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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5520 on: 09/09/2009 18:04:33 »
Interesting new book

Marnia Robinson, aka "reuniting" has been a POIS Forum member for quite some time and has contributed quite a bit to us. She and her husband are world-class experts in sexual relationships. Her new book looks like it might give us some more insight into POIS:
http://www.reuniting.info/cupids_poisoned_arrow


                        
« Last Edit: 10/09/2009 04:56:29 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5521 on: 09/09/2009 18:19:19 »

In our discussion of "reuniting"'s new book, she wrote: "One bit of research we put in our latest book is that androgen (nerve cell) receptors decline in male rats after copulation...and more so the more times they copulate. (Their pattern is 7-8 copulations before they lose interest in *that* mate.) Androgen receptors are what react to testosterone. So even if testosterone is circulating, the animal is not feeling as "manly." See how sneaky biology is? "The more (or more intense) the merrier" doesn't necessarily apply if you take into account the days following."
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5522 on: 09/09/2009 19:00:08 »
Quote from: goingcrazy on 09/09/2009 17:56:49

John21, have you orgasmed without NE to see if you are cured?  You don't have to if your really not ready I don't want to stunt your progress.  I'm really thinking long term celibacy is the key.  Maybe our brain chemicals are imbalanced and doing this leads to this type of reaction.  I was reading and it said it takes about 6-12 months to fully balance brain chemicals, and an out of balance brain seeks for short thrills that pay badly in the long term (orgasm).  If one thing helps us, it sure is staying away from orgasm.


I agree. But personally, I have simply been unable to pull it off (no pun intended)in 30+ years of trying. 60 days max. And then POIS is just as bad, and often much worse.
« Last Edit: 09/09/2009 19:02:03 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5523 on: 09/09/2009 19:08:00 »
Quote from: demografx on 09/09/2009 18:19:19

In our discussion of "reuniting"'s new book, she wrote: "One bit of research we put in our latest book is that androgen (nerve cell) receptors decline in male rats after copulation...and more so the more times they copulate. (Their pattern is 7-8 copulations before they lose interest in *that* mate.) Androgen receptors are what react to testosterone. So even if testosterone is circulating, the animal is not feeling as "manly." See how sneaky biology is? "The more (or more intense) the merrier" doesn't necessarily apply if you take into account the days following."


For people like me with POIS, I wonder if this ties in to my theory of more POIS-relief when: (1) I increase my testosterone when POIS begins, and (2) I increase testosterone treatment to higher than average levels 24/7.

My endo has approved both. Let's see what happens.
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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5524 on: 09/09/2009 19:58:37 »
i have been keeping up with the post since i first found it, and i have seen some good ideas come about. but i think these are all secondary illness's caused by a primary problem which is most likely the theory about hormones.  from peoples endocrine test, it appears that all the levels are pretty much with in normal range.  this suggests that we have normal homeostasis of hormones but, one is an antigen(antagonist of the body) in are body and is causing massive havoc. the best method i can think of is to test the hormones released after orgasm one at a time.  if one of the hormones causes pois, than we have found the problem and can start to solve it. that's if a doctor lets someone experiment with hormones.manually putting the "poison" in our body will give us concrete evidence if one causes pois.  this will be just like a allergy test, where they ***** your back with a possible allergen, and then wait for a reaction.

also, to the people who test the various methods of pois cures, by having 5 o's in a row, i applaud you.  5 o's in a row would most likely send me into shock, i would be airlifted to Harborview Hospital, where i would most certainly die a most torturous death.
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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5525 on: 09/09/2009 20:01:45 »
the part that say's ***** is poke
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Offline THISFORUMROCKS!

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5526 on: 09/09/2009 21:14:43 »
Good eye pyropeach; my new theory for the compendium has emerged and here it is:

POIS is a form of Encephalitis or Encephalomyelitis. It is only the cause of what triggers this form of Encephalitis or Encephalomyelitis that differentiates it from other more common or recognized forms of this problem.


P.S. Any efforts to debunk or applaud this theory are welcomed
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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5527 on: 09/09/2009 21:22:50 »
why does orgasm trigger the symptoms Encephalitis
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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5528 on: 09/09/2009 21:42:22 »
i guess a immune response from an antigen released during orgasm could cause inflammation of the brain(Encephalitis)
 
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Offline John21 (OP)

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5529 on: 09/09/2009 22:46:56 »
GC
Quote
John21, have you orgasmed without NE to see if you are cured?

Due to my faith I became chaste in obedience to the Catholic Church. My chastity could be contributing to my lack of symptoms post-NE, but I am not convinced of that. I have been (normally) chaste for a few years now during which I have definitely experienced POIS following both NE and O, but whether time has recently made things well remains to be seen. I too would like to have more insight into my current condition but I am reluctant to go there. I have confessed masturbation enough already. [:D]
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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5530 on: 09/09/2009 23:07:35 »
Quote from: THISFORUMROCKS! on 09/09/2009 21:14:43
Good eye pyropeach; my new theory for the compendium has emerged and here it is:

POIS is a form of Encephalitis or Encephalomyelitis. It is only the cause of what triggers this form of Encephalitis or Encephalomyelitis that differentiates it from other more common or recognized forms of this problem.


P.S. Any efforts to debunk or applaud this theory are welcomed

I think we really just need some thorough scientific research done, we can go on theorizing for eons.  I think I have been just digging myself a deeper hole self-diagnosing myself.  I read about encephalitis and it says symptoms may last about 2-3 weeks.  It also says symptoms such as fever and/or paralysis, which I don't have.  Have you been tested for Encephalitis?

Quote from: lauracostis on 09/09/2009 19:58:37
also, to the people who test the various methods of pois cures, by having 5 o's in a row, i applaud you.  5 o's in a row would most likely send me into shock, i would be airlifted to Harborview Hospital, where i would most certainly die a most torturous death.

Haha, well those 5 O's did come at a price.  I'm dealing with the late POIS right now.  Weird how my symptoms were delayed a few days.
« Last Edit: 09/09/2009 23:10:45 by goingcrazy »
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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5531 on: 09/09/2009 23:14:56 »
Quote from: demografx on 09/09/2009 19:00:08
Quote from: goingcrazy on 09/09/2009 17:56:49

John21, have you orgasmed without NE to see if you are cured?  You don't have to if your really not ready I don't want to stunt your progress.  I'm really thinking long term celibacy is the key.  Maybe our brain chemicals are imbalanced and doing this leads to this type of reaction.  I was reading and it said it takes about 6-12 months to fully balance brain chemicals, and an out of balance brain seeks for short thrills that pay badly in the long term (orgasm).  If one thing helps us, it sure is staying away from orgasm.


I agree. But personally, I have simply been unable to pull it off (no pun intended)in 30+ years of trying. 60 days max. And then POIS is just as bad, and often much worse.

POIS tends to be better after I wait at least 2 weeks, than I can handle about 1 orgasm.  I'm strictly only O'ing on NE's now.  But my current theory is that my body is in down-production of neurotransmitters, making me feel terrible after orgasm and having to replace these neurotransmitters is just a hassle for it.  30+ years does make me feel skeptical of this idea but maybe its either that idea or we need to rewire our brains by exercise, eating healthy, etc.  Maybe one day all will be fine.

http://evenstaronline.com/articles/top10brainop.html


# 10 is interesting

"When the baseline brain chemistry changes you are less subject to day to day drastic swings." <-- 6-12 months, day to day drastic swings meaning orgasm?
« Last Edit: 10/09/2009 02:05:35 by goingcrazy »
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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5532 on: 10/09/2009 05:14:02 »
As a child I has encephilitus.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5533 on: 10/09/2009 05:27:00 »
Quote from: goingcrazy on 09/09/2009 23:14:56

30+ years does make me feel skeptical of this idea [of celibacy]


GC, that's just me and my body chemistry. Maybe others are different. SteveD claimed he was celibate for 18 years. And I think John has been successful over long periods.

One of our forum members PM'ed me and wrote that my problem is...being a musician. Too much passion...who knows? [:)]
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Offline Taz

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5534 on: 10/09/2009 06:20:01 »
Hi I'm new, I was very interested in testing specific hormones one at a time after O'ing. How do I go about organising this? Thanks Lauracostis your approach is narrowing down the variables, this is what is really needed.
I've just started my cranberry trial and I think it has some real positive effects. After O'ing in the weekend I have taken cranberry juice, cranberry pills, cranberry's and a men's multi every day. I have felt confidence, semi social, alert similar to coffee without bad sleep side effects. I still had a very bad head ache and still felt some dizziness how ever not as bad as normal. I'm also feeling very calm which is very different to my high anxiety after POIS. For me I normally am very angry and frustrated because I just cant function effectively after POIS how ever I'm now calm and very rational. I have no understanding of the science behind POIS but cranberry's seem to be positive.    

Quote Lauracostis

i have been keeping up with the post since i first found it, and i have seen some good ideas come about. but i think these are all secondary illness's caused by a primary problem which is most likely the theory about hormones.  from peoples endocrine test, it appears that all the levels are pretty much with in normal range.  this suggests that we have normal homeostasis of hormones but, one is an antigen(antagonist of the body) in are body and is causing massive havoc. the best method i can think of is to test the hormones released after orgasm one at a time.  if one of the hormones causes pois, than we have found the problem and can start to solve it. that's if a doctor lets someone experiment with hormones.manually putting the "poison" in our body will give us concrete evidence if one causes pois.  this will be just like a allergy test, where they ***** your back with a possible allergen, and then wait for a reaction[/i][/i][/i]n.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5535 on: 10/09/2009 06:25:44 »

pauliebaby61 and Taz, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/poiswebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus more than 350,000 page visits. Not bad for a rare malady!
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5536 on: 10/09/2009 06:27:02 »

pauliebaby61 and Taz, this post might help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5537 on: 10/09/2009 06:41:00 »

Quote from: lauracostis on 09/09/2009 19:58:37

From peoples endocrine test, it appears that all the levels are pretty much with in normal range.  this suggests that we have normal homeostasis of hormones but, one is an antigen(antagonist of the body) in are body and is causing massive havoc.


My "T" was not in normal range. Endocrine tests showed low testosterone levels, so my endo put me on TRT (daily 15mg patches).

Over eight months into treatment, I now have 75% to 90% relief of POIS symptoms per episode.
« Last Edit: 10/09/2009 08:02:29 by demografx »
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Offline pauliebaby61

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5538 on: 10/09/2009 14:32:46 »
Testosterone does not help my pois. im on shots 2x a wk and my level is 789 but still have the symptoms after orgasms. I also take an estradoil blocker now, becuase T converts rapidly into estrogen. my level was 105 a year ago, so i assumed thats why i felt so bad after orgasm. It wasnt the answer. Im a 47 yr old male.
« Last Edit: 11/09/2009 01:56:27 by demografx »
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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5539 on: 10/09/2009 14:45:36 »
Quote from: pauliebaby61 on 09/09/2009 16:50:46
The testicles release hisamine at orgasm

Where did you find this out?! Please let me know as it may lead to another theory and shed light on another piece to this puzzle.

As for the Encephalitis thing...it seems more raw data is needed before we could declare it another one of our theories.

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