[demografx]

Hi everyone,

I'm really just curious. Given than Waldinger has effectively found a 'Treatment' for POIS, i.e. Allergy Injections.
Why are we not all rushing out to our local Dr's and Allergists shoving the Waldinger Papers in their faces and saying 'now stick me with my Semen!'

Is there something I am missing here? The papers have certainly given me the courage now to talk to my GP and ask for a referal to an allergist..


P.S - I myself are still trying all sorts of Alternative..treatments, Apple Cider Vinegar, Garlic Pills, Ginko Biloba...Nothing seems to be giving me the 'relief' I'm looking for though..

His theory is only one, and not yet firmly proven. The purpose of the NORD research we are undertaking is aimed at exploring ALL possibilities that we have discussed here since 2007.

Hi Demo. Agree, but correct me if I am wrong but to me his seems the most promising at this point in time - With definitely two successful treated cases in his paper - and hopefully a lot more in the second round of trials..

I'm certainly going to try this route if this is at all possible, I was just wondering why (More) others have not (that is others that aren't already trying experimenting with different theories like yourself)?

       
jivetalk, it IS promising. I would donate my right arm if this could work without doubt!

But some of us are very concerned (mentioned in the papers) that no controls (non-POISers) were studied!

Further, there is concern that these patients studied were perhaps not PRIMARILY there for POIS treatment - but possibly for premature ejaculation (too many cases - including the 2 patients who were the entire basis of the 2002 study - and the autoimmune-theory-launching-pad for future study - were/are PE patients for my comfort level).

We know NOTHING about the 2 "successes", 1 of which is completely premature to conclude "success" even if we had the POIS progress report.

And perhaps most important, I think too many of us are so desperate for a cure that just  thinking of 5 years of injections prompts us to seek alternatives. Urgently.

Not to mention the impracticality of the $cost (doubtful if insurance covers) and time required.

Weekly flights to Europe for 5 years???

And to find that MAYBE it works after all that???




This is NOT to invalidate the "autoimmune" theory. We have already begun looking into finding local non-European medical personnel and also "rapid desensitization". And there may POSSIBLY be other ways to tackle autoimmune besides autologous semen injections.

These are elements that can possibly be studied in-depth, with cutting edge state-of-the-art medical science by our NORD Research Grant!!

[CertainlyPOIS]

jivetalk adding to demografxs post, i think most people have tried to talk to doctors with no good response. Most of the doctors saying one article is not good enough and they don agree with dr waldinger. In the US the one that kinda agree say, it is not fda approved so they can do it. I personally have contacted above 10 doctors, two of them with semen allergy experience and no one helped. I think On the forum people are talking about things that are helping, but in the background they are searching for doctors to no avail. 
Personally i will say start trying some of the things we have discussed at your on caution of course, while looking for a doctor, it might take a while for you to find a doctor.

[demografx]

jivetalk adding to demografxs post, i think most people have tried to talk to doctors with no good response. Most of the doctors saying one article is not good enough and they don agree with dr waldinger. In the US the one that kinda agree say, it is not fda approved so they can do it. I personally have contacted above 10 doctors, two of them with semen allergy experience and no one helped. I think On the forum people are talking about things that are helping, but in the background they are searching for doctors to no avail. 
Personally i will say start trying some of the things we have discussed at your on caution of course, while looking for a doctor, it might take a while for you to find a doctor.

CC, thanks for pointing that out!

[demografx]

For all our new visitors and friends!

We started a POIS Research Fund to boost our attack on The POIS Monster! Explained here:
http://poiscenter.com/forums/index.php?topic=125.0

We raised $2,150 in just the first 2 weeks, with much more pledged!

And your POIS fund donation is most welcome here:
http://rarediseases.org/about/support/research-donations

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php

Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

[gabin]

Does anyone have some deviations on brain MRI scans?
I had hydrocephalus in moderate form recently discovered. And also disk protrusions (or bulges) in the cervical spine.

[demografx]

Does anyone have some deviations on brain MRI scans?
I had hydrocephalus in moderate form recently discovered. And also disk protrusions (or bulges) in the cervical spine.

gabin, my brain MRI (pituitary) revealed a "partially empty sella".

Good question.

[demografx]

Research Fund Total: $2,385.00


Please read about it at: http://poiscenter.com/forums/index.php?PHPSESSID=97a0a767229bfcd7b6822ec05c6c0160&topic=125.0

Then help yourself! by donating here: http://www.rarediseases.org/about/support/research-donations/fg_base_view_p3


Thank you very, very much, everyone!!

[pois_chile]

Ohh!!! At last a logical explanation about this horrible illnes. Hi, I suffer POIS since 15 years old. Now im 32 and I have had a devastating sexual life. I have many reasons to think, like another persons says, it is an Adrenals Glands imbalance, cause I sufer Chronicle Fatigue Syndrome at the time. I'm sure that there are many case like me which the two syndromes coexist at the same time. Is There somebody happen the same like me? Thanks PERSON2202 for your valued information on Youtube. My question is what do you can recommend me, what Treatment, to relieve my terrible situation. I'm really desperate, thanks you so much.

[pois_chile]

For my own experience I am sure as POIS as Chronic Fatigue Syndrome are narrowly related. Bouth response to an Adrenal Gland imbalance. What do you think?

[jivetalk]

jivetalk adding to demografxs post, i think most people have tried to talk to doctors with no good response. Most of the doctors saying one article is not good enough and they don agree with dr waldinger. In the US the one that kinda agree say, it is not fda approved so they can do it. I personally have contacted above 10 doctors, two of them with semen allergy experience and no one helped. I think On the forum people are talking about things that are helping, but in the background they are searching for doctors to no avail. 
Personally i will say start trying some of the things we have discussed at your on caution of course, while looking for a doctor, it might take a while for you to find a doctor.

CC, thanks for pointing that out!

Demo & CConfucious - Thank you Gents for answering my question so thoroughly.

Completely agree with everything stated, I just didn't realise it was such an uphill battle, even with the papers.
I have tried a number of things which hasn't seem to help much - so yes - I too am desperate for a solution.

Will let you know if/when I can find a doctor.....

[jivetalk]

Hahahaha....I like this - Thought I'd share it.

"Not only is the syndrome not well-known, but many men may feel embarrassed. They shouldn't! Rather, they should just think positive: maybe their semen is just extra-powerful."

From an Internet Report on POIS.
http://jezebel.com/5736771/post+orgasm-illness-sounds-awful

So Guys. We've just got Extra Strong Semen! Problem Solved.

[horizon]

The conversation in the comments is funny...

[demografx]

Hahahaha....I like this - Thought I'd share it.

"Not only is the syndrome not well-known, but many men may feel embarrassed. They shouldn't! Rather, they should just think positive: maybe their semen is just extra-powerful."

From an Internet Report on POIS.
http://jezebel.com/5736771/post+orgasm-illness-sounds-awful

So Guys. We've just got Extra Strong Semen! Problem Solved.

jivetalk, let's get out there and sell "Jivetalk's Secret-Formula Semen Thinner®"

We'll make a fortune! []

[demografx]

jivetalk adding to demografxs post, i think most people have tried to talk to doctors with no good response. Most of the doctors saying one article is not good enough and they don agree with dr waldinger. In the US the one that kinda agree say, it is not fda approved so they can do it. I personally have contacted above 10 doctors, two of them with semen allergy experience and no one helped. I think On the forum people are talking about things that are helping, but in the background they are searching for doctors to no avail. 
Personally i will say start trying some of the things we have discussed at your on caution of course, while looking for a doctor, it might take a while for you to find a doctor.

CC, thanks for pointing that out!

Demo & CConfucious - Thank you Gents for answering my question so thoroughly.

Completely agree with everything stated, I just didn't realise it was such an uphill battle, even with the papers.
I have tried a number of things which hasn't seem to help much - so yes - I too am desperate for a solution.

Will let you know if/when I can find a doctor.....

The papers are VERY useful!! I used the 2002 paper (co-authored by an endocrinologist, which I pointed out to MY endocrinologist) to find a POIS treatment (testosterone) for me that ultimately WORKED!

The papers show credibility for our disorder, REGARDLESS of our final choice of treatment-attack!

[Mutant Man]

Why I'm I only finding out about this forum eight years after my introduction to this cursed illness. Not just that but also realising that insufficient medical advances have been set in motion, regarding the treatment of this disease. I implore you all, can anyone please provided me with a detailed, up-to-date package of the most effective approaches proposed by either forum members, medical practitioners or research institutions, most considerable for attacking this disease? The forum is almost 600 page long and as such, I am almost incapable of reading it from page 1. I just need an overview from a dedicated visitor who has been in constant interaction with this page to help me out. Thank you.

[horizon]

Interesting Testosterone videos

[pyropeach]

Why I'm I only finding out about this forum eight years after my introduction to this cursed illness. Not just that but also realising that insufficient medical advances have been set in motion, regarding the treatment of this disease. I implore you all, can anyone please provided me with a detailed, up-to-date package of the most effective approaches proposed by either forum members, medical practitioners or research institutions, most considerable for attacking this disease? The forum is almost 600 page long and as such, I am almost incapable of reading it from page 1. I just need an overview from a dedicated visitor who has been in constant interaction with this page to help me out. Thank you.

Check the compendium on the website, that is exactly what its for.

[Mer]

I am getting wet dreams just because I`m afraid of getting one.. How to deal with this situation?

[demografx]

I am getting wet dreams just because I`m afraid of getting one.. How to deal with this situation?

POIS Forum search for "wet dream nocturnal emmission" (153 results):

http://www.google.com/search?q=wet+dream+nocturnal+emission+POIS+site:http://thenakedscientists.com&ie=UTF-8&oe=UTF-8&hl=en&client=safari

POIS Forum search for "nocturnal emission" (1,710 results):
http://www.google.com/search?q=wet+dream+nocturnal+emission+POIS+site:http://thenakedscientists.com&ie=UTF-8&oe=UTF-8&hl=en&client=safari#sclient=psy&hl=en&client=safari&source=hp&q=nocturnal+emission+POIS+site:http%3A%2F%2Fthenakedscientists.com&aq=f&aqi=&aql=&oq=&pbx=1&bav=on.2,or.r_gc.r_pw.&fp=c924775ad1dac27b&biw=1067&bih=398

[demografx]