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I have finally taken the giant leap and registered with this forum!
Quote from: nordnurse on 06/06/2011 00:28:35I have finally taken the giant leap and registered with this forum!Yayyyy! Welcome Stefanie!
Hi Vandemolen3,I have finally taken the giant leap and registered with this forum!No, please don't send dollars in the mail to NORD. You can send a Postal Money Order, which is paid for in cash at your post office. It's like a bank check. That money order is what you would mail--NOT DOLLARS.(I can't imagine how difficult it is to be trying to translate our English into another language!)Tomorrow (Monday) I will ask our accounting department exactly how we accept international donations. I'll post the information that I obtain tomorrow. As an aside, I can't believe what all of you are doing here!!! What a GREAT group!!! There is no question that you will meet your goal and finally start getting some answers about this miserable condition.
My uncle suffered from a pituitary disorder, resulting in.... micropenis.
Is there a way to PM every member at once? Once we have enough money in the fund to show others how dedicated we are, we should consider a mass PM. If not, perhaps 10 of us can each take 20-30 names and send ppl notes. There have got to be others who'd like to contribute, but who are just unaware of our current fundraising efforts.
QuoteMy uncle suffered from a pituitary disorder, resulting in.... micropenis.He actually told the whole family ..[]... fair play to him... []
Quote from: B_Daniel on 05/06/2011 21:13:58Is there a way to PM every member at once? Once we have enough money in the fund to show others how dedicated we are, we should consider a mass PM. If not, perhaps 10 of us can each take 20-30 names and send ppl notes. There have got to be others who'd like to contribute, but who are just unaware of our current fundraising efforts.I think there's a mass mailer on the SMF forum, there's one on NSF too but if it was within our reach it would send EMails to ALL NSF members, most of which do not even know about our thread.We can reach those 77 at least. (Although I've never tried it.... but there's always a first time)
I would be happy to donate $100 to begin with once the international donation page is up.
I will try in about a few days at the post office [to send in a NORD-POIS donation]. Thanks.
Quote from: Counterpoints on 06/06/2011 00:25:49Quote from: Pharaoh on 29/05/2011 04:09:49Ladies and Gentlemen,...Pharaoh... I think your low testosterone could be caused by a pituitary adenoma. I recently read a case similar to yours, where this was the cause. Please see if you can get a contrast enhanced pituitary MRI (assuming your kidney function is good). Have you ever had trouble with managing your weight? This could be relevant.I am more and more starting to think pituitary adenomas/abnormalities may be the root cause of POIS in many cases. They can affect cortisol, testosterone, sexual function....Hi Counterpoints,I've actually considered that possibility. My uncle suffered from a pituitary disorder, resulting in a growth deficiency and micropenis. My mother, her two sisters, and their mother all suffered from hypothyroidism requiring surgery. I agree with you that pituitary abnormalities maybe the root cause, as not only does it affect cortisol, testosterone, and sexual function as you correctly stated, but also dopamine. According to wikipedia, one treatment option for pituitary adenoma is the use of dopamine agonists. Furthermore, the symptoms of low dopamine are identical to what we experience with POIS: Depression, ADHD, Social Anxiety, and Anhedonia. Thanks for recommending this test. I'm going to try to have one ASAP.
Quote from: Pharaoh on 29/05/2011 04:09:49Ladies and Gentlemen,...Pharaoh... I think your low testosterone could be caused by a pituitary adenoma. I recently read a case similar to yours, where this was the cause. Please see if you can get a contrast enhanced pituitary MRI (assuming your kidney function is good). Have you ever had trouble with managing your weight? This could be relevant.I am more and more starting to think pituitary adenomas/abnormalities may be the root cause of POIS in many cases. They can affect cortisol, testosterone, sexual function....
Ladies and Gentlemen,...
Just sent my first $100 to the fund. I intend to add at least $900 more to equal my original pledge of $1000 if it looks like we can get enough participation.
Come on everyone! Let's get this [NORD] thing cranked up and beat this ghastly thing we call POIS!!http://rarediseases.org/about/support/research-donations/fg_base_view_p3