much more mental energy after orgasm, with my cognition skills being virtually unhindered.

Poor attention span - After orgasm, and sometimes out-of-POIS, i would experience a poor attention span, with me being unable to concentrate on anything for more than a period of about 12 seconds. Since my treatment, i am pleased to say that my attention span has sky-rocketed, with me being able to concentrate for endless amounts of time. For example, being a huge fan of the band, The Doors, i would never before have been able to listen to their epic song, "The End", which lasts over 11 minutes, without stopping and moving on to another song. However since treatment, I have been able to listen to the song back-to-back without even letting my mind divert elsewhere.

Impatience - Before treatment, i would become very impatient, especially after orgasm, unwilling to wait large amounts of time for anything. Since treatment, I am pleased to say that I am more more patient, willing to wait any length of time, even after orgasm.

Poor concentration - My poor concentration has also disappeared. Before my treatment, I would sometimes be unable to follow even a basic line of language in a book, for example, after orgasm. Now, however, after orgasm i am much more able to focus and concentrate.

Poor memory - Before my treatment, i would notice a decrease in my memory function after orgasm, which, as you know, can devastate even a simple task. Since then, however, my memory has improved considerably.

Low motivation - My motivation to complete tasks is now incredible since my treatment. Coupled with patience and attention span, i find myself willing to complete a task with patience and determination no matter how long it takes.


Thus, as you can see, it seems that 5-HTP has been my "miracle cure" you might say. It has certainly alleviated most if not all of my POIS symptoms, and I find myself able to enjoy "O" without the knowledge that I will soon be festooned with symptoms.

I apologise for the long-winded nature of this post, however it might be worth trying 5-HTP as your POIS cure. It has certainly proved to be a wonder-cure. And best of all, it is a natural supplement, so there are minimal side effects.

Thank you

Ambient

[Guthrie]

Hi Guthrie.  Good news!  Interestingly enough, a very good endocrinologist, after hearing my symptoms, actually suggested I get "25 OH Vitamin D" tested.  Is this the specific test you had?

PS.  Don't overdose on vitamin D! It can be dangerous to take too much.

I agree with Cp about Vitamin D overdose.

Counterpoints and B_Jim, could you provide some links regarding the dangers of vitamin D?  Thanks!

Also, yes, the 12.9 ng/mL on my lab results sheet is for "25 Hydroxy D total", and since OH=Hydroxy, then that would be 25 OH Vitamin D.  Actually, in addition to the total, the sheet also lists a sub-breakdown on "25 Hydroxy D2" (which came back at "< 2.5") and "25 Hydroxy D3" (which came back at "12.9").  However, there is no 'normal range' given on the sheet for either of those two sub-measures.

[rock27]

Endo’s visit

- I told him symptoms, not the sexual thing. And showed my blood test results.

Endo then:
- saw my low t and wrote down hypogonadism. Though he said  it was not so low that he thought there should be done something about it, also because one test was just in range. He also said low T might be the outcome of other illness (adaptation of the body as he called it).
- ordered MRI pituitary. Don’t know why he did that, but this is good news.
- touched testicles ; to make sure they existed and were large enough. That was ok.

[Counterpoints]

Endo’s visit

- I told him symptoms, not the sexual thing. And showed my blood test results.

Endo then:
- saw my low t and wrote down hypogonadism. Though he said  it was not so low that he thought there should be done something about it, also because one test was just in range. He also said low T might be the outcome of other illness (adaptation of the body as he called it).
- ordered MRI pituitary. Don’t know why he did that, but this is good news.
- touched testicles ; to make sure they existed and were large enough. That was ok.

It sounds like he is taking you seriously, which is good.  Contrast might be useful for your pituitary MRI.  (My adenoma was only found in the post-GAD contrast images).  When they phone to book your appt, you could ask if your MRI is contrast enhanced. (I think it often is for pituitary).