[Defsync]

Here's something I struggle to understand. Why oh why did my own body decide to pick the worst timing possible to have an N.E.?

i struggle to understand why the medical community still has no clue about something that can affect people's quality of life so greatly.

i do understand your dilemma. this is why i left the infantry (military). in my position, if i had a NE, people could die from my brain fog in the following days. i had no other choice; its as simple as that.

the fact is there will not be a cure for any of you within your lifetime. you had better get your NE's under control.

[demografx]

Limejuice, as you're finding out, frequency control might be the biggest challenge of a POIS cure. Especially if libido is restored to a higher-than-previous state.

[demografx]

the fact is there will not be a cure for any of you within your lifetime.

Defsync, I wish you'd stop the unnecessary pessimism already!

I have responded to your posts many times as to why this is completely and utterly untrue, but I no longer will continue to do so because you are apparently super-adamant about maintaining your position of "POIS hopelessness for all".

People here deserve better than that: the very positive hope that truly exists for EVERYONE with POIS. And I'm living proof of that!

edit-also sent by PM

[daveman]

Limejuice, as you're finding out, frequency control might be the biggest challenge of a POIS cure. Especially if libido is restored to a higher-than-previous state.

Notwithstanding, there still may be a more optimal dosage that pertains more directly to POIS (rather than birth control).

If we are controling frequency (within standard functional norms), we're not really cured.

But meantime, as you say, it is definately an important factor in a partial cure! I have a limit of three per week MAX! and then I'm back to no more for about 3 or 4 weeks. If I keep it down to 1 or 2 per week with ejaculation conrol, I can maintain that for much longer.

[horizon]

Hi Limejuice,
what make are the pills?

also from the table at the bottom of the wiki page, do you know what category they come under?
http://en.wikipedia.org/wiki/Progestin

many thanks

[strawberryman]

Shouldn't this condition be called Post Ejaculatory Illness Syndrome, instead of Post Orgasmic Illness Syndrome ?

[Limejuice]

Not yet.

Progesterone update:

It's been 2.5 weeks since beginning the 'birth control' schedule of .35mg progesterone daily.  I've felt good over that time but haven't tested much with Oing.  However, last night I did test and the results were positive;

I was wondering if this regime will be helpfull for some one who has lots of nocturnal emission and sinc NEs are less potent than orgasm for some, the results might be better. 
Did u have a nocturnal emission on the regime.

[Limejuice]

Their Norethisterone.

Hi Limejuice,
what make are the pills?

also from the table at the bottom of the wiki page, do you know what category they come under?
http://en.wikipedia.org/wiki/Progestin

many thanks

[demografx]

Shouldn't this condition be called Post Ejaculatory Illness Syndrome, instead of Post Orgasmic Illness Syndrome ?

Very good question. I don't think we have an answer. 2,480 results came up when I searched just in this forum!
http://www.google.com/search?hl=en&rls=com.microsoft%3Aen-us%3AIE-SearchBox&rlz=1I7DAUS_en&q=ejaculation+orgasm+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&aq=f&aqi=&aql=&oq=&gs_rfai=

But we have a very practical reason for calling it POIS: it was the name given by 2 physicians (Drs. Waldinger and Schwartz), who formally studied our malady in 2002.

This medically established name is VERY important to our credibility...which is often an uphill struggle for all of us.

Thanks for asking the question.

[demografx]

If we are controling frequency (within standard functional norms), we're not really cured.

Complex issue. But I do understand your viewpoint.

My POIS treatment has created a brand-new libido, but I don't think frequency control is such a bad idea. I really don't aspire to unlimited satiation, partnering or otherwise, even if I somehow could achieve that with a "perfect" cure. I would just become a teenage animal []

[Limejuice]

Your correct.  Luckly libido has not increased.

Limejuice, as you're finding out, frequency control might be the biggest challenge of a POIS cure. Especially if libido is restored to a higher-than-previous state.

[GoingCrazy]

http://www.reuniting.info/node/3427

link to the "brain reset" comments

[Hoping]

Hi everyone,
This is my first post in this forum, although I have been reading the posts here for several weeks. I want to thank everyone for contributing so much to the search for a cure (and recognition in the medical community!). I am a 25-year-old male and have suffered from POIS for many, many years. I finally connected my symptoms (depression, lack on concentration, body aches, anxiety, brain fog, mood swings, etc.) with orgasm about two years ago. The symptoms hit me about 24hrs. after ejaculation and last from 3 to 14 days. As I became more aware of the causes and effects of my symptoms I have done more investigating and have been paying closer attention to my own body's cycles. Finding this forum was a great blessing and has given me many insights into my (our) condition. Namely, it has shown me that I am not alone.

In an effort to track my symptoms and possible cures I have started keeping a chart/graph in an Excel spreadsheet. I am attaching them a screen shot of them to this post, although I had to shrink them down quite a bit so I'm not sure how well they will show up.
I have been keeping track of the following symptoms 3 times a day: time and size of orgasm (scale of 1-10), level of depression, anxiety, lack of concentration, body aches 
I have been keeping track of the following factors that may affect symptoms as well: sleep (hrs.), wellbutrin (I take once a day), Vitamin D, Indomethacin (my doctor perscribed it for post-coital headaches, which I now recognize as POIS), caffeine, alcohol, exercise, meditation.
I have not tried some of the other remedies mentioned in this forum (garlic, for example), but may work them into my routine at some point.
If anyone would like a copy of this chart/graph for your own "POIS Journal" please contact me. I would be happy to send it your way and explain how to use it. Obviously, you can tailor the symptoms and factors to your own situation. Also, if 3 times a day is excessive for you, you could do it twice or even once a day. It has been helpful for me to see charted, daily progress.

Keep up the good work everyone!

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[daveman]

Hi mmac06, welcome. It does feel great to know you're not alone!

Great to see the graphs. The visual representation helps a lot to see cause and effect, and having a platform that permits you to enter data while it's still hot also helps to capture details that might otherwise slip the memory. I think this is the most important part of this type of approach...

I enter data is MS SQL, and then with a little cut and paste, can transfer it to Excel.

I have seen things that I hadn't imagined previously, soley for having noted the data, in a cold "in the moment format". If you enter it later, the emotional system begins to effect what you think you remember happened, and aside from the emotional slant, you miss real detail.

I guess you included the graphs in your post as "print screen images".

It has helped me divide the graphs into groups, "mental symptoms", "physical symptoms" and "emotional symptoms (depresion)". It's just a little easier to see the information, less dense.

Good to see you here!

[demografx]

mmac06, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:


Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here.
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only formal medical investigation on POIS by Dr. Marcel Waldinger,MD and Dr. Dave Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For for over 3 years, our POIS forum has attracted over 150 POIS sufferers worldwide who have posted here, plus over 600,000 page visits. Not bad for a rare malady!

[demografx]

mmac06, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: 3 years' worth of posts (over 7,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
demografx POIS site:http://thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

[sweden]

Hi mmac06,

Nice work with the graphs!

Have you been able to find out anything from analyzing it yet?

I'm also trying to monitor my symptoms together with; blood pressure, body temperature and blood sugar level. However, I have just started and have had some problem doing this periodically so I have no results (yet).

I'm also desperately searching for someone professional (doctor) who I could work with. The neurologists I have talked to has little interest in anything beyond "regular tension headache or migraine".

BR from Sweden

[demografx]

sweden, have you tried working with a good endocrinologist. After 30+ years suffering and numerous practitioners, that's how I found my greatest POIS relief.

[jjjackson]

Wow, I feel so relieved to find this forum.  I'm a straight 21 year old male and I have experienced almost 100% of the previously mentioned symptoms related to POIS for several years; the farthest back that I specifically remember it happening is when I was 16.

My specific symptoms occur most strongly within the 18-24 hours after ejaculation, but the symptoms overall extend well into the 3-4 day mark.  I've noticed no difference between intercourse, masturbation, or nocturnal emissions except that if I don't allow myself to ejaculate during masturbation, my symptoms are reduced by a great deal.  My symptoms include what has been described as 'brain fog', in that I find it very hard to focus, and my overall thinking/logic ability is very heavily impacted.  I sometimes will also have a minor headache for the day or two following the event, and by the second or third day I will predictably fall into a bitter and depressed state where I feel unexplainably like my future is hopeless.

To give you some background into who I am, I'm a full time college student, in my Junior year at a fairly large university in the USA.  I usually think of myself as a very stable and upbeat person, so the depression that I get from POIS is unusual and is definitely correlated with it somehow.  I have never talked to a doctor about my symptoms (although I definitely will now that I've finally found others with this disorder), but I have tried to explain my symptoms to various close friends in the past, and it seemed that none of them had any idea of what I was talking about.

My methods of self-treatment primarily revolve around abstainance.  I've actually taken it so far as to end a long-term relationship due to the impacts of POIS on my ability to study and perform well in school.  (We were together a little over a year-- long term for someone my age.  She assumed I was cheating on her, why else would I not want sex?  Obviously the 'story' of how it makes it hard for me to think clearly was a lie.)  Of course, total abstainance is very difficult for a young male, so when I just can't restrain myself anymore, I avoid ejaculation, as I have found this to help ease my symptoms.  By 'avoid ejaculation', I mean I squeeze hard enough with my hand so that nothing can come out.

It feels amazing just to know that I'm not crazy and that this is an actual disorder...

[daveman]

The formating of my graph is pretty crude, and the timeline is not exactly linear, I was using the graphs to debug the methodology a bit, so that was more the focus.

The vertical lines are related events. The "T" is tylonol, you can see how it affected the physical symptoms but not the mental. MSG is MSG.. and after ingestion, there was a two hr spike in both types of symptoms. I think I felt at that time that the increase in the mental symptoms, exagerated the physical ones.... they felt worse.

TOM is tomatoe, but not because of the tomatoe, but because the tomatoe was tained, with some green fungus or something. The second tylonol brought things down again, and then following the BBQ, with alcohol and diversion I felt quite a bit better.

I note again that the symptoms were very "coldly entered". I just reported in the moment what I felt, and wasn't really mentally noting what could be any particular inter-reaction.

This graph doesn't have the emotional fieled included, that came later.

This is my first attempt at including an image, so hopefully it works.

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