[Animus]

B_Daniel's pledge encouraged me to pledge as well, I will call in a modest amount to NORD for POIS-research, using my credit card.

I encourage everyone to join me and do the same for this wonderful new road we're on to cure POIS!!!

I think it's a good idea to put money together- that shows people we're serious about this. Even if it's a small donation.

[Animus]

I just made a $100 donation on the NORD website to the POIS fund! Just think, if each of us makes a $100 donation we would have $30,000! 
I don't know how this works, or what. But if we don't reach our goal what happens to the money?

[B_Daniel]

Animus - good question - this is detailed on the NORD website. 

"If the total of donated funds for research on a specific disease is less than $1,000 after two years without significant donations, the fund will be transferred to general research and related activities.
If the total of donated funds for research on a specific disease is more than $1,000 but less than $5,000 after four years, the money will be transferred to research on related diseases."

The website goes on like this, defining different hurdle amounts and specifying the length of time which the donations are valid before they are contributed to another activity.  Also, exceptions can be made if NORD sees continued donor activity for a specific disease, indicating that there is a determined effort to reach the minimum $33,500 goal.

I can't say how long it will take us, but I am very confident we will reach the $33.5K.  I just hope we meet it sooner than later!  My donation is forthcoming.

[Habibou]

How many POIS suffers subscribed to the NSF yet, exactly? It can go very fast if everybody get involved in it. Unfortunately, it seems like some suffers don't often write or read posts...
we are 76 on the new forum which is still far from the 200+ suffers.

[daveman]

Quote for emphasis, Thank you B_Daniel.

Also note, as long as we are continually puting something, which even our lovely and generous Stefanie said she would do, the fund will NOT be transfered.

We just HAVE to commit in our hearts to the $33,500, and that is not as much as it sounds for so many who suffer on a daily basis (many since puberty!!) What's more those very expired funds, can go to top of others that are seen to have desire (getting close with continual but slow progress)

Animus - good question - this is detailed on the NORD website. 

"If the total of donated funds for research on a specific disease is less than $1,000 after two years without significant donations, the fund will be transferred to general research and related activities.
If the total of donated funds for research on a specific disease is more than $1,000 but less than $5,000 after four years, the money will be transferred to research on related diseases."

The website goes on like this, defining different hurdle amounts and specifying the length of time which the donations are valid before they are contributed to another activity.  Also, exceptions can be made if NORD sees continued donor activity for a specific disease, indicating that there is a determined effort to reach the minimum $33,500 goal.

I can't say how long it will take us, but I am very confident we will reach the $33.5K.  I just hope we meet it sooner than later!  My donation is forthcoming.

[Starsky]

Is it worth to start taking Cipramil/Celexa to stop the nocturnal emissions?

[daveman]

Is it worth to start taking Cipramil/Celexa to stop the nocturnal emissions?

I tried a google search for these substances on this forum, but didn't find much. Although I never have much luck with the searches for NSF.

Anybody?

[demografx]

I took Celexa. My experience is that antidepressants can slow us down sexually, but not enough to stop NE's.

The only thing that finally stopped my NE's - and their vicious POIS episodes - was.....aging!

I call an NE POIS episode  vicious because a seemingly harmless simple nocturnal physical release for me was just as horrendously POIS-inducing - and just as long-lasting - as a real-life full-blown sexual activity!

[demografx]

Animus - good question - this is detailed on the NORD website. 

"If the total of donated funds for research on a specific disease is less than $1,000 after two years without significant donations, the fund will be transferred to general research and related activities.
If the total of donated funds for research on a specific disease is more than $1,000 but less than $5,000 after four years, the money will be transferred to research on related diseases."

The website goes on like this, defining different hurdle amounts and specifying the length of time which the donations are valid before they are contributed to another activity.  Also, exceptions can be made if NORD sees continued donor activity for a specific disease, indicating that there is a determined effort to reach the minimum $33,500 goal.

I can't say how long it will take us, but I am very confident we will reach the $33.5K.  I just hope we meet it sooner than later!   My donation is forthcoming.

B_Daniel, thank you again!!

[demografx]

I just made a $100 donation on the NORD website to the POIS fund!

Animus, thank you !!

[demografx]

Research Fund Total: $400
http://poiscenter.com/forums/index.php?topic=125.45

[B_Daniel]

Is there a way to PM every member at once?  Once we have enough money in the fund to show others how dedicated we are, we should consider a mass PM.  If not, perhaps 10 of us can each take 20-30 names and send ppl notes.  There have got to be others who'd like to contribute, but who are just unaware of our current fundraising efforts.

[demografx]

B_Daniel, here at NSF, not easily. That's why we keep posting "reminders."

PM's can be sent 5 (max) at a time. (Plus another 5 in bcc: form).

The only way we've done "PM mass-mailings" in the past is to go back through the posts and write to the most frequent posters. But even that would miss the "silent readers", many of whom are not even registered but could conceivably donate.

But I think we're getting good exposure by posting on the two forums.

Excellent idea, B_Daniel!

Any volunteers here who can compile our list?

[Vandemolen3]

So if I understand it right this is the best way to send money to NORD from outside the US:
Put dollars in an envelope and send it through the post to NORD? But there is a change that the envelope doesn't reach NORD.

[Counterpoints]

Ladies and Gentlemen,
...

Pharaoh...  I think your low testosterone could be caused by a pituitary adenoma.  I recently read a case similar to yours, where this was the cause.  Please see if you can get a contrast enhanced pituitary MRI (assuming your kidney function is good).  Have you ever had trouble with managing your weight?  This could be relevant.

I am more and more starting to think pituitary adenomas/abnormalities may be the root cause of POIS in many cases.  They can affect cortisol, testosterone, sexual function....

[Stef]

Hi Vandemolen3,

I have finally taken the giant leap and registered with this forum!

No, please don't send dollars in the mail to NORD.

You can send a Postal Money Order, which is paid for in cash at your post office. It's like a bank check. That money order is what you would mail--NOT DOLLARS.

(I can't imagine how difficult it is to be trying to translate our English into another language!)

Tomorrow (Monday) I will ask our accounting department exactly how we accept international donations.  I'll post the information that I obtain tomorrow.

As an aside, I can't believe what all of you are doing here!!! What a GREAT group!!! There is no question that you will meet your goal and finally start getting some answers about this miserable condition.

[Habibou]

I am sorry to go back to it, but I read a lot about "goji from Tibet" those last days...
I even found out I had it home, so I will give it a trial!

In the auto immune reaction hypethesis, I understand  why it helped a lot or cured :
I spent my time reading many forums about autoimmune illnesses, more or less known, and many suffers were amazed by this result. It has a huge connection with the immune reactions (T-cells + interleukines+ cytokines).
It is the most nutritive plant/fruit in the world. Many desperate cases forgotten by the normal medication way said "it was like a miracle"
The Chinese old papers (5000 years old) talked about those fruits as "god miracle" ^^

The cognitive symptoms are very reduced since in this fruit, there is a component (no found anywhere) which increase a lot the "choline" synthesis in the brain. The choline created by the brain is 5 times more efficient than those in "nootropic" which are not naturals...

In addition, the goji increase a lot the testosterone production (which help decreasing the bad immune reactions, as we all know now).

My grand mom ate that for 50 years old, she is 99 in a good shape.

It is quite expensive :s, but it is possible to have a own tree ! but natural.
I will update if I get the same results as some POIS suffers who get now "full of power".

[Counterpoints]

I have been reviewing some of the recent posts... Congratulations on all the great progress.  It would be nice to update a compendium of cases where there has been a largely successful treatment. (e.g. pyropeach and demografx).

[Pharaoh]

Ladies and Gentlemen,
...

Pharaoh...  I think your low testosterone could be caused by a pituitary adenoma.  I recently read a case similar to yours, where this was the cause.  Please see if you can get a contrast enhanced pituitary MRI (assuming your kidney function is good).  Have you ever had trouble with managing your weight?  This could be relevant.

I am more and more starting to think pituitary adenomas/abnormalities may be the root cause of POIS in many cases.  They can affect cortisol, testosterone, sexual function....

Hi Counterpoints,

I've actually considered that possibility.  My uncle suffered from a pituitary disorder, resulting in a growth deficiency and micropenis.  My mother, her two sisters, and their mother all suffered from hypothyroidism requiring surgery.  I agree with you that pituitary abnormalities maybe the root cause, as not only does it affect cortisol, testosterone, and sexual function as you correctly stated, but also dopamine.  According to wikipedia, one treatment option for pituitary adenoma is the use of dopamine agonists.  Furthermore, the symptoms of low dopamine are identical to what we experience with POIS: Depression, ADHD, Social Anxiety, and Anhedonia.  Thanks for recommending this test.  I'm going to try to have one ASAP. 

[Pharaoh]

Ladies and Gentlemen,
...

Pharaoh...  I think your low testosterone could be caused by a pituitary adenoma.  I recently read a case similar to yours, where this was the cause.  Please see if you can get a contrast enhanced pituitary MRI (assuming your kidney function is good).  Have you ever had trouble with managing your weight?  This could be relevant.

I am more and more starting to think pituitary adenomas/abnormalities may be the root cause of POIS in many cases.  They can affect cortisol, testosterone, sexual function....

Hi Counterpoints,

I've actually considered that possibility.  My uncle suffered from a pituitary disorder, resulting in a growth deficiency and micropenis.  My mother, her two sisters, and their mother all suffered from hypothyroidism requiring surgery.  I agree with you that pituitary abnormalities maybe the root cause, as not only does it affect cortisol, testosterone, and sexual function as you correctly stated, but also dopamine.  According to wikipedia, one treatment option for pituitary adenoma is the use of dopamine agonists.  Furthermore, the symptoms of low dopamine are identical to what we experience with POIS: Depression, ADHD, Social Anxiety, and Anhedonia.  Thanks for recommending this test.  I'm going to try to have one ASAP. 

I forgot to mention that my brother has an autoimmune disorder requiring he take prednisone.  He's had serious problems with his weight, as have I.  My weight fluctuates dramatically, and I constantly receive comments about it.     Btw, could you kindly forward me more info about the case you read?  Thanks.