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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11620 on: 12/02/2011 01:19:27 »
Quote from: Defsync on 08/02/2011 15:47:52
Quote from: horizon on 05/02/2011 12:01:47
Quote from: Vandemolen3 on 05/02/2011 01:07:54
Quote from: Nightingale on 04/02/2011 19:50:20
Ok guys,  I have a report from this week's doctor's visits.  First my endocrinologist.
  • He read our studies and has agreed to let me try using Androgel, which is the cream form of testosterone suplementation.  I like him a lot because he is bright and willing to give me a chance.
  • Second, my urologist (a new one).   His reaction was basically "wat? I dunno."   [::)]
  • Third, my allergist (new one as well.  She was a little incredulous, but she decided to do a pinprick test.  So today I just got the test done, and... it was negative

I got the pinprick done around 35 minutes after I had produced the semen, and by that time the sperm had gone from its fresh state (white-milky color) to mostly clear and yellow-tinged.  I felt that despite the negative result, I'd like to try a fresher sample for the pinprick.  The allergist was looking at me funny, but she said that she'd humor me.  I'll have to wait til Monday to do it again

But in the meanwhile, I told the allergist I'd do an "environmental panel" to see what other stuff I'm allergic to.  So I got pricked 75 TIMES  [:o] on my back, then 25 DEEPER ones on my arms.  I found out what I already knew (I'm allergic to various tree pollens) but that dust mites, cockroaches, and even cats cause me allergies.  I grew up with a cat, never found problems.  But I'll be purchasing special dustmite pillow and mattress covers

Sigh, I'm disappointed...  but on I go

OH P.S.:  I"ll be starting the testosterone cream after I do the sperm pinprick again, dont want more variables
Did she read the latest paper of dr. Waldinger? There is the protocol of the treatment.

Since the test didnt work 35 minutes after orgasm, then I would try it on Day 2/3+ after instead, if possible. This would involving freezing a sample in your freezer which is mentioned in Waldingers study.

I have thought about this. Lets say hypothetically that you are allergic to your semen.
Then everytime you have an orgasm it triggers a massive autoimmune system response.
I wonder if testing a minuscule pinprick of semen 30 minutes later is worthless since the first response still well underway and your body has nowhere near recovered anyway..
..the skinprick maybe wont trigger another minor response from the body ....

(Surely...) its like if you take a river which has dam, at the top there maybe gates which allow a bits of water here and there, in and out, but if the whole dam breaks and the whole area is flooded then thoses small gates are irrelevant until everythings recovered and gone back to normal.

I think this is an issue Dr.Waldinger has to clear up pronto.
I would like to ask if instant tests are valid why did Dr.W ask the patients to bring pre-frozen samples?

To be quite honest, I think the skin-***** test is completely unreliable in determining whether a person has POIS. People with POIS may also have semen allergy, but considering the severe mental dysfunction that results in POIS, the idea that skin ***** test would work doesnt make sense to me. Im glad for the attention Dr. Waldinger's work is bringing to this condition, but I think we are still a long ways off from getting any of the answers we were hoping for. I think research is going to need to be done using functional MRIs, spinal taps, neurochemical transmission, antigen monitoring, glandular function during O's, etc. Of course, this kind of research is going to take a huge amount of money and resources, but I dont think we're going to have any real answers until this type of research is done.

I kind of agree with defsync about being skeptical about the skin p-r-i-c-k test. But he(dr.W) has had some success with it. I wonder how it would play out on a larger scale, like with more people in the study.
Also, I find those mental symptoms quite strong. I see your point, daveman about mental dysfunction being a Type IV allergic reaction.. But I'm still skeptical.
« Last Edit: 12/02/2011 01:23:15 by Animus »
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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11621 on: 12/02/2011 01:28:47 »
Quote from: daveman on 08/02/2011 18:59:58
Quote from: Habibou on 08/02/2011 14:06:19
Thank you Confucious! Patch and Scratch tests were both negative for me  [:)] So I guess I can still have the hopeness I become positive to the intradermal test... now the question is where to do it and follow Dr Waldinger's method perfectly.

Still no answer to "cure" the brain fog, what helpt the most ?  [:)] thank you!

For me, the main "cure" for brainfog is "time". My brain fog is light generally and doesn't last too long, usually day 2 to day 5 at most, Heaviest day 2 and 3. On rare and extreme cases I have experienced depression, lasting 1 to 1.5 days.

Some seem to suffer much more, to the point that it can be disabilitating. Perhaps in those cases an anti-depressive may work. I don't know, haven't had to resort to that, but from what I've read here, the result of medication for depression are 50/50. They'd have to speak for that though.....



yes it seems some have worse mental dysfunction on POIS. I definitely have had much worse mental symptoms, depression, cognitive problems.
« Last Edit: 12/02/2011 01:40:29 by Animus »
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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11622 on: 12/02/2011 01:33:11 »
Quote from: daveman on 09/02/2011 11:56:04
Quote from: Vandemolen3 on 09/02/2011 11:27:47
I told my physiotherapist about my allergy's (I didn't said it is POIS). Because this brings me painfull joints.
My physiotherapist said that maybe it's wise to excersise when having this allergy's. She said that the immune is more selective when you are in motion. If I am in POIS I don't go to the gym because I have to sneeze a lot. She said that this is only in the beginning. Then tha immune system is not so strong anymore. How do you do this? Do you sport in POIS? Or not?



My joints are probably the worst affected by POIS. The rest of POIS clears up in a few days, but the joint take a good 2 wks.

I'm like Demo.... I close down in POIS as far as exercise goes, but it might not be too difficult to do flexing exercises, stuff that doesn't drain me otherwise. Could work.


My joints also hurt a lot on POIS- knees, back, and neck mainly. I was checked for arthritis and they actually did find some arthritis in my joints. Since my POIS has stopped, my joint pain has gone away too. I'll have to check if I'm still positive for arthritis though.
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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11623 on: 12/02/2011 01:38:02 »
Quote from: demografx on 09/02/2011 22:04:28
Quote from: Counterpoints on 09/02/2011 22:01:39
I was thinking back to when I got POIS....  It was just after I turned 14.  Before that I do not remember problems with orgasm.  (I could achieve orgasm at about 13).

I fainted in an airport and hit my head really hard on the floor.... and was unconscious for about 5 minutes.

I really hope this did not trigger it.  Has anyone else had similar accidents shortly before their POIS started?


I wish I could remember when POIS started! I have a 15-year "mystery gap" I'll probably never explain.

what caused you to faint?  Soon after I developed POIS I also had a loss of consciousness and fell and hit my head really hard. It was checked out, but I think there was no concussion... all the same it was very unusual.
« Last Edit: 12/02/2011 01:42:05 by Animus »
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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11624 on: 12/02/2011 03:55:57 »


Thank you for the 500th post congratulation and hooray to the forum for being the place for pois sufferers share their ideas on pois.
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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11625 on: 12/02/2011 03:59:16 »
progress i have made, i started emailing a bunch of allergist in the south and one responded and told me about an allergist called dr david ali khan who gave a presentation on POIS, i intend on calling him on monday, i couldnt find his email, and try to get more info or make an appointment.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11626 on: 12/02/2011 06:20:31 »
CC...presentation on POIS by Khan???

Please say more!!
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Offline carlitto

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11627 on: 12/02/2011 11:14:46 »
Hi guys
I have discovered this forum a short while ago. I actually stumbled into it and realized I am not the only person in this world to live with this curse. Before that I used to think that my case is normal and attributed that to a weak stamina or the like... so thank you for this forum, it really gives hope!
I read Demo's instructions on how to get a copy of Dr W's articles, sent him an email and got a reply within less than 6 hours.
I can identify with the symptoms described in the articles, except for the runny nose and the joint/back pain. I do not have those but my fatigue, brain fog and eye irritability are quite pronounced when in POIS. I am 31 btw.
I wonder if anyone of you has already done the autologous semen skinprick. I have doubts that physicians who never heard of POIS before would accept to carry out such an allergy test. Anyone tried yet?
« Last Edit: 12/02/2011 11:18:16 by carlitto »
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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11628 on: 12/02/2011 13:56:32 »
My supply of Silodosin (stops semen emmissions) has arrived. Will take for a few days and then see what happens. Should be interesting!
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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11629 on: 12/02/2011 14:57:18 »
Quote from: John21 on 12/02/2011 12:07:58
I was finally able to go over Waldinger’s reports. I am now more convinced that it could indeed be an allergic response. There has been some discussion here on how this might occur physically for us. I am wondering if the origin of POIS could lie in the method of sex. My history: I developed POIS within a short time of becoming sexually active,  I’m guessing less than two years, maybe even one. I started masturbating when I discovered that climbing a clothes line pole felt good for some reason, and came to love it and it became a habit. I then found a way to take it indoors by hanging off my bedroom door by holding on to the door handles. I did this for a while before I could even orgasm, and when I did orgasm I was utterly shocked at what came out! So I am wondering if the unnatural method put a high amount of stress on particular parts of the anatomy.

From Waldinger’s Part1:
Quote
For example, it may be argued that the specific
immune response underlying POIS symptoms is
initiated by seminal fluid after having been in
contact with the inner mucosal epithelium of the
urethra.

Could this form of masturbation have damaged the urethra repeatedly and initiated an autoimmune response?  Has anyone else experienced the onset of POIS following a change in method or intensity of masturbation or sex?


It's just my impression although I think the report eludes to this, that the surce of "the gap" can be caused by various factors, from genetic to physical damage or disease.

I think those who have had POIS from the begining, most likely had some "mild deformation" that left thin tissues or some other means for the sperm to pass, while those that developed it later could be results of eisther physical infection or disease casuing damage or some other physical damage like a fall or kick or something.

I know for instance that I fell more than a few times onto the crossbar of my bike, where I couldn't walk for several minutes, but lived 40+ years without developing POIS. But another just might de damage in just the right way to produce the effect.

I think our consensus here has been that there have been millions who have masturbated to excess without getting POIS. But then who knows.....

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11630 on: 12/02/2011 17:35:30 »
I may have said this before, but I find shaking my head vigorously in different ways helps.  Especially with brain fog, and it may cause some arterial dilation/constriction and well, which helps with my headaches for a short while.
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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11631 on: 12/02/2011 17:37:27 »
Quote from: Animus on 12/02/2011 01:38:02
Quote from: demografx on 09/02/2011 22:04:28
Quote from: Counterpoints on 09/02/2011 22:01:39
I was thinking back to when I got POIS....  It was just after I turned 14.  Before that I do not remember problems with orgasm.  (I could achieve orgasm at about 13).

I fainted in an airport and hit my head really hard on the floor.... and was unconscious for about 5 minutes.

I really hope this did not trigger it.  Has anyone else had similar accidents shortly before their POIS started?


I wish I could remember when POIS started! I have a 15-year "mystery gap" I'll probably never explain.

what caused you to faint?  Soon after I developed POIS I also had a loss of consciousness and fell and hit my head really hard. It was checked out, but I think there was no concussion... all the same it was very unusual.

I just remember being really stressed out after chronic masturbation  [;D] and coffee drinking adding that to a possible bad diet.  Than the "shift" just came in my head, almost like something had entered it, or a chemical imbalance.
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Offline monkeyboy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11632 on: 12/02/2011 17:46:34 »
I've just noticed a new side effect of pois temporary sensitivity to sound. I put my headset on this morning to listen to some music after having an O last night and on the even the lowest sound setting my ears hurt and it gave me a headache to listen to music. I am also mystified by the way pois gives you that coat of hot wax over the head feeling its such a strange side effect.
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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11633 on: 12/02/2011 18:11:46 »
Quote from: Animus on 12/02/2011 01:38:02
Quote from: demografx on 09/02/2011 22:04:28
Quote from: Counterpoints on 09/02/2011 22:01:39
I was thinking back to when I got POIS....  It was just after I turned 14.  Before that I do not remember problems with orgasm.  (I could achieve orgasm at about 13).

I fainted in an airport and hit my head really hard on the floor.... and was unconscious for about 5 minutes.

I really hope this did not trigger it.  Has anyone else had similar accidents shortly before their POIS started?


I wish I could remember when POIS started! I have a 15-year "mystery gap" I'll probably never explain.

what caused you to faint?  Soon after I developed POIS I also had a loss of consciousness and fell and hit my head really hard. It was checked out, but I think there was no concussion... all the same it was very unusual.

I had trouble popping my ears and releasing pressure.  So I held my nose and blew through it really forcefully, which probably caused some sort of vaso-vagal reaction, causing me to faint.
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Offline monkeyboy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11634 on: 12/02/2011 18:12:44 »
This could totally be pshycosomatic or something I but I just had a wierd experience. Just to the left side of my adam's apple in between the neck tendon and the apple I was feeling a strain/discomfort I pressed my finger into this spot and felt an artery beating there I applied pressure to it for about 30 seconds and began to have full body chills and felt a huge chemical release almost orgasmic in nature and my poise symptoms feel much less. Any you guys want to try this and see if you feel something I'm curious to know if I'm full of it or not lol.
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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11635 on: 12/02/2011 18:30:50 »
Quote from: monkeyboy on 12/02/2011 18:12:44
This could totally be pshycosomatic or something I but I just had a wierd experience. Just to the left side of my adam's apple in between the neck tendon and the apple I was feeling a strain/discomfort I pressed my finger into this spot and felt an artery beating there I applied pressure to it for about 30 seconds and began to have full body chills and felt a huge chemical release almost orgasmic in nature and my poise symptoms feel much less. Any you guys want to try this and see if you feel something I'm curious to know if I'm full of it or not lol.

It sure can make you light headed and faint, that's the jugular, the principal supply of blood to the brain!
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Offline monkeyboy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11636 on: 12/02/2011 18:39:14 »
 Well that disturbs me Daveman altering the blood flow to the brain had a direct effect on my pois symptoms???

Symptoms of low thyroid function include:
•Fatigue, exhaustion, feeling run down, sluggish, lethargic
•Depression, restlessness, moods swings, feelings of sadness, feelings of worthlessness
•Loss of interest in normal daily activities
•Poor concentration, poor memory
•Aches and pains
•Frequent infections
•Slow pulse and/or low blood pressure
•Dizziness, vertigo, and/or light-headedness with or without headaches

Common symptoms and signs of hyperthyroidism
-Palpitations
-Heat intolerance
-Nervousness
-Insomnia
-Breathlessness
-Increased bowel movements
-Light or absent menstrual periods
-Fatigue
-Fast heart rate
-Trembling hands
-Weight loss
-Muscle weakness
-Warm moist skin
-Hair loss
-Staring gaze

 Ok so pop quiz lol I dont know about you but my pois symptoms include every single thing on both of these lists how is it possible to have the symptoms of two thyroid diseases that are polar opposites of eachother? what would could cause the thyroid function to swing back and forth like that?
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Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11637 on: 12/02/2011 18:40:04 »
Quote from: demografx on 11/02/2011 19:51:09
Just one week from today, February 18, will be the 4th Year Anniversary of "John21"'s very first POIS post here!

FANTASTIC DEMO !!

..and ever since that time ewe have proven yourself to be the foundation of this thread !!

Others of course deserve praise also but ewe keep the ball rolling !!

WELL DONE and CONGRATULATIONS !!

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11638 on: 12/02/2011 19:23:13 »
Quote from: neilep on 12/02/2011 18:40:04
Quote from: demografx on 11/02/2011 19:51:09
Just one week from today, February 18, will be the 4th Year Anniversary of "John21"'s very first POIS post here!

FANTASTIC DEMO !!

..and ever since that time ewe have proven yourself to be the foundation of this thread !!

Others of course deserve praise also but ewe keep the ball rolling !!

WELL DONE and CONGRATULATIONS !!



ewe?  Yeah, maybe we should organize a national POIS convention and bake John a cake.
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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11639 on: 12/02/2011 19:28:09 »
Check out this website_.:

http://www.innerself.com/Health/migraine_headaches.htm

If any of you feel cranial discomfort such as post orgasmic migraines like i do then check out some of these exercises.

I just tried the So below, As above method and it actually has worked for my headaches.  I don't have the headaches and pois right now for the time being.  I exercised before this for about 30 minutes. Today is day 1 for me, just had 2  [:o]'s yesterday... come on i'm 20 years old.

Some of you said it feels good doing the hot water/cold water shower method, that is one that they explain in the site.

p.s.:  I highly don't recommend the second to last exercise  [:D]
« Last Edit: 12/02/2011 19:34:49 by GoingCrazy »
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