[chipdouglas]

Do most of you posters experience low/absent libido/sex drive ? It's possible that we're not discussing the same issue here.

Thanks

[Dean93]

in study?

I'm willing to participate, if I can.

[demografx]

Dean,

Many thanks for coming forth so quickly!

Demo

[demografx]

Do most of you posters experience low/absent libido/sex drive ? It's possible that we're not discussing the same issue here.

Thanks

chipdouglas, welcome to the POIS thread of The Naked Science Forum!




chipdouglas, thank you very much for your detailed and most informative posts. Low libido has been with me for years, but others here I'm sure are different. Since I started testosterone therapy, my libido is back in shape.

Our main focus here is postejaculatory problems. After orgasm, debilitating symptoms set in, typically for days.

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 300,000 page visits. Not bad for a rare malady!

[Dean93]

No problem Demo, I suppose I'll have to wait for more information

[demografx]

No problem Demo, I suppose I'll have to wait for more information

Yes, Dean, thanks! I simply want us to be able to know what to tell researchers, truthfully, about how many people are available. We might have "300" POIS posts - here and elsewhere from B_Jim's research - but that doesn't indicate the number of participants we can muster...today.

Thanks again, Dean.

[John21 (OP)]

I don't believe I have ever experienced low libido.

[demografx]

Thanks, John.

A Google search of this POIS thread reveals 1,100 results for "tired fatigue exhausted". I doubt there is a close 2nd. But you're absolutely right, John, we do have vastly different symptoms represented throughout the sufferer base. I'm just referring, globally, to a statistical mode.

[demografx]

Now, given how busy I am and the sheer number of posting in this thread, pointing to how widespread this issue is, I cannot even entertain the notion of going through it all.

chipdouglas, two things can help in addition to the welcoming post:

1) Pyropeach is compiling a compendium summary of theories, remedies, etc. in this forum from Day One.

2) You can tailor a Google search of this forum to find most of what you're looking for:
Please click to see Message #201634
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg201634#msg201634
 

[pyropeach]

POIS RESEARCH STUDY

I'd like a show of hands, please. Would you kindly just post here:

"in study"

if you are willing to participate in a study of POIS by outside researchers who can help us.

As I speak to outside researchers, I'd like to give them an idea how many of us are available for this type of medical research.

A research study wouldn't necessarily involve your physical presence. At this time I'd like to just know how many are in our total pool of possibly available participants.

Thanks much, everyone!

Count me "in study"

[demografx]

Thanks, Pyro!

[Pronobis]

POIS RESEARCH STUDY

I'd like a show of hands, please. Would you kindly just post here:

"in study"

if you are willing to participate in a study of POIS by outside researchers who can help us.

As I speak to outside researchers, I'd like to give them an idea how many of us are available for this type of medical research.

A research study wouldn't necessarily involve your physical presence. At this time I'd like to just know how many are in our total pool of possibly available participants.

Thanks much, everyone!

How can I help you???

[chipdouglas]

Demografx : thanks heaps for bringing me up to date above, I'll cover those links for sure.

I've faced a very puzzling situation, which may or may not be what most have experienced. My real issue is I have no sex drive or no horniness if you prefer. This is beyond crippling to me.

I've had countless blood works but nothing in them stands out.

I'll keep searching as I've done over the last 10 years, it's the only way, as docs haven't been of any help.

[pyropeach]

Welcome Chipdouglas.

About fatigue/exhaustion :

It's a recurrent debate we have here. Please keep in mind all Pois sufferers don't have the same symptoms and that's why it's so difficult to find some consensus. There are different "forms" of Pois.
Fatigue is of course a very common symptoms here but in the same time it's not acurate... Is this a physical fatigue (muscular...) ? Mental fatigue (cognition...) ? Both ? Keep in mind this : each case is different.

A very good point that it is crucial to clearly articulate what we mean when we say "fatigue" and "exhaustion".  In the compendium draft, I point out the two main groups where one primarily has "mental fatigue" and the other primarily has "physical fatigue".  At least that's what I've gathered from just keeping track of the forum, but I could be wrong.

[John21 (OP)]

Chipdouglas,

I've faced a very puzzling situation, which may or may not be what most have experienced. My real issue is I have no sex drive or no horniness if you prefer. This is beyond crippling to me.

Some of us have been trying Relora recently. Demo reported an aphrodisiac effect when he tried it, and I noticed the same effect. Until taking this I thought that any aphrodisiac effect of a substance could only be psychological, but with Relora this is certainly not the case. Actually I am surprised it isn't marketed for this purpose. Of course if you are on medication consult your doctor before trying it. And even if you are not on medication use caution as it is a natural tranquilizer.

[Counterpoints]

Welcome Chipdouglas.

About fatigue/exhaustion :

It's a recurrent debate we have here. Please keep in mind all Pois sufferers don't have the same symptoms and that's why it's so difficult to find some consensus. There are different "forms" of Pois.
Fatigue is of course a very common symptoms here but in the same time it's not acurate... Is this a physical fatigue (muscular...) ? Mental fatigue (cognition...) ? Both ? Keep in mind this : each case is different.

A very good point that it is crucial to clearly articulate what we mean when we say "fatigue" and "exhaustion". 

Good point.  "anxiety" might be another symptom that is difficult to clearly articulate.  I think the general impression people have is that "anxiety" is something consciously generated, or can be controlled through medication.  However, the anxiety I experience with POIS isn't anything like "normal" anxiety that I might get over an exam, etc.  It's long lasting, reasonably constant in duration, and largely unresponsive to medication or any conscious effort to control it.  One of the key differences is that "normal" anxiety is a result of thinking about something in particular, whereas this is present regardless of that.  I thought this might be similar to the "distress" experienced by people with sugar handling problems (or very high cortisol levels).  There's also a definite social anxiety that comes with (my) POIS, which isn't normally present when I am symptom free.  This is certainly just part of the larger "anxiety" issue, and may give some clues about its origin.  I think it's associated with POIS "bringing my defenses down".  I discussed the anxiety symptom with a neuroscientist who has done research on orgasm using functional imaging, and he suggested that the amygdala is de-activated, and my anxiety was generated by a "lack of alertness".  This is the opposite of what one might expect -- that the amygdala is over-activated.

[demografx]

POIS RESEARCH STUDY

I'd like a show of hands, please. Would you kindly just post here:

"in study"

if you are willing to participate in a study of POIS by outside researchers who can help us.

As I speak to outside researchers, I'd like to give them an idea how many of us are available for this type of medical research.

A research study wouldn't necessarily involve your physical presence. At this time I'd like to just know how many are in our total pool of possibly available participants.

Thanks much, everyone!

How can I help you???

You already did! Just by saying that you've indicated your willingness to participate. Thanx!

[neilep]

Hi All,

Just wanted to pop my head in as I do occasionally to say how amazed I am at the way you all support one another here. I don't think anyone imagined that this thread would survive past it's infancy and grow to the outstanding thread it is today.

Demografx and all the other members contribute tremendously here.


It's easy I suppose when you are dealing with such a condition that it must be very hard to define eh ?

I gather it's accepted that POIS must be a generic term for a whole bunch of symptoms that are all related in one way or another but primarily are symptomatic specifically of Post Orgasm. What form the syndrome takes is wide and varied...as individual as..well..the individuals who are suffering from it eh ?
                                             
I am not surprised to see that disagreements may take flight. Especially, when , considering the condition. One never knows how really the other people in the thread are feeling at the moment.

I always think that sometimes it's prudent to realize that words said here may be written when people are suffering and so I figure a big dose of tolerance must be exercised.

Well done to you all and Demografx for his excellent moderation of what must be quite a difficult thread.

[demografx]

Neil,

Thank you so much for that!

I think people are here above and beyond selfish needs...in a commitment to fighting this agonizing malady. The proof of that is that MOST PEOPLE LEAVE...the committed altruists stay and contribute.

Forgive me if I'm emotional, but this forum has become a mission for me, more than many things in my life. Maybe because 30+ years of POIS has been a central, defining element of my existence.

Best wishes to all! Thank you.

[demografx]

Demografx : thanks heaps for bringing me up to date above, I'll cover those links for sure.

I've faced a very puzzling situation, which may or may not be what most have experienced. My real issue is I have no sex drive or no horniness if you prefer. This is beyond crippling to me.

I've had countless blood works but nothing in them stands out.

I'll keep searching as I've done over the last 10 years, it's the only way, as docs haven't been of any help.

chipdouglas, I had the same problem, and I didn't get factual results until I had my bloodwork done with an endocrinologist, looking at testosterone and other hormones.

Previously, testing with a GP and a urologist showed "normal" testosterone. In one case, the lab reported my "adequate" results as a female! []

TRT (testosterone replacement therapy) has brought my libido ("sex drive, horniness" as you indicated) to a level higher than it's been in decades. Normal.

I hope that helps.